I just stumbled on this and what a goldmine!!!!!!This is so helpful. Thank you
so much this is wonderful Thanks again, cindi--- In
jpouchsupport@yahoogroups.com, "Ernie Jones" <ejonessr@...> wrote:
>
> Hi pouchers,
> I have tried to compile a list of things helpful to we Jpouchers. If you
> want, please email me your suggestions & I will add to the list. If
> anything has been a great help to you or has caused you trouble, let us
> know! I am sure I have missed many helpful things!
> Thanks,
> Ernie
>
>
>
> Skin Barriers
>
> calmoseptine May be an Rx
> Burn Jell with 2 % Lidocaine.
> Aloe Vista
> Desitin
> A&D cream with Aloe
> Lantiseptic
> Lidocaine ointment to stop pain.
> Butt Paste
> Analpram for more serious stinging inside. This used for one to 2 weeks
> does much for healing the bowel/pouch after severe irritation.
>
>
> Foods that are usually okay
> Bananas are about the best food.
> Tapioca, Cornmeal, Applesauce, not spiced, Marshmallows, Pretzels
> white Rice, Jell-O, gelatin, Pasta, Potatoes without skin, Boiled milk,
> Peanut butter (smooth)
> Cheese, oatmeal, cooked carrots,winter squash, yams/sweet tators.
> Baked Snack foods are better than deep fried. The finer one chews his
> foods, especially hard crunchy foods like snack foods, the better it is.
> When not chewed well, some can scratch the inner lining of the bowel. Baked
> snack foods help absorb the fluid in the bowel where as the deep fried does
> not help as much.
> Papaya, Mango, marshmallows
> Doritos, not spiced but like the cheesy ones, chewed well help also. Many
> can enjoy this snack with good benefits.
>
>
> Foods that may cause burning & more diarrhea
>
> all tomato sauces, spices, chocolate, nuts, raw vegetables
> Alcoholic drinks, orange, lemon, grapefruit, whole or juice
> Remember, this may change as the body adjusts! After you begin to feel
> that you are doing fine, try one questionable food at a time & see how it
> goes. Very likely you can get by with a small amount but may have trouble
> if you over do on it.
>
> Things that may cause more butt burn
> colored toilet paper, Charmin toilet paper is bad for some people, harsh
> toilet paper, not cleaning well
> hot peppers, tomato sauces, nuts, spices, or in other words, the same as the
> list above.
>
>
> Helpful aids!
> Smart water, may find in local health food stores. Electrolyte drink,
> tastes like water, no sodium
> Gatorade
> Yellow tomato may be better because it has a lower acid content in it!
> Try some of the high energy bars made for athletes
>
> Do you want to know if your vitamin supplements are helping you? Place the
> supplement in a glass of water. If dissolved or almost dissolved in 1/2
> hour, there is a great chance your body will utilize this supplement. If
> after 1/2 hour the tablet is still whole of mostly whole, it will not do you
> any good, or very little good.
>
> Helpful hints for changing the ostomy bag & for skin irritations under the
> appliance.
> Always clean the skin surface thoroughly!
> To give more time with less chance for leakage, eat 2 or 3 large
> marshmallows about 15 minutes before changing the appliance. This acts to
> form a temporary bowel block, allowing a few more minutes to change the bag.
> If one has a choice, it is best to change the appliance in the morning,
> after a night without food & before eating breakfast.
> For skin scalding:
> Get a bottle of Milk Of Magnesia. Let set to allow separation. Pour off &
> discard the mostly clear liquid. After the skin surface is cleaned, take a
> cotton ball & dip in some of the thicker Milk of Magnesia, (MOM) & gently
> dab over all the area that is scalded & or is under the appliance. Let
> dry. To speed drying, gently fan with a card, paper or fan.
> After this is dry, only a minute or two, apply the stoma adhesive & the
> appliance as per instructions.
> If you are having to change the whole bag appliance more often than every 5
> to 7
> days, or if you are getting leakage either out of the bag or under, causing
> scalding, check with your stoma nurse or doctor. It may be another type of
> appliance will work better for you. Also, if you are getting scalding
> around the stoma but still the appliance holds well, it may be the hole has
> been cut too large allowing secretion to touch the tender skin surface. The
> appliance needs to fit snugly around the stoma.
>
> If wearing the iliostomy bag bothers you, there are a few things you can do.
> I found the cargo pants, with the baggy crotch very useful. I could pull
> the waist of these pants clear up to my rib cage, thus completely covering
> the bag while still not putting any pressure on the bag or on the appliance.
> I used suspenders to hold the pants up high! I then wore my shirt on the
> outside. Anyone looking at me only saw me in a pair of slacks with my shirt
> on the outside, thus nothing unusual. It was a little more of a bother when
> I needed the toilet though, but still worth it.
> I also found sweat pants easy to wear because usually I could bring them up
> over the appliance. For me, I could not wear my jeans or slacks because
> either the belt would push up under the appliance, putting pressure on the
> appliance to dislodge it or the belt went right over the bag, thus making a
> restriction in its flow into the bag.
>
> One can buy some colorful, soft flannel & make covering pouches for the bag.
> This is especially nice when being more intimate, where the bag really may
> interfere with ones relationships!
> I also would wear this cover if I was up and about & it was possible that
> the bag might be seen.
>
> Metamucil either the type to mix & drink or in wafers help some people to
> control the diarrhea. This may also cause more bulk to get rid of & may
> cause more gas in some people.
>
> Dehydration & low electrolytes are common & need to be avoided. One needs
> at least 6 to 8 glasses of water/juice daily, even when the stool is
> diarrhea.
> Dehydration or an imbalance of electrolytes may cause weakness & also
> nausea & vomiting
>
> Try these panty liners to place in your under pants/briefs. They absorb
> leakage, can be changed with ease & do not cost that much. For some, a
> cotton ball pressed up in the crack, but not in so it will hold the spinctor
> open, helps. Sometimes just keeping a couple squares of toilet paper inside
> your briefs/under pants helps & this can be discarded with every toilet
> trip.
>
> It is good to practice strengthening the anal spinctor muscle. Work at this
> several times a day but allow a rest after a few minutes of exercise.
>