I had problems conceiving in the first couple months, until one day I read about
the ABC's of conception, and realized I did not make cervical fluid around the
time of ovulation.  So, I purchased the product called FertileCM from Fairhaven
Health (I am SO sorry if I am violating a rule here) and started taking it from
the onset of my period.  By day 14-15, I would see the fluid, and each time I
got pregnant that month.  Now, I lost my last two pregnancies, but hopefully I
will find a doctor willing to help me suppress my immune system very soon.   HTH

I also do yoga and get acupuncture every 1-2 weeks.

--- In immunologysupport@yahoogroups.com, Mandy Cairns <manders41@...> wrote:
>
> Hi, it has taken us between 1-9 mths previously to conceive the 6 times. We're
now on mth 6 and no success after immune treatment. Due to my age our RI has
suggested IVF. We are however trying some things before taking that step. This
is the first mth I've tried taking steroids pre concep, started CD 6. I wonder
if perhaps you could try steroids earlier? Sure Dr Kwak has her reasons for
waiting to after ov tho. Can't think of anything else apart from gluten free to
reduce inflammation...having said that tho I've not conceived since starting the
GF diet but know other people who have.
>  
> Sorry don't have more advice than that. GL.
>  
> X+x
>
> 42, 1 DS aged 6
> 5 m/cs, 4 yrs ttc #2
> Slightly pos APS, low Free T4, borderline ANAs, CD19+/CD5+ cells 15%, Th1/Th2
ratio 61 (reduced to 33 after 4 doses pre-concep Humira), Neg LAD
>
> Currently on :
> Menevit, calcium + vit D, 1/4 aspirin after ov, Royal Jelly, trying 5 mg
steroids this mth
>  
> Protocol :
> Pre-concep - Humira 40mg x 4 before ttc and re-test levels then BA (might
try it post ov tho), steroids 5 mg (might not do pre-concep as other treatment
sufficient), calcium, LIT done 3 July.
>  
> At + test - stop BA (but might not do that!), intralipids, steroids 20 mg
(weaning off at 12 wks), heparin 20 mg once per day (test APS at 12 wks),
Ultrogestan pessaries 400mg till 12 wks
>  
> Acupuncture, herbs, kinesiology, gluten free and looking into
HypnoFertility 
>
>
>
> --- On Wed, 11/11/09, dustipalecek <dustipalecek@...> wrote:
>
>
> From: dustipalecek <dustipalecek@...>
> Subject: [immunologysupport] Natural conception
> To: immunologysupport@yahoogroups.com
> Date: Wednesday, 11 November, 2009, 16:20
>
>
>  
>
>
>
> Could those of you who conceived naturally tell me how long it took you to get
pregnant? I'm stressing that my immune problems have ruined my chances to
conceive naturally.
>
> Also, has anyone out there had results like mine and had success? Here's what
I tested positive for. I'm a patient of Dr. Kwak.
>
> positive ANA(1:80)
> positive APA
> hetero for MTHFR (C677T)
> hetero PAI-1
> normal CD19+ B cell levels with elevated CD5+B-1 cells (mine are 13.3)
>
> Treatment protocol:
> - 40 mg Lovenox 1x day, start on CD 6 (increase to 2x day at BFP)
> - Endometrin 3x day, 48 hours after ovulation
> - 10 mg a day prednisone 48 hours after ovulation (increase to 20 mg with BFP)
> - baby aspirin
> - vitamin E
> - Metanx
> - Calcium + vitamin D
> - Metformin
> - prenatals
> - Low carb diet
>
> I'm worried about it not being enough as we can't afford IVIG. Any thoughts,
advice, etc. would be greatly appreciated!
>

Hi!  Would any of you care to share which drug you think is better for
suppressing the immune system?  I had my family doctor run Dr. Beer's NK assay,
as my RE would not, and when the test came back, it reported that my
CD3-/CD16+CD56+ came back 24 percent!

Now, the Quest report shows it just in range, and that 25 percent is the first
number out of range.  However, I found under the "Files" section here, that
anythign over 12% is cause for concern according to Dr. Beer

So, I can't find a local RE to help me.  Short of making the pilgrimage to
California, could anyone suggest some help for me and my family doctor?  He will
give me the prescription for a corticosteriod, but we are flying by the seat of
our pants a bit.  ANY help as far as doseage or shared experiences would be
helpful

THANKS

I just had my results and can't talk to my doctor on the phone until tomorrow,
so I'm hoping someone can put me out of my misery and tell me what all this
means-

NK Assay (5 Killed) Panel
50:1                 8.4
25:1                 6.3
12.5:1               4.0
IgG conc 12.5 50:1   6.2
IgG conc 12.5 25:1   5.2
IgG conc 6.25 50:1   7.6
IgG conc 6.25 25:1   5.2
% CD3               83.8
%CD19                2.9
%CD56               10.8
% of CD19= cells,CD5+ 3.4

Leukocyte Antibody Detection
Flowcytometry     negative
[T-cells] IgM+    2.6
[T-cells] IgG+    1.0
[B-cells] IgM+    13.4
[B-cells] IgG+     9.1

TH1:TH2 intracelluar cytokine ratios
TNF-a:IL-10 (CD3+CD4+)  32.2
IFN-g:IL-10 (CD3+CD4+)  32.0

NK assay w/Intralipid
50:1 w/Intralipid 1.5mg/ml  12.8
25:1 w/Intralipid 1.5 mg/ml  8.1

DQ Alpha Genotype
Me - DQ Alpha  0102,0501
My husband - DQ Alpha  0104,0201

Many thanks

Hello Everyone!

Here is a FRESH selection of stuff members can collect for nothing

There is lots to grab in this new Giveaway Mix!

http://groups.google.com/group/freebieshare/web/giveaway-mix-november-12

Enjoy!

I'm on Lovenox & aspirin until next week (36 wk), at which point I'm supposed to
switch to a comparable dose of Heparin (no aspirin) at a half-dose, 2x/day. 
That's b/c Heparin only stays potently in your system about 12 hours, whereas
Lovenox is 24 hrs.

They want to have the Heparin out of my system if I start contractions at any
point. I guess they figure that if you stop the shots once you feel the first
mild contractions then you probably won't be in full-blown childbirth for at
least 12 hours, enough time for most of it to leave your system.

I don't plan to be induced unless I start to go past 40 wk. My mom is arriving
at 39 wk, 4 days and plans to fly back the day after xmas (41 wk, 4 days). I
want to make sure this baby is out by xmas and preferably before my OB goes on
vacation on the 18th. So I'm already thinking about a possible induction on Dec
17/18. But that's all my thinking. My OB says, "Let's just see how things work
out. This baby seems big and may come early anyway." She has never suggested
induction due to Lovenox. I don't think induction is standard protocol. It may
not be unheard of, either, but it's certainly not something you have to do.

Tina

Hi Linda,

Many thanks for your reply! Actually I have no tubes any more because they were
full of endo apparently and also hydrosalpinx (fluid) so my surgeon removed them
on my last lap ... I know my case is really rare but it was an ectopic w/o tubes
and my doc couldn't even find it (despite beta of 3500). He suspected it was on
the "tubal stump" left by the salpingectomy/tube removal or perhaps cornual (in
the corner of the uterus near the old tube opening) ... I read somewhere people
saying that your uterus can be hostile if the embie is trying to implant outside
of it?? ... Did you have your tubes removed due to endo or did they treat it
some other way? Did you do surgery or antibiotics or meds for endo? Looking fwd
to hearing thanks again for your reply!!


--- In immunologysupport@yahoogroups.com, "lcaplinger" <ponton@...> wrote:
>
> Have you had an HSG to show your tubes are in fact blocked? You should get
your uterus and tubes tested for certain!!
>
> The only thing that I would think could clog your tubes would be the endo -
the other immune conditions wouldn't affect your potential to have another
ectopic. IVIG and LIT do NOT have anything to do with ectopic pregnancy. They
cannot prevent one.
>
> Ectopic pregnancy is nearly always a functional problem with the tubes (too
long, cilia damaged, blockages, too many fimbria at ends of tubes, scarring from
infection, etc). Endo can screw up the tubes and other things so I think getting
the underlying endo fixed is crucial. When the pathologist showed me the slides
of my tubes (destroyed by endo) she said it was the worst she'd ever seen. Text
book stuff. So endo can DEFINITELY harm your tubes and do serious damage.
>
> Some doctors feel endo is an immune condition, and there are some that think
that it's the body's response to infection. I suspect that following Dr. Toth's
protocol for infections could help with immune conditions that are related to
endo and other. I would see him (or a collegue) regarding this before doing much
else. Antibiotics are easy...surgery isn't.
>
> Just my two cents,
>
> Linda
>
> --- In immunologysupport@yahoogroups.com, "annaandbella" <annaandbella@>
wrote:
> >
> > I have experienced one ectopic pregnancy recently (have endo, am homozygous
MTHFR, plus 1:40 ANA, no blood issues with NKs but never tested uterus) ... do
you think this is because my uterus is hostile? I was taking 40mg lovenox daily,
10mg prednisone, folgard, aspirin ... in my country we can't do IVIG or LIT so
are there other alternatives to prevent another ectopic/failure?
> >
>

Sent from my BlackBerry� smartphone with SprintSpeed

--- In immunologysupport@yahoogroups.com, "marjorie815"
we're also paying out of pocket and would happily pay shipping.. we've tried 5
inject cycles.. and are probably be attempting our last soon...
thanks,
Sami


<mattiemol@...> wrote:
>
> Hi Donna, I'm fairly new to this group and haven't posted much, so you've
likely not heard of me yet.  I do have some leftover Menopur and Follistim. 
It's not a full cycle's worth, but I'd be happy to donate what I have if you'll
pay for shipping.  I'm from Houston.  Please contact me at my e-mail.
>
> Marjorie
>
> --- In immunologysupport@yahoogroups.com, Donna Malakoff <dam8867@> wrote:
> >
> > Hi,
> >
> > I have one unopened 40mg/.8ml syringe of Humira which I would love to donate
to someone who is paying out of pocket for their medications.  The expiration
date is April 2010 and it has been refrigerated the entire time I’ve had it.
> >
> > We are all out of pocket as well, and will be cycling again in December.  If
anyone has any left over Menopur or Follistim they would like to get off their
hands, I’d like to put my hat in for them.
> >
> > Best wishes!
> >
>

Could those of you who conceived naturally tell me how long it took you to get
pregnant?  I'm stressing that my immune problems have ruined my chances to
conceive naturally.

Also, has anyone out there had results like mine and had success?  Here's what I
tested positive for.  I'm a patient of Dr. Kwak.

positive ANA(1:80)
positive APA
hetero for MTHFR (C677T)
hetero PAI-1
normal CD19+ B cell levels with elevated CD5+B-1 cells (mine are 13.3)

Treatment protocol:
- 40 mg Lovenox 1x day, start on CD 6 (increase to 2x day at BFP)
- Endometrin 3x day, 48 hours after ovulation
- 10 mg a day prednisone 48 hours after ovulation (increase to 20 mg with BFP)
- baby aspirin
- vitamin E
- Metanx
- Calcium + vitamin D
- Metformin
- prenatals
- Low carb diet

I'm worried about it not being enough as we can't afford IVIG.  Any thoughts,
advice, etc. would be greatly appreciated!

I have 40grams IVIG--expires Jan. 23, 2010...email me if interested. 
mermaid4ya@...

--- In immunologysupport@yahoogroups.com, "lcaplinger" <ponton@...> wrote:
>
>
> Julia might have some that she's selling for a discount..at least she did a
few months ago.
>
> Have you considered intralipids? I know the jury's still out on their use but
it would be worth trying if nothing else comes up.
>
> Linda
>
> --- In immunologysupport@yahoogroups.com, "swpea24" <swpea24@> wrote:
> >
> > Hi everyone - I am sending this out once again as after talking with DH
again we so cannot afford to spend more money on IVIG as we are already paying
for our 8th IVF end of month and are tapped out.  Does anyone have or know of
someone who has extra IVIG????  You would be doing a huge good deed and I would
be forever grateful.  Thanks in advance for your help!!
> >
> >
> > --- In immunologysupport@yahoogroups.com, "swpea24" <swpea24@> wrote:
> >
> > My insurance company will not cover and and I am stressing!  I already have
to pay for another ivf after paying out of pocket over $60.0.  If anyone can
share with me I would be forever grateful!
> >
> > Thanks everyone!
> >
> > --- End forwarded message ---
> >
>

I was told that you can be switched to heparin at a certain point as
there is an antidote to it.  Can you ask for that?  I went into labor
spontaneously at 34 weeks and was given petocin to speed up the labor
process had I not been on an epidural it would have hurt a lot!  You
have to do what feels most comfortable for you so talk to your doctors
about what you want/need.
Sent from my iPhone

Thanks for the help!

Sent from my iPhone

Have you had an HSG to show your tubes are in fact blocked? You should get your
uterus and tubes tested for certain!!

The only thing that I would think could clog your tubes would be the endo - the
other immune conditions wouldn't affect your potential to have another ectopic.
IVIG and LIT do NOT have anything to do with ectopic pregnancy. They cannot
prevent one.

Ectopic pregnancy is nearly always a functional problem with the tubes (too
long, cilia damaged, blockages, too many fimbria at ends of tubes, scarring from
infection, etc). Endo can screw up the tubes and other things so I think getting
the underlying endo fixed is crucial. When the pathologist showed me the slides
of my tubes (destroyed by endo) she said it was the worst she'd ever seen. Text
book stuff. So endo can DEFINITELY harm your tubes and do serious damage.

Some doctors feel endo is an immune condition, and there are some that think
that it's the body's response to infection. I suspect that following Dr. Toth's
protocol for infections could help with immune conditions that are related to
endo and other. I would see him (or a collegue) regarding this before doing much
else. Antibiotics are easy...surgery isn't.

Just my two cents,

Linda

--- In immunologysupport@yahoogroups.com, "annaandbella" <annaandbella@...>
wrote:
>
> I have experienced one ectopic pregnancy recently (have endo, am homozygous
MTHFR, plus 1:40 ANA, no blood issues with NKs but never tested uterus) ... do
you think this is because my uterus is hostile? I was taking 40mg lovenox daily,
10mg prednisone, folgard, aspirin ... in my country we can't do IVIG or LIT so
are there other alternatives to prevent another ectopic/failure?
>