Hi everybody I have been following this message board for about a month and am just now getting the time to post. My 15-year old son had his first surgery on...
Sandra, My daughter had her colectomy and J-Pouch surgery at age 12, three years ago. She had her takedown surgery 4 months later. She has been doing very...
Hello Ernie, As a long time member of this site I've come to know what a caring, giving & generous man you are and your lovely Dorothy as well. I realize how...
Hi Arnold, I'm 4 years post takedown & what you're describing is perfectly normal. Your pouch is just waking up & needs to go through a process of adjustment...
Hi Cyn, I do appreciate your message. I understand what you are saying & this has turned out to be not what it was supposed to. But, praise God, it is ...
Ernie Jones
ejonessr@...
Aug 2, 2004 5:32 pm
7487
Hi Sandra, First, welcome to this list! Many people can share a lot with you. Did the surgeon say why your son was having bowel movements since everything is...
Ernie Jones
ejonessr@...
Aug 2, 2004 5:35 pm
7488
You are right Ernie , there is always hope. My boss is really sad about this situation and has given me all the time allowed under these circumstances and law...
Anne I'm glad to hear that your daughter is doing well. The day before my son's surgery, the surgeon came in to talk to us and asked us if we had any...
Hi Dorine, Well, I will keep you in my prayers. So often we do not know "why" & not knowing is hard. But hang on! I hope you can get SSI if you do have to ...
Ernie Jones
ejonessr@...
Aug 3, 2004 3:47 am
7491
Hi Ernie You know I have been taking this metamucil for a few weeks now and the last week or so i get horrible bloating pain after a few hours of taking...
Sandra, Wish we had had a picture of Katie's colon taken. The surgeon told us that there were several areas where the colitis had almost gone through to the...
Hi Rob I don't usually take it after meals due to constipation , I take it without food but you could be right it does cause more pain without food..maybe..ill...
here is my e-mail. sorry it has taken so long to get back to u, but i had foot surgery a month ago tomorrow. i am now getting back on my feet. i go get my cast...
Stephanie I only take Metamucil on rare occasions! I do & I know of others who get this bloating & much more gas with Metamucil! This is why I do not take it...
Ernie Jones
ejonessr@...
Aug 3, 2004 6:07 pm
7497
Tammy, Hope your foot is healing fine! It will be nice to have the cast off! Blessings, Ernie ... From: "T B" <mustangselhs@...> To:...
Ernie Jones
ejonessr@...
Aug 3, 2004 7:31 pm
7498
Hi all, Just to say we have our house back now! Just us again! The stress should drop now I hope. Blessings, Ernie...
Ernie Jones
ejonessr@...
Aug 4, 2004 2:25 am
7499
Well, I have returned from the Drs. and will now be giving myself B12 shots. Have tried the sublinguel without success. was wondering if anyone else does...
Hi Sheri, I'm supposing you had bloodwork come back that said you were low in B & they're trying to build your blood up. How long were you on the sublingual?...
on this sight is it just for people that have a jpouch? do some people have FAP(familial polyposis) this is what i have. do some people on this sight know for...
Tammy, there are several on this list who have FAP, including me! I welcome you to the list. Please just ask us anything you want. We are here for you. I am...
Ernie Jones
ejonessr@...
Aug 4, 2004 7:31 pm
7503
Hi Tammy I have FAP. I had total colectomy in 1988 due to FAP. I had no pain just blood in the stool were the signs. I had over thirty throughout my colon and...
Hi Stephaine in found out i had FAP in 1989, i also had blood in my stool. i was in Germany with my hubby. i went to see a civilian doctor on base. he told me...
Hi Tammy I know how you feel about finding your birth family.. My father took on the last name of his brothers father and so i really have a different last...
Hi Ernie boy i am finding out new things today. i thought all this time i would not find any one with FAP. u never hear of this FAP. how long have u had FAP?...
in the past couple of yrs, doctors have told me not to worry about the polyps as long as the polyps stay small. so far they have. but see the thing is i have 2...
Hi Tammy, I am not sure about your FAP & if some is carried by male or female but mine came from my father. Both he & one uncle had fap, both colon cancer...
Ernie Jones
ejonessr@...
Aug 5, 2004 7:05 pm
7509
Hi Tammy, First, about this site, I am not sure. I joined it I think about 2 years ago. I also write frequently to the list owner. I only wished I had known...
Ernie Jones
ejonessr@...
Aug 5, 2004 7:24 pm
7510
Hi Tammy my name is Dorine, I do not have FAP but have come to realize by reading the messages on this site how dangerous and scary it must be to live with...
Sherie, I have been trying the B12 from the health food store and does'nt seeem to be doing anything. Did you take another blood test to find out you have a...
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