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#23484 From: "gazbow27" <gazbow27@...>
Date: Sat Nov 28, 2009 3:48 am
Subject: Swine Flu Survival Guide - TUESDAY 8TH DECEMBER, 2009 DOORS OPEN 7:30PM
gazbow27
Offline Offline
Send Email Send Email
 
The Only Swine Flu Survival Guide You'll Ever Need -  A Presentation by ANTHONY
BECKETT


TUESDAY 8TH DECEMBER, 2009 DOORS OPEN 7:30PM


(UPSTAIRS)THE SHIP & MITRE
133 DALE STREET
LIVERPOOL L2 2JH

£3.00 ADMITTANCE



An outbreak of influenza occurred in Mexico during March and April 09. By the
time it spread to the United States and Europe, the virus was found to cause
only mild cases of a flu-like illness. Despite predictions of massive numbers of
deaths, the virus remained a relatively mild disease, similar to what we would
expect from a seasonal flu epidemic.

Yet almost immediately, and in a mist of media frenzy the World Health
Organisation (WHO) raised the pandemic level to the highest level 6: `widespread
human infection'. However, WHO began encouraging governments to report figures
without testing for the disease in patients while they planned the stockpiling
of anti-viral drugs and compulsory vaccinations.

Vaccination programs are controversial at best and with the Swine Flu being
hyped so heavily by the mainstream media the real threat to the populations may
end up being from the solution to the media-hyped problem. It is apparent that
the mass vaccination program will be the vaccine safety study for those
vaccines. A risky approach to healthcare a best. And now media reports suggest
that the virus has mutated and is becoming a more serious threat.

This has all the hallmarks of a psychological operation. But an operation drive
by WHO?

Corporate bioterrorism? The NWO depopulation agenda? Or simply a legitimate
reaction to natural pandemic cycles?

The question you should be asking yourself is this: do you put blind faith in
the corporations who "screw up" time and time again and profit every inch of the
way?

Your life and the lives of your loved ones may be at stake.


Anthony Beckett

Anthony Beckett was born in 1975 in West Yorkshire and lives near Skipton. He
studied Chemistry at Loughborough University and graduated in 1997. Continuing
his studies with a M.Sc. in Analytical Chemistry from the University of
Huddersfield in 1998 he went on to work in the Pharmaceutical Industry as a
Analytical Scientist until 2006. He quit the industry in that year after slowly
waking up to the reality of the negative impact the pharmaceutical industry has
on peoples health and society.

He is now a Web Designer and Programmer and continues to research the areas of
Exopolitcs, New Energy Technologies (Zero Point Energy), Suppression of
information by Space Agencies and various other subjects. He, along with
co-activists in the Whole Truth Coalition, organise events, lectures and
speaking tours around the UK and he worked on researcher David Ickes 2008
election campaign in a By-Election in the East Riding of Yorkshire. Anthony has
also given lectures on Mars Exploration, Hyper-dimensional Physics and the link
between Theoretical Physics and Spirituality.

Anthony runs the truthforum.co.uk with other Leeds based activists. His personal
website is www.anthonybeckett.com


http://www.beyondknowledgeseminars.com/index.html

#23482 From: "Ernest Jones" <theolcrow@...>
Date: Sun Nov 22, 2009 1:40 am
Subject: Re: [J-Pouch Support] Pouchitis and fistula
theolcrow@...
Send Email Send Email
 
Hello,
Sorry you are having so much discomfort.  I wonder if your doctor has
thought of long term antibiotics.  Some folk with the Jpouch have been on
Cipro for near a year and then slowly tapering off and did fine after that.
Just a crazy thought maybe.
Sure hope you get a cure as I understand your frustration and discomfort but
do wonder if long time Cipro may be a great help.
Blessings,.
Ernie
----- Original Message -----
From: "mohammadalnajjar@..." <no_reply@yahoogroups.com>
To: <jpouchsupport@yahoogroups.com>
Sent: Saturday, November 21, 2009 2:57 AM
Subject: [J-Pouch Support] Pouchitis and fistula


Hello,
I had J-pouch surgery back in 1995 due to complications from UC. In 2005, I
was diagnosed with Pouchitis and shortly afterwards I started to have
problems with Fistulas and preanail abscesses. I've had a lot of lab work
done and they all confirmed UC and not crohn's.
At this point, the fistulu and abscesses are getting to the point where I
need surgery every 5-6 months to drain them, I have had 4 surgeries in the
past 3 years . This has crippeled my life basically. I am constantly on
antibiotics, Pentasa, and every once and awhile Predinsone. At this point,
my doctor is suggesting that I consider having a temporary loop ileostomy to
let the pouch heal and hopefully that will also get rid of the fistula and
abscesses.
I am not sure what to do at this point. I am looking for help and advice.

Thanks.

#23481 From: "Ollis, Wayne" <gwollis@...>
Date: Sat Nov 21, 2009 12:09 pm
Subject: RE: [I] [J-Pouch Support] serious problem w/appetite
wayne_ollis
Offline Offline
Send Email Send Email
 
My wife had her JPouch surgery in March of this year and has not had her
takedown yet due to repeated abscesses caused by a leak in her pouch that has
yet to resolve.  She has been in and out of the hospital all year.  I tell you
this because she has suffered from an extreme lack of appetite at times this
year.  She lost about 30 lbs, or about 25% of her body weight.  Our experiences
with this: if it is lack of appetite due to nausea, then see if you can't get
him something to control that.  Zofran is supposed to be about the best but my
wife said it did not work great for her, at least at home.  In the hospital you
can get it by IV and it works great.  If he still has his PICC line I guess this
might be an option.  There have been other times where she did not really suffer
from nausea but still just had no appetite.  All we could figure out was just
where she went so many days without eating, it was like her brain quit telling
her she was hungry.  With your husband going so many days without eating, this
may be what happened to him.  The doctors here gave her an appetite stimulant
called marinol (or dronabinol).  It is not super strong but it did begin to get
her eating again, albeit slowly.  This drug is habit forming, so be careful with
it.  She very slowly starts craving food again kind of like a dimmer switch
being slowly turned up by her brain saying feed me.

   My wife was on TPN as well but the doctors here are just not real crazy about
it unless it is absolutely necessary.  Just having stuff going into a vein is an
opportunity for infection.  Plus the nutrition is going around the digestive
tract, which is bypassing the body's defense mechanism that we were designed
with.  One thing that motivates my wife is the NG tube.  She hates that thing
and the doctors here say that if your digestive tract is working (pouch or
ostomy bag is producing stuff), then it is much safer to get nutrition through a
feeding tube down your nose into your stomache.  That way you are not bypassing
one of the body's defense mechanisms.

I don't mean to be negative about the TPN, there are instances where it is vital
but I think ultimately a person is going to feel better when they are eating. 
Yes you can get the nutrition you need to survive that way but I know my wife
felt much better when she was able to eat.  We will remember you and your
husband in our prayers.  Good luck.

Wayne

From: jpouchsupport@yahoogroups.com [mailto:jpouchsupport@yahoogroups.com] On
Behalf Of Jack Andrew
Sent: Friday, November 20, 2009 9:31 PM
To: jpouchsupport@yahoogroups.com
Subject: [I] [J-Pouch Support] serious problem w/appetite




PLEASE RESPOND TO MY E-mail address:
saluki@...<mailto:saluki%40texasbb.com>

I'm writing hoping someone has a solution... my husband, Jack, 81, has had a
J-pouch since '85 and overall done fairly well with it except for some blockages
and strictures from time to time. He's always been healthy, active, robust and
optimistic, up until surgery on Nov. 2.

He had routine hernia surgery Nov. 2. Shortly thereafter we realized he had a
blockage, and was having no BMs. Nov. 5 I took him to emergency room. He was
literally throwing up fecal matter. A nasal tube was inserted from Nov 6-12th.

Long story short, he was transferred to Memorial Hermann in Houston, 100 miles
from where we live, happy to get a doctor who'd done surgery on Jack in '02 for
strictures. He's a colorectal surgeon, specialist in the J-pouch.

Doctor performed a successful removal of the blockage (not major surgery). Jack
had not eaten anything from Nov. 3-13 and was being getting nutrition through a
PICC line until Nov. 13. We came back home the 14th.

THE PROBLEM... blockage removal successful, but he is not eating, has no
appetite. Maybe a total of two or three cups of food since the 14th. He's lost a
tremendous amount of weight and is very weak.

I'm calling his doctor first thing in the morning. Are any of you able to offer
a solution? I'm extremely worried.

Thank you...
Evelyn (please respond to my e-mail address,
saluki@...<mailto:saluki%40texasbb.com>.)

[Non-text portions of this message have been removed]



[Non-text portions of this message have been removed]

#23480 From: mohammadalnajjar@ymail.com
Date: Sat Nov 21, 2009 10:57 am
Subject: Pouchitis and fistula
mohammadalna...
Offline Offline
 
Hello,
I had J-pouch surgery back in 1995 due to complications from UC. In 2005, I was
diagnosed with Pouchitis and shortly afterwards I started to have problems with
Fistulas and preanail abscesses. I've had a lot of lab work done and they all
confirmed UC and not crohn's.
At this point, the fistulu and abscesses are getting to the point where I need
surgery every 5-6 months to drain them, I have had 4 surgeries in the past 3
years . This has crippeled my life basically. I am constantly on antibiotics,
Pentasa, and every once and awhile Predinsone. At this point, my doctor is
suggesting that I consider having a temporary loop ileostomy to let the pouch
heal and hopefully that will also get rid of the fistula and abscesses.
I am not sure what to do at this point. I am looking for help and advice.

Thanks.

#23479 From: Sheriemcm@...
Date: Fri Nov 20, 2009 10:07 pm
Subject: Re: [J-Pouch Support] serious problem w/appetite
sheriemcm
Offline Offline
Send Email Send Email
 
Hi Evelyn,

Does Jack still have his PICC line?  If so,  he  should continue to take
TPN through his PICC until he gets an appetite and some  strength
back.......if his PICC is gone,  try to get him to eat  calories/energy dense
foods....ensure shakes between meals etc.  Let us  know what his doctor says in
the
morning.

Sherie
check out my website:
_http://maplebrookfarm.wordpress.com/_
(http://maplebrookfarm.wordpress.com/)
and
_Click here: Half.com /  Shops / sheriemcm / Books_
(http://shops.half.ebay.com/sheriemcm_W0QQmZbooks)


In a message dated 11/20/2009 6:31:47 P.M. Pacific Standard Time,
jak@... writes:






PLEASE RESPOND TO MY E-mail address: _saluki@..._
(mailto:saluki@...)

I'm  writing hoping someone has a solution... my husband, Jack, 81, has had
a  J-pouch since '85 and overall done fairly well with it except for some
blockages and strictures from time to time. He's always been healthy,
active,  robust and optimistic, up until surgery on Nov. 2.

He had routine  hernia surgery Nov. 2. Shortly thereafter we realized he
had a blockage, and  was having no BMs. Nov. 5 I took him to emergency room.
He was literally  throwing up fecal matter. A nasal tube was inserted from
Nov 6-12th.

Long story short, he was transferred to Memorial Hermann in Houston,  100
miles from where we live, happy to get a doctor who'd done surgery on Jack
in '02 for strictures. He's a colorectal surgeon, specialist in the  J-pouch.

Doctor performed a successful removal of the blockage (not  major surgery).
Jack had not eaten anything from Nov. 3-13 and was being  getting nutrition
through a PICC line until Nov. 13. We came back home the  14th.

THE PROBLEM... blockage removal successful, but he is not eating,  has no
appetite. Maybe a total of two or three cups of food since the 14th.  He's
lost a tremendous amount of weight and is very weak.

I'm calling  his doctor first thing in the morning. Are any of you able to
offer a  solution? I'm extremely worried.

Thank you...
Evelyn (please respond  to my e-mail address, _saluki@..._
(mailto:saluki@...) .)

[Non-text  portions of this message have been removed]








[Non-text portions of this message have been removed]

#23478 From: "Jack Andrew" <jak@...>
Date: Sat Nov 21, 2009 2:31 am
Subject: [J-Pouch Support] serious problem w/appetite
evelyn_andrew
Offline Offline
Send Email Send Email
 
PLEASE RESPOND TO MY E-mail address: saluki@...

   I'm writing hoping someone has a solution... my husband, Jack, 81, has had a
J-pouch since '85 and overall done fairly well with it except for some blockages
and strictures from time to time. He's always been healthy, active, robust and
optimistic, up until surgery on Nov. 2.

   He had routine hernia surgery Nov. 2. Shortly thereafter we realized he had a
blockage, and was having no BMs. Nov. 5 I took him to emergency room. He was
literally throwing up fecal matter. A nasal tube was inserted from Nov 6-12th.

   Long story short, he was transferred to Memorial Hermann in Houston, 100 miles
from where we live, happy to get a doctor who'd done surgery on Jack in '02 for
strictures. He's a colorectal surgeon, specialist in the J-pouch.

   Doctor performed a successful removal of the blockage (not major surgery).
Jack had not eaten anything from Nov. 3-13 and was being getting nutrition
through a PICC line until Nov. 13. We came back home the 14th.

   THE PROBLEM... blockage removal successful, but he is not eating, has no
appetite.  Maybe a total of two or three cups of food since the 14th. He's lost
a tremendous amount of weight and is very weak.

   I'm calling his doctor first thing in the morning. Are any of you able to
offer a solution? I'm extremely worried.

   Thank you...
      Evelyn (please respond to my e-mail address, saluki@....)


[Non-text portions of this message have been removed]

#23477 From: "Ernest Jones" <theolcrow@...>
Date: Fri Nov 20, 2009 4:58 pm
Subject: Re: [J-Pouch Support] chatting
theolcrow@...
Send Email Send Email
 
thanks Sandy,
Others have it so much worse than I.  My surgeon said my sphincter muscles
are strong and any leakage must be from the earlier surgery to remove the
abscess.  He did mention the ilio again but I told him no thanks.
Doing fine.  Have a great weekend.
Ernie
----- Original Message -----
From: "Sandra Leitner" <sandra.leitner@...>
To: <jpouchsupport@yahoogroups.com>
Sent: Friday, November 20, 2009 8:41 AM
Subject: Re: [J-Pouch Support] chatting


Ernie,

So sorry to hear about your difficulties. You've been through so much and
yet you never complain.
Your sunny attitude is always an inspiration. I hope the cipro helps you.

Sandy

"Live Well, Laugh Often, Love Much"



On Thu, Nov 19, 2009 at 10:02 PM, Ernest Jones <theolcrow@...>wrote:

>
>
> Hello,
> Again I am thankful for a surgeon who wants me to keep in touch, even
> though
> it is almost 10 years. He was concerned when I say him Wednesday as I can
> not gain weight but lose it very easily. Then he took a look inside, using
> a pede scope. I think everything is okay, I hope, but there was one place
> that bothered him but when he checked it again it looked okay. Still he
> has
>
> told me to return in 6 months and not to wait the usual 1 or 2 years. So
> looks like we make the 5 hour trip again sometime next May. I can't say
> the
>
> scoping or his checking felt good but it is tolerable.
> I have been having scores of pimple like abscesses, mostly on my buttocks
> but also on my legs, body, and arm, even in my nose. I wondered if there
> could be a problem and he agreed; he figures there is some inner infection
> and it is presenting itself in this way. So I am on Cipro for 10 days. The
> good thing is this will sure help in decreasing the diarrhea.
> I also checked regarding to the Tylenol with codeine I take. He completely
> agrees with my family doctor that I am not taking enough Tylenol to do any
> hurt to my liver, still each of us are different and I have proved to
> be"different".
> He liked the idea of me using this Gold Bond powder and so far it is the
> best thing for me with an occasional use of the Nystatin cream.
> Blessings to you all.
> Ernie
>
>
>


[Non-text portions of this message have been removed]



------------------------------------

Yahoo! Groups Links

#23476 From: "Ernest Jones" <theolcrow@...>
Date: Fri Nov 20, 2009 4:52 pm
Subject: Re: [J-Pouch Support] chatting
theolcrow@...
Send Email Send Email
 
Thanks Sherie,
I pray you find another good GI.  I feel these are hard to find at times.
I also have a very good surgeon locally too but not when it comes to the
Jpouch; but the two surgeons are friends and sort of work together so this
is good.  So far I have not noticed any difference from taking Cipro but no
worse either.  My surgeon suggested a new drug for controlling diarrhea and
if I could take this I might stop both the Lomotil and the codeine.  But,
wouldn't you know it but the price is higher than gold so another hope
dashed.  Oh well, not doing too bad.  Life is good!
My but it is windy here for the past 2 days but I am sure it has even been
more windy over your way with these Pacific storms rolling in.  Stay safe.
Ernie
----- Original Message -----
From: <Sheriemcm@...>
To: <jpouchsupport@yahoogroups.com>
Sent: Thursday, November 19, 2009 9:06 PM
Subject: Re: [J-Pouch Support] chatting


thanks for the update,  Ernie.  You are so lucky to  have an involved
surgeon,  but I know you appreciate him very much.   sorry to hear of your
infection....enjoy you 10 days on Cipro!

I should probably find a new GI to do my scope,  the one  I used a couple
years ago has retired now.....I hate shopping for a dr.

take care,

Sherie
check out my website:
_http://maplebrookfarm.wordpress.com/_
(http://maplebrookfarm.wordpress.com/)

In a message dated 11/19/2009 7:03:22 P.M. Pacific Standard Time,
theolcrow@... writes:




Hello,
Again I am thankful for a surgeon who wants me to keep in touch,  even
though
it is almost 10 years. He was concerned when I say him  Wednesday as I can
not gain weight but lose it very easily. Then he took a  look inside, using
a pede scope. I think everything is okay, I hope, but  there was one place
that bothered him but when he checked it again it  looked okay. Still he
has
told me to return in 6 months and not to wait  the usual 1 or 2 years. So
looks like we make the 5 hour trip again  sometime next May. I can't say
the
scoping or his checking felt good but  it is tolerable.
I have been having scores of pimple like abscesses, mostly  on my buttocks
but also on my legs, body, and arm, even in my nose. I  wondered if there
could be a problem and he agreed; he figures there is  some inner infection
and it is presenting itself in this way. So I am on  Cipro for 10 days. The
good thing is this will sure help in decreasing the  diarrhea.
I also checked regarding to the Tylenol with codeine I take. He  completely
agrees with my family doctor that I am not taking enough  Tylenol to do any
hurt to my liver, still each of us are different and I  have proved to
be"different"b
He liked the idea of me using this  Gold Bond powder and so far it is the
best thing for me with an occasional  use of the Nystatin cream.
Blessings to you all.
Ernie








[Non-text portions of this message have been removed]

#23475 From: Sandra Leitner <sandra.leitner@...>
Date: Fri Nov 20, 2009 4:41 pm
Subject: Re: [J-Pouch Support] chatting
sandra.leitner@...
Send Email Send Email
 
Ernie,

So sorry to hear about your difficulties. You've been through so much and
yet you never complain.
Your sunny attitude is always an inspiration. I hope the cipro helps you.

Sandy

"Live Well, Laugh Often, Love Much"



On Thu, Nov 19, 2009 at 10:02 PM, Ernest Jones <theolcrow@...>wrote:

>
>
> Hello,
> Again I am thankful for a surgeon who wants me to keep in touch, even
> though
> it is almost 10 years. He was concerned when I say him Wednesday as I can
> not gain weight but lose it very easily. Then he took a look inside, using
> a pede scope. I think everything is okay, I hope, but there was one place
> that bothered him but when he checked it again it looked okay. Still he has
>
> told me to return in 6 months and not to wait the usual 1 or 2 years. So
> looks like we make the 5 hour trip again sometime next May. I can't say the
>
> scoping or his checking felt good but it is tolerable.
> I have been having scores of pimple like abscesses, mostly on my buttocks
> but also on my legs, body, and arm, even in my nose. I wondered if there
> could be a problem and he agreed; he figures there is some inner infection
> and it is presenting itself in this way. So I am on Cipro for 10 days. The
> good thing is this will sure help in decreasing the diarrhea.
> I also checked regarding to the Tylenol with codeine I take. He completely
> agrees with my family doctor that I am not taking enough Tylenol to do any
> hurt to my liver, still each of us are different and I have proved to
> be"different".
> He liked the idea of me using this Gold Bond powder and so far it is the
> best thing for me with an occasional use of the Nystatin cream.
> Blessings to you all.
> Ernie
>
>
>


[Non-text portions of this message have been removed]

#23474 From: Sheriemcm@...
Date: Fri Nov 20, 2009 12:06 am
Subject: Re: [J-Pouch Support] chatting
sheriemcm
Offline Offline
Send Email Send Email
 
thanks for the update,  Ernie.  You are so lucky to  have an involved
surgeon,  but I know you appreciate him very much.   sorry to hear of your
infection....enjoy you 10 days on Cipro!

I should probably find a new GI to do my scope,  the one  I used a couple
years ago has retired now.....I hate shopping for a dr.

take care,

Sherie
check out my website:
_http://maplebrookfarm.wordpress.com/_
(http://maplebrookfarm.wordpress.com/)

In a message dated 11/19/2009 7:03:22 P.M. Pacific Standard Time,
theolcrow@... writes:




Hello,
Again I am thankful for a surgeon who wants me to keep in touch,  even
though
it is almost 10 years. He was concerned when I say him  Wednesday as I can
not gain weight but lose it very easily. Then he took a  look inside, using
a pede scope. I think everything is okay, I hope, but  there was one place
that bothered him but when he checked it again it  looked okay. Still he
has
told me to return in 6 months and not to wait  the usual 1 or 2 years. So
looks like we make the 5 hour trip again  sometime next May. I can't say
the
scoping or his checking felt good but  it is tolerable.
I have been having scores of pimple like abscesses, mostly  on my buttocks
but also on my legs, body, and arm, even in my nose. I  wondered if there
could be a problem and he agreed; he figures there is  some inner infection
and it is presenting itself in this way. So I am on  Cipro for 10 days. The
good thing is this will sure help in decreasing the  diarrhea.
I also checked regarding to the Tylenol with codeine I take. He  completely
agrees with my family doctor that I am not taking enough  Tylenol to do any
hurt to my liver, still each of us are different and I  have proved to
be"different"b
He liked the idea of me using this  Gold Bond powder and so far it is the
best thing for me with an occasional  use of the Nystatin cream.
Blessings to you all.
Ernie








[Non-text portions of this message have been removed]

#23473 From: "Ernest Jones" <theolcrow@...>
Date: Fri Nov 20, 2009 3:02 am
Subject: chatting
theolcrow@...
Send Email Send Email
 
Hello,
Again I am thankful for a surgeon who wants me to keep in touch, even though
it is almost 10 years.  He was concerned when I say him Wednesday as I can
not gain weight but lose it very easily.  Then he took a look inside, using
a pede scope.  I think everything is okay, I hope, but there was one place
that bothered him but when he checked it again it looked okay.  Still he has
told me to return in 6 months and not to wait the usual 1 or 2 years.  So
looks like we make the 5 hour trip again sometime next May.  I can't say the
scoping or his checking felt good but it is tolerable.
I have been having scores of pimple like abscesses, mostly on my buttocks
but also on my legs, body, and arm, even in my nose.  I wondered if there
could be a problem and he agreed; he figures there is some inner infection
and it is presenting itself in this way.  So I am on Cipro for 10 days.  The
good thing is this will sure help in decreasing the diarrhea.
I also checked regarding to the Tylenol with codeine I take.  He completely
agrees with my family doctor that I am not taking enough Tylenol to do any
hurt to my liver, still each of us are different and I have proved to
be"different".
He liked the idea of me using this Gold Bond powder and so far it is the
best thing for me with an occasional use of the Nystatin cream.
Blessings to you all.
Ernie

#23472 From: Maurirose Latham <mauriroseclatham@...>
Date: Fri Nov 20, 2009 1:50 am
Subject: Re: [J-Pouch Support] Surgery Part 2, take down-- some questions
maurirosecla...
Offline Offline
Send Email Send Email
 
Hi Kelsey,
I had my take down about 8 weeks ago and experienced all the same problems you
are having. The first day I got out the gas pain was the worst. It gets better.
Gas-x helped me a lot. I still have slight pain with gas but it's very minor. I
stopped taking my painkillers also. If I remember correctly it took about 2
weeks for me to be able to sit, walk, get up, etc without being in pain. I
actually just realized about a week ago that the muscle pain is gone. I can
finally laugh, cough and sneeze without any pain. The day will come, I promise.
I still have slight pain near the ileostomy sight as well. That has gotten much
better with time also. I just joined this group and people are very helpful. I
didn't really have anyone to talk to about this and people have been great. I'm
pretty young so the majority of my friends don't know anything about what I'm
going through, although they were supportive it's nice to talk to people that
understand. All I can say
  is that the pain will get better but it just takes a little time. I know it
super sucks right now but keep looking for the light at the end of the tunnel.
Be well.

Mauri



________________________________
From: kelseyx007 <powderprincessluvssnow@...>
To: jpouchsupport@yahoogroups.com
Sent: Wed, November 18, 2009 1:56:02 PM
Subject: [J-Pouch Support] Surgery Part 2, take down-- some questions


Hello All,

You guys were all so helpful on my last post regarding surgery so I thought I
would turn to you again.

I had my take down operation a week and a half ago- I only had my ileostomy for
a month due to complications.  At this point, I'm still having severe pain,
especially in the morning.  It quite literally takes my breath away.  I'm
constantly waiting to take my next dose of painkillers and seem to only have a
few hours of relief each day.  How long do all these pains continue for?  I have
gas pain, surgical pain and muscle pain.  I've been taking Pepsid 2x/day and
Simethicone at max to help with the gas. For the surgical pain I'm on
prescriptions and for the muscle pain I'm taking prescription strength Motrin,
though I have a prescription for Valium- I'm just tired of feeling doped up all
the time.  I've been taking morphine as well to help with the pain in general
(though it does nothing for those nasty muscle cramps).

I know it obviously will take some time to heal, but at the moment I feel that
the pain is the same as it was in the hospital.  I still need help sitting up in
bed, I had my dad install handles on my toilet for support, everything is a
CHORE.  And that doesn't even start to cover the issues of when I'm going to the
bathroom and the weird pains I have then.

How long did it take for your pain (especially gas and muscle cramps) to go away
after your second surgery?  I notice that I sometimes have a build up of
pressure behind where the ileostomy was and the pain will  increase until the
muscle there uncramps or the gas bubble moves through.

And last but not least, does anyone have any remedies for fissures? I've been
using honey and aloe but it seems to be having minimal effect.

Thanks,
kelsey







[Non-text portions of this message have been removed]

#23471 From: "Kevin Dickinson" <kdickin2@...>
Date: Thu Nov 19, 2009 11:11 am
Subject: RE: [J-Pouch Support] Two give aways to grab: keurig coffee machine Plus flip music player
kevind62249
Offline Offline
Send Email Send Email
 
Gone!



From: jpouchsupport@yahoogroups.com [mailto:jpouchsupport@yahoogroups.com]
On Behalf Of shantellebranden
Sent: Thursday, November 19, 2009 12:36 AM
To: jpouchsupport@yahoogroups.com
Subject: [J-Pouch Support] Two give aways to grab: keurig coffee machine
Plus flip music player





Hello Everyone

A friend just sent me a link to Two NEW giveaway offers, so I am sharing it
with the group!

Grab a Keurig coffee machine and a FLIP music player!

Click the link below to see them both

http://groups.google.com/group/collectingfreebies/web/two-great-give-aways-u
sa

I hope this helps with your budgets!



No virus found in this incoming message.
Checked by AVG - www.avg.com
Version: 9.0.707 / Virus Database: 270.14.73/2512 - Release Date: 11/18/09
14:41:00



[Non-text portions of this message have been removed]

#23470 From: "shantellebranden" <shantellebranden@...>
Date: Thu Nov 19, 2009 5:36 am
Subject: Two give aways to grab: keurig coffee machine Plus flip music player
shantellebra...
Offline Offline
Send Email Send Email
 
Hello Everyone

A friend just sent me a link to  Two NEW giveaway offers, so I am sharing it
with the group!

Grab a Keurig coffee machine and a FLIP music player!

Click the link below to see them both

http://groups.google.com/group/collectingfreebies/web/two-great-give-aways-usa

I hope this helps with your budgets!

#23469 From: "Kevin Dickinson" <kdickin2@...>
Date: Wed Nov 18, 2009 11:50 pm
Subject: RE: [J-Pouch Support] Surgery Part 2, take down-- some questions
kevind62249
Offline Offline
Send Email Send Email
 
Hi Kelsey,



I also know about the gas pain.  I spent my first day home after the
takedown just lying on the bed in pain due to the gas.  I then remembered
something I had read on this site and that was to lie down.  The first day
was the worst and it got better with each passing week.  When I went back to
work I found myself having to go to the stockroom to lay down.  Sometimes I
had to roll side to side to pass it and other times on my back.  I didn't
have much in the way of pain though so can't help you there.   I had 3
months between my surgeries so had more time to build up my strength than
you did.  Hang in there as it will get better.



Kevin



From: jpouchsupport@yahoogroups.com [mailto:jpouchsupport@yahoogroups.com]
On Behalf Of kelseyx007
Sent: Wednesday, November 18, 2009 3:56 PM
To: jpouchsupport@yahoogroups.com
Subject: [J-Pouch Support] Surgery Part 2, take down-- some questions





Hello All,

You guys were all so helpful on my last post regarding surgery so I thought
I would turn to you again.

I had my take down operation a week and a half ago- I only had my ileostomy
for a month due to complications. At this point, I'm still having severe
pain, especially in the morning. It quite literally takes my breath away.
I'm constantly waiting to take my next dose of painkillers and seem to only
have a few hours of relief each day. How long do all these pains continue
for? I have gas pain, surgical pain and muscle pain. I've been taking Pepsid
2x/day and Simethicone at max to help with the gas. For the surgical pain
I'm on prescriptions and for the muscle pain I'm taking prescription
strength Motrin, though I have a prescription for Valium- I'm just tired of
feeling doped up all the time. I've been taking morphine as well to help
with the pain in general (though it does nothing for those nasty muscle
cramps).

I know it obviously will take some time to heal, but at the moment I feel
that the pain is the same as it was in the hospital. I still need help
sitting up in bed, I had my dad install handles on my toilet for support,
everything is a CHORE. And that doesn't even start to cover the issues of
when I'm going to the bathroom and the weird pains I have then.

How long did it take for your pain (especially gas and muscle cramps) to go
away after your second surgery? I notice that I sometimes have a build up of
pressure behind where the ileostomy was and the pain will increase until the
muscle there uncramps or the gas bubble moves through.

And last but not least, does anyone have any remedies for fissures? I've
been using honey and aloe but it seems to be having minimal effect.

Thanks,
kelsey



No virus found in this incoming message.
Checked by AVG - www.avg.com
Version: 9.0.707 / Virus Database: 270.14.72/2511 - Release Date: 11/18/09
02:50:00



[Non-text portions of this message have been removed]

#23468 From: pupcasey@...
Date: Wed Nov 18, 2009 10:31 pm
Subject: Re: [J-Pouch Support] Surgery Part 2, take down-- some questions
pupcasey@...
Send Email Send Email
 
I can't help much Kelsey,


  But I CAN TELL YOU THE PAIN OF GAS/BUBBLE of air through the pouch WILL GO
AWAY!!! : ) IT took me about 7-8 months for it to completely heal in my case (I
had compliccations and two illeos).  Once it fully stopped in has never happened
like that "first pain" again. . . : )


I hope this helps!!  It helped me when I was told it "will go away" and it
finally did!  Good luck!!


  best jpouch healing thoughts~ Julie



-----Original Message-----
From: kelseyx007 <powderprincessluvssnow@...>
To: jpouchsupport@yahoogroups.com
Sent: Wed, Nov 18, 2009 12:56 pm
Subject: [J-Pouch Support] Surgery Part 2, take down-- some questions





Hello All,

You guys were all so helpful on my last post regarding surgery so I thought I
would turn to you again.

I had my take down operation a week and a half ago- I only had my ileostomy for
a month due to complications.  At this point, I'm still having severe pain,
especially in the morning.  It quite literally takes my breath away.  I'm
constantly waiting to take my next dose of painkillers and seem to only have a
few hours of relief each day.  How long do all these pains continue for?  I have
gas pain, surgical pain and muscle pain.  I've been taking Pepsid 2x/day and
Simethicone at max to help with the gas. For the surgical pain I'm on
prescriptions and for the muscle pain I'm taking prescription strength Motrin,
though I have a prescription for Valium- I'm just tired of feeling doped up all
the time.  I've been taking morphine as well to help with the pain in general
(though it does nothing for those nasty muscle cramps).

I know it obviously will take some time to heal, but at the moment I feel that
the pain is the same as it was in the hospital.  I still need help sitting up in
bed, I had my dad install handles on my toilet for support, everything is a
CHORE.  And that doesn't even start to cover the issues of when I'm going to the
bathroom and the weird pains I have then.

How long did it take for your pain (especially gas and muscle cramps) to go away
after your second surgery?  I notice that I sometimes have a build up of
pressure behind where the ileostomy was and the pain will  increase until the
muscle there uncramps or the gas bubble moves through.

And last but not least, does anyone have any remedies for fissures? I've been
using honey and aloe but it seems to be having minimal effect.

Thanks,
kelsey










[Non-text portions of this message have been removed]

#23467 From: "kelseyx007" <powderprincessluvssnow@...>
Date: Wed Nov 18, 2009 8:56 pm
Subject: Surgery Part 2, take down-- some questions
kelseyx007
Offline Offline
Send Email Send Email
 
Hello All,

You guys were all so helpful on my last post regarding surgery so I thought I
would turn to you again.

I had my take down operation a week and a half ago- I only had my ileostomy for
a month due to complications.  At this point, I'm still having severe pain,
especially in the morning.  It quite literally takes my breath away.  I'm
constantly waiting to take my next dose of painkillers and seem to only have a
few hours of relief each day.  How long do all these pains continue for?  I have
gas pain, surgical pain and muscle pain.  I've been taking Pepsid 2x/day and
Simethicone at max to help with the gas. For the surgical pain I'm on
prescriptions and for the muscle pain I'm taking prescription strength Motrin,
though I have a prescription for Valium- I'm just tired of feeling doped up all
the time.  I've been taking morphine as well to help with the pain in general
(though it does nothing for those nasty muscle cramps).

I know it obviously will take some time to heal, but at the moment I feel that
the pain is the same as it was in the hospital.  I still need help sitting up in
bed, I had my dad install handles on my toilet for support, everything is a
CHORE.  And that doesn't even start to cover the issues of when I'm going to the
bathroom and the weird pains I have then.

How long did it take for your pain (especially gas and muscle cramps) to go away
after your second surgery?  I notice that I sometimes have a build up of
pressure behind where the ileostomy was and the pain will  increase until the
muscle there uncramps or the gas bubble moves through.

And last but not least, does anyone have any remedies for fissures? I've been
using honey and aloe but it seems to be having minimal effect.

Thanks,
kelsey

#23466 From: gmorrow@...
Date: Mon Nov 16, 2009 9:01 am
Subject: Gina Morrow/Lapp is out of the office.
amato1956
Offline Offline
Send Email Send Email
 
I will be out of the office starting  11/16/2009 and will not return until
11/17/2009.

I will respond to your message when I return. If you should need assistance
with accounts payable please contact Maureen Eadie at 585-768-5108 or
e-mail meadie@...

#23465 From: "shantellebranden" <shantellebranden@...>
Date: Mon Nov 16, 2009 6:32 am
Subject: Nice Mix of New Give Aways! (Nov 16)
shantellebra...
Offline Offline
Send Email Send Email
 
Hello Everyone!

Here is a FRESH selection of stuff members can collect for nothing

There is lots to grab in this new Giveaway Mix!

http://groups.google.com/group/freebieshare/web/giveaway-mix-november-16

Enjoy!

#23464 From: Lalit K Tyagi <lalitk_tyagi@...>
Date: Sat Nov 14, 2009 12:28 pm
Subject: Re: [J-Pouch Support] New to J pouch
lalitk_tyagi
Offline Offline
Send Email Send Email
 
Stress adversely affects ulcerative colitis with or with out colon.


--- On Sat, 11/14/09, heather DuBois <heatherd_71@...> wrote:


From: heather DuBois <heatherd_71@...>
Subject: Re: [J-Pouch Support] New to J pouch
To: jpouchsupport@yahoogroups.com
Date: Saturday, November 14, 2009, 4:38 AM


 



Hi. I'm sorry your having issues. I don't mean to make light of an aggravating
situation but I just wondered how stressful your lifestyle is. You stated you
are an engineer. Is it a possibility that outside stress factors are
contributing to your frequent visits to the restroom? I am a laboratory
technologist and sometimes when work gets stressful and harried along with my
homelife, there is just nothing that seems to help. My surgeon would like me to
find a less stressful job and truthfully, so would I but....I have to have that
money. So I figured if western medicine could not help me than I would try out
some alternative medicine. I've been focusing on preventative measures to keep
my health in check.
I do some meditation excercises daily. Quite honestly i am suprised at how much
it helps.
Of course there are days when I've been on call for 72 hours straight and
running on 2 hours of sleep and my pouch starts giving me grief but that's alot
for a healthy person to endure, let alone someone like myself. I also have
started getting a message once a month. Not a normal back message but a belly
one. It sure seems to help with my scar tissue and pain issues...and it's sooo
relaxing. Maybe you might want to consider trying something alternative. I mean
if it helps, what do you have to lose?
 
Good luck, I hope you get to feeling better.

--- On Fri, 11/13/09, mutenick@comcast. net <mutenick@comcast. net> wrote:

From: mutenick@comcast. net <mutenick@comcast. net>
Subject: Re: [J-Pouch Support] New to J pouch
To: jpouchsupport@ yahoogroups. com
Date: Friday, November 13, 2009, 11:08 AM

 

Hello,

l live in Niwot Colorado and have my pouch since 97 and am 65 yrs old. I would
consider myself a c or c- or level of success with the pouch. I work full time
as an engineer. currently I am having more problems than usual. Was having very
loose stools and 12 trips per day to the john. I took two weeks of Cipro and
flagyl together and this thickend the stool but not much help for the daily
trips to john. After 2 weeks stopped antibiotics and stools loose again within a
week. Started with just Flagyl (3x/day) for once week and have not tappered down
to 2/day. I also took the suggestion of using Psylium (spelling ??) powder
2x.day. this really thickens the stool. I have semi formed stools but still make
12 trips/day to john. the Phylium does not disolve in water so you must stir it
a lot and then drink it. I decided to let the powder sit in the water for a few
minutes and then drink it. to my surprise the powder absorbed all the water and
was like a thick
jell and it was not drinkable at that point. For now I am going to lower my dose
and see what happens. Will also try smaller amounts maybe 3x/day.

How long has it been since the takedown? Have you gotten Ernie's list of food
that thicken the stool and items that help with skin card. For me I use vaseline
constant care cream (vccc)applied to tp to wipe when I am a work and then put
additional vccc on tp and place between my butt cheeks and leave it there in
case of any leakage. I also wear a woman's think mini pad in my shorts. Also
this may sound depressing at and first it is but this is what life has dealt me
and I find I can manage just fine. From all the work that I do and home repairs
and building a large deck my neighbor never knew I had a pouch. He only knew
aftet I told him when he told me he was having the pouch done. Hey, what are the
chances of two neighbors both having pouches? One last thing I baby wipes to
clean myself at home and when there is butt burn calmospetine cream ( it does
wonders). You will find this a great site. Not sure about the stoma pain. If not
too long since surgery
probably normal. At 6 months post op I still didn't care if I loved or died. Now
I want to live. So hang it there and time will make it better. If you want to
talk or meet I would be happy to help in any way I can.

God Bless,mike u
----- Original Message -----

From: mauriroseclatham

To: jpouchsupport@ yahoogroups. com

Sent: Fri, 13 Nov 2009 04:25:08 +0000 (UTC)

Subject: [J-Pouch Support] New to J pouch

I recently had my take down surgery. I'm having a hard time finding foods that
thicken my stool. Any suggestions? I'm also having slight pain above the ostomy
site. Did anyone else have that? I'm also looking for suggestions for frequency
during the night and burning around the outside (due to frequency). Is anyone
here from around the Denver area? Thanks!

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]











[Non-text portions of this message have been removed]

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