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Hello Everyone,
As promised yesterday in certain of my posts on the lists, here is finally an update from me and it's not good (sad to say)!!!
I had my 4th remicade infusion on Monday and managed to get my prednisone down to 13mg, but the week before my infusion I wasn't feeling good. So my doctor told me to increase it to 15mg. On Tuesday, I was hit with agonising pain with vomiting and bowel movements together (now - doesn't that sound like fun). So I spoke to my GI on Wednesday and he told me to come and see him on Thursday.
I AM NOW BACK UP TO 30MG PREDNISONE!!!
And I was told that I have a build up of scar tissue and intestinal stenosis.
If I am not wrong, this is from the remicade. Can someone on the remicade list tell me if I am right?
I now have to be in touch with my GI every 5 days (Galit - isn't that fun!!! - since he is never there when I call).
I am feeling no better and everything is still the same. Terrible pain, vomiting, nausea, plenty of bowel movements. I am so ready for surgery, but I think my GI is against surgery.
Galit - when did you have surgery? Did it help you?
Love,
Sarah
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