Jaime- my daughter is 2 1/2 she also had IS, but luckily ACTH cleared that up
for 2 mos. Now she has LGS. We have tried seven diefferent medaications. We are
going to start the diet Oct 6th (I want to sooner), My experience is that some
of the meds that we tried (Klonopin & Gabitril) made her aggresive & turned her
into a zombie. They were a main contributing factor in slowing her developement.
Other meds she was allergic to or they just had no effect. I am kicking myself
now for not starting the diet 8 mos ago when we first considered it. I don't
know hard core statistics, but I bleieve that when meds aren't helping the diet
has a greater chance of helping. Good luck, let me know if you are going to
start, we might be doing it around the same time.
----- Original Message -----
From: jaimelackey
To: ketokids@yahoogroups.com
Sent: Thursday, August 07, 2003 1:38 AM
Subject: [Keto Kids] new to group, need help!!!


Hi my name is jaime and my 18 month old was diag. with infantile
spasm in may. we have tried acth and depakote with no success. now i
am deciding whether to go to topamax or do the diet against my neuros
advice. he wants to tyr more meds. i think i just want to know..
how long to they have to starve at the beginning of the diet.
do all babies throw up for a week.
what foods are involved
and how many meds are a good amount to just say stop with the meds
and try the diet.i dont want to jump too fast.
any advice and experiences would be greatly appreciated! thanks to
all and good luck! jaime



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