Hi Keri, There is just something linked between sleep and seizures.
It is amazing how common the early morning wake up seizures are. I
don't have any advice for you. My son used to have morning seizures
and he doesn't anymore. I think things just changed as he grew.
Hopefully the diet will help Taylor.
Jana
--- In ketokids@yahoogroups.com, "Keri Bitman" <sbitman@t...> wrote:
> Hi-I am fairly new to the group. here is a quick run down. My
> daughter
> Taylor is 2 1/2, uncontrolled LGS for 2 years this Oct.
(previously
> has
> IS-ACTH helped). We have tried 7 meds and are going to start the
> keto diet
> Oct 6th. Currently Taylor gets Depakot & Topamax. Here is my
> question: She
> wakes up around 8:30, and for the first 1 1/2 to 2 hours she has
> back to
> back clusters (she has mostly atonic &myclonic seizures in 3-5min
> clusters). After that she is really good for most of the day. She
> will
> have other clusters at various times, but she is always worst in the
> morning. I have tried giving her meds really late at night, and
> right when
> she rolls out of bed. Any suggestions?
> Thanks Keri (taylor 2 1/2 LGS, Depakot & topamax)