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Reply | Forward Message #2202 of 2395 |
Grabbing your life back

I know exactly how you are feeling - I felt precisely the same way
and far more prepared to take the risk of immunotherapy than the
doctors. This allergy feels like living under a constant threat and
that feeling is such a cloud to have to live under. Treatment gave
me my life back!

It is a frustration that some of us find immunotherapy tougher than
others - we have about 20 people coming in for their shots at my
allergy clinic and the vast majority just come in, have their shot
and a cup of tea (this is England!), and walk out an hour later
without giving the experience a second thought.

Others have differing reactions but these can be moderated by the
level of the venom doses and as long as you start off at a feeble
unreactive dose and go slowly you do seem to get there in the end.

The key is patience and determination and your allergist needs your
support just as much you need his/hers - people like us are
definitely outside of their comfort zone.

Please do keep in touch and let us know how it goes!

David




Tue Oct 21, 2008 5:51 am

unitbusuk
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Message #2202 of 2395 |
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I am also new here and haven't been around too much, still trying to accept this strange allergy! I finally was tested by an allergist and am now on...
kari4566
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Oct 15, 2008
5:05 am

Sorry to hear that you have had early reactions but they do happen! First of all let us all remember that the great majority of people have immunotherapy with...
David Glaser
unitbusuk
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Oct 15, 2008
6:26 am

Thanks David for your reassuring reminder to all of us that immunotherapy may be one step forward but two steps backwards at times. Our son had his first fire...
Kim Gleason
kimmgleason
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Oct 15, 2008
1:05 pm

Today I went to the Allergist. She wanted to stop the shots but, I talked her out of it. She said that with the reactions (flu like) after the first 3 shots,...
kari4566
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Oct 21, 2008
12:09 am

Good news! You always should have a voice when it comes to your own care. I congratulate you for fighting for YOU. Good luck with the Immunotherapy. Doug ... ...
Douglas Montgomery
douglas_mont...
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Oct 21, 2008
3:11 am

I know exactly how you are feeling - I felt precisely the same way and far more prepared to take the risk of immunotherapy than the doctors. This allergy...
David Glaser
unitbusuk
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Oct 21, 2008
5:51 am

David: Having this allergy has given me a whole new perspective on life. Though I have other life altering conditions (MS, Lupus to name a couple) this...
kari4566
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Oct 22, 2008
6:08 pm

Hi Kary I SO get where you're coming from! I have been getting my shots for almost 5 years (with tons of crazy ups & downs) But NOW it is all UPS!!!! I swear...
Diane Russell
larsonskiier
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Oct 22, 2008
6:49 pm

Hi Kari and YOU GO GIRL ! I know we've all talked before about how the buzzards really do seem to zero in on us. It's amazing. AND not something any one else...
Deb Fawcett
acet12000
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Oct 22, 2008
8:48 pm

I'm so glad that you're getting the treatment you need, Kari! Sad that you had to fight so hard just to get it. As for the bees zeroing in -- I thought it was...
EloquentIntent@...
dustedangel80
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Oct 27, 2008
2:23 pm

Debbie, Diane... big hugs!!! Congrats on reaching the 5 year mark!! OMG, I can't even imagine the freedom!!! I am so very, very happy for you. This board has...
kari4566
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Oct 26, 2008
8:53 pm

We ALL know way more than we ever wanted to! HA I can even identify which is which-something my sons would have appreciated when they were younger (teenagers...
Diane Russell
larsonskiier
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Oct 27, 2008
3:47 am
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