So sorry to hear this news Chris
You have my sympathy!!!!!
the good news is you are okay today!
i am glad you were in a controlled enviorment and though way scary, you are okay now
I have been on maintainance for 6 months now, and they always split the shot into two
When they put it all in one, even when we were gradually increasing, I always had a hard time
After what happened to you, I don't think I will let them EVER put it into 1
My Dr. has suggested 5 years of this, and then to be re-tested
(I have the further complication of mastocytosis)
Yesterday he told me to still always carry the epi & wear the medical alert jewelry
He said after 5 years if I don't test negative, then we will increase the dosage (up to 2x) for another 5 years
I know how you feel about being battered & subdued
I thought I was safe
The bees are really coming out because of the nice weather here in Illinois
FYI
There's a new epi-pen out that has a thinner needle and is easier to administer
Also you can take it apart after 1 use and get it ready for a second use (if necessary)
I have to carry 2 pens, so I am very happy about this 2 in 1
My Dr. gave me a coupon for a free one yesterday........The BEST part :)
Keep Smilin'
Try and stay strong!!!!!!
Diane
Chris <chris.thornton@...> wrote:
Chris <chris.thornton@...> wrote:
Hi Guys,
Had a bit of a bad day yesterday.
After having been on maintenance for over a year (albeit on split
doses initially, then moving up to a full single dose for the last 4
months), I was not expecting anything unusual yesterday. However, 3
minutes after the jab, I had a severe reaction (blood presure through
the floor, struggling to breath, nausia, tight chest and apparently I
turned bright red) which resulted in the use of an epipen, amongst
other stuff, and lots of panicked activity on the ward. I have had
several mild reactions during the initiation and early parts of the
maintenance stages, but I have had no reactions at all for several
months now, so this came as a huge shock and a big dissappointment.
My Consultant (who was immediately consulted) thinks I should take a
reduced dose next month and if that is OK, then all my jabs from here
on should be split, so quite a set-back really.
But what caused it? There seems to be no clear explanation.
I guess that the one good thing that came out of it is that the least
traumatic experience of the whole thing was the use of the epipen; so
I will have no qualms using one in the future if the need ever arises.
Hope you are all well.
Chris
(Feeling a little battered and subdued)