My name is Tiffany I am a SHAM mom of 3 boys (one of them on the way)
My oldest son Monty just turned 4 years old today. He was dx with
Infantile Spasms at the age of 4 months old. We have tryed 15 diffrent
medications and nothing has helped to control the spasms. His spasms
are not changing into Generlized Tonic seizures that we still cannot
control. Monty also has a feeding tube, Cortical Visual Imparment and
Quadraplic CP. We have tryed the Keto diet in the past but he reacted
badly to it and the Neurologist had us stop after 2 weeks on the diet.
We just restarted the today. They are letting us start it here at home
since he gets Keto Cal formula and they gave me a stict program to
follow.

Does anyone have any advise for me? I am nervious about him being on
this diet. Thank you

Tiffany