I tell my wife that all of the time.  What goes in must come out. Time is a
great healer.



Kevin



From: jpouchsupport@yahoogroups.com [mailto:jpouchsupport@yahoogroups.com]
On Behalf Of james ciarrocchi
Sent: Saturday, June 30, 2007 8:44 AM
To: jpouchsupport@yahoogroups.com
Subject: Re: [J-Pouch Support] antibiotic usage-my latest imput



thankyou my pouch has been workng pretty well i find that volume in means
volume out ... thnk my body is doing a better job each month adjustng to the
pouch ....so i keep praying n being thankful ......james

Ernest Jones <theolcrow@... <mailto:theolcrow%40charter.net> >
wrote: Hi James,
Although I was younger when the doctors found the connection, I was 43 when
my cancer surgery and another 20 years before the Jpouch was made. My
surgeon said that I was the oldest one he had done this surgery on as most,
this age, the cancer had progressed too far.
James, I was a nurse working in a hospital before and after my colon cancer
surgery. I struggled with my feelings. Although a nurse, I never accepted
the fact that cancer could be all through me. Two years later I had another
surgery, this time for a blockage from scar tissue. My surgeon fully
expected to find more cancer but he found only adhesions that were causing
the blockage. I know I place a lot of my help in prayer, faith and knowing
I had help from Another than my surgeon. This was important to me.
Another thing is to never give up. During this time I took care of another
man who had recently had the same surgery. (No Jpouch, just part of his
colon removed,) and he was worried. He and a brother, both in their 70's
and neither married lived together and only a lady came weekly to help clean
up for them. They had planned a trip but now he told me he could not go.
"Why not? I asked.
"Well because I have cancer. So and so told me that now I can not travel
there."
"Sure you can, I assured him.
When he left the two men were making plans for this trip. This trip was
only about 300 miles, the farthest either had ever been away from their
place.
Just under three months later this man returned to the hospital. Every test
ran showed there was no cancer. The doctor could find no problem as to his
decline.
When I asked his doctor he replied, "I think he has given up."
I went to his room and asked the man a few questions. He was weak but
seemed glad to have me stop in.
"So, have you taken that trip?"
"No, we can not go."
Why?" I demanded.
"Well you know, I had cancer."
"So what does that matter? You can still go. It will be good to take that
trip."
"No, I can't go." Then he told me how his house keeper had told him that
under no way should he try this trip. After all, he had cancer. This man
had gone into a state of depression and I was helpless to pull him out.
One careless person had taken away from him all hope and none of us could
rebuild this hope. Although all tests showed he was free from cancer, he
had just given up. He refused to live, refused any help and yes, he died a
week later.
I state this only to show that one must keep fighting. Even if still with
cancer it is proved the one who fights it will live longer. But we who do
not have cancer must still fight. It is so easy for a nagging fear to crop
up. Especially in the early months/years.
My suggestion is simple: make sure your doctor keeps track of you and
anything that may concern you. Have any tests run regularly. With your
colon gone, with the cancer still only in one place, with the lymph nodes
all negative, my suggestion is to live like any one else. Take care of
yourself, eat good, exercise, take in plenty of water and be thankful for
today. Sure, there will be days that you feel that "worry," and this is
natural. But do not let it run your life.
Hope this helps. I know the fear, but I also know that today is going to be
another good day.
Hang in there.
How is your pouch working? Any trouble.
Blessings and I hope you have a good weekend.
Ernie
----- Original Message -----
From: "james ciarrocchi" <d427aj@... <mailto:d427aj%40yahoo.com> >
To: <jpouchsupport@yahoogroups.com <mailto:jpouchsupport%40yahoogroups.com>
>
Sent: Friday, June 29, 2007 6:07 AM
Subject: Re: [J-Pouch Support] antibiotic usage-my latest imput

thanks for your insight......I had j-pouch surgery about 10 months ago i was
47 at the time so my fap show up real late ........if you have any further
insights or the group it would be appreciated!!!!!!!!!!!!!!!

Ernest Jones <theolcrow@... <mailto:theolcrow%40charter.net> >
wrote: Hi James and welcome.
Do I understand that you still do have your colon or
is your colon all removed?
That will make a difference to what tests you have. If you had your colon
removed and a Jpouch made my thoughts would be that you have little to fear
and your doctor may want to do yearly scoping. If you still have some colon
my guess is to have repeat colonoscopies in around 6 months and if remains
clean yearly. But these must be as your surgeon/doctor orders. But praise
God it sounds like your cancer had not spread at all and this is good.
I too have FAP. My first surgery in 1965 when they found polyps and removed
2/3 of my colon. I had regular check ups but was found to have colon cancer
in 1980. At that time I think 13 out of 20 some lymph nodes showed cancer.
But I have been cancer free. During the 20 years up to 1999 I had
sigmoidoscopies ranging from every 3 months to yearly. These were the old
rigid ones, much worse than the scoping today. In August of 1999 the exam
showed an explosion of polyps and I was ordered to repeat the test in 6
months which showed still more, thus the Jpouch was made in April 2000.
Again, welcome to this list. Be looking for more from you and have a good
day.
Ernie
----- Original Message -----
From: "james ciarrocchi" <d427aj@... <mailto:d427aj%40yahoo.com> >
To: <jpouchsupport@yahoogroups.com <mailto:jpouchsupport%40yahoogroups.com>
>
Sent: Thursday, June 28, 2007 12:45 PM
Subject: Re: [J-Pouch Support] antibiotic usage-my latest imput

had a form of fap had 1 polyp go to early stage cancer ,26 lymph nodes taken
out all clean thank God,...What follow up test do you recomend being done
annually?

Ernest Jones <theolcrow@... <mailto:theolcrow%40charter.net> >
wrote: Rebecca
I will not even go into how I felt during my first post op year. Maybe I
should say the first two years. But time did show that life got better.
Maybe we won't get clear off all medications. Actually this does not bother
me any more. Mainly is the desire to just feel good.
You will make it also. But we do still need to have a medical person,
doctor or surgeon who still wants to keep track of us and to help us know
all is fine.
Ernie
----- Original Message -----
From: <rebe0505@... <mailto:rebe0505%40aol.com> >
To: <jpouchsupport@yahoogroups.com <mailto:jpouchsupport%40yahoogroups.com>
>
Sent: Thursday, June 28, 2007 12:06 PM
Subject: Re: [J-Pouch Support] antibiotic usage-my latest imput

yes ernie i agree with everything you are saying...i think all of us want
not
to use meds ..infact that was one of my expectations about having this
surgery..no more meds!! so needless to say a year down the road it stresses
me
greatly to be on meds and makes me fearful i will continue to be on meds and
even
more fearful not getting to a point where even with meds i can get a handle
on it all... !but i do not think i am alone on this..i need more of your
spirit
as well as mitch and mike and others...rebecca

************************************** See what's free at
http://www.aol.com.

[Non-text portions of this message have been removed]

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[Non-text portions of this message have been removed]





[Non-text portions of this message have been removed]

Hi Guys,

Another wonderful site, I've found!  Wanted to share. . . what does  everyone
think?

I've decided to invest, to make my life easier and better!  I believe  this
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Copyright © 2007 Preferred  Toilet all rights reserved



************************************** See what's free at http://www.aol.com.


[Non-text portions of this message have been removed]

hi mike ..thank you for being so thoughtful in asking various
questions..iwill try to remember them and i do clean mself usually with a very
soft tissue
paper (ones recommended on this site)and some water on tissue so i think it is
not irritating so it seems to me..i think my irritation is definitely
inside.even my doctor has remarked throughtout all visits that i took good care
and
skin looked good...i do as a habit use a pad and if soreness appears inside
close
to opening i use illex recommended by my doctor  and vaseoline over it..the
illex literally forms a rubbery barrier on skin for healing and protecting..you
need not apply it each time..

for breakfast i either have some eggs and a bagel or bread and maybe oatmeal
too..lately i tried cascade yoghurt recommended by ernie with a banana cut up
in it and a piece of buttered bread..i do not drink any coffee or soft driinks
only water and on occassion in evening have cammimile tea...

i keep a journal every day ..i note  what meds,suppliments,vitamins i take
that day and when,i note the time and b.m`s and record if their is anything
happening like pain/discomfort/burning and degree, and the foods i eat that day
in
order of eating them..my range is usually 6 to 10..but a good day is 6 or
7..this is with at least three good meals...if i hit 9 or 10 times it is usually
because i may have something going on like soreness or irritation/burning..

one question that you may be able to help with is the food question..if you
eat something that does not work for you how long  after do you know it was a
particular food that might have caused you some distress and what kind of
distress..what i mean by that is if you ate say like 9 in morning then maybe1 in
afternoon and maybe again at 4p.m and then start having burning or irritation on
a b.m at 6pm. could it be something from earier in day you ate even if prior
to that you went to bathroom before and it was okay????wow i just reread that
and i hope you understand it!! maybe it is better said this way you eat some
yoghurt in morning then have a good first b.m (for me that means no pain or
irritation) but after some other meals and other b.m`s you have discomfort...can
it still be that yoghurt from early on..


thank you mike..





************************************** See what's free at http://www.aol.com.


[Non-text portions of this message have been removed]

ernie read your e-mail to that young man and you are truly
inspirational...rebecca



************************************** See what's free at http://www.aol.com.


[Non-text portions of this message have been removed]

brenda i had a little trouble understanding your e-mail but it sounded like
you sais you are doing well on cipro for inflamation is that right and for some
reason your gi doesn`t want you on it and wants to recomend
remicade????rebecca



************************************** See what's free at http://www.aol.com.


[Non-text portions of this message have been removed]

I drink quite a bit of iced black tea and don't have a problem with it, but
we're all different.

   Heidi

Sarah Walsh <chemlady2000@...> wrote:
           Has anyone here had problems drinking black tea? I have been having
some trouble lately and I think I have narrowed it down to this. I
usually have a cup for breakfast everyday, but since it is hot out I
have been making sun tea and drinking quite a bit of it - as I do
every summer. Just trying it figure it out.
Sarah






[Non-text portions of this message have been removed]

thankyou   my pouch has been workng pretty well  i find that volume in means
volume out ... thnk my body is doing a better job each month adjustng to the
pouch ....so i keep praying n being thankful ......james

Ernest Jones <theolcrow@...> wrote:          Hi James,
Although I was younger when the doctors found the connection, I was 43 when
my cancer surgery and another 20 years before the Jpouch was made. My
surgeon said that I was the oldest one he had done this surgery on as most,
this age, the cancer had progressed too far.
James, I was a nurse working in a hospital before and after my colon cancer
surgery. I struggled with my feelings. Although a nurse, I never accepted
the fact that cancer could be all through me. Two years later I had another
surgery, this time for a blockage from scar tissue. My surgeon fully
expected to find more cancer but he found only adhesions that were causing
the blockage. I know I place a lot of my help in prayer, faith and knowing
I had help from Another than my surgeon. This was important to me.
Another thing is to never give up. During this time I took care of another
man who had recently had the same surgery. (No Jpouch, just part of his
colon removed,) and he was worried. He and a brother, both in their 70's
and neither married lived together and only a lady came weekly to help clean
up for them. They had planned a trip but now he told me he could not go.
"Why not? I asked.
"Well because I have cancer. So and so told me that now I can not travel
there."
"Sure you can, I assured him.
When he left the two men were making plans for this trip. This trip was
only about 300 miles, the farthest either had ever been away from their
place.
Just under three months later this man returned to the hospital. Every test
ran showed there was no cancer. The doctor could find no problem as to his
decline.
When I asked his doctor he replied, "I think he has given up."
I went to his room and asked the man a few questions. He was weak but
seemed glad to have me stop in.
"So, have you taken that trip?"
"No, we can not go."
Why?" I demanded.
"Well you know, I had cancer."
"So what does that matter? You can still go. It will be good to take that
trip."
"No, I can't go." Then he told me how his house keeper had told him that
under no way should he try this trip. After all, he had cancer. This man
had gone into a state of depression and I was helpless to pull him out.
One careless person had taken away from him all hope and none of us could
rebuild this hope. Although all tests showed he was free from cancer, he
had just given up. He refused to live, refused any help and yes, he died a
week later.
I state this only to show that one must keep fighting. Even if still with
cancer it is proved the one who fights it will live longer. But we who do
not have cancer must still fight. It is so easy for a nagging fear to crop
up. Especially in the early months/years.
My suggestion is simple: make sure your doctor keeps track of you and
anything that may concern you. Have any tests run regularly. With your
colon gone, with the cancer still only in one place, with the lymph nodes
all negative, my suggestion is to live like any one else. Take care of
yourself, eat good, exercise, take in plenty of water and be thankful for
today. Sure, there will be days that you feel that "worry," and this is
natural. But do not let it run your life.
Hope this helps. I know the fear, but I also know that today is going to be
another good day.
Hang in there.
How is your pouch working? Any trouble.
Blessings and I hope you have a good weekend.
Ernie
----- Original Message -----
From: "james ciarrocchi" <d427aj@...>
To: <jpouchsupport@yahoogroups.com>
Sent: Friday, June 29, 2007 6:07 AM
Subject: Re: [J-Pouch Support] antibiotic usage-my latest imput

thanks for your insight......I had j-pouch surgery about 10 months ago i was
47 at the time so my fap show up real late ........if you have any further
insights or the group it would be appreciated!!!!!!!!!!!!!!!

Ernest Jones <theolcrow@...> wrote: Hi James and welcome.
Do I understand that you still do have your colon or
is your colon all removed?
That will make a difference to what tests you have. If you had your colon
removed and a Jpouch made my thoughts would be that you have little to fear
and your doctor may want to do yearly scoping. If you still have some colon
my guess is to have repeat colonoscopies in around 6 months and if remains
clean yearly. But these must be as your surgeon/doctor orders. But praise
God it sounds like your cancer had not spread at all and this is good.
I too have FAP. My first surgery in 1965 when they found polyps and removed
2/3 of my colon. I had regular check ups but was found to have colon cancer
in 1980. At that time I think 13 out of 20 some lymph nodes showed cancer.
But I have been cancer free. During the 20 years up to 1999 I had
sigmoidoscopies ranging from every 3 months to yearly. These were the old
rigid ones, much worse than the scoping today. In August of 1999 the exam
showed an explosion of polyps and I was ordered to repeat the test in 6
months which showed still more, thus the Jpouch was made in April 2000.
Again, welcome to this list. Be looking for more from you and have a good
day.
Ernie
----- Original Message -----
From: "james ciarrocchi" <d427aj@...>
To: <jpouchsupport@yahoogroups.com>
Sent: Thursday, June 28, 2007 12:45 PM
Subject: Re: [J-Pouch Support] antibiotic usage-my latest imput

had a form of fap had 1 polyp go to early stage cancer ,26 lymph nodes taken
out all clean thank God,...What follow up test do you recomend being done
annually?

Ernest Jones <theolcrow@...> wrote: Rebecca
I will not even go into how I felt during my first post op year. Maybe I
should say the first two years. But time did show that life got better.
Maybe we won't get clear off all medications. Actually this does not bother
me any more. Mainly is the desire to just feel good.
You will make it also. But we do still need to have a medical person,
doctor or surgeon who still wants to keep track of us and to help us know
all is fine.
Ernie
----- Original Message -----
From: <rebe0505@...>
To: <jpouchsupport@yahoogroups.com>
Sent: Thursday, June 28, 2007 12:06 PM
Subject: Re: [J-Pouch Support] antibiotic usage-my latest imput

yes ernie i agree with everything you are saying...i think all of us want
not
to use meds ..infact that was one of my expectations about having this
surgery..no more meds!! so needless to say a year down the road it stresses
me
greatly to be on meds and makes me fearful i will continue to be on meds and
even
more fearful not getting to a point where even with meds i can get a handle
on it all... !but i do not think i am alone on this..i need more of your
spirit
as well as mitch and mike and others...rebecca

************************************** See what's free at
http://www.aol.com.

[Non-text portions of this message have been removed]

----------------------------------------------------------
----

No virus found in this incoming message.
Checked by AVG Free Edition.
Version: 7.5.476 / Virus Database: 269.9.10/876 - Release Date: 6/28/07
10:56 AM

[Non-text portions of this message have been removed]

----------------------------------------------------------
----

No virus found in this incoming message.
Checked by AVG Free Edition.
Version: 7.5.476 / Virus Database: 269.9.10/876 - Release Date: 6/28/07
10:56 AM

[Non-text portions of this message have been removed]

----------------------------------------------------------
----

No virus found in this incoming message.
Checked by AVG Free Edition.
Version: 7.5.476 / Virus Database: 269.9.10/876 - Release Date: 6/28/07
10:56 AM






[Non-text portions of this message have been removed]

Caffeine not good. Mitch
Sent from my BlackBerry wireless handheld.

-----Original Message-----
From: "Sarah Walsh" <chemlady2000@...>

Date: Sat, 30 Jun 2007 01:08:12
To:jpouchsupport@yahoogroups.com
Subject: [J-Pouch Support] Re: black tea


Thanks, I was thining it might be the caffiene that was bugging me
  Sarah
  --- In jpouchsupport@ <mailto:jpouchsupport%40yahoogroups.com> yahoogroups.com,
"Mike Utenick" <mutenick@...>
  wrote:
  >
  > Sarah, I drink lipton decaf tea - about 5 cups/day with no ill
  effects.
  > mike u
  > -----Original Message-----
  > From: jpouchsupport@ <mailto:jpouchsupport%40yahoogroups.com> yahoogroups.com
  > [mailto:jpouchsupport@ <mailto:jpouchsupport%40yahoogroups.com>
yahoogroups.com]On Behalf Of Sarah Walsh
  > Sent: Wednesday, June 27, 2007 10:21 PM
  > To: jpouchsupport@ <mailto:jpouchsupport%40yahoogroups.com> yahoogroups.com
  > Subject: [J-Pouch Support] black tea
  >
  >
  > Has anyone here had problems drinking black tea? I have been
  having
  > some trouble lately and I think I have narrowed it down to this.
  I
  > usually have a cup for breakfast everyday, but since it is hot
  out I
  > have been making sun tea and drinking quite a bit of it - as I do
  > every summer. Just trying it figure it out.
  > Sarah
  >
  >
  >
  >
  >
  >
  > [Non-text portions of this message have been removed]
  >



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My wife buys Smart Water by the case at Sam's Club and
loves it.  I'm a good husband and let her get what she
wants.  But before you go and spend a lot of money on
Smart Water,  the amount of electrolytes in it is
negligible and I think only put in for taste.  If you
read the label, they basically take regular water and
distill it, making it "pure" and since distilled water
has no taste they add minerals in for taste only not
for any nutrition reason.  But if you like the taste
go for it.  As my mother used to say "It couldn't
hurt".

Rob
--- Sandra Leitner <sandra.leitner@...> wrote:

> Karima...Smart Water is sugar free, but has no
> flavors. It's just water with
> electrolytes and potassium.
>
> On 6/29/07, KarimaBarbara Serio
> <skippingthestones@...> wrote:
> >
> >   Thanks Vicki. Still looking for sugar free. 8-(
> >
> > KarimaBarbara Serio
>
<skippingthestones@...<skippingthestones%40yahoo.com>>
> > wrote: and are they sugar free Vicki.
> > karima still looking fo rthe right drink
> >
> > toohip2b40@... <toohip2b40%40aol.com> wrote:
> > P.S.? Life Water by Sobe is basically the same
> thing as Vitamin Water, but
> > they have some different fruit flavor blends that
> are really good.? I've
> > found them at K-Mart and Weis Markets so far.?
> >
> > Vicki
> >
>
__________________________________________________________
> > AOL now offers free email to everyone. Find out
> more about what's free
> > from AOL at AOL.com.
> >
> > [Non-text portions of this message have been
> removed]
> >
> > ---------------------------------
> > Boardwalk for $500? In 2007? Ha!
> > Play Monopoly Here and Now (it's updated for
> today's economy) at Yahoo!
> > Games.
> >
> > [Non-text portions of this message have been
> removed]
> >
> > ---------------------------------
> > Shape Yahoo! in your own image. Join our Network
> Research Panel today!
> >
> > [Non-text portions of this message have been
> removed]
> >
> >
> >
>
>
>
> --
> Sandy
>
> "Live Well, Laugh Often, Love Much"
>
>
> [Non-text portions of this message have been
> removed]
>
>




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Thanks, I was thining it might be the caffiene that was bugging me
Sarah
--- In jpouchsupport@yahoogroups.com, "Mike Utenick" <mutenick@...>
wrote:
>
> Sarah, I drink lipton decaf tea - about 5 cups/day with no ill
effects.
> mike u
>   -----Original Message-----
>   From: jpouchsupport@yahoogroups.com
> [mailto:jpouchsupport@yahoogroups.com]On Behalf Of Sarah Walsh
>   Sent: Wednesday, June 27, 2007 10:21 PM
>   To: jpouchsupport@yahoogroups.com
>   Subject: [J-Pouch Support] black tea
>
>
>   Has anyone here had problems drinking black tea? I have been
having
>   some trouble lately and I think I have narrowed it down to this.
I
>   usually have a cup for breakfast everyday, but since it is hot
out I
>   have been making sun tea and drinking quite a bit of it - as I do
>   every summer. Just trying it figure it out.
>   Sarah
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

I can eat; green and wax bean, peas, corn on the cob, carrots, iceberg
lettuce, tomatoes.  I have been eating coleslaw occasionally as well.  I
also eat popcorn a few kernels at a time too.  I would say that you are
doing quite well, Tom.    It just takes time for all of to get there.  Hang
in there.



Kevin



From: jpouchsupport@yahoogroups.com [mailto:jpouchsupport@yahoogroups.com]
On Behalf Of Thomas Donahue
Sent: Friday, June 29, 2007 12:54 PM
To: jpouchsupport@yahoogroups.com
Subject: Re: [J-Pouch Support] Just checking in with everyone and
apologizing for being awol



Hi Sandra ; I eat peas quite often. I had corn last night for about the
third time in two months.I am 10-month post takedown. I have been eating
peas and greenbeans fairly often with no problems. I make sure I chew very
well and my wife is trying to get to slow down my eating also since I have
had a bad habit of eating too fast.We have carrots all the time and I have
eaten yellow and zuccini squash several times. I eat salad but mostly
iceberg or romaine lettuce and cucumbers along with some chopped up peppers
and also with artichoke hearts .I've had eggplant on a white (sauceless)
pizza and that was no problem. I had eggplant parmagian two weeks ago ( just
a little bit ) but took off the skin and the only trouble was the sauce
since I also had stuffed shells and meatball in sauce.
I find that baby spinach is ok for me to eat but I cannot eat full leaf
spinach or broccoli rabe or cabbage without some trouble. I have eaten the
full leaf spinach but cut off the stem part and cut up the leafy part very
small. I eat a banana almost every day and also at least one yogurt a day
for pro-biotics. I can eat pealed apple slices, melons like cantalope and
honeydew are good as is watermelon for me. I have had pears and peaches with
no problem except that I have to peal them first so you lose a lot of the
nutrients.
Hope you continue to get better and take a chance now and then trying to add
something new to your diet. I tried one at a time and sometimes had trouble
at first but no trouble if given another chance at a later date.
Stay well...............................Tom

----- Original Message ----
From: Sandra Leitner <sandra.leitner@...
<mailto:sandra.leitner%40gmail.com> >
To: jpouchsupport@yahoogroups.com <mailto:jpouchsupport%40yahoogroups.com>
Cc: karima Gari <skippingthestones@...
<mailto:skippingthestones%40yahoo.com> >
Sent: Thursday, June 28, 2007 11:51:25 AM
Subject: Re: [J-Pouch Support] Just checking in with everyone and
apologizing for being awol

Karima,

Loved reading your story. I think it's great that you're sharing your
experiences with us all. I'm sorry you're having trouble with the burning.
You ate popcorn...Brave woman! I am a chicken sh** and have not tried too
many questionable foods. I LOVE cashews and corn on the cob, but are afraid
to eat them. I live by the Chesapeake Bay and this time of year we eat crabs
caught from our own pots. Nothing is better than an ear of sweet corn with
steamed crabs and a beer!

I'm only 4 months post TD surgery so maybe next summer I can try the corn.
Has anyone else eaten corn or peas? Just wondering about those shelled
veggies.

On 6/27/07, KarimaBarbara Serio <skippingthestones@ yahoo.com> wrote:
>
> Hello everyone
> I have been reading all the emails but not writing. And to those of you
> who are not on the pouch email group, I think this note has so much
> information, I thought I would send it along to all tobring you up to date
> on what is happening to me. (even you cuppycake).
>
> One question: Has anyone heard from Miles. I know his wife is very ill. I
> wrote to him and no answer. I am worried about him.
>
> For those who don't know me, I am a cancer survivor who had colon cancer,
> the bag for an eleven months and the takedown left me with an anastomosis
> which Ernie says is so similar to j-pouch, this is the place for me to be
as
> the resulting problems are the same most as related to food intake and
> topical remedies.
>
> The most interesting thing that happened to me since my original surgery
> in 2004 is that this year I went to Morocco for a month and had absolutely
> no problems, no diarrhea, no nothing. Came home and bang ... back to the
> usual issues. I am sure it is because everybit of food I consumed there
was
> FRESH, not a preservative to be found. Praise be to Fatna, my dear new
> sister/friend.
>
> I came home to such busy-ness that I am also stressed to the max and then
> my Beloved Shih Tzu, Sarah died ... We had been together for 15 1/2 years.
> What a loss for me an Rose, her 10 year old pillow mate. Silly me, I
> purchased a puppy, this time a dachsund and had him flown in from
Tennessee.
> His name is Scooter Jude Cuppycake Spaices. such a big name for such a
tiny
> dog. Most of the time I am calling him "hey, knock it off"
> (smile).
>
> If I cook Moroccan, I stay pretty okay bowel wise but last week I was down
> in the dumps from overwork (we had a fund raiser at our Horse Rescue, here
> in NM and raised $10,000+ in one day with 1,000 people attending). But the
> planning, set-up, etc were murderous. Plus, I was burgled (they didn't get
> anything thanks to an alarm) while in Morocco, so now I have two big guys
> (who scare everyone but are just loves)... they are Jake and Dumbledore a
> shephered and an afghan mix (respectively) .
>
> So why my life story??? Well I have read often that some folks eat popcorn
> with impunity. Well I did and also within the same 2 - week time span ate
a
> different pizza, definitely not Moroccan style food.
>
> . Let me tell you, I paid the price in spades with all of the attendant
> and expected problems with running to the loo.. . Egad!! And of course
> stress, stress, stress.
> Not only does it hurt; it is messy. And I have no one to whine to except
> you guys. This is an "ow-y" day. Ow!@ Ow!@
>
> Greater news is I bought a new/used vehicle, an all-wheel drive Honda CRV
> to help me in the mountains out here this winter. Now safely stowed in the
> back of the CRV is my personal travel potty (which has never been used and
> had been donated to our sale for the horses) . I had it for two years and
> never used it and as soon as I bought the car, it was plucked out of the
> donations so at least I won't have to roadside squat anymore and worry
about
> tickets for indecent exposure!!!! (yeah, ain't I a riot).
>
>
> I can climb into my own "bidet/toilet" and since I have those black
> windows, feel relatively comfortable and private...sure better than
> roadside. Haven't tried it yet but sure will I am sure.
>
> I empathize with all that everyone is going through and continues to go
> through. My troubles came from colon cancer and anyone having anything to
do
> with disruption of digestion and bowel function is not in for a party, yet
> we can and do live. The message loud and clearly is...there is life after
> the "whatever".
>
> Surprisingly, I fell in love and went to Morocco to meet my love and his
> family. Believe is or not, I began an intimate relationship after 17.
Enough
> said. Life does go on. So don't give up folks. If I can do it, you can
too.
>
> Some of you will remember my post asking more or less, if there is life
> afte this stuff
>
> All the advice given by Ernie, Ali, Kevin and folks who have been around
> is worth its weight in gold. Like right now I am using, creams from the
> internet, bag balm, some of the pink stuff and finally beat up the doc so
I
> have lomotil and can skip the immodium.
>
> All in all I manage. My biggest worries besides the pain in my a@@ is my
> little Rose has a bad eye and that just cost $337 and we need to keep an
eye
> on it and my horse needs a vet and chiropractor and corrective shoeing.
Yep
> and as I type this I just got the bill for yesterday's vet work --- $95.00
> for Khan. He desperately needed to be adjusted and will need corrective
> shoes and then he goes back to work. I do love that horse so very much.
>
> So my family is flung far and wide actually coast to coast and I am in the
> southwest. My love is on the African continent in Morocco and we are
working
> to bring him here on a work contract. Anyone can help with that? Write to
me
> privately.
>
> What can I offer the group ...only my experiences and the blessed attitude
> of living in the moment, one day at a time. . This is the month for all
the
> lovely tests again, colonoscopy, pap, breast...Oh Joy!!!!! But I am only
> thinking that July 4th, there is a barbecue!!!
>
> So if you can live one day at a time and never give up your hope and trust
> in the Universe, you can live day by day. Why try to live more, today is
all
> we have.
>
> Another most important thing is to Believe in yourself and your
> intuitions. If you think something or one isn't good for you, it/they
> probably aren't. Don't waste a day or a second with anyone who stresses
you.
> Stress is the breeding ground for disease.
>
> I hope all are not minding my bah blah blah.
> Love,
> Karima
>
> The other news is: I have reopened my dog grooming business in honor of my
> Sarah and have called it Sarah's Place
>
> And I fell over my doggie gate slipping on a wet tile floor and
> hyper-extended my leg and crashed on my knee so I am in a brace. The new
> puppy is "Scooter" and he is 4 mos. old. Boy did I forget how puppies
chew.
>
> Peace and Blessings to all of you,
> Karima and her menagerie
>
>
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--
Sandy

"Live Well, Laugh Often, Love Much"

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]





[Non-text portions of this message have been removed]

Karima...Smart Water is sugar free, but has no flavors. It's just water with
electrolytes and potassium.

On 6/29/07, KarimaBarbara Serio <skippingthestones@...> wrote:
>
>   Thanks Vicki. Still looking for sugar free. 8-(
>
> KarimaBarbara Serio
<skippingthestones@...<skippingthestones%40yahoo.com>>
> wrote: and are they sugar free Vicki.
> karima still looking fo rthe right drink
>
> toohip2b40@... <toohip2b40%40aol.com> wrote:
> P.S.? Life Water by Sobe is basically the same thing as Vitamin Water, but
> they have some different fruit flavor blends that are really good.? I've
> found them at K-Mart and Weis Markets so far.?
>
> Vicki
> __________________________________________________________
> AOL now offers free email to everyone. Find out more about what's free
> from AOL at AOL.com.
>
> [Non-text portions of this message have been removed]
>
> ---------------------------------
> Boardwalk for $500? In 2007? Ha!
> Play Monopoly Here and Now (it's updated for today's economy) at Yahoo!
> Games.
>
> [Non-text portions of this message have been removed]
>
> ---------------------------------
> Shape Yahoo! in your own image. Join our Network Research Panel today!
>
> [Non-text portions of this message have been removed]
>
>
>



--
Sandy

"Live Well, Laugh Often, Love Much"


[Non-text portions of this message have been removed]

and mitch don't even know what you were responding
to... but couldn't agree more with you on what you
said.  later david
--- micheezz@... wrote:

> So maybe a permanent ileostomy is a better solution.
>
>
> There isn't a person in the world who can convince
> me that medicine, and the PRACTICE of such, is an
> art. Trial and error applies mostly to science.
>
> Not looking to beat a dead horse (pardon the
> expression) but this site can only be impactful if
> we provide facts. Speculation will not help people.
> If your problems are so persistant after so much
> time then possibly a second opinion is in order.
> Obsessing over the same things will only cause
> damage, mental and physical. Sorry if I am being
> harsh but mental attitude is directly related to
> physical well being. Those who are struggling with
> obsessive thoughts should seek help amd maybe meds.
> If your already on meds then possibly you have built
> tolerance and need to change or increase. Those who
> worry about everything, what they eat, drink, pass
> etc, need to change their thinking. I'm done for
> now. Mitch
> Sent from my BlackBerry wireless handheld.
>
> -----Original Message-----
> From: rebe0505@...
>
> Date: Thu, 28 Jun 2007 13:21:59
> To:jpouchsupport@yahoogroups.com
> Subject: Re: [J-Pouch Support] antibiotic usage-my
> latest imput
>
>
> mitch i think what she meant is that there are
> things the doctors just do not
>  have a scientific magic bullet for and like it or
> not the operation we had is
>  not the end all for lots of people..they just do
> not have a full
>  understanding of alot of whys..they just try
> different things that are available to
>  them..so is it somewhat of an art of how they each
> go about it..perhaps....rebecca
>
>  ************************************** See what's
> free at http://www.aol. <http://www.aol.com.> com.
>
>  [Non-text portions of this message have been
> removed]
>
>
>
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________________________________________________________________________________\
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mitch -

no you're not.  great... er... GREAT!  you are so
right... it is scarey.  needless to say i totally
agree with you.  i personally find those
over-obsessive negative worry worts very energy
draining.  like parasites... just suck your energy.
and do they do anything with advice they ask for?  if
not feeding their drama want no part of you and
advice.  and i get very tired from it sometimes...
especially when not on top of my game.  but belive
can't pull punches and have to say what needs to be
said... and if get flack - so be it.  but you said it
guy.  hurray.  later david
--- micheezz@... wrote:

> So maybe a permanent ileostomy is a better solution.
>
>
> There isn't a person in the world who can convince
> me that medicine, and the PRACTICE of such, is an
> art. Trial and error applies mostly to science.
>
> Not looking to beat a dead horse (pardon the
> expression) but this site can only be impactful if
> we provide facts. Speculation will not help people.
> If your problems are so persistant after so much
> time then possibly a second opinion is in order.
> Obsessing over the same things will only cause
> damage, mental and physical. Sorry if I am being
> harsh but mental attitude is directly related to
> physical well being. Those who are struggling with
> obsessive thoughts should seek help amd maybe meds.
> If your already on meds then possibly you have built
> tolerance and need to change or increase. Those who
> worry about everything, what they eat, drink, pass
> etc, need to change their thinking. I'm done for
> now. Mitch
> Sent from my BlackBerry wireless handheld.
>
> -----Original Message-----
> From: rebe0505@...
>
> Date: Thu, 28 Jun 2007 13:21:59
> To:jpouchsupport@yahoogroups.com
> Subject: Re: [J-Pouch Support] antibiotic usage-my
> latest imput
>
>
> mitch i think what she meant is that there are
> things the doctors just do not
>  have a scientific magic bullet for and like it or
> not the operation we had is
>  not the end all for lots of people..they just do
> not have a full
>  understanding of alot of whys..they just try
> different things that are available to
>  them..so is it somewhat of an art of how they each
> go about it..perhaps....rebecca
>
>  ************************************** See what's
> free at http://www.aol. <http://www.aol.com.> com.
>
>  [Non-text portions of this message have been
> removed]
>
>
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<http://us.ard.yahoo.com/SIG=12m9h4tb8/M=493064.10729657.11333348.8674578/D=grph\
ealth/S=1705061498:NC/Y=YAHOO/EXP=1183058570/A=4025373/R=0/SIG=12dtn7qjm/*http:/\
/us.rd.yahoo.com/evt=44092/*http://smallbusiness.yahoo.com/webhosting>
>
> photos and
> more online.
> .
>
>
> Yahoo! Groups Links
>
>
> mailto:jpouchsupport-fullfeatured@yahoogroups.com
>
>
>




________________________________________________________________________________\
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Get the Yahoo! toolbar and be alerted to new email wherever you're surfing.
http://new.toolbar.yahoo.com/toolbar/features/mail/index.php

Thanks Vicki.  Still looking for sugar free.  8-(

KarimaBarbara Serio <skippingthestones@...> wrote:          and are they
sugar free Vicki.
karima still looking fo rthe right drink

toohip2b40@... wrote:
P.S.? Life Water by Sobe is basically the same thing as Vitamin Water, but they
have some different fruit flavor blends that are really good.? I've found them
at K-Mart and Weis Markets so far.?

Vicki
__________________________________________________________
AOL now offers free email to everyone. Find out more about what's free from AOL
at AOL.com.

[Non-text portions of this message have been removed]

---------------------------------
Boardwalk for $500? In 2007? Ha!
Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games.

[Non-text portions of this message have been removed]









---------------------------------
Shape Yahoo! in your own image.  Join our Network Research Panel today!

[Non-text portions of this message have been removed]

No, they aren't, Karima.  I think they're the same as Vitamin  Water - 125
calories for the 20 ounce bottle.

Vicki



************************************** See what's free at http://www.aol.com.


[Non-text portions of this message have been removed]

Tom,

thanks so much for sharing your food experiences. I am looking forward to
adding to my repertoire. I absolutely LOVE peas and corn. I'll have to try
each soon and just chew well. It's good to know that there's light at the
end of the tunnel.    :)

On 6/29/07, Thomas Donahue <cttbone@...> wrote:
>
>   Hi Sandra ; I eat peas quite often. I had corn last night for about the
> third time in two months.I am 10-month post takedown. I have been eating
> peas and greenbeans fairly often with no problems. I make sure I chew very
> well and my wife is trying to get to slow down my eating also since I have
> had a bad habit of eating too fast.We have carrots all the time and I have
> eaten yellow and zuccini squash several times. I eat salad but mostly
> iceberg or romaine lettuce and cucumbers along with some chopped up peppers
> and also with artichoke hearts .I've had eggplant on a white (sauceless)
> pizza and that was no problem. I had eggplant parmagian two weeks ago ( just
> a little bit ) but took off the skin and the only trouble was the sauce
> since I also had stuffed shells and meatball in sauce.
> I find that baby spinach is ok for me to eat but I cannot eat full leaf
> spinach or broccoli rabe or cabbage without some trouble. I have eaten the
> full leaf spinach but cut off the stem part and cut up the leafy part very
> small. I eat a banana almost every day and also at least one yogurt a day
> for pro-biotics. I can eat pealed apple slices, melons like cantalope and
> honeydew are good as is watermelon for me. I have had pears and peaches with
> no problem except that I have to peal them first so you lose a lot of the
> nutrients.
> Hope you continue to get better and take a chance now and then trying to
> add something new to your diet. I tried one at a time and sometimes had
> trouble at first but no trouble if given another chance at a later date.
> Stay well...............................Tom
>
> ----- Original Message ----
> From: Sandra Leitner <sandra.leitner@...<sandra.leitner%40gmail.com>
> >
> To: jpouchsupport@yahoogroups.com <jpouchsupport%40yahoogroups.com>
> Cc: karima Gari <skippingthestones@...<skippingthestones%40yahoo.com>
> >
> Sent: Thursday, June 28, 2007 11:51:25 AM
> Subject: Re: [J-Pouch Support] Just checking in with everyone and
> apologizing for being awol
>
> Karima,
>
> Loved reading your story. I think it's great that you're sharing your
> experiences with us all. I'm sorry you're having trouble with the burning.
> You ate popcorn...Brave woman! I am a chicken sh** and have not tried too
> many questionable foods. I LOVE cashews and corn on the cob, but are
> afraid
> to eat them. I live by the Chesapeake Bay and this time of year we eat
> crabs
> caught from our own pots. Nothing is better than an ear of sweet corn with
> steamed crabs and a beer!
>
> I'm only 4 months post TD surgery so maybe next summer I can try the corn.
> Has anyone else eaten corn or peas? Just wondering about those shelled
> veggies.
>
> On 6/27/07, KarimaBarbara Serio <skippingthestones@ yahoo.com> wrote:
> >
> > Hello everyone
> > I have been reading all the emails but not writing. And to those of you
> > who are not on the pouch email group, I think this note has so much
> > information, I thought I would send it along to all tobring you up to
> date
> > on what is happening to me. (even you cuppycake).
> >
> > One question: Has anyone heard from Miles. I know his wife is very ill.
> I
> > wrote to him and no answer. I am worried about him.
> >
> > For those who don't know me, I am a cancer survivor who had colon
> cancer,
> > the bag for an eleven months and the takedown left me with an
> anastomosis
> > which Ernie says is so similar to j-pouch, this is the place for me to
> be as
> > the resulting problems are the same most as related to food intake and
> > topical remedies.
> >
> > The most interesting thing that happened to me since my original surgery
> > in 2004 is that this year I went to Morocco for a month and had
> absolutely
> > no problems, no diarrhea, no nothing. Came home and bang ... back to the
> > usual issues. I am sure it is because everybit of food I consumed there
> was
> > FRESH, not a preservative to be found. Praise be to Fatna, my dear new
> > sister/friend.
> >
> > I came home to such busy-ness that I am also stressed to the max and
> then
> > my Beloved Shih Tzu, Sarah died ... We had been together for 15 1/2
> years.
> > What a loss for me an Rose, her 10 year old pillow mate. Silly me, I
> > purchased a puppy, this time a dachsund and had him flown in from
> Tennessee.
> > His name is Scooter Jude Cuppycake Spaices. such a big name for such a
> tiny
> > dog. Most of the time I am calling him "hey, knock it off"
> > (smile).
> >
> > If I cook Moroccan, I stay pretty okay bowel wise but last week I was
> down
> > in the dumps from overwork (we had a fund raiser at our Horse Rescue,
> here
> > in NM and raised $10,000+ in one day with 1,000 people attending). But
> the
> > planning, set-up, etc were murderous. Plus, I was burgled (they didn't
> get
> > anything thanks to an alarm) while in Morocco, so now I have two big
> guys
> > (who scare everyone but are just loves)... they are Jake and Dumbledore
> a
> > shephered and an afghan mix (respectively) .
> >
> > So why my life story??? Well I have read often that some folks eat
> popcorn
> > with impunity. Well I did and also within the same 2 - week time span
> ate a
> > different pizza, definitely not Moroccan style food.
> >
> > . Let me tell you, I paid the price in spades with all of the attendant
> > and expected problems with running to the loo.. . Egad!! And of course
> > stress, stress, stress.
> > Not only does it hurt; it is messy. And I have no one to whine to except
> > you guys. This is an "ow-y" day. Ow!@ Ow!@
> >
> > Greater news is I bought a new/used vehicle, an all-wheel drive Honda
> CRV
> > to help me in the mountains out here this winter. Now safely stowed in
> the
> > back of the CRV is my personal travel potty (which has never been used
> and
> > had been donated to our sale for the horses) . I had it for two years
> and
> > never used it and as soon as I bought the car, it was plucked out of the
> > donations so at least I won't have to roadside squat anymore and worry
> about
> > tickets for indecent exposure!!!! (yeah, ain't I a riot).
> >
> >
> > I can climb into my own "bidet/toilet" and since I have those black
> > windows, feel relatively comfortable and private...sure better than
> > roadside. Haven't tried it yet but sure will I am sure.
> >
> > I empathize with all that everyone is going through and continues to go
> > through. My troubles came from colon cancer and anyone having anything
> to do
> > with disruption of digestion and bowel function is not in for a party,
> yet
> > we can and do live. The message loud and clearly is...there is life
> after
> > the "whatever".
> >
> > Surprisingly, I fell in love and went to Morocco to meet my love and his
> > family. Believe is or not, I began an intimate relationship after 17.
> Enough
> > said. Life does go on. So don't give up folks. If I can do it, you can
> too.
> >
> > Some of you will remember my post asking more or less, if there is life
> > afte this stuff
> >
> > All the advice given by Ernie, Ali, Kevin and folks who have been around
> > is worth its weight in gold. Like right now I am using, creams from the
> > internet, bag balm, some of the pink stuff and finally beat up the doc
> so I
> > have lomotil and can skip the immodium.
> >
> > All in all I manage. My biggest worries besides the pain in my a@@ is my
> > little Rose has a bad eye and that just cost $337 and we need to keep an
> eye
> > on it and my horse needs a vet and chiropractor and corrective shoeing.
> Yep
> > and as I type this I just got the bill for yesterday's vet work ---
> $95.00
> > for Khan. He desperately needed to be adjusted and will need corrective
> > shoes and then he goes back to work. I do love that horse so very much.
> >
> > So my family is flung far and wide actually coast to coast and I am in
> the
> > southwest. My love is on the African continent in Morocco and we are
> working
> > to bring him here on a work contract. Anyone can help with that? Write
> to me
> > privately.
> >
> > What can I offer the group ...only my experiences and the blessed
> attitude
> > of living in the moment, one day at a time. . This is the month for all
> the
> > lovely tests again, colonoscopy, pap, breast...Oh Joy!!!!! But I am only
> > thinking that July 4th, there is a barbecue!!!
> >
> > So if you can live one day at a time and never give up your hope and
> trust
> > in the Universe, you can live day by day. Why try to live more, today is
> all
> > we have.
> >
> > Another most important thing is to Believe in yourself and your
> > intuitions. If you think something or one isn't good for you, it/they
> > probably aren't. Don't waste a day or a second with anyone who stresses
> you.
> > Stress is the breeding ground for disease.
> >
> > I hope all are not minding my bah blah blah.
> > Love,
> > Karima
> >
> > The other news is: I have reopened my dog grooming business in honor of
> my
> > Sarah and have called it Sarah's Place
> >
> > And I fell over my doggie gate slipping on a wet tile floor and
> > hyper-extended my leg and crashed on my knee so I am in a brace. The new
> > puppy is "Scooter" and he is 4 mos. old. Boy did I forget how puppies
> chew.
> >
> > Peace and Blessings to all of you,
> > Karima and her menagerie
> >
> >
> > Recent Activity
> >
> > 4
> > New Members
> >
> > Visit Your Group
> > SPONSORED LINKS
> >
> > Health and wellness in the workplace
> > Center for health and wellness
> > Health and wellness center
> > Health and wellness
> > Business health wellness
> >
> > Healthy Eating
> > A Yahoo! resource
> > for families on
> > how to eat healthy
> >
> > Yahoo! TV
> > "The 9"
> > Daily count down
> > of top Web finds.
> >
> > Sitebuilder
> > Build a web site
> > quickly & easily
> > with Sitebuilder.
> >
> > .
> >
> > ------------ --------- --------- ---
> > Got a little couch potato?
> > Check out fun summer activities for kids.
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
>
> --
> Sandy
>
> "Live Well, Laugh Often, Love Much"
>
> [Non-text portions of this message have been removed]
>
> [Non-text portions of this message have been removed]
>
>
>



--
Sandy

"Live Well, Laugh Often, Love Much"


[Non-text portions of this message have been removed]

and are they sugar free Vicki.
   karima still looking fo rthe right drink

toohip2b40@... wrote:
           P.S.? Life Water by Sobe is basically the same thing as Vitamin Water,
but they have some different fruit flavor blends that are really good.? I've
found them at K-Mart and Weis Markets so far.?

Vicki
__________________________________________________________
AOL now offers free email to everyone. Find out more about what's free from AOL
at AOL.com.

[Non-text portions of this message have been removed]









---------------------------------
Boardwalk for $500? In 2007? Ha!
Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games.

[Non-text portions of this message have been removed]

Hi Sandra ; I eat peas quite often. I had corn last night for about the third
time in two months.I am 10-month post takedown. I have been eating peas and
greenbeans  fairly often with no problems. I make sure I chew very well and my
wife is trying to get to slow down my eating also since I have had a bad habit
of eating too fast.We have carrots all the time and I have eaten yellow and
zuccini squash several times. I eat salad but mostly iceberg or romaine lettuce
and cucumbers along with some chopped up peppers and also with artichoke hearts
.I've had eggplant on a white (sauceless) pizza and that was no problem. I had
eggplant parmagian two weeks ago ( just a little bit ) but took off the skin and
the only trouble was the sauce since I also had stuffed shells and meatball in
sauce.
      I find that baby spinach is ok for me to eat but I cannot eat full leaf
spinach or broccoli rabe or cabbage without some trouble. I have eaten the full
leaf spinach but cut off the stem part and cut up the leafy part very small. I
eat a banana almost every day and also at least one yogurt a day for
pro-biotics. I can eat pealed apple slices, melons like cantalope and honeydew
are good as is watermelon for me. I have had pears and peaches with no problem
except that I have to peal them first so you lose a lot of the nutrients.
       Hope you continue to get better and take a chance now and then trying to
add something new to your diet. I tried one at a time and sometimes had trouble
at first but no trouble if given another chance at a later date.
                                 Stay well...............................Tom


----- Original Message ----
From: Sandra Leitner <sandra.leitner@...>
To: jpouchsupport@yahoogroups.com
Cc: karima Gari <skippingthestones@...>
Sent: Thursday, June 28, 2007 11:51:25 AM
Subject: Re: [J-Pouch Support] Just checking in with everyone and apologizing
for being awol

Karima,

Loved reading your story. I think it's great that you're sharing your
experiences with us all. I'm sorry you're having trouble with the burning.
You ate popcorn...Brave woman! I am a chicken sh** and have not tried too
many questionable foods. I LOVE cashews and corn on the cob, but are afraid
to eat them. I live by the Chesapeake Bay and this time of year we eat crabs
caught from our own pots. Nothing is better than an ear of sweet corn with
steamed crabs and a beer!

I'm only 4 months post TD surgery so maybe next summer I can try the corn.
Has anyone else eaten corn or peas? Just wondering about those shelled
veggies.

On 6/27/07, KarimaBarbara Serio <skippingthestones@ yahoo.com> wrote:
>
> Hello everyone
> I have been reading all the emails but not writing. And to those of you
> who are not on the pouch email group, I think this note has so much
> information, I thought I would send it along to all tobring you up to date
> on what is happening to me. (even you cuppycake).
>
> One question: Has anyone heard from Miles. I know his wife is very ill. I
> wrote to him and no answer. I am worried about him.
>
> For those who don't know me, I am a cancer survivor who had colon cancer,
> the bag for an eleven months and the takedown left me with an anastomosis
> which Ernie says is so similar to j-pouch, this is the place for me to be as
> the resulting problems are the same most as related to food intake and
> topical remedies.
>
> The most interesting thing that happened to me since my original surgery
> in 2004 is that this year I went to Morocco for a month and had absolutely
> no problems, no diarrhea, no nothing. Came home and bang ... back to the
> usual issues. I am sure it is because everybit of food I consumed there was
> FRESH, not a preservative to be found. Praise be to Fatna, my dear new
> sister/friend.
>
> I came home to such busy-ness that I am also stressed to the max and then
> my Beloved Shih Tzu, Sarah died ... We had been together for 15 1/2 years.
> What a loss for me an Rose, her 10 year old pillow mate. Silly me, I
> purchased a puppy, this time a dachsund and had him flown in from Tennessee.
> His name is Scooter Jude Cuppycake Spaices. such a big name for such a tiny
> dog. Most of the time I am calling him "hey, knock it off"
> (smile).
>
> If I cook Moroccan, I stay pretty okay bowel wise but last week I was down
> in the dumps from overwork (we had a fund raiser at our Horse Rescue, here
> in NM and raised $10,000+ in one day with 1,000 people attending). But the
> planning, set-up, etc were murderous. Plus, I was burgled (they didn't get
> anything thanks to an alarm) while in Morocco, so now I have two big guys
> (who scare everyone but are just loves)... they are Jake and Dumbledore a
> shephered and an afghan mix (respectively) .
>
> So why my life story??? Well I have read often that some folks eat popcorn
> with impunity. Well I did and also within the same 2 - week time span ate a
> different pizza, definitely not Moroccan style food.
>
> . Let me tell you, I paid the price in spades with all of the attendant
> and expected problems with running to the loo.. . Egad!! And of course
> stress, stress, stress.
> Not only does it hurt; it is messy. And I have no one to whine to except
> you guys. This is an "ow-y" day. Ow!@ Ow!@
>
> Greater news is I bought a new/used vehicle, an all-wheel drive Honda CRV
> to help me in the mountains out here this winter. Now safely stowed in the
> back of the CRV is my personal travel potty (which has never been used and
> had been donated to our sale for the horses) . I had it for two years and
> never used it and as soon as I bought the car, it was plucked out of the
> donations so at least I won't have to roadside squat anymore and worry about
> tickets for indecent exposure!!!! (yeah, ain't I a riot).
>
>
> I can climb into my own "bidet/toilet" and since I have those black
> windows, feel relatively comfortable and private...sure better than
> roadside. Haven't tried it yet but sure will I am sure.
>
> I empathize with all that everyone is going through and continues to go
> through. My troubles came from colon cancer and anyone having anything to do
> with disruption of digestion and bowel function is not in for a party, yet
> we can and do live. The message loud and clearly is...there is life after
> the "whatever".
>
> Surprisingly, I fell in love and went to Morocco to meet my love and his
> family. Believe is or not, I began an intimate relationship after 17. Enough
> said. Life does go on. So don't give up folks. If I can do it, you can too.
>
> Some of you will remember my post asking more or less, if there is life
> afte this stuff
>
> All the advice given by Ernie, Ali, Kevin and folks who have been around
> is worth its weight in gold. Like right now I am using, creams from the
> internet, bag balm, some of the pink stuff and finally beat up the doc so I
> have lomotil and can skip the immodium.
>
> All in all I manage. My biggest worries besides the pain in my a@@ is my
> little Rose has a bad eye and that just cost $337 and we need to keep an eye
> on it and my horse needs a vet and chiropractor and corrective shoeing. Yep
> and as I type this I just got the bill for yesterday's vet work --- $95.00
> for Khan. He desperately needed to be adjusted and will need corrective
> shoes and then he goes back to work. I do love that horse so very much.
>
> So my family is flung far and wide actually coast to coast and I am in the
> southwest. My love is on the African continent in Morocco and we are working
> to bring him here on a work contract. Anyone can help with that? Write to me
> privately.
>
> What can I offer the group ...only my experiences and the blessed attitude
> of living in the moment, one day at a time. . This is the month for all the
> lovely tests again, colonoscopy, pap, breast...Oh Joy!!!!! But I am only
> thinking that July 4th, there is a barbecue!!!
>
> So if you can live one day at a time and never give up your hope and trust
> in the Universe, you can live day by day. Why try to live more, today is all
> we have.
>
> Another most important thing is to Believe in yourself and your
> intuitions. If you think something or one isn't good for you, it/they
> probably aren't. Don't waste a day or a second with anyone who stresses you.
> Stress is the breeding ground for disease.
>
> I hope all are not minding my bah blah blah.
> Love,
> Karima
>
> The other news is: I have reopened my dog grooming business in honor of my
> Sarah and have called it Sarah's Place
>
> And I fell over my doggie gate slipping on a wet tile floor and
> hyper-extended my leg and crashed on my knee so I am in a brace. The new
> puppy is "Scooter" and he is 4 mos. old. Boy did I forget how puppies chew.
>
> Peace and Blessings to all of you,
> Karima and her menagerie
>
>
> Recent Activity
>
> 4
> New Members
>
> Visit Your Group
> SPONSORED LINKS
>
> Health and wellness in the workplace
> Center for health and wellness
> Health and wellness center
> Health and wellness
> Business health wellness
>
> Healthy Eating
> A Yahoo! resource
> for families on
> how to eat healthy
>
> Yahoo! TV
> "The 9"
> Daily count down
> of top Web finds.
>
> Sitebuilder
> Build a web site
> quickly & easily
> with Sitebuilder.
>
> .
>
> ------------ --------- --------- ---
> Got a little couch potato?
> Check out fun summer activities for kids.
>
> [Non-text portions of this message have been removed]
>
>
>

--
Sandy

"Live Well, Laugh Often, Love Much"

[Non-text portions of this message have been removed]




[Non-text portions of this message have been removed]

So maybe a permanent ileostomy is a better solution.

There isn't a person in the world who can convince me that medicine, and the
PRACTICE of such, is an art. Trial and error applies mostly to science.

Not looking to beat a dead horse (pardon the expression) but this site can only
be impactful if we provide facts. Speculation will not help people. If your
problems are so persistant after so much time then possibly a second opinion is
in order. Obsessing over the same things will only cause damage, mental and
physical. Sorry if I am being harsh but mental attitude is directly related to
physical well being. Those who are struggling with obsessive thoughts should
seek help amd maybe meds. If your already on meds then possibly you have built
tolerance and need to change or increase. Those who worry about everything, what
they eat, drink, pass etc, need to change their thinking. I'm done for now.
Mitch
Sent from my BlackBerry wireless handheld.

-----Original Message-----
From: rebe0505@...

Date: Thu, 28 Jun 2007 13:21:59
To:jpouchsupport@yahoogroups.com
Subject: Re: [J-Pouch Support] antibiotic usage-my latest imput


mitch i think what she meant is that there are things the doctors just do not
  have a scientific magic bullet for and like it or not the operation we had is
  not the end all for lots of people..they just do not have a full
  understanding of alot of whys..they just try different things that are
available to
  them..so is it somewhat of an art of how they each go about
it..perhaps....rebecca

  ************************************** See what's free at http://www.aol.
<http://www.aol.com.> com.

  [Non-text portions of this message have been removed]



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Hi James,
Although I was younger when the doctors found the connection, I was 43 when
my cancer surgery and another 20 years before the Jpouch was made.  My
surgeon said that I was the oldest one he had done this surgery on as most,
this age,   the cancer had progressed too far.
James, I was a nurse working in a hospital before and after my colon cancer
surgery.  I struggled with my feelings.  Although a nurse, I never accepted
the fact that cancer could be all through me.  Two years later I had another
surgery, this time for a blockage from scar tissue.  My surgeon fully
expected to find more cancer but he found only adhesions that were causing
the blockage.  I know I place a lot of my help in prayer, faith and knowing
I had help from Another than my surgeon.  This was important to me.
Another thing is to never give up.  During this time I took care of another
man who had recently had the same surgery.  (No Jpouch, just part of his
colon removed,) and he was worried.  He and a brother, both in their 70's
and neither married lived together and only a lady came weekly to help clean
up for them.  They had planned a trip but now he told me he could not go.
"Why not? I asked.
"Well because I have cancer.  So and so told me that now I can not travel
there."
"Sure you can, I assured him.
When he left the two men were making plans for this trip.  This trip was
only about 300 miles, the farthest either had ever been away from their
place.
Just under three months later this man returned to the hospital.  Every test
ran showed there was no cancer.  The doctor could find no problem as to his
decline.
When I asked his doctor he replied, "I think he has given up."
I went to his room and asked the man a few questions.  He was weak but
seemed glad to have me stop in.
"So, have you taken that trip?"
"No, we can not go."
Why?" I demanded.
"Well you know, I had cancer."
"So what does that matter?  You can still go.  It will be good to take that
trip."
"No, I can't go."  Then he told me how his house keeper had told him that
under no way should he try this trip.  After all, he had cancer.  This man
had gone into a state of depression and I was helpless to pull him out.
One careless person had taken away from him all hope and none of us could
rebuild this hope.  Although all tests showed he was free from cancer, he
had just given up.  He refused to live, refused any help and yes, he died a
week later.
I state this only to show that one must keep fighting.  Even if still with
cancer it is proved the one who fights it will live longer.  But we who do
not have cancer must still fight.  It is so easy for a nagging fear to crop
up.  Especially in the early months/years.
My suggestion is simple:  make sure your doctor keeps track of you and
anything that may concern you.  Have any tests run regularly.  With your
colon gone, with the cancer still only in one place, with the lymph nodes
all negative,  my suggestion is to live like any one else.  Take care of
yourself, eat good, exercise, take in plenty of water and be thankful for
today.  Sure, there will be days that you feel that "worry," and this is
natural.  But do not let it run your life.
Hope this helps.  I know the fear, but I also know that today is going to be
another good day.
Hang in there.
How is your pouch working?  Any trouble.
Blessings and I hope you have a good weekend.
Ernie
----- Original Message -----
From: "james ciarrocchi" <d427aj@...>
To: <jpouchsupport@yahoogroups.com>
Sent: Friday, June 29, 2007 6:07 AM
Subject: Re: [J-Pouch Support] antibiotic usage-my latest imput


thanks for your insight......I had j-pouch surgery about 10 months ago i was
47 at the time so my fap show up real late ........if you have any further
insights or the group it would be appreciated!!!!!!!!!!!!!!!

Ernest Jones <theolcrow@...> wrote:           Hi James and welcome.
Do I understand that you still do have your colon or
is your colon all removed?
That will make a difference to what tests you have. If you had your colon
removed and a Jpouch made my thoughts would be that you have little to fear
and your doctor may want to do yearly scoping. If you still have some colon
my guess is to have repeat colonoscopies in around 6 months and if remains
clean yearly. But these must be as your surgeon/doctor orders. But praise
God it sounds like your cancer had not spread at all and this is good.
I too have FAP. My first surgery in 1965 when they found polyps and removed
2/3 of my colon. I had regular check ups but was found to have colon cancer
in 1980. At that time I think 13 out of 20 some lymph nodes showed cancer.
But I have been cancer free. During the 20 years up to 1999 I had
sigmoidoscopies ranging from every 3 months to yearly. These were the old
rigid ones, much worse than the scoping today. In August of 1999 the exam
showed an explosion of polyps and I was ordered to repeat the test in 6
months which showed still more, thus the Jpouch was made in April 2000.
Again, welcome to this list. Be looking for more from you and have a good
day.
Ernie
----- Original Message -----
From: "james ciarrocchi" <d427aj@...>
To: <jpouchsupport@yahoogroups.com>
Sent: Thursday, June 28, 2007 12:45 PM
Subject: Re: [J-Pouch Support] antibiotic usage-my latest imput

had a form of fap had 1 polyp go to early stage cancer ,26 lymph nodes taken
out all clean thank God,...What follow up test do you recomend being done
annually?

Ernest Jones <theolcrow@...> wrote: Rebecca
I will not even go into how I felt during my first post op year. Maybe I
should say the first two years. But time did show that life got better.
Maybe we won't get clear off all medications. Actually this does not bother
me any more. Mainly is the desire to just feel good.
You will make it also. But we do still need to have a medical person,
doctor or surgeon who still wants to keep track of us and to help us know
all is fine.
Ernie
----- Original Message -----
From: <rebe0505@...>
To: <jpouchsupport@yahoogroups.com>
Sent: Thursday, June 28, 2007 12:06 PM
Subject: Re: [J-Pouch Support] antibiotic usage-my latest imput

yes ernie i agree with everything you are saying...i think all of us want
not
to use meds ..infact that was one of my expectations about having this
surgery..no more meds!! so needless to say a year down the road it stresses
me
greatly to be on meds and makes me fearful i will continue to be on meds and
even
more fearful not getting to a point where even with meds i can get a handle
on it all... !but i do not think i am alone on this..i need more of your
spirit
as well as mitch and mike and others...rebecca

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10:56 AM

P.S.? Life Water by Sobe is basically the same thing as Vitamin Water, but they
have some different fruit flavor blends that are really good.? I've found them
at K-Mart and Weis Markets so far.?

Vicki
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Hi Laura.? Vitamin Water is 50 calories for 8 ounces, so if you drink the whole
20 oz. bottle, it's 125 (and I always do).? I've found Smart Water at my grocery
store, but that's the only place so far.? I don't know where you're located, but
if you have a Giant grocery store near you, I know they carry it for sure.? You
might want to try CVS or Rite Aid, too.


-----Original Message-----
From: Laura Konyk <lkonyk@...>
To: jpouchsupport@yahoogroups.com
Sent: Fri, 29 Jun 2007 9:44 am
Subject: Re: [J-Pouch Support] smart water






Now there is a difference between Vitamin Water and Smart Water. I usually drink
vitamin water b/c its easy to find. Tastes great but does have the calories (50
I think). Formula 50 is one type of the vitamin water but I think that Smart
water is different.

I am interested in trying it. I hope that I can find it at our local grocery. I
don't have Trader Joes around me anymore:-(

micheezz@... wrote:
And was recently purchased by Coca Cola. Originally one of the owners was 50
cent. In fact his favor is formula 50. Its good stuff. In fact they make an
electrolyte one that is more nutritious than Gatorade. Not that Gatoraide is
nutritious from a sports supplement dring it is. Mitch
Sent from my BlackBerry wireless handheld.

-----Original Message-----
From: pupcasey@...

Date: Fri, 29 Jun 2007 01:08:04
To:jpouchsupport@yahoogroups.com
Subject: Re: [J-Pouch Support] smart water

It's a flavored water with Vitamins and minerals added, no carb or citic
acid, it's great!! I LOVE it! It's rather new but can find it and smart and
final, traders joes, and some supermarkets in water section. Great flavor,
smart water is another drink of spring water that " is processed differently"
this is also newish. . . . this is in most supermarkets (out here in CA). : )

In a message dated 6/28/2007 12:14:10 P.M. Pacific Daylight Time,
rebe0505@aol. com writes:

hi what is vitamin water??rebecca

****************************************************_http://www.aol.
http_ (http://www.aol. com./)

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************************************** See what's free at http://www.aol. com.

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Now there is a difference between Vitamin Water and Smart Water. I usually drink
vitamin water b/c its easy to find. Tastes great but does have the calories (50
I think). Formula 50 is one type of the vitamin water but I think that Smart
water is different.

   I am interested in trying it. I hope that I can find it at our local grocery.
I don't have Trader Joes around me anymore:-(

micheezz@... wrote:
   And was recently purchased by Coca Cola. Originally one of the owners was 50
cent. In fact his favor is formula 50. Its good stuff. In fact they make an
electrolyte one that is more nutritious than Gatorade. Not that Gatoraide is
nutritious from a sports supplement dring it is. Mitch
Sent from my BlackBerry wireless handheld.

-----Original Message-----
From: pupcasey@...

Date: Fri, 29 Jun 2007 01:08:04
To:jpouchsupport@yahoogroups.com
Subject: Re: [J-Pouch Support] smart water



It's a flavored water with Vitamins and minerals added, no carb or citic
acid, it's great!! I LOVE it! It's rather new but can find it and smart and
final, traders joes, and some supermarkets in water section. Great flavor,
smart water is another drink of spring water that " is processed differently"
this is also newish. . . . this is in most supermarkets (out here in CA). : )


In a message dated 6/28/2007 12:14:10 P.M. Pacific Daylight Time,
rebe0505@aol. com writes:

hi what is vitamin water??rebecca

****************************************************_http://www.aol.
http_ (http://www.aol. com./)

[Non-text portions of this message have been removed]

************************************** See what's free at http://www.aol. com.

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Guess I will have to go back to Town (50 miles to get the smart water, i need
the electrolytes, thansks._
   Karima

micheezz@... wrote:
   And was recently purchased by Coca Cola. Originally one of the owners was 50
cent. In fact his favor is formula 50. Its good stuff. In fact they make an
electrolyte one that is more nutritious than Gatorade. Not that Gatoraide is
nutritious from a sports supplement dring it is. Mitch
Sent from my BlackBerry wireless handheld.

-----Original Message-----
From: pupcasey@...

Date: Fri, 29 Jun 2007 01:08:04
To:jpouchsupport@yahoogroups.com
Subject: Re: [J-Pouch Support] smart water



It's a flavored water with Vitamins and minerals added, no carb or citic
acid, it's great!! I LOVE it! It's rather new but can find it and smart and
final, traders joes, and some supermarkets in water section. Great flavor,
smart water is another drink of spring water that " is processed differently"
this is also newish. . . . this is in most supermarkets (out here in CA). : )


In a message dated 6/28/2007 12:14:10 P.M. Pacific Daylight Time,
rebe0505@aol. com writes:

hi what is vitamin water??rebecca

****************************************************_http://www.aol.
http_ (http://www.aol. com./)

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************************************** See what's free at http://www.aol. com.

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not a doc.......guess he was being real conservative

david west <itsonlycigars@...> wrote:          james -

1 polyp was early stage cancer and had 26 lymph nodes
removed? why? i had 2 polyps i in colon and i in
rectum and cancer in prostate and all was removed and
only had 12 lymph nodes from colon area and rectum
removed. later david

--- james ciarrocchi <d427aj@...> wrote:

> had a form of fap had 1 polyp go to early stage
> cancer ,26 lymph nodes taken out all clean thank
> God,...What follow up test do you recomend being
> done annually?
>
> Ernest Jones <theolcrow@...> wrote:
> Rebecca
> I will not even go into how I felt during my first
> post op year. Maybe I
> should say the first two years. But time did show
> that life got better.
> Maybe we won't get clear off all medications.
> Actually this does not bother
> me any more. Mainly is the desire to just feel good.
> You will make it also. But we do still need to have
> a medical person,
> doctor or surgeon who still wants to keep track of
> us and to help us know
> all is fine.
> Ernie
> ----- Original Message -----
> From: <rebe0505@...>
> To: <jpouchsupport@yahoogroups.com>
> Sent: Thursday, June 28, 2007 12:06 PM
> Subject: Re: [J-Pouch Support] antibiotic usage-my
> latest imput
>
> yes ernie i agree with everything you are saying...i
> think all of us want
> not
> to use meds ..infact that was one of my expectations
> about having this
> surgery..no more meds!! so needless to say a year
> down the road it stresses
> me
> greatly to be on meds and makes me fearful i will
> continue to be on meds and
> even
> more fearful not getting to a point where even with
> meds i can get a handle
> on it all... !but i do not think i am alone on
> this..i need more of your
> spirit
> as well as mitch and mike and others...rebecca
>
> ************************************** See what's
> free at
> http://www.aol.com.
>
> [Non-text portions of this message have been
> removed]
>
>
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> ----
>
> No virus found in this incoming message.
> Checked by AVG Free Edition.
> Version: 7.5.476 / Virus Database: 269.9.10/876 -
> Release Date: 6/28/07
> 10:56 AM
>
>
>
>
>
>
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> removed]
>
>

__________________________________________________________
Building a website is a piece of cake. Yahoo! Small Business gives you all the
tools to get online.
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[Non-text portions of this message have been removed]

thanks for your insight......I had j-pouch surgery about 10 months ago i was 47
at the time so my fap show up real late ........if you have any further insights
or the group it would be appreciated!!!!!!!!!!!!!!!

Ernest Jones <theolcrow@...> wrote:           Hi James and welcome. Do I
understand that you still do have your colon or
is your colon all removed?
That will make a difference to what tests you have. If you had your colon
removed and a Jpouch made my thoughts would be that you have little to fear
and your doctor may want to do yearly scoping. If you still have some colon
my guess is to have repeat colonoscopies in around 6 months and if remains
clean yearly. But these must be as your surgeon/doctor orders. But praise
God it sounds like your cancer had not spread at all and this is good.
I too have FAP. My first surgery in 1965 when they found polyps and removed
2/3 of my colon. I had regular check ups but was found to have colon cancer
in 1980. At that time I think 13 out of 20 some lymph nodes showed cancer.
But I have been cancer free. During the 20 years up to 1999 I had
sigmoidoscopies ranging from every 3 months to yearly. These were the old
rigid ones, much worse than the scoping today. In August of 1999 the exam
showed an explosion of polyps and I was ordered to repeat the test in 6
months which showed still more, thus the Jpouch was made in April 2000.
Again, welcome to this list. Be looking for more from you and have a good
day.
Ernie
----- Original Message -----
From: "james ciarrocchi" <d427aj@...>
To: <jpouchsupport@yahoogroups.com>
Sent: Thursday, June 28, 2007 12:45 PM
Subject: Re: [J-Pouch Support] antibiotic usage-my latest imput

had a form of fap had 1 polyp go to early stage cancer ,26 lymph nodes taken
out all clean thank God,...What follow up test do you recomend being done
annually?

Ernest Jones <theolcrow@...> wrote: Rebecca
I will not even go into how I felt during my first post op year. Maybe I
should say the first two years. But time did show that life got better.
Maybe we won't get clear off all medications. Actually this does not bother
me any more. Mainly is the desire to just feel good.
You will make it also. But we do still need to have a medical person,
doctor or surgeon who still wants to keep track of us and to help us know
all is fine.
Ernie
----- Original Message -----
From: <rebe0505@...>
To: <jpouchsupport@yahoogroups.com>
Sent: Thursday, June 28, 2007 12:06 PM
Subject: Re: [J-Pouch Support] antibiotic usage-my latest imput

yes ernie i agree with everything you are saying...i think all of us want
not
to use meds ..infact that was one of my expectations about having this
surgery..no more meds!! so needless to say a year down the road it stresses
me
greatly to be on meds and makes me fearful i will continue to be on meds and
even
more fearful not getting to a point where even with meds i can get a handle
on it all... !but i do not think i am alone on this..i need more of your
spirit
as well as mitch and mike and others...rebecca

************************************** See what's free at
http://www.aol.com.

[Non-text portions of this message have been removed]

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10:56 AM

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10:56 AM






[Non-text portions of this message have been removed]

And was recently purchased by Coca Cola. Originally one of the owners was 50
cent. In fact his favor is formula 50. Its good stuff. In fact they make an
electrolyte one that is more nutritious than Gatorade.  Not that Gatoraide is
nutritious from a sports supplement dring it is. Mitch
Sent from my BlackBerry wireless handheld.

-----Original Message-----
From: pupcasey@...

Date: Fri, 29 Jun 2007 01:08:04
To:jpouchsupport@yahoogroups.com
Subject: Re: [J-Pouch Support] smart water



  It's a flavored water with Vitamins and minerals added, no carb or citic
  acid, it's great!! I LOVE it! It's rather new but can find it and smart and
  final, traders joes, and some supermarkets in water section. Great flavor,
  smart water is another drink of spring water that " is processed differently"
  this is also newish. . . . this is in most supermarkets (out here in CA). : )


  In a message dated 6/28/2007 12:14:10 P.M. Pacific Daylight Time,
  rebe0505@aol. <mailto:rebe0505%40aol.com> com writes:

  hi what is vitamin water??rebecca

  ******************************************<WBR>*********<WBR>*_http://www.aol.
<http://www.aol.>
  http_ (http://www.aol. <http://www.aol.com./> com./)

  [Non-text portions of this message have been removed]

  ************************************** See what's free at http://www.aol.
<http://www.aol.com.> com.

  [Non-text portions of this message have been removed]



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-----Original Message-----
From: "Mike Utenick" <mutenick@...>

Date: Thu, 28 Jun 2007 22:08:18
To:<jpouchsupport@yahoogroups.com>
Subject: RE: [J-Pouch Support] feeling very SAD TONIGHT


rebecca,

  Questions:
  What do you clean your butt with after a BM - at home and when not at home?
  What do you use to wash your butt during shower or bath?
  Do you where a pad in you underware for leakage?
  Do you put a mositure barrier cream between your checks after a BM?
  Do you put TP between your butt checks to absorb leakage after a BM?
  What do yo eat for Breakfast?
  Do you drink coffee?
  Do you drink Soda?
  Do yo keep a journal and actually count all your BMs or do you go from
  memory?
  What is a good day and a bad day for the # of BMs you have?

  Sorry to be so graphic but if we know some of this, then maybe we can offer
  more suggestions.

  God Bless, mike u

  -----Original Message-----
  From: jpouchsupport@ <mailto:jpouchsupport%40yahoogroups.com> yahoogroups.com
  [mailto:jpouchsupport@ <mailto:jpouchsupport%40yahoogroups.com>
yahoogroups.com]On Behalf Of rebe0505@aol. <mailto:rebe0505%40aol.com> com
  Sent: Thursday, June 28, 2007 12:18 AM
  To: jpouchsupport@ <mailto:jpouchsupport%40yahoogroups.com> yahoogroups.com
  Subject: [J-Pouch Support] feeling very SAD TONIGHT

  reading your e-mails kevin karina ernie and wondering after having j-pouch
  for al long as you have how do you know if the burning butt is from a food
  vs.
  bacteria like pouchitis or cuffitis or bacteria in general???

  clearly if you have alot of diahrea going lots of times to bathroom more
  than
  usual and maybe blood(cuffitis i guess) it is easy to figure out but
  barring
  that how the dickens do you all keep sane and know what to do??

  past few days i realize i have been very down and tonight i realized i was
  actually feeling amxiety again..been having that on and off throughout
  this
  year since j-pouch surgery...and i do have a past history of depression
  ,which
  was very well controlled for many years before colitus..so i may be
  starting
  from a weaker position..i also have a 31 byear old son who is presently
  living
  with us because 10 months ago his HEALTH BECAME IN DANGER..HE HAS WHAT
  APPEARS
  TO BE LEAKY GUT..his situation has been amazingly difficult..the two of us
  have been having a rough time but i am his mother and i feel sometimes
  guilty
  because i need to be there for him..my husband has been dealing with the
  both of
  us!!!

  i am better than i was clearly from the first 8 months and instead of
  getting more up mentally because of progress AFTER THE SURGERYi seem to be
  falling
  apart again..i guess i just do not do well with so much uncertainty.. and
  feeling so out of control..am i such a wuz???sometimes like now i just get
  so
  tired trying to figure it all out..i just feel so ready to not have to
  think
  about my butt anymore..i ofcourse hoped that was what this operation
  meant..and
  maybe it still does but then i feel maybe it will not...

  sorry to vent all of this because clearly you guys on this site are here
  because you have not had smooth saILING EITHER with this surgery..does
  anyone
  else feel like they loose it sometimes and how do you just deal with the
  hand you
  have been dealt???i cannot control how i am going to eventually end up
  after
  this surgery but i have to find something that gets me through..i have
  meditated but need to look into getting more help with that..like a
  spiritual teacher
  i think...i have tried therapy and still do that....

  hope no ones minds my writing all this...rebecca

  ************************************** See what's free at
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It's a flavored water with Vitamins and minerals added, no carb or citic
acid, it's great!!  I LOVE it!  It's rather new but can find it and  smart and
final, traders joes, and some supermarkets in water section.   Great flavor,
smart water is another drink of spring water that " is processed  differently"
this is also newish. . . . this is in most supermarkets (out  here in CA). : )


In a message dated 6/28/2007 12:14:10 P.M. Pacific Daylight Time,
rebe0505@... writes:




hi what is vitamin  water??rebecca

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