Ernie, reading about Hellion - amazing, just amazing. xoxcheryl [Non-text portions of this message have been removed]...
meancheryljean@...
May 1, 2004 10:18 pm
6812
Ernie, I tried to e-mail Bob and got mail returned, so Bob if you're out there give a yell. Cheryl [Non-text portions of this message have been removed]...
meancheryljean@...
May 1, 2004 10:22 pm
6813
Hi Debber, this burning occurrs especially after I take certain pills, but this has never bothered me before. I don't take pain pills, I'm on the duragesic...
meancheryljean@...
May 1, 2004 10:39 pm
6814
Hi Jolene, sorry to hear about the problems you are experiencing. Its like ' "can't I get a break after all I've been through already"!!!! Wonder if its some...
meancheryljean@...
May 1, 2004 10:53 pm
6815
Hi Cheryl Yes I thought that article about training monkeys for helpers was good! Hope you are doing better today/ this week end! I am doing okay but sure had...
Ernie Jones
ejonessr@...
May 2, 2004 2:41 am
6816
Thanks Cheryl, I miss hearing from him. Hopefully he is doing great & just busy! May we still hear from him. Ernie ... From: <meancheryljean@...> To:...
Ernie Jones
ejonessr@...
May 2, 2004 2:41 am
6817
Enjoy planting in the garden Ernie, we are still having the never-ending rain storms here in New Jersey. April showers better have brought plenty of May ...
meancheryljean@...
May 4, 2004 1:54 am
6818
Hi Cheryl, Well at least I left the surgeon's office feeling better, more relieved! We had a good talk & he listened to me & answered my questions. I...
Ernie Jones
ejonessr@...
May 4, 2004 3:05 am
6819
I am new to group, my daughter has had colitis since August of last year and can not seem to get it under control(remission). She is on prednisone, asacol,...
Hi, & welcome to this list. I know of one lady who started on this following enzyme, a type of probiotica & in a few weeks was able to get off all other...
Ernie Jones
ejonessr@...
May 4, 2004 8:00 pm
6821
Hi there, I had tried the AMP Molocure solution and this did not stop my UC, I still have some tablets left over and don't know what the shelf life is, I know...
Hi there! Hope this helps, I had severe UC for 2-3 years before I had surgury, I opted for the J-Pouch so I could get back to a life of sports and out door...
I had my regular ileostomy for 18 years before getting the jpouch, so I feel I can give you a pretty good answer. With the pouch you will be able to empty it...
nilesjsiegel@...
May 5, 2004 3:22 pm
6826
Hi, I can give my thoughts & hopefully others will also respond. I did not have UC but my pouch was because of FAP. But the results are the same. I know ...
Ernie Jones
ejonessr@...
May 5, 2004 4:38 pm
6827
Hey my name is Jenn and I am 22 years old ... when I was 18 years old I found out I had UC and 3 months later I had emergency surgery and was left with the ...
Either one of these surgeries are better than living the nightmare of ulcerative colitis.- I had trouble dealing with the bag, it never fit right, always ...
meancheryljean@...
May 6, 2004 12:32 am
6829
Welcome Jenn, Good to hear from you & you offer great help to ones considering the Jpouch surgery. It is always good to hear from those having little trouble....
Ernie Jones
ejonessr@...
May 6, 2004 3:29 am
6830
Thanks for replying to my post. These tips were some of the things I have heard people say (1) Don't let them position the stoma on the belt line or above it. ...
Hi, Yes, the decision can be difficult. Sounds like you are getting some good ideas in the process. I had a stoma nurse when I came home but had to go to the...
Ernie Jones
ejonessr@...
May 6, 2004 6:00 pm
6832
Hello, I am new to the group, I just read about your 15 year old daughter considering J Pouch. I can truley empathize with her not wanting the surgery. I was...
Welcome, Chrissie You can be a great encouragement here. Glad you found the list. Ernie ... From: "chrissie Johnson" <northernexplorers@...> To:...
Ernie Jones
ejonessr@...
May 6, 2004 6:44 pm
6834
Hi everyone. I thought I should give a quick update. I have been back to see the endocrinologist to have my blood work rechecked to see if my cortisol level...
Hi Stephanie and everyone, I'm glad to hear that you are getting some results coming up Stephanie ,it's been so long. Praying for you always. I got out of the...
Hi Stephi, I have been wondering how you were for it has been a long time. Hang on there, it must get better. But that weight loss is not good. Come up & I ...
Ernie Jones
ejonessr@...
May 7, 2004 7:21 pm
6837
Hi Dorine, So good to hear from you. You be good & take it easy for awhile. Sounds like you had a full open abdominal surgery but so thankful the results...
Ernie Jones
ejonessr@...
May 7, 2004 7:27 pm
6838
Dorine, I am so glad to hear u are feeling better and that the source of your problem was found and resolved. Now, you can really work on healing and getting...
meancheryljean@...
May 8, 2004 12:33 am
6839
Hi Steph, good to hear from you. After this surgery you had better become the Bon-Bon couch queen and let everyone cater to you!!! Enjoy your mother's day...
meancheryljean@...
May 8, 2004 12:36 am
6840
Hi, I am new to your group, I have been reading on line for about a year. I don't have the jpouch but I do have a direct connect which is similar. Ernie, I...
Hi Susan! Welcome to the group. You are so right this group of people is the best. Just wanted to hi to you and welcome you. I hope you have a wonderful...
Hi Susan, How much colon do you have left? I did fine with only 6 inches for 20 years. Only had to have the pouch after my FAP really flared up & the ...
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