Tammy,
Why don't you join the "ketogenic" list at yahoo groups as well? There are
lots of families that have been in the same position as you have. There's a
lot more traffic on that site also. As far as the keto diet goes, I don't
see that you have any other choice but to try. Send your story to the
ketogenic list and I'm sure you'll get some great ideas.
ashley
mom to Alex, age 5 former keto kid

----------
From: "Tammy Taylor" <twoboys4@...>
To: ketokids@yahoogroups.com
Subject: [Keto Kids] New Member
Date: Tue, Jul 1122, 1220032002, 111:22 AM


Hi,
My name is Tammy and I have a son who is 7yrs old....with Severe Intractable
Epilepsy.
There is no more medications to try.... and he is not a canidate for
surgery.... and 3 months ago had the VNS implant put in.....with no
improvement so far.
The doctors before wanting to do the implant.... suggested that we try the
Keto Diet.... but after all the testing was completed on Trey....and we
found out that he suffers from a multiple birth defects syndrome... mild
mental retardation.. and CP.
The doctors felt that Trey would not do well on the diet.....because it
would be too hard for him to understand the importance of the diet.... I did
agree.... He has a twin brother... who would be able to eat anything...and
then there would be Trey who couldnt.... Trey also sufffers due to the brain
dammage....suddden unexpected outburst..... He gets so angry at the least
little things.... and will hit, throw and yell....The doctors felt...and we
did get a second opinion.... that the diet... would be too hard for Trey to
understand and stay on.....There would be no way I could make him eat what
he didnt want tooo... and that is the part that scares me....He also suffers
from a Asthma, and a upper respitory disorder..... so there are times he
gets very sick....and will not eat or drink anything....
So I really dont know which way to turn.... I am stuck... wanting to help my
son....but just dont know if forcing the diet on him....is the answer
either......Please Please.....let me know what you think.....
Its sad to only be 7yrs old.....and have nothing else left to do to help
stop the seizures......
He has 6 different kinds of seizures.... he has several a day.....
Thanks for taking time to read my letter....... Tammy

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