isribd : Messages : 8-39 of 214

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#39 From: "Danny Levin <lvds@...>" <lvds@...>
Date: Thu Dec 26, 2002 5:08 pm
Subject: Re: Prednsone... help dany_lv
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Hi Sarah,

Its the first time i hear about breema therapy so there is not much
i can say about it.

Chinese medicine is a very complex system of healing.
Its two main modalities are Acupuncture and Chinese herbal formulas.
you can learn more about it in this link:
http://www.healthy.net/asp/templates/article.asp?id=1278

The second link is an example of how we treat crohn's and colitis,
its is of course meant to be used only by professional chinese
medicine practitioners:
http://www.medicalacupuncture.org/aama_marf/journal/vol13_3/article1.h
tml

As for me, from the time i have started to practice chinese medicine,
i no longer suffer from its symptoms and the disease is not
interfering with my life.

Feel Well,
Dan Levin

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#38 From: Sarah Krein <krein@...>
Date: Wed Dec 25, 2002 7:09 pm
Subject: Re: Prednsone... help s_krein
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Hi Ken,

I have posted an update since this e-mail. I have crohns.

Thanks

Sarah

-------Original Message-------

From: isribd@yahoogroups.com

Date: Tuesday, December 24, 2002 16:53:31

To: isribd@yahoogroups.com

Subject: Re: [isribd] Prednsone... help

Hi, I don't know your condition ? UC ? If you have been on prednizone for any length of time.. you need to contact your Doctor, when you have a flareup pred. is used to knock it down, and your daily dose is reduced over a period of time,, do not mess around with this med. it's a good and bad med. I've been on it for over 20 years, it has some bad side effects.. check with your doc. and good luck. Ken

From Friday, I decreased pred to 25mg, but I now have more unbeerable pain... what
should I do?
Go back to 30 or what?/?

Thanks
Love
Sarah

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#37 From: Sarah Krein <krein@...>
Date: Wed Dec 25, 2002 6:50 pm
Subject: Breema Therapy s_krein
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Has anyone tried or heard of Breema therapy in the treatment of crohns?
It is not alternative medicine, but integrated.

www.breema.com

All answers will be deeply appreciated.

Sarah

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#36 From: Sarah Krein <krein@...>
Date: Wed Dec 25, 2002 6:47 pm
Subject: Re: Re: Prednsone... help s_krein
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Hi Danny,

Have you heard about Breema Therapy (http://www.breema.com)

From what I have heard of it, it is not alternative medicine but integrated medicine.

Can you tell me more about Chinese medicine and how it helps you, as well as where they don't here.

As you can tell, I'm reaching a "desperado" stage.

Thanks

Sarah

-------Original Message-------

From: isribd@yahoogroups.com

Date: Sunday, December 22, 2002 23:22:10

To: isribd@yahoogroups.com

Subject: [isribd] Re: Prednsone... help

Dear Sarah,

I sorry to hear that the reduction in dosage gave rise to the pain.
I can't advise you in regard the the dosage as i'm not a doctor.
What i can advise you is additionally to the western medicine,
try a branch in the complementary medicine.
Personally i can represent chinese medicine but other modalities
can be helpful as well.

All The Best,
Danny

--- In isribd@yahoogroups.com, Sarah Krein <krein@n...> wrote:
> From Friday, I decreased pred to 25mg, but I now have more
unbeerable pain..
> what
> should I do?
> Go back to 30 or what?/?
>
> Thanks
> Love
> Sarah

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.

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#35 From: "Ronnie Kovac" <kovacronnie@...>
Date: Wed Dec 25, 2002 11:56 am
Subject: hydrotherapy- need opinions ronikovac79
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Hi,

I have colitis and was on Rafassal for a few months. It did help in the beginning, but then things started to get bad again. My doctor then switched me to Asacol- and I just got frustrated and decided to try something completely different. That beingHydrotherapy.

A friend of mine referred me to a clinic that does hydrotherapy- basically detox through colon cleansing. I have been doing it everday for the past month. It is not the most pleasant experiene, and I am not feeling better yet. In fact, I feel a bit worse. I have lost about 10 pounds, have migraines and other uncomfortable symptoms.

The idea behind colon cleansing makes sense, I am just worried that perhaps in my case, having colitis- it might be counter-effective.

Does anyone out there know about this treatment?

3 months FREE*.

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#34 From: Airdale <kod_airdale@...>
Date: Tue Dec 24, 2002 2:53 pm
Subject: Re: Prednsone... help kod_airdale
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From Friday, I decreased pred to 25mg, but I now have more unbeerable pain... what
should I do?
Go back to 30 or what?/?

Thanks
Love
Sarah

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#33 From: Sarah Krein <krein@...>
Date: Tue Dec 24, 2002 2:45 pm
Subject: Update following the barium s_krein
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Just to let you all know that I had the barium today and will know the
proper results when I see the doctor. Tomorrow I will be trying 25mg of pred
  Not looking forward to it.

Love,
Sarah

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#32 From: Sarah Krein <krein@...>
Date: Mon Dec 23, 2002 4:38 pm
Subject: Update s_krein
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Hello

As promised to you all, I would provide you an update after speaking to my GI. Tomorrow I have to do a small bowel follow through. I upped my dosage to 30mg today and from tomorrow, I should do one day 27.5 and the next day 25mg.

Love,

Sarah

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#31 From: "Danny Levin <lvds@...>" <lvds@...>
Date: Sun Dec 22, 2002 9:22 pm
Subject: Re: Prednsone... help dany_lv
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Dear Sarah,

I sorry to hear that the reduction in dosage gave rise to the pain.
I can't advise you in regard the the dosage as i'm not a doctor.
What i can advise you is additionally to the western medicine,
try a branch in the complementary medicine.
Personally i can represent chinese medicine but other modalities
can be helpful as well.

All The Best,
Danny

--- In isribd@yahoogroups.com, Sarah Krein <krein@n...> wrote:
> From Friday, I decreased pred to 25mg, but I now have more
unbeerable pain..
>  what
> should I do?
> Go back to 30 or what?/?
>
> Thanks
> Love
> Sarah

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#30 From: Sarah Krein <krein@...>
Date: Sun Dec 22, 2002 4:41 pm
Subject: Prednsone... help s_krein
Offline
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From Friday, I decreased pred to 25mg, but I now have more unbeerable pain... what
should I do?
Go back to 30 or what?/?

Thanks
Love
Sarah

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#29 From: Sarah Krein <krein@...>
Date: Sat Dec 14, 2002 6:24 am
Subject: Crohn's Disease in Patients with Familial Mediterranean Fever s_krein
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CROHN'S DISEASE IN PATIENTS WITH FAMILIAL MEDITERRANEAN FEVER

Department of Gastroenterology, Chaim Sheba Medical Center, Sackler Faculty of Medicine, Tel Aviv University, Telhashomer, Israel. hermafidder@...

Crohn disease and familial Mediterranean fever (FMF) are inflammatory diseases characterized by abdominal pain and fever. The concurrence of the 2 diseases (FMF-CD) may pose a challenge to diagnosis and treatment. We undertook the present study to determine the prevalence of Crohn disease in FMF and to characterize FMF-CD patients clinically and genetically. Using a computerized search, the patients of our FMF clinic were screened for a concomitant diagnosis of Crohn disease. Patients and their medical records were thoroughly examined, and their DNA was genotyped for mutations in the MEFV gene. Control groups of ethnically and sex-matched patients suffering from each of the diseases alone, either Crohn disease or FMF, were used for comparison. We identified 7 patients with concomitant Crohn disease and FMF, which is more than the expected prevalence in the general population (p = 0.03). Crohn disease presented at a significantly later age in the FMF-CD group (40.6 +/- 10.0 yr versus 26.2 +/- 11.4 yr; p < 0.004). Disease severity and other characteristics of Crohn disease were comparable to the Crohn disease control group. Contrary to the FMF control group patients, FMF in FMF-CD patients was characterized by a higher attack frequency (p < 0.05) and increased prevalence of amyloidosis (p < 0.02). The overall severity score was similar in both groups. In conclusion, Crohn disease appears to be more prevalent in FMF and presents later than in patients without FMF. FMF in this group of patients shows a higher attack frequency and is more often complicated by amyloidosis.

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#28 From: Will <sqlweb2000@...>
Date: Tue Nov 12, 2002 8:48 pm
Subject: Re: �� sqlweb2000
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I am on a similar diet (except I dont touch potatoes, rice or other long-chain
carbs)
since humans cant digest them.

also, I eat all raw veggies and take 1-2 tablespoons of psyllium powder in 16 oz
of water every morning.

As far as spices go, cayenne all the way...I must go thru a baggy of it every
month,
its a great natural way to keep inflammation down.

Aqueated Bentonite and home made yoghurt (fermented for 24-30 hrs) is also
great...
if you are to lazy to make your own yog. and have tonnes of money to
waste, buy bio-k

Have been doing this for years and I am rarely bothered by the disease, which
was originally
classified as very severe universal ulcerative colitis.

w


--- Ronnie Kovac <kovacronnie@...> wrote:

<HR>
<html>

<div style='background-color:'><DIV>
<P>Hi....</P>
<P>I have ulcerative colitis, not Crohn's- but I think the dietary restrictions
are similar. I
used to be on Rafassal and Asacol, but stopped because I was worried ofthe long
term damages, not
to mention the idea of being 23 and forced to take 6 pills a day bothered me.
While I do not
recommend actually stopping to take medication for everyone, I do think that
following a certain
diet greatly helps in fending off attacks. Firstly, I take Slippery Elm ( Ulmus
Fulva) which helps
to soothe my stomach. I found that it is very helpful- you can find it in any
health food store.
Camomile and Fennel tea are also very soothing.</P>
<P>As far as my diet is concerned, I do not eat any dairy, animal products,
sugar, oil (except
olive oil), yeast and wheat. The majority of my diet consists of cooked
vegatables, such as sweet
potato, potato, zuccini, and carrots. Personally, I find tomatos, peppers�and
onions to be very
difficult to digest, as well as al spices, and the only raw vegatabls I eat are
lettuce and
cucumbers. As for fruit, I peel everything, stay away fro grapes, and eat mostly
red apples,
bananas, mango and melon. Plain rice is okay, as well as all rice flour, corn
flour and potato
flour based food.Occasionally I eat tofu�and almonds (without the peel).� I
defnitly stay away
from all alcohol and caffieine; coffee, tea, and chocolate, (although personally
bitter chocolate
in small quantities is okay). </P>
<P>Its a very restricted diet, however as long as I follow this diet, the
attacks are less
frequent. During an attack, I only eat cooked potato and zuccini, as I have
found these to be easy
to digest- and stay away from all raw foods. </P>
<P>I hope this helps. </P>
<P>Ronnie</P></DIV></div><br clear=all><hr>MSN 8 with <a
href="http://g.msn.com/8HMUEN/2019">e-mail virus protection service: </a> 2
months FREE*

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#27 From: "Ronnie Kovac" <kovacronnie@...>
Date: Tue Nov 12, 2002 11:34 am
Subject: Re: �� ronikovac79
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Hi....

I have ulcerative colitis, not Crohn's- but I think the dietary restrictions are similar. I used to be on Rafassal and Asacol, but stopped because I was worried ofthe long term damages, not to mention the idea of being 23 and forced to take 6 pills a day bothered me. While I do not recommend actually stopping to take medication for everyone, I do think that following a certain diet greatly helps in fending off attacks. Firstly, I take Slippery Elm ( Ulmus Fulva) which helps to soothe my stomach. I found that it is very helpful- you can find it in any health food store. Camomile and Fennel tea are also very soothing.

As far as my diet is concerned, I do not eat any dairy, animal products, sugar, oil (except olive oil), yeast and wheat. The majority of my diet consists of cooked vegatables, such as sweet potato, potato, zuccini, and carrots. Personally, I find tomatos, peppers and onions to be very difficult to digest, as well as al spices, and the only raw vegatabls I eat are lettuce and cucumbers. As for fruit, I peel everything, stay away fro grapes, and eat mostly red apples, bananas, mango and melon. Plain rice is okay, as well as all rice flour, corn flour and potato flour based food.Occasionally I eat tofu and almonds (without the peel). I defnitly stay away from all alcohol and caffieine; coffee, tea, and chocolate, (although personally bitter chocolate in small quantities is okay).

Its a very restricted diet, however as long as I follow this diet, the attacks are less frequent. During an attack, I only eat cooked potato and zuccini, as I have found these to be easy to digest- and stay away from all raw foods.

I hope this helps.

Ronnie

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#26 From: sheldon gesensway <sheldon33132@...>
Date: Mon Nov 11, 2002 4:56 pm
Subject: Re: �� sheldon33132
Offline
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Hello,
Sorry don't understand the
language.sheldon33132@...
--- Danny Levin <lvds@...> wrote:
> ���� ���.
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>
>
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>


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#25 From: "Danny Levin" <lvds@...>
Date: Mon Nov 11, 2002 5:44 am
Subject: �� dany_lv
Offline
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���� ���.

������ ������ ������ �� ������ ����� ���� ��� ����� ���� ��� ��
��� ���� ��������� �����, �� ������� ����� �����.
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lvds@...
ibdisr.tripod.com


--- In isribd@y..., "danipc25" <dani@d...> wrote:
> ��� ���� ���� �� ���� ����� ����� ����� ����� ��� ����� ����� �����
> ���� ����� ��� ��� ������ dani@d...
> ��
> ICQ 145240349
>
>
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#24 From: "danipc25" <dani@...>
Date: Mon Nov 11, 2002 3:20 am
Subject: �� danipc25
Offline
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��� ���� ���� �� ���� ����� ����� ����� ����� ��� ����� ����� �����
���� ����� ��� ��� ������ dani@...
��
ICQ 145240349


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#23 From: Airdale <kod_airdale@...>
Date: Sun Oct 20, 2002 2:29 pm
Subject: Re: Re: How to Beat Ulcerative Colitis kod_airdale
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Osnath, I tried the Niacin, please be carefull, talk to your doctor, the doseage is critical, what works for one may not work for another, it did not help me at all. Ken

osnathca <osnathca@...> wrote:

Hi, I am new to this group, I live in Canada. Has anyone else tried the Niacin ? if yes has it helped ? Be well, Osnath.

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#22 From: "sqlweb2000" <sqlweb2000@...>
Date: Fri Oct 18, 2002 8:58 pm
Subject: Online research - we need your help sqlweb2000
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http://www.crohns-colitis-ibd.com

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#21 From: "osnathca" <osnathca@...>
Date: Tue Oct 15, 2002 3:30 am
Subject: Re: How to Beat Ulcerative Colitis osnathca
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Hi, I am new to this group, I live in Canada.
Has anyone else tried the Niacin ?  if yes has it helped ?
Be well,
Osnath.

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#20 From: "sweetsarmistha" <sweetsarmistha@...>
Date: Thu Sep 19, 2002 1:57 pm
Subject: Re: How You Can Beat Ulcerative Colitis sweetsarmistha
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The website http://www.ulcerativecolitiscure.com had also very good
information & procedure of curing Ulcerative colitis.
Thank u.

--- In isribd@y..., "bryceraleigh" <bryceraleigh@y...> wrote:
> I am now 67 years old with no ulceraitve colitis conditions. When I
> was 18 years old, I
> was going South below the equator to catch 300 tons of tuna. We had
a
> full crew of 17
> men, so I had to sleep in the net locker underneath the automatic
> pilot gears which made
> loud whining sounds all night long. By the time we reached Panama,
I
> had ulcerative
> colitis. I began to bleed 7 times each day, bloody diahrea while I
> ate my three healthy
> meals a day. It was a long trip. I arrived back in San Diego 5
months
> later with bloody
> diahrea. I went to Dr. Milton Fetter an internal medicine doctor.
He
> sent me to a clinic to
> check and see if I had ulcerative colitis. They verified Dr.
Fetter's
> diagnosis. The exam
> was a painful experience.
> To treat the ulcerative colitis, Dr. Fetter recomended a Sulfidine.
> After, bleeding 7 times
> each day with bloody diahrea, I took a Sulfidine which I was
allergic
> to. I then called Dr.
> Fetter to make another appoinment and explained how the Sulfidines
> made me very sick.
> He then gave me a prescription for Niacin. I went to the Pharmacy
to
> buy Niacin, but the
> Pharmacist told me it was an over the counter medication. He
pointed
> where I could find
> the Niacin. The only Niacin they had was 100 mg pills.
> I went home that afternoon and ate spaghetti and drank milk with my
> Niacin on a Friday. I
> had the strangest of all reactions, I started to itch and flush at
my
> head. I didn't know it at
> the time, but my blood vessels were increasing to 3 times their
> normal size. This itching
> and flushing reaction went down my chest and arms, down my torso to
> my thighs, and
> down my legs within 20 minutes. I felt that I was allergic to this
> medicine. I had a date
> with a beautiful girl that night at 7:00 so I ate at 5:00 so I
could
> go to the bathroom 2
> times before my date with the bloody diahrea. I waited after
> consuming all the spaghetti
> and drinking 2 glasses of milk while the flushing was going on.
> Afterwards I waited for the
> urge to go to the bathroom, which is usually only 3 seconds away. I
> needed 7 seconds to
> get to the bathroom and I felt the urge. I waited until 7:00
because
> I had no bowel
> movement. The tingling and flushing left me within half an hour.
> I called the girl on the phone and cancelled the date because this
> was the first time in five
> months that I didn't have a bowel movement within 2 hours of
eating.
> I sat with my
> grandmother watching TV for 4 hours, just 7 seconds away from the
> bathroom in case I
> had to go. I felt no urge to go during this time. Then I went to
bed
> at 11:00. The bedroom
> was just 2 seconds from the bathroom. All that night, I had no urge
> to have a bowel
> movement and I finally fell asleep.
> The next morning, I got up at 7:00 and went to the restroom. For
the
> first time in 5
> months, I had a stool 10 inches long covered with mucous. I was
very
> surprised about the
> mucous. For the next few days, I ate regularly with no diahrea. The
> second time I had a
> bowel movement I had normal stools with no mucous. I was 18 years
> old, now I am 67
> years old. I have had 20 attacks of ulcerative colitis over 25
years.
> When I was 43, I was taking 500mg of Niacin with one drink early in
> the morning and I
> would get a brief flushing of my skin. Niacin wasn't working
anymore.
> In Niacin, the
> nicotinic acid reacts with the estrogens in your blood to dialate
> your blood vessels. I don't
> know why my estrogens do not react anymore to Niacin. Doctors used
to
> prescribe Niacin
> to reduce cholestreol and hypertension in the body. I looked at a
> vitamin book and it helps
> your fingernails to grow and your hair to grow. At 67, I have a lot
> of hair, my
> grandfathers did not. I don't know if it helped. Niacin is
> inexpensive, 100 pills at 100mg
> for $1.00. I took Niacin when it became inconvenient after I had an
> attack of bloody
> Ulcerated Colitis. For the next fifty attacks in fourty years
Niacin
> is what worked every
> time. I just had to take enough Niacin to dialate for twenty
minutes.
> A few years ago.I phoned Dr. Milton Fetter and found out he was
still
> alive. I asked him
> how many people he treated with Niacin. Dr. Fetter told me that he
> had treated 80 patients
> with ulceraitve colitis and about 8 of these were allegic to
> Sulfidines. To these he
> recomended Niacin, I was one of those lucky ones. They never had
any
> other problems,
> and never went back to him for ulceraitve colitis.
> At 43, I was having a pain for the first time in my colon area. I
> went to 2 doctors who said
> they had a new drug on the market. They said that it was
remarkable,
> better than
> Niacin,called Prednisone. It didn't work, the pain didn't go away.
> One night at 2:00 in the
> morning when I couldn't sleep because of the pain, it was very
quiet,
> I could hear my
> heart beat. Every time my heart beat, the pain would increase a
> litle. Sort of like a muscle
> spasm. The next day, I called my doctor for a muscle relaxer. I
took
> 1 pill the next night of
> Ativan. The pain went away. I started off with a small pill of
Ativan
> 24 years ago when I
> was 43. I am up to two pills a night to give me a sound night's
sleep
> and to relax my
> muscles. I have never had another attack of ulcerative colitis in
the
> last 24 years because I
> have been taking a generic of Ativan, very inexpensive.
> If you have Prednisone in your system Niacin won't work. I suggest
> you try Niacin first.
> Get all the Prednisone out of your system, it might take a month.
> Remember, I bled for 4
> and a half months 7 times a day, so don't worry too much about the
> bleeding.
> I have looked at ulceraive colitis on TV through video cameras. The
> TV cameras that are
> in the colon show that the ulcers are about the size of a pin head.
I
> feel that what the
> doctors call ulcers are really swollen capilaries that cannot
> circulate blood because the
> muscles have clamped down on the vessels not alowing blood to pass
> through your
> system. When you take Niacin, your blood vessel dialate to three
> times their normal size
> and oxygen gets to your muscles and relieves the pain and then you
> have no bleeding.
> Then, the Ativan does not let the muscle spasm at night because it
> relaxes it. Therefore,
> you have to take it every night to get a good night's sleep. It is
> addictive in the fact that
> you will not go to sleep without Ativan. That is why Longs Drug
store
> tripled the price
> and was caught and had to refund the money to the people. I have
> discovered at 67 in a
> pharmacy book that you can take up to 10 pills of Ativan each day,
> but I wouldn't suggest
> taking this much. Especially if you have a weak heart.
> Prednisone has ruined the liver of a friend of mine who I met in
> later years. She needed a
> new liver or she would die because she had been taking Predisone
for
> 40 years. Now the
> benefits of Niacin are 20 fold and so is Ativan, getting a good
> night's sleep. But
> Prednisone, which the drug companies make a fortune off of, causes
a
> lot of damge to
> your body. But the doctors have to prescribe it or they can be sued
> for malpractice.
> When you reach 50 years of age, the doctors want to check your
colon
> for cancer. It
> seems that people who have ulcerative colitis have a higher chance
of
> getting cancer. The
> doctors have put a camera every two years to check for cancer in my
> colon. The new
> cameras are non-painful, but sometimes they carry germs. I am 67
> years old and my colon
> is without scar tissue, and without any narrowing. The cameras are
> now cleaned by the
> kitchen help, called NAs(Nurse Assistants). The last time I had a
> camera put inside of me,
> I had a fever of 106.5 degrees 5 days later. I was shaking all
over.
> I thought I was cold. It
> was a narrow escape for my life. So, I don't have the cameras put
in
> me anymore.
> During my early experience with Niacin, I was young and dumb. I
would
> bleed in my
> colon, and only when it became an inconveneince where I would have
to
> run to the
> bathroom that I would take Niacin. It worked until I was 43 years
of
> age.
> I am a general contractor and developer so when I stayed up until
> 2:00 or 3:00 in the
> morning, 3 nights in a row I would have an attack of ulcerative
> colitis. Now, if I don't
> have 8 hours of sound sleep, I will have blood in my stools. Get
the
> Prednisone out of
> your system and use Niacin. It is a very cheap way to treat your
> ulcerative colitis and
> might help you gain a lot of hair on your head.
> One time, I went on a carrot juice fast for 30 days. I bought a
> juicer, and drank three 8oz
> glasses of carrot juice with ice cubes so you don't miss chewing
with
> your teeth. I lost 30
> pounds and my ulcerative colitis went away. Put some celery juice
> with the carrot juice so
> you won't become anemic. The only problem with that cure is that
most
> people with
> ulcerative colitis are thin and can't lose weight or afford the
many
> sizes of pants that you
> have to buy.
> The excellent thing with Niacin is that you don't have to go on a
> bland diet, you can eat
> anything while you take the Niacin, but you have to flush. If you
> don't flush with the
> Niacin, it won't work. I sometimes took 800mg of Niacin early in
the
> morning before I ate
> anything to get mt body flushed. So don't take the time release
> capsules. You have to
> dialate your blood vessels to stop the muscle spasms in your colon
or
> elsewhere in your
> body.
> If the Niacin stops working after 43 years of age, then use the
> Ativan. The pill is so small
> you have to get a pill slicer to cut it in half. Start with half a
> pill and if you don't get a
> good nights sleep then start a whole pill. It has to be sound sleep
> you don't wake up if the
> dog barks or the baby cries. The majority of women that catch
> ulcerative colitis are
> women of newborn children who get less sound sleep than other
women.
> I think the
> reason why we get ulcerative colitis is because we have week
muscles
> in the colon area or
> elswewhere in our body that don't get enough oxygen because the
blood
> vessels are not
> situated right or big enough to carry oxygen to the muscle to keep
it
> from contracting. We
> are all different. We have different genes and this is the easiest
> way I have lived with
> ulcerative colitis.
> When the pain occurs, the doctors said that they had a much better
> drug than Niacin ,
> Prednisone, to stop ulcerative colitis. I thought they were crazy.
I
> tried it, went on a bland
> diet, took the massive doses at first and continued on the program
> and the bleeding did not
> stop with the first pill of Prednisone. After a week on Prednisone,
I
> got frustrated and
> took Niacin. For the first time taking Niacin in 20 years, I bled
> more after flushing my
> system. So, I kept taking Niacin and it took me a week to stop the
> bleeding and get off
> that bland diet. I never used Prednisone again. I have had 2 CAT
> scans recenty, no cancer,
> my liver is fine and all my organs are fine at 67 years of age.
> Living with ulcerative colitis
> since I was 18 years of age. Dr. Milton Fetter said 7 other people
> were successful on
> Niacin. So if you are young, try Niacin. No drug company is going
to
> spend 20 million
> dollars to prove that Niacin is the best treatment for ulcerative
> colitis because you can buy
> a pill for a penny and it will do the job. So why would they want
to
> prove that Niacin
> would stop your ulcerative colitis?
> I've read books on ulcerative colitis of people who had their
colons
> taken out and the
> result was massive congestion of the vascular system in the colon.
> And what does Niacin
> do? It opens up the vascuar system, but what doctor would give you
> Niacin when you
> have massive bleeding in your colon area?
> Good Luck. Signing off, Arthur Billings

Reply | Forward | Messages in this Topic (2)

#19 From: "sweetsarmistha" <sweetsarmistha@...>
Date: Thu Sep 19, 2002 1:44 pm
Subject: Re: need advice on treatments sweetsarmistha
Offline
Send Email

Hi Danny,
Please do visit a web site http://www.ulcerativecolitiscure.com

This is a good site having information on ulcerativecolitis &
Dr.Haris verma is also a very talented Ayurvedic Doctor from the land
of ayurveda India.

His medicine has cured me & presently I dont have any problame.
Thanking U.
Sara


--- In isribd@y..., "ronikovac79" <kovacronnie@h...> wrote:
> Hi Danny,
> Muchos gracias..i am going to check the website now. By the way,  I
don't have hebrew keys
> on my computer, (besides I am a lazy american, so it is faster for
me to type in english! :-
> )
> anyway, thanks for the link....
>  Roni
>
> --- In isribd@y..., "dany_lv" <lvds@n...> wrote:
> > Alan Roni :)
> >
> > You can check for information on rafasaal at this link:
> > http://www.infomed.co.il/drug4.asp?dID=165
> >
> > you can find there most of the information u need.
> >
> > Feel Well,
> > Danny Levin [Ibdisr.tripod.com]
> >
> >
> >
> >
> >
> > --- In isribd@y..., "ronikovac79" <kovacronnie@h...> wrote:
> > > Hi.
> > >
> > > I just came across this group. I have been searching for
> > information
> > > on Colitis on the web. I am 23, live in Israel, and was
diagnosed
> > > with colitis recently. I first started taking Flagyl, which
made me
> > > feel awful, and now am on Rafassal. So far its been a few days,
and
> > > I don't really see any change. Is anyone familiar with this
drug? I
> > > am concerned about side effects. Iam supposed to take 2 pills,
3x a
> > > day, and they are 500 mg. Any information would be helpful for
me.

Reply | Forward | Messages in this Topic (4)

#18 From: sheldon gesensway <sheldon33132@...>
Date: Thu Jul 4, 2002 1:11 pm
Subject: Re: vitamin E enema sheldon33132
Offline
Send Email

Hello,
  Sending 3 attachments.Please keep me informed.sheldon

--- Ronnie Kovac <kovacronnie@...> wrote:

<HR>
<html>

<div style='background-color:'><DIV>
<P>hi..</P>
<P>&nbsp;i was just recently diagnosed with colitis.
right now i am take six pils of rafassal a day. i am
willing to try anything else in place of pills. can
you explain to me more about the vitamin E diet?</P>
<P>Ronnie<BR><BR></P></DIV></div><br
clear=all><hr>Send and receive Hotmail on your mobile
device: <a
href='http://g.msn.com/1HM1ENIL/c152??PI=44343'>Click
Here</a><br>

<br>
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#17 From: "Ronnie Kovac" <kovacronnie@...>
Date: Thu Jul 4, 2002 8:21 am
Subject: Re: vitamin E enema ronikovac79
Offline
Send Email

hi..

i was just recently diagnosed with colitis. right now i am take six pils of rafassal a day. i am willing to try anything else in place of pills. can you explain to me more about the vitamin E diet?

Ronnie

Send and receive Hotmail on your mobile device: Click Here

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#16 From: sheldon gesensway <sheldon33132@...>
Date: Thu Jun 27, 2002 2:57 am
Subject: vitamin E enema sheldon33132
Offline
Send Email

Hello,
  Vitamin E is a powerful antioxidant.
I CURED my severe condition of ulcerative colitis over
20 years
ago with a vitamin E enema you prepare yourself and
diet.No other
medication. No problems since.Results within one
week.The correct
diet of fiber binds the stool and removes the constant
colon
irritation produced by wrong food choices and gives
the open
sores a chance to heal.The vitamin E enema works with
the body
immune system to heal the colon wall.I have 3
attachments that
tells my experience and the procedure used.Please send
your
request to sheldon33132@...

The enemas are made from the vitamin E you buy in a
drugstore.









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#15 From: "ronikovac79" <kovacronnie@...>
Date: Sat Jun 8, 2002 4:01 pm
Subject: Re: need advice on treatments ronikovac79
Offline
Send Email

Hi Danny,
Muchos gracias..i am going to check the website now. By the way,  I don't have
hebrew keys
on my computer, (besides I am a lazy american, so it is faster for me to type in
english! :-
)
anyway, thanks for the link....
  Roni

--- In isribd@y..., "dany_lv" <lvds@n...> wrote:
> Alan Roni :)
>
> You can check for information on rafasaal at this link:
> http://www.infomed.co.il/drug4.asp?dID=165
>
> you can find there most of the information u need.
>
> Feel Well,
> Danny Levin [Ibdisr.tripod.com]
>
>
>
>
>
> --- In isribd@y..., "ronikovac79" <kovacronnie@h...> wrote:
> > Hi.
> >
> > I just came across this group. I have been searching for
> information
> > on Colitis on the web. I am 23, live in Israel, and was diagnosed
> > with colitis recently. I first started taking Flagyl, which made me
> > feel awful, and now am on Rafassal. So far its been a few days, and
> > I don't really see any change. Is anyone familiar with this drug? I
> > am concerned about side effects. Iam supposed to take 2 pills, 3x a
> > day, and they are 500 mg. Any information would be helpful for me.

Reply | Forward | Messages in this Topic (4)

#14 From: "dany_lv" <lvds@...>
Date: Sat Jun 8, 2002 12:48 am
Subject: �� dany_lv
Offline
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����, ��� ������! ����� ������ :)

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#13 From: "dany_lv" <lvds@...>
Date: Sat Jun 8, 2002 12:37 am
Subject: Re: need advice on treatments dany_lv
Offline
Send Email

Alan Roni :)

You can check for information on rafasaal at this link:
http://www.infomed.co.il/drug4.asp?dID=165

you can find there most of the information u need.

Feel Well,
Danny Levin [Ibdisr.tripod.com]





--- In isribd@y..., "ronikovac79" <kovacronnie@h...> wrote:
> Hi.
>
> I just came across this group. I have been searching for
information
> on Colitis on the web. I am 23, live in Israel, and was diagnosed
> with colitis recently. I first started taking Flagyl, which made me
> feel awful, and now am on Rafassal. So far its been a few days, and
> I don't really see any change. Is anyone familiar with this drug? I
> am concerned about side effects. Iam supposed to take 2 pills, 3x a
> day, and they are 500 mg. Any information would be helpful for me.

Reply | Forward | Messages in this Topic (4)

#12 From: "ronikovac79" <kovacronnie@...>
Date: Fri Jun 7, 2002 11:02 pm
Subject: need advice on treatments ronikovac79
Offline
Send Email

Hi.

I just came across this group. I have been searching for information
on Colitis on the web. I am 23, live in Israel, and was diagnosed
with colitis recently. I first started taking Flagyl, which made me
feel awful, and now am on Rafassal. So far its been a few days, and
I don't really see any change. Is anyone familiar with this drug? I
am concerned about side effects. Iam supposed to take 2 pills, 3x a
day, and they are 500 mg. Any information would be helpful for me.

Reply | Forward | Messages in this Topic (4)

#11 From: "bryceraleigh" <bryceraleigh@...>
Date: Fri May 31, 2002 12:21 am
Subject: How You Can Beat Ulcerative Colitis bryceraleigh@...
Send Email

I am now 67 years old with no ulceraitve colitis conditions. When I
was 18 years old, I
was going South below the equator to catch 300 tons of tuna. We had a
full crew of 17
men, so I had to sleep in the net locker underneath the automatic
pilot gears which made
loud whining sounds all night long. By the time we reached Panama, I
had ulcerative
colitis. I began to bleed 7 times each day, bloody diahrea while I
ate my three healthy
meals a day. It was a long trip. I arrived back in San Diego 5 months
later with bloody
diahrea. I went to Dr. Milton Fetter an internal medicine doctor. He
sent me to a clinic to
check and see if I had ulcerative colitis. They verified Dr. Fetter's
diagnosis. The exam
was a painful experience.
To treat the ulcerative colitis, Dr. Fetter recomended a Sulfidine.
After, bleeding 7 times
each day with bloody diahrea, I took a Sulfidine which I was allergic
to. I then called Dr.
Fetter to make another appoinment and explained how the Sulfidines
made me very sick.
He then gave me a prescription for Niacin. I went to the Pharmacy to
buy Niacin, but the
Pharmacist told me it was an over the counter medication. He pointed
where I could find
the Niacin. The only Niacin they had was 100 mg pills.
I went home that afternoon and ate spaghetti and drank milk with my
Niacin on a Friday. I
had the strangest of all reactions, I started to itch and flush at my
head. I didn't know it at
the time, but my blood vessels were increasing to 3 times their
normal size. This itching
and flushing reaction went down my chest and arms, down my torso to
my thighs, and
down my legs within 20 minutes. I felt that I was allergic to this
medicine. I had a date
with a beautiful girl that night at 7:00 so I ate at 5:00 so I could
go to the bathroom 2
times before my date with the bloody diahrea. I waited after
consuming all the spaghetti
and drinking 2 glasses of milk while the flushing was going on.
Afterwards I waited for the
urge to go to the bathroom, which is usually only 3 seconds away. I
needed 7 seconds to
get to the bathroom and I felt the urge. I waited until 7:00 because
I had no bowel
movement. The tingling and flushing left me within half an hour.
I called the girl on the phone and cancelled the date because this
was the first time in five
months that I didn't have a bowel movement within 2 hours of eating.
I sat with my
grandmother watching TV for 4 hours, just 7 seconds away from the
bathroom in case I
had to go. I felt no urge to go during this time. Then I went to bed
at 11:00. The bedroom
was just 2 seconds from the bathroom. All that night, I had no urge
to have a bowel
movement and I finally fell asleep.
The next morning, I got up at 7:00 and went to the restroom. For the
first time in 5
months, I had a stool 10 inches long covered with mucous. I was very
surprised about the
mucous. For the next few days, I ate regularly with no diahrea. The
second time I had a
bowel movement I had normal stools with no mucous. I was 18 years
old, now I am 67
years old. I have had 20 attacks of ulcerative colitis over 25 years.
When I was 43, I was taking 500mg of Niacin with one drink early in
the morning and I
would get a brief flushing of my skin. Niacin wasn't working anymore.
In Niacin, the
nicotinic acid reacts with the estrogens in your blood to dialate
your blood vessels. I don't
know why my estrogens do not react anymore to Niacin. Doctors used to
prescribe Niacin
to reduce cholestreol and hypertension in the body. I looked at a
vitamin book and it helps
your fingernails to grow and your hair to grow. At 67, I have a lot
of hair, my
grandfathers did not. I don't know if it helped. Niacin is
inexpensive, 100 pills at 100mg
for $1.00. I took Niacin when it became inconvenient after I had an
attack of bloody
Ulcerated Colitis. For the next fifty attacks in fourty years Niacin
is what worked every
time. I just had to take enough Niacin to dialate for twenty minutes.
A few years ago.I phoned Dr. Milton Fetter and found out he was still
alive. I asked him
how many people he treated with Niacin. Dr. Fetter told me that he
had treated 80 patients
with ulceraitve colitis and about 8 of these were allegic to
Sulfidines. To these he
recomended Niacin, I was one of those lucky ones. They never had any
other problems,
and never went back to him for ulceraitve colitis.
At 43, I was having a pain for the first time in my colon area. I
went to 2 doctors who said
they had a new drug on the market. They said that it was remarkable,
better than
Niacin,called Prednisone. It didn't work, the pain didn't go away.
One night at 2:00 in the
morning when I couldn't sleep because of the pain, it was very quiet,
I could hear my
heart beat. Every time my heart beat, the pain would increase a
litle. Sort of like a muscle
spasm. The next day, I called my doctor for a muscle relaxer. I took
1 pill the next night of
Ativan. The pain went away. I started off with a small pill of Ativan
24 years ago when I
was 43. I am up to two pills a night to give me a sound night's sleep
and to relax my
muscles. I have never had another attack of ulcerative colitis in the
last 24 years because I
have been taking a generic of Ativan, very inexpensive.
If you have Prednisone in your system Niacin won't work. I suggest
you try Niacin first.
Get all the Prednisone out of your system, it might take a month.
Remember, I bled for 4
and a half months 7 times a day, so don't worry too much about the
bleeding.
I have looked at ulceraive colitis on TV through video cameras. The
TV cameras that are
in the colon show that the ulcers are about the size of a pin head. I
feel that what the
doctors call ulcers are really swollen capilaries that cannot
circulate blood because the
muscles have clamped down on the vessels not alowing blood to pass
through your
system. When you take Niacin, your blood vessel dialate to three
times their normal size
and oxygen gets to your muscles and relieves the pain and then you
have no bleeding.
Then, the Ativan does not let the muscle spasm at night because it
relaxes it. Therefore,
you have to take it every night to get a good night's sleep. It is
addictive in the fact that
you will not go to sleep without Ativan. That is why Longs Drug store
tripled the price
and was caught and had to refund the money to the people. I have
discovered at 67 in a
pharmacy book that you can take up to 10 pills of Ativan each day,
but I wouldn't suggest
taking this much. Especially if you have a weak heart.
Prednisone has ruined the liver of a friend of mine who I met in
later years. She needed a
new liver or she would die because she had been taking Predisone for
40 years. Now the
benefits of Niacin are 20 fold and so is Ativan, getting a good
night's sleep. But
Prednisone, which the drug companies make a fortune off of, causes a
lot of damge to
your body. But the doctors have to prescribe it or they can be sued
for malpractice.
When you reach 50 years of age, the doctors want to check your colon
for cancer. It
seems that people who have ulcerative colitis have a higher chance of
getting cancer. The
doctors have put a camera every two years to check for cancer in my
colon. The new
cameras are non-painful, but sometimes they carry germs. I am 67
years old and my colon
is without scar tissue, and without any narrowing. The cameras are
now cleaned by the
kitchen help, called NAs(Nurse Assistants). The last time I had a
camera put inside of me,
I had a fever of 106.5 degrees 5 days later. I was shaking all over.
I thought I was cold. It
was a narrow escape for my life. So, I don't have the cameras put in
me anymore.
During my early experience with Niacin, I was young and dumb. I would
bleed in my
colon, and only when it became an inconveneince where I would have to
run to the
bathroom that I would take Niacin. It worked until I was 43 years of
age.
I am a general contractor and developer so when I stayed up until
2:00 or 3:00 in the
morning, 3 nights in a row I would have an attack of ulcerative
colitis. Now, if I don't
have 8 hours of sound sleep, I will have blood in my stools. Get the
Prednisone out of
your system and use Niacin. It is a very cheap way to treat your
ulcerative colitis and
might help you gain a lot of hair on your head.
One time, I went on a carrot juice fast for 30 days. I bought a
juicer, and drank three 8oz
glasses of carrot juice with ice cubes so you don't miss chewing with
your teeth. I lost 30
pounds and my ulcerative colitis went away. Put some celery juice
with the carrot juice so
you won't become anemic. The only problem with that cure is that most
people with
ulcerative colitis are thin and can't lose weight or afford the many
sizes of pants that you
have to buy.
The excellent thing with Niacin is that you don't have to go on a
bland diet, you can eat
anything while you take the Niacin, but you have to flush. If you
don't flush with the
Niacin, it won't work. I sometimes took 800mg of Niacin early in the
morning before I ate
anything to get mt body flushed. So don't take the time release
capsules. You have to
dialate your blood vessels to stop the muscle spasms in your colon or
elsewhere in your
body.
If the Niacin stops working after 43 years of age, then use the
Ativan. The pill is so small
you have to get a pill slicer to cut it in half. Start with half a
pill and if you don't get a
good nights sleep then start a whole pill. It has to be sound sleep
you don't wake up if the
dog barks or the baby cries. The majority of women that catch
ulcerative colitis are
women of newborn children who get less sound sleep than other women.
I think the
reason why we get ulcerative colitis is because we have week muscles
in the colon area or
elswewhere in our body that don't get enough oxygen because the blood
vessels are not
situated right or big enough to carry oxygen to the muscle to keep it
from contracting. We
are all different. We have different genes and this is the easiest
way I have lived with
ulcerative colitis.
When the pain occurs, the doctors said that they had a much better
drug than Niacin ,
Prednisone, to stop ulcerative colitis. I thought they were crazy. I
tried it, went on a bland
diet, took the massive doses at first and continued on the program
and the bleeding did not
stop with the first pill of Prednisone. After a week on Prednisone, I
got frustrated and
took Niacin. For the first time taking Niacin in 20 years, I bled
more after flushing my
system. So, I kept taking Niacin and it took me a week to stop the
bleeding and get off
that bland diet. I never used Prednisone again. I have had 2 CAT
scans recenty, no cancer,
my liver is fine and all my organs are fine at 67 years of age.
Living with ulcerative colitis
since I was 18 years of age. Dr. Milton Fetter said 7 other people
were successful on
Niacin. So if you are young, try Niacin. No drug company is going to
spend 20 million
dollars to prove that Niacin is the best treatment for ulcerative
colitis because you can buy
a pill for a penny and it will do the job. So why would they want to
prove that Niacin
would stop your ulcerative colitis?
I've read books on ulcerative colitis of people who had their colons
taken out and the
result was massive congestion of the vascular system in the colon.
And what does Niacin
do? It opens up the vascuar system, but what doctor would give you
Niacin when you
have massive bleeding in your colon area?
Good Luck. Signing off, Arthur Billings

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#8 From: "cityamazon" <cityamazon@...>
Date: Mon Apr 29, 2002 5:39 am
Subject: crohn's cityamazon@...
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I have had this aweful disease for 22 years now and three resections,
most recent, 2 weeks ago. What really gets me is having to work with
this and trying to explain to my employer what Crohn's is and how it
affects me. I have been on the the sites and cannot seem to find much
info on people living with the disease and the side affects that
affect them. I need to supply work with what is happening to me so I
can have access to the washroom when I need it. I cannot seem to find
any info pertaining to the fact that I need to be near a bathroom. For
I need to go extremly quick and often ( anywhere from 5-20 times a
day), or the fact that I could have just walked out of the washroom
and not even two minutes later be right back in there. Its unfortunate
but when I go anywhere the first thing on mind is ok, where is the
nearest washroom. Or driving in the car and thinking, oh no I need a
washroom and (I mean barely making it). Or the hemmroids that just
hurt so bad. I am lucky that I have not missed to much work because of
this, and I am on NO medication. I was in remission for 10 years and
felt great. Oh also what about all the GAS......so uncomfortable. My
family is great and my Husband is so understanding, because I have
spent so much time in the Hospital, 4 kids and no problem with the
Crohn's while pregnant. I will refuse to take prednisone, I feel it
does nothing for me. The only drug I have ever been on is pentasa.
Again felt it did nothing. So now that I have carried on does any one
know where to find any of the info I need?

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