Hi there. Sorry to hear that things aren't well with your son. My
daughter has been on the diet for 2 years. I always thought panting
was a sign of being too ketotic, but if his ketones are lower than I'm
not so sure? We just put Ciara on Klonipin for 5 days to cover her
during a viral illness/fever and the pediatrician cautioned that when
we stop Klonipin it may cause a seizure. Each child with Dravet
reacts differently to things, do you end up calling the dr?


--- In ketokids@yahoogroups.com, "katraske1" <katraske1@...> wrote:
>
> My son has been on the ketogenic diet for 2 1/2 years and it has worked
> well. He has had increased seizures since we started weaning the
> klonopin and put him on kepra. But today his breath smells like
> pineapple? He has lower ketones (40) and has been having panting
> episodes....but we're not sure if they are seizures or just
> exhaustion. anyone have any ideas? I hate to call the doc on Sat.
> they will tell us go to the ER!!!
>