I went for my follow up the end of june with my new
allergist/rhumatologist. He had done a whack of bloodwork in May and
at that time said no way to the shots because of my autoimmune
issues. Well, I was hoping he'd say yes at the followup after all
the bloodwork. NOPE. Now he tells me on top of the other stuff, I
also have a genetic IgA immune deficiency. Just what I wanted to
hear. So today I spent the morning at the childrens hosptial having
my kids tested for this genetic thing. Sigh.

Cate



--- In insectstings@yahoogroups.com, Diane Russell <drussell506@...>
wrote:
>
> Hello!
> The buzzers are out full force here in the USA
> It is awesome how they don't seem to pick ME out of a crowd any
longer!!
> I too am still having my shot broken up into to two, one in each
arm
>
> I wonder if a good test would be to have it all at once in one
arm?
>
> I think I've been on maintainence for 2 1/2 years & was told
after 5 they would re-test me
> However, I had a lot of false negatives (very frustrating) in the
beginning of my whole adventure & have the added blessing (?) of
having mastocytosis, which complicates everything
> Regardless, thank you again, David for all the great information
& support over the years
> What on earth did people do before the internet?
> :)
> Diane
>
> Insect Stings <david@...> wrote:
> Hi Everyone,
>
> Well I have my next jab on the 10th July and this then marks five
years of maintenance.
>
> Like Chris I have 50 mg in each arm and now I have no local
reaction at all - in fact the needle seems to hurt a lot more than
the venom! The main issue now is what to do....because I had
anaphylactic shock after the second or third shot of the build up
phase ie a very low dose, then the established advice is to be on
venom immunotherapy for life.
>
> I really don't fancy that very much but then I don't fancy going
back to square one again and having anaphylactic shock to a real wasp
sting rather than a mild shot. Then again I might be cured for
life. Who knows?
>
> Even the "King of Sting" doesn't know all the answers but maybe
some of you have some thoughts?!!!
>
> As for wasp/bee stings here in the UK, Chris, I have a new
website launched last year which monitors sting activity here in the
UK and it is definitely the quietest year this century - feel free to
take a look - www.waspwatch.co.uk .
>
> All best wishes to everyone!
>
>
> David
>
>
>
>
>
>
> From: Chris
> Sent: Friday, July 04, 2008 11:12 AM
> To: insectstings@yahoogroups.com
> Subject: [insectstings] Re: So quiet..
>
>
>
>
> I just noticed that my last message somehow missed the board,
so here
> it is again...
>
> Well, I've not posted on here for quite some time, so perhaps time
> for an update.
> We moved house from Humberside (East coast, UK) to North Wales
> earlier this year and consequently have changed hospital for my
jabs.
> I now go to Broad Green Hospital in Liverpool, where they have a
> separate unit for immunotherapy, whereas at Lincoln hospital it was
> done on the Day Unit, alongside all sorts of other treatments.
> Broad Green also works as a drop in centre, so no pre-booking of
> appointments, just come in around the appropriate time. This means
it
> is a very slick process, but you don't get to see the other
patients
> (whether they're there for immunotherapy or any other reason) on a
> regular basis, which is a shame as I made a few friends at Lincoln.
> I'm still having my dose split 50/50, half an hour apart, following
> last year's bad reaction, but I've only got until October until the
> three year course is up. So at 6 weekly intervals, that's only
> another 4 visits until I finish!
> I'm still not very good at remembering to carry my Epipens with me,
> but am trying! Although I've not seen many wasps this year so far.
> Hope everyone is well.
> Regards,
> Chris
>
> --- In insectstings@yahoogroups.com, "moomoos_mom" <moomoos_mom@>
> wrote:
> >
> > Its been SO quiet here. How is everyone doing?
> >
> > cate
> >
>