Hi-I am fairly new to the group. here is a quick run down. My
daughter
Taylor is 2 1/2, uncontrolled LGS for 2 years this Oct. (previously
has
IS-ACTH helped). We have tried 7 meds and are going to start the
keto diet
Oct 6th. Currently Taylor gets Depakot & Topamax. Here is my
question: She
wakes up around 8:30, and for the first 1 1/2 to 2 hours she has
back to
back clusters (she has mostly atonic &myclonic seizures in 3-5min
clusters). After that she is really good for most of the day. She
will
have other clusters at various times, but she is always worst in the
morning. I have tried giving her meds really late at night, and
right when
she rolls out of bed. Any suggestions?
Thanks Keri (taylor 2 1/2 LGS, Depakot & topamax)