Susan,
Hi, I am Rose Homuth. I have two sons. One that is 28 and one that is 14.
Both have siezure disorders. The oldest has the vns, and the younger is on
the ketogenic diet. Both have improved greatly . Both boys have had seizures
since infancy. The older Rick is mentally and physically disabled.
He had seizures daily that lasted 45min. Now he is having maybe one a week and
last 1 to 10 min. He still has to have diastat when they last loner than five
min. It has been a heaven sent for us.
The younger, Brady, has been on the ketogenic diet for almost a year. It
has been an experience. Its took alot to getting use to. The school has been
great about helping out. Now his only seizures are when he is sick.
Ear infection, sinus infection. I think he has had 8 seizures since the start of
the diet. I would recommend eihter of these choices.
If you would like to discuss further just write.
Rose
"susancarter2 <
susancarter2@...>" <
susancarter2@...> wrote:
>hi everyone, i am new here. my name is susan, i have a 13 year old
>son with epilepsy. i have been researcing alternative treatments
>because he is not responding to his meds very well. the two i have
>learned most about are VNS and the diet. what you know about these
>two. so far i have been very encouraged with what i have learned
>about the VNS. i just want to gather as much info as possible so i
>can get the best treatment for my son. if you have any information
>that you think could be helpful, please let me know about it. i look
>foreward to talking with you all.
>
>susan
>
>
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