Cyn, Great idea with the bracelet! How do I get one of those? Things do change when you don't have a colon anymore. People don't realize how difficult and...
I have not posted in awhile cause it is hard to relate to u all when it is not me that i seek help for but my now 21 month old son that had his j pouch surgery...
jonellme, I am 28 years old, but I had the jpouch surgery with ileostomy 3 weeks ago. Is your son getting enough fluids to drink? I know that is the key to...
Hiya Stephanie, First we'll get the boring stuff out of the way. I got my bracelet through the local CVS Pharmacy. They have the pamphlets where I pick up my...
Hi Jonelle, I can't even begin to fathom the feelings your family must live with daily. There is nothing scarier than a sick child. I don't know if my advise...
When I had u.c., I always had left-sided pain, the descending colon spasm pain I guess. I had my J-Pouch surgery with total colon removal in July. Recently I...
Hi Patty, You didn't say where you live but I'm sure there must be someone competent in your area. You might try the Yellow Pages under Physicians then look...
Dear Cyn, Thanks for your post. I live in Nevada, where we are having a huge exodus of good doctors due to soaring malpratice insurance rates. There are only...
Patty, Have you ever had problems with adhesions? Perhaps the pain could be caused by that? Have you considered going down to the Mayo Clinic in Scottsdale?...
Dear Ginny, Yes, my husband and I have considered going to Mayo. That's where my doctor learned the procedure some 20 years ago. I really think it's due to...
Hi, you bring back many memories. Long story short, I got diagnosed w/UC at 7 months pregnant, ended up in hosp for next 11/2years, etc etc, when my son whom...
Cyn, Thank you for the helpful information about medic alert bracelets. I found some nice websites on the internet that offer more appealing versions of the...
Hail Chaka & other merry members, A ROD in your stoma?! What do they do to you poor folks in PA? Hope it didn't hurt too much. Thanks for the website info on...
Dear Stephanie, Sorry to hear that Eunice is misbehaving but glad to hear she doesn't make you pass out any more. I'm sure as your blood pressure gets more...
Dear Patty, You are right a lot of Gastro docs do refer you back to the surgeon but some don't. I have found one , my old GI Dr from UC days, I went to him...
8pm UK Time (GMT) - see below for time zone comparison. WebTV users can now access the chat too!!! ***Access via webpage or mIRC.*** To join in this week's...
Hey everyone, Has anyone out there had trouble with pouch prolapse. I can feel sometimes the pouch will come out the rectum, just a little. There is no pain...
I have a weird pain in my lower left abdomen. I can't figure out what it is because it comes and goes. Did anyone else have this after the J-Pouch and...
for bag smell use a little mouth wash in the bag it is safe and wont hurt stoma....my son is 8 weeks post op and has second surgery in july so i cant help you...
littfish@...
Jun 10, 2002 11:45 am
1154
Dear littlefish, The pain is in my lower left abdomen and my j pouch is not in use right now because I am using the ileostomy bag. So, I don't understand why...
the et nurse told us that the stoma is like the inside of your mouth so it doesnt burn the stom,a or anything....it is totally safe my son says it doesnt...
littfish@...
Jun 10, 2002 2:10 pm
1156
Hi: I sent out a message about a month ago also asking if anyone had 'Pouch Prolapse' , my pouch actually came all the way out twice!, I was able to push it...
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nicola somerville
glasgowbabe15@...
Jun 10, 2002 8:07 pm
1158
Charlotte, What was your son's diagnosis? He is so young to have to go through all of this. How is he handling the bag...mentally? It took me a few weeks...
I should be having my takedown surgery in August. I have a few questions for the veterans of this procedure: 1. Is the re-attachment done through the stoma...
Stephanie, For my takedown, they stiched up the stoma and basically pushed it back
inside then the hole is sewn up. I was in the hosp for about 5 days after,...
Tammy, Thanks for your helpful advice:) I was in the hospital for 5 1/2 days with my ileoanalanastomosis (J POUCH). It's been almost 5 weeks and I feel good....
my son had ulcerative coliti and was diagnosed at 4 1/2 yr old and no medicine was working and he had become steriod dependent he had been on steriods for 5...
littfish@...
Jun 11, 2002 12:46 pm
1163
Stephanie, I was lucky enough to not have had the NG tube in, maybe when I was
sleeping for surgery but that was it. I would not have wanted to experience...
