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  • Members: 4249
  • Category: Infertility
  • Founded: Jul 31, 2002
  • Language: English
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#12931 From: "mom2doggies" <bjkirk@...>
Date: Tue Sep 2, 2003 2:13 am
Subject: Re: All pregnancy symptoms gone =( 		mom2doggies
Send Email Send Email
  
Shelley,

My biggest symptoms are breast tenderness, food aversions, uterine
pulling and cramping and fatigue.  How one can have these for three
weeks them have them completely disappear is beyond me.  With all of
my five pregnancies I have always been one to experience symptoms
withing the first week of preg.  I know nothing about what it is like
to experience symptoms after 8 or 9 weeks....I have never been that
far-

Jen


--- In immunologysupport@yahoogroups.com, "Shelley Cahalan"
<scahalan@c...> wrote:
> Jen, I am not quiet sure what symptoms you were experiencing, but I
never
> have any until after the 8 or 9 week.  And I think that lost of
women get
> their symptoms around that time so even though you know your body
well I
> want to say if this is a normal pg you might not really feel
symptoms  for a
> few more weeks.
> Shelley
>
> -----Original Message-----
> From: mom2doggies [mailto:bjkirk@p...]
> Sent: Monday, September 01, 2003 10:44 AM
> To: immunologysupport@yahoogroups.com
> Subject: [immunologysupport] All pregnancy symptoms gone =(
>
>
> The worst has come...I have lost all my pregnancy symptoms, all of
> them.  Just like the last five times they seemed to have left.  I go
> in on Thursday for an ultrasound that will hopefully show an embryo
> at the age of seven weeks five days, but my expereince and intuition
> tells me something different.
>
> I really felt different this time and I thought that the IVIg would
> really get us to that point.  So we will just start again, like
> always.
>
> You may be saying I sound very certain that this is over without a
> doctors diagnosis, but going through this so many times I would bet
> my life on it.
>
> We are going to stress to our doctor that we want cells from the sac
> genetically analyzed since we have never done this before.
Something
> goes on in the six week that just doesn't work out right resulting
in
> a disappearing embryo.
>
> I'll keep you posted
>
> Jen
>
>
>
> To unsubscribe from this group, send an email to:
> immunologysupport-unsubscribe@yahoogroups.com
>
>
>
> Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/

Reply | Messages in this Topic (11)
#12932 From: cckidsinc@...
Date: Mon Sep 1, 2003 10:53 pm
Subject: University of Pittsburgh: Potentially deadly infection during pregn 		cecshoo
Send Email Send Email
 
I know for a fact that parvo can really hurt women of reproductive age... please be careful to stay away from it.  I had never even heard of it, until about 6 mos or so after I had it.  They thought I had Lyme disease or TB at first...took them forever to finally figure out what I had.  We think this is what triggered all my autoimmune problems that have led to the loss of our precious babies.
xoxo
Kitty



University of Pittsburgh: Potentially deadly infection during pregnancy often has no symptoms, August 27, 2003

Potentially deadly infection during pregnancy often has no symptoms

University of Pittsburgh
August 27, 20032003 AUG 27 - (NewsRx.com & NewsRx.net) -- Clinical and basic science findings of several studies are being presented by University of Pittsburgh and Magee-Women's Research Institute scientists at a meeting of the Infectious Diseases Society for Obstetrics and Gynecology (IDSOG).

Potentially deadly parvovirus infection during pregnancy often has no symptoms, reported Hyagriv Simhan, MD, assistant professor of obstetrics and gynecology at the University of Pittsburgh School of Medicine. In healthy adults, parvovirus is more of a nuisance, and can cause flu-like symptoms that are similar to the common cold. In children, it is more likely to be characterized by a "slapped face" appearing rash on the cheeks. But for the developing fetus, parvovirus infection can be a contributing factor in heart failure and death. This is contrary to the little research previously published on the subject, which indicates that a majority of women have symptoms.

Simhan and his colleagues studied cases of 25 pregnant women found to be infected with parvovirus B19 between 1998 and 2001 at Magee-Womens Hospital of the University of Pittsburgh Medical Center. Of these, only 16% exhibited any symptoms themselves, said Simhan, who also is an assistant investigator at the Magee-Womens Research Institute. The vast majority of women were diagnosed because their older, school-age children showed signs of infection. In the study group, there were three cases (12%) of fetal heart failure and four cases (16%) of fetal death.

"So far this year, we have seen 15 cases of parvovirus infection in pregnant women," said Simhan. "This is a more common problem than many people realize."

Because there is no vaccine available, current practice involves counseling and close monitoring of high-risk patients, which includes anyone who has school-age children and those who work with children such as teachers and day care providers. This article was prepared by Biotech Week editors from staff and other reports.

©Copyright 2003, Biotech Week via NewsRx.com & NewsRx.net




http://www.obgyn.net/newsheadlines/womens_health-University_of_Pittsburgh-20030827-61.asp

Reply | Messages in this Topic (1)
#12933 From: "indy942003" <drhyner@...>
Date: Tue Sep 2, 2003 5:12 am
Subject: Re: lab interpretation please! 		indy942003
Send Email Send Email
  
Hey Cheryl,

I haven't been checking msgs. this weekend--have been painting.
What fun!!!??

Anyway, I think your TH1 looks a tad elevated, but the IVIg hasn't
had time to work yet.  I'm sure DB will guide you.  Usually, the
levels are drawn 5-7 days after the IVIg.
Let us know what he recommends.
Debbie



--- In immunologysupport@yahoogroups.com, "Cherylann Foster"
<f.cherylann@v...> wrote:
> ok just got the NK and TH1/TH2 from Chicago.
> The NK looks good I think but the TH1 looks terrible!  Can someone
help please?
> Just as a point of reference, I had these drawn 24 hours after my
mega dose of IVIG.
>
> NK assay:
> 50:1  11.7  was 15.9
> 25:1  10.0  was 13.5
> CD3  73.9 was 55.4
> CD19 18.4 was 20.7
> CD56 7.0 was 19.2
> CD19 CD5 5.4 was 1.0
>
> TH1/TH2
> 34.2 WAS 32.5
> 11.4 WAS 14.9
>
>  Thanks for the help, Cheryl

Reply | Messages in this Topic (13)
#12934 From: "indy942003" <drhyner@...>
Date: Tue Sep 2, 2003 5:17 am
Subject: Re experience with crampingRe: Debbie-your cramping 		indy942003
Send Email Send Email
  
Thanks Christine.  It helps.

If it wasn't for everyone's posts here about these kind of symptoms,
I probably wouldn't think anything of it.  I usually don't have real
bad cramps or cramps in the middle of my cycle, so something is
probably going on in there.  Remicade hasn't seemed to help, in
fact, I think it may be part of the culprit.  I go tomorrow to have
NK Assay & Cytokines drawn.
Debbie




--- In immunologysupport@yahoogroups.com, "Christine_Ruppert"
<christine_ruppert@y...> wrote:
> Dear Debbie
> i have alot of experience with uterine cramping. Since I have been
ob
> Remicade its alot better. I used to have it with implantation, in
the
> luteal phase and after egg donation embryo transfer. DB said its
the
> NKs and cytokines in my utreine wall. I also had bad breast pain,
> PMS, and bad period pain thats all better now.
> Hope that helps
> Christine
> --
> - In immunologysupport@yahoogroups.com, "indy942003"
<drhyner@s...>
> wrote:
> > Thanks Renee.
> >
> > My slight cramping was abdominal, but not bowel.  Definitely
felt
> > just like AF was going to start.  And it wasn't ovulation pains--
-
> > had those today.  Thanks for trying.  I guess I'll assume that
it
> > was my NK cells misbehaving.  I go Sept. 2nd to have my NK Assay
&
> > Cytokines drawn.  Hopefully that'll tell some of the story.
> > Debbie
> >
> >
> >
> > --- In immunologysupport@yahoogroups.com, Renee Schell
> > <reneeschell@s...> wrote:
> > > Hi Debbie,
> > >
> > > I don't know what to tell you about the cramping feelings. I
> > haven't
> > > experienced uterine cramping outside of having my period. I
did
> > have very
> > > severe bowel cramping during the first trimester before my
first
> > m/c at 13
> > > weeks. I posted recently about this after Jane posted a quote
by
> > DB linking
> > > colitis and irritable bowel syndrome to NK cells. So I am
> positive
> > that is
> > > what caused my m/c. Also no abnormalities found in the D&C
and
> dh
> > and I
> > > both have normal karyotyping. I'm sure if DB analyzed it,
there
> > would be
> > > evidence of NK damage.
> > >
> > > I assume you're not noticing ovulation--it's really uterine or
> > back cramps
> > > you're talking about? The nurse told me it is normal to feel a
> few
> > days of
> > > ov. sensation before you actually ovulate. Does your cramping
> feel
> > like
> > > bowel cramping? Does it get better after you use the bathroom?
> > Mine would go
> > > away after a bowel movement. Strange. Just write it all down
so
> > you have a
> > > record of it, should you end up needing it.
> > >
> > > The automimmune symotoms I experienced (after 1 week on
humira)
> > were: slight
> > > itchiness on one knuckle, slight swollen feeling in fingers,
> > achiness in one
> > > armpit (lymph nodes, I'm thinking) and achiness/soreness at my
> LIT
> > sites
> > > (from March, no less!) I had no idea what to make of this--
have
> > never had
> > > anything like that. Seems to have subsided. every once in a
while
> > I have a
> > > little itchiness (transient) on my palms or feet. I hope it's
> just
> > the
> > > humira doing its thing.
> > >
> > > Renée
> > >
> > >
> > > on 8/28/03 7:54 AM, immunologysupport@yahoogroups.com at
> > > immunologysupport@yahoogroups.com wrote:
> > >
> > > >
> > > > Message: 5
> > > > Date: Thu, 28 Aug 2003 06:06:43 -0000
> > > > From: "indy942003" <drhyner@s...>
> > > > Subject: Re: now on humira every week
> > > >
> > > > Renee,
> > > >
> > > > Sorry for more shots!  I'll find out late next week if I'll
> need
> > the
> > > > Humira.  Glad you got confirmation on it not being IF.  Good
> luck
> > > > this next cycle.  I hope this Humira change and using OPK's
will
> > > > work for you.
> > > >
> > > > I haven't been consistent in documenting this, but I've
noticed
> > > > slight cramping feeling at different times in my cycles
lately
> > > > (beginning, middle) versus a few days before my period,
which is
> > > > normal for me.  I had this yesterday or today (I can't
> remember)-
> > --I
> > > > had it when I first wokeup in the AM, then it totally went
away
> > > > after I got up.  Very mild, but the feeling like you might
start
> > > > AF.  And I'm mid-cycle---should ovulate tomorrow.  Should I
> > consider
> > > > this NK cell agrevation, since I normally only have this a
few
> > days
> > > > before AF??
> > > >
> > > > What autoimmune symptoms did you have?
> > > > Debbie
> > > >

Reply | Messages in this Topic (4)
#12935 From: "indy942003" <drhyner@...>
Date: Tue Sep 2, 2003 5:23 am
Subject: Re: 4th beta not good 		indy942003
Send Email Send Email
  
I'm sorry Poetabook, but have you contacted DB?  Maybe you just need
an IVIg dose.  Maybe all hope isn't lost.  At least run these
numbers by him.  Immune patients do start off slowly sometimes----
I've heard DB say this.  Good luck.
Debbie



--- In immunologysupport@yahoogroups.com, "poetabook"
<poetabook@y...> wrote:
> 1st: 31.9
> 2nd: 62
> 3rd: 100
> 4th: 141
>
> so the rate of doubling is slowing dramatically. I go in for
another
> beta Tuesday just to follow it, but no hope for this to work.

Reply | Messages in this Topic (10)
#12936 From: "Cherylann Foster" <f.cherylann@...>
Date: Tue Sep 2, 2003 5:16 am
Subject: Fw: FW: 		nuggetmom
Send Email Send Email
 
 

There was an elderly couple
> who had been married for more than
> > 60
> >       years. They had shared everything. They had talked about
> > everything.
> >
> >       They kept no secrets from each other except that the old woman had
> > a
> >       shoebox in the top of her closet that she cautioned her husband
> > never
> >       to open or ask her about.
> >
> >       For all of these years, he had never thought about the box, but
> > one
> >       day the little old woman got very sick and the doctor said she
> > would
> >       not recover. In trying to sort out their affairs, the little old
> > man
> >
> >       took down the shoebox and took it to his wife's bedside. She
> > agreed
> >       that it was time that he should know what was in the box.
> >
> >       When he opened it, he found two crocheted doilies and a stack of
> >       money totaling $25,000. He asked her about the contents.
> >
> >       "When we were to be married, "she said, "my grandmother told me
> > the
> >       secret of a happy marriage was to never argue. She told me that if
> > I ever
> >       got angry with you, I should just keep quiet and crochet a doily."
> >
> >        The little old man was so moved, he had to fight back tears. Only
> > two
> >       precious doilies were in the box. She had only been angry with him
> >       two times in all those years of living and loving. He almost burst
> >       with happiness.
> >
> >       "Honey," he said "that explains the doilies, but what about all of
> >       this money? Where did it come from?"
> >
> >       "Oh," she said, "that's the money I made from selling the doilies.
> >
> >
> >
> >
>
>
In a message dated 9/1/2003 8:09:07 PM Eastern Daylight Time, judykahn@... writes:


> There was an elderly couple
> who had been married for more than
> > 60
> >       years. They had shared everything. They had talked about
> > everything.
> >
> >       They kept no secrets from each other except that the old woman had
> > a
> >       shoebox in the top of her closet that she cautioned her husband
> > never
> >       to open or ask her about.
> >
> >       For all of these years, he had never thought about the box, but
> > one
> >       day the little old woman got very sick and the doctor said she
> > would
> >       not recover. In trying to sort out their affairs, the little old
> > man
> >
> >       took down the shoebox and took it to his wife's bedside. She
> > agreed
> >       that it was time that he should know what was in the box.
> >
> >       When he opened it, he found two crocheted doilies and a stack of
> >       money totaling $25,000. He asked her about the contents.
> >
> >       "When we were to be married, "she said, "my grandmother told me
> > the
> >       secret of a happy marriage was to never argue. She told me that if
> > I ever
> >       got angry with you, I should just keep quiet and crochet a doily."
> >
> >        The little old man was so moved, he had to fight back tears. Only
> > two
> >       precious doilies were in the box. She had only been angry with him
> >       two times in all those years of living and loving. He almost burst
> >       with happiness.
> >
> >       "Honey," he said "that explains the doilies, but what about all of
> >       this money? Where did it come from?"
> >
> >       "Oh," she said, "that's the money I made from selling the doilies.
> >
> >
> >
> >
>
> 







-----Original Message-----
From: Muriel Diamond [mailto:mothnog@...]
Sent: Thursday, August 28, 2003 11:20 PM
To: Judith Kahn
Subject: Re:



----- Original Message -----
From: "Judith Kahn" <judykahn@...>
To: "Muriel Diamond" <mothnog@...>
Sent: Thursday, August 28, 2003 5:27 PM
Subject: RE:


> Can you resend this, it's missing the beginning.  Thanks.
>
> -----Original Message-----
> From: Muriel Diamond [mailto:mothnog@...]
> Sent: Wednesday, August 27, 2003 1:49 PM
> To: david & gladyce moseson; Judy Kahn
> Subject: Fw:
>
>
> There was an elderly couple
> who had been married for more than
> > 60
> >       years. They had shared everything. They had talked about
> > everything.
> >
> >       They kept no secrets from each other except that the old woman had
> > a
> >       shoebox in the top of her closet that she cautioned her husband
> > never
> >       to open or ask her about.
> >
> >       For all of these years, he had never thought about the box, but
> > one
> >       day the little old woman got very sick and the doctor said she
> > would
> >       not recover. In trying to sort out their affairs, the little old
> > man
> >
> >       took down the shoebox and took it to his wife's bedside. She
> > agreed
> >       that it was time that he should know what was in the box.
> >
> >       When he opened it, he found two crocheted doilies and a stack of
> >       money totaling $25,000. He asked her about the contents.
> >
> >       "When we were to be married, "she said, "my grandmother told me
> > the
> >       secret of a happy marriage was to never argue. She told me that if
> > I ever
> >       got angry with you, I should just keep quiet and crochet a doily."
> >
> >        The little old man was so moved, he had to fight back tears. Only
> > two
> >       precious doilies were in the box. She had only been angry with him
> >       two times in all those years of living and loving. He almost burst
> >       with happiness.
> >
> >       "Honey," he said "that explains the doilies, but what about all of
> >       this money? Where did it come from?"
> >
> >       "Oh," she said, "that's the money I made from selling the doilies.
> >
> >
> >
> >
>
>

Reply | Messages in this Topic (2)
#12937 From: "Cherylann Foster" <f.cherylann@...>
Date: Tue Sep 2, 2003 5:17 am
Subject: Re: Re: lab interpretation please! 		nuggetmom
Send Email Send Email
  
Thanks Debbie, I am going to forward him alot of tests after I get them back
tomorrow. Hopefully he will respond about the TH1 TH1 then.
Cheryl
----- Original Message -----
From: "indy942003" <drhyner@...>
To: <immunologysupport@yahoogroups.com>
Sent: Tuesday, September 02, 2003 1:12 AM
Subject: [immunologysupport] Re: lab interpretation please!


> Hey Cheryl,
>
> I haven't been checking msgs. this weekend--have been painting.
> What fun!!!??
>
> Anyway, I think your TH1 looks a tad elevated, but the IVIg hasn't
> had time to work yet.  I'm sure DB will guide you.  Usually, the
> levels are drawn 5-7 days after the IVIg.
> Let us know what he recommends.
> Debbie
>
>
>
> --- In immunologysupport@yahoogroups.com, "Cherylann Foster"
> <f.cherylann@v...> wrote:
> > ok just got the NK and TH1/TH2 from Chicago.
> > The NK looks good I think but the TH1 looks terrible!  Can someone
> help please?
> > Just as a point of reference, I had these drawn 24 hours after my
> mega dose of IVIG.
> >
> > NK assay:
> > 50:1  11.7  was 15.9
> > 25:1  10.0  was 13.5
> > CD3  73.9 was 55.4
> > CD19 18.4 was 20.7
> > CD56 7.0 was 19.2
> > CD19 CD5 5.4 was 1.0
> >
> > TH1/TH2
> > 34.2 WAS 32.5
> > 11.4 WAS 14.9
> >
> >  Thanks for the help, Cheryl
>
>
>
> To unsubscribe from this group, send an email to:
> immunologysupport-unsubscribe@yahoogroups.com
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>
>

Reply | Messages in this Topic (13)
#12938 From: "indy942003" <drhyner@...>
Date: Tue Sep 2, 2003 5:35 am
Subject: Re: Shelley 		indy942003
Send Email Send Email
  
Glad that you're finally at the end.  I can only imagine what a
nervous wreck and worry-wort I will be when we get pregnant.  The
battle seems unending against those terrible killer cells.  I don't
think the normal population realizes what it takes for us immune
patients to get pregnant, then to carry.

Why did DB change his interpretation of your lab tests?

Good luck thru the final home stretch and many congrats!!
Debbie


--- In immunologysupport@yahoogroups.com, "Shelley" <scahalan@c...>
wrote:
> Hi all, I just had my cyto and NK assay checked after IVIG last
week,
> thought the numbers were high so emailed DB and after giving him
all
> the pertinant info in the email he said they were high and some
other
> things that scared me to death.  Got a call from the office today
> that he have reviewed my files and all looks just great and that
the
> cyto was not high and also that I can stop testing.  I have one
more
> IVIG scheduled so I will do that on Sept 8 but no more testing
looks
> like he wants to induce me at 38wks. so some time in the second
week
> of Oct.  I hope all goes well but ladies, I can see the light at
the
> end of the tunnel.
>
> Shelley

Reply | Messages in this Topic (10)
#12939 From: "Cherylann Foster" <f.cherylann@...>
Date: Tue Sep 2, 2003 5:16 am
Subject: Fw: FW: 		nuggetmom
Send Email Send Email
 
 


A pompous preacher was seated next to a cowboy on a flight to North
Dakota.
>
> After the plane was airborne, drink orders were taken. The cowboy asked
for
> a whiskey and soda, which was brought and placed before him. The flight
> attendant then asked the preacher if he would also like a drink. He
replied
> in disgust, "I'd rather be savagely raped by a brazen whore, than let
> liquor touch my lips.
>
> "The cowboy then handed his drink back to the flight attendant and said,
"I
> didn't know we had a choice."
>
>
>
In a message dated 9/1/2003 8:09:05 PM Eastern Daylight Time, judykahn@... writes:


> A pompous preacher was seated next to a cowboy on a flight to North
Dakota.
>
> After the plane was airborne, drink orders were taken. The cowboy asked
for
> a whiskey and soda, which was brought and placed before him. The flight
> attendant then asked the preacher if he would also like a drink. He
replied
> in disgust, "I'd rather be savagely raped by a brazen whore, than let
> liquor touch my lips.
>
> "The cowboy then handed his drink back to the flight attendant and said,
"I
> didn't know we had a choice."
>
>
> 


-----Original Message-----
From: Muriel Diamond [mailto:mothnog@...]
Sent: Saturday, August 30, 2003 5:38 PM
To: ellen r chesler; jerald s chesler; miriam null; ray/natalie cerino;
carol/bernie karp; david & gladyce moseson; Judy Kahn
Subject: Fw:





> A pompous preacher was seated next to a cowboy on a flight to North
Dakota.
>
> After the plane was airborne, drink orders were taken. The cowboy asked
for
> a whiskey and soda, which was brought and placed before him. The flight
> attendant then asked the preacher if he would also like a drink. He
replied
> in disgust, "I'd rather be savagely raped by a brazen whore, than let
> liquor touch my lips.
>
> "The cowboy then handed his drink back to the flight attendant and said,
"I
> didn't know we had a choice."
>
>
>

Reply | Messages in this Topic (2)
#12940 From: "indy942003" <drhyner@...>
Date: Tue Sep 2, 2003 5:48 am
Subject: Re: most recent hcg 		indy942003
Send Email Send Email
  
Good.  Let us know how sono goes Thursday.

Have you had any IVIg?
Debbie


--- In immunologysupport@yahoogroups.com, "mom2doggies"
<bjkirk@p...> wrote:
> well after the disappointment with our ultrasound I got my hcg
levels
> today which were 14,589, up from 9877 on last Monday.
>
> My doctor is great- said about 50:50 chance of seeing embryo at
this
> stage and double check at our ultrsound next Thursday.  Keeping me
> feeling positive, at least trying.
>
>
> always hoping for good news
>
> Jen

Reply | Messages in this Topic (5)
#12941 From: "indy942003" <drhyner@...>
Date: Tue Sep 2, 2003 6:24 am
Subject: Re: Jonathan Alexander Reed is here.. 		indy942003
Send Email Send Email
  
Congrats Jane!!!  Glad to hear he was born healthy!!  Thanks for
posting your's & Mike's pictures in our group files.  I wasn't able
to open them up before and thought I was having a computer problem.
What great pictures!!!!  Glad to hear you are home, safe & sound.
Rest a little, if possible, and take care of yourself.
Debbie







--- In immunologysupport@yahoogroups.com, "Jane Reed" <edreed@p...>
wrote:
> Hi All,
>
> Sorry it has taken me so long to post. Just got back from the
hopital
> yesterday. Just now catching up with all the messages!
>
> Yes it happened!
>
> Jonathon Alexander Reed was born  2:22 pm Wednesday August 27th, 7
> lbs 13.6  oz, 20 and 1/2 inches long, healthy and nomal in every
way.
>
> As many of you know I to be induced due to returning low amniotic
> fuid and a less than perfect biophysical profile..  Unfortunately
my
> cervix, was still " unripe" (not yet ready for delivery) on
Tuesday
> the 26th so sat through most of the day waiting for the Cervadil
to
> ripen the cervix.  Most of you thought I was delivering Tuesday
but
> actually I was doing nothing!~
>
> Then 4am Wednesday cervix finally began to look ripe, so they
started
> the IV Pitocin  to begin the contractions. Contractions took a
while
> to kick in but when they did, everything happened fast! .By 1 pm
> Wedesday afternoon my cervix had reached 3 cm dilated  then
> everything progressed very very quickly (common for ladies who
have
> had many kids), only 1 and 1/2 hours later I felt that pressure of
a
> head coming down, Jonathan Alexander Reed was born soon afterwards
at
> 2:22pm, full term and healthy no meconium or signs of stress from
the
> fast delivery at all (something I have had in past deliveries)..
>
> As I have had so many kids, am I am at much higher risk of post
> partum hemorrhage. So the hospital kept me in in a couple more
days
> to watch for bleeding clotting issues.  Ironically, because of
> thrombophila issues, am also at a higher risk of developing blood
> clots, as well. To keep a balance between these issues, the had me
on
> Pitocin to contract the uterus and blood thinners to keep from
> developing post partum DVT (one of the reasons I am back from the
> hospital so late).
>
> My history just for perspective:: I am DQ Alpha 4.1,4.1, with 4.1
> match with my DH, +APA, +ANA, antibodies to hormones and
> neurotransmitters, high TH1 TH2 in pregnancy, elevated  NK
issues,
> homozygus MTHFR mutation, low serotonin, high CD19+5+ in the past,
6
> live births, then 5 miscarriages before 2 successful Beer baby
> pregnancies (with full immune treatment) before this one.
>
> For this pregnancy, I used multiple IVIGs ( about 10 in all, one
> every 3 weeks), Lovenox throughout pregnancy, baby aspirin,
> dexamethasone to 15 weeks, fish oil 8g a day throughout pregnancy,
> Folgard vitamins.
>
> I battled recurrent bleeding episodes the first trimester (4 to 12
> weeks), a low lying placenta,  NK flare at 10 weeks, TH1 TH2 flare
at
> 34 weeks, low amniotic fluid at 24 weeks and 34 weeks, slight
growth
> issues at 30 weeks, all these issues later corrected themselves
due
> to frequent monitoring/testing and frequent IVIG (I believe).
>
> I will be sending my baby's placenta to Dr Beers PSL lab to
compare
> this pregnancy with my past Beer baby pregnancies, We shall see
what
> comes of this.
>
> Will probably be offline be a while as my family settles down. But
> surely in the next week or two I will be catchng up with all the
> messages. I have alot of catching up to do. I think about so many
of
> you each and every day..hope the ongoing pregnancies are going
> well.
>
> Just remember as you look at these pictures of me and Jonathon, my
> case is not an easy one, I have severe category 5 iimune issues, a
> history of body stiffness and pain, history of autoimmune coiltis,
> migraines, irregular cycles,  5 miscarriages in my past.  I feel
if
> my immune system can have success, success can happen for many of
you
> too. I can't emphasize this enough. Never lose sight of your
dreams .
> Dr Beer's medicine may work miracles for you.
>
> Above I have attached some pictures of Jonathan in his first few
> days. Copies have been added to the group" photos" so Yaho cannot
> delete them from the message archives (as they have been doing
> lately).
>
> I thank you all for your wonderful messages and well wishes. It
has
> meant more than you know. Fortunately working on the computer
during
> the night is very easy for me to do (not much else to do at 3 am
> feedings!) so vow to catch up with everyone's messages soon!
>
> See Jonathon's photos in our group files
>
> http://photos.groups.yahoo.com/group/immunologysupport/lst
>
> Jane
>
>
>
>
>
>
> --- In immunologysupport@yahoogroups.com, "Ed & Jane Reed"
> <edreed@p...> wrote:
> > Pictures of Jonathan with family ( attached).
> >
> > Pictured: Chris, age 14yrs, Ed, (DH), Robert, 21 months (Beer
> baby), Steve, age 13yrs, Andrew, age 12yrs, Jane ( me ) and
Jonathan,
> 2 days old, (Beer baby),  Cindy, age 6 years, Dave, age 8 yrs,
> Jessica, (front) almost 4 years (Beer baby), Michelle (front) age
10
> years.

Reply | Messages in this Topic (13)
#12942 From: "indy942003" <drhyner@...>
Date: Tue Sep 2, 2003 6:46 am
Subject: Re: Starting again - this time with Dr Beer 		indy942003
Send Email Send Email
  
Good luck in your upcoming trials.  Thanks for sharing your
information and please keep us posted.  There are several women on
this board taking Humira.

Welcome.
Debbie



--- In immunologysupport@yahoogroups.com, "s00thsayer2000"
<s00thsayer2000@y...> wrote:
> Hi
>
> My wife and I have had a very stressful time trying to get
pregnant.
> Even though we knew that it would be difficult for us because she
> doesn't ovulate regularly we were hoping that when we started on
> Clomid we would get pregnant.
>
> Unfortunately after 5 months of trying we had no success. One
> interesting thing though happened each month on day 21 - my wife
> would bleed heavily and then have her period as normal a week
later.
>
> When we tried IVF, the same thing happened after embryo transfer.
> This time though in addition to the bleediong my wife's uterus
felt
> hot to the touch as if she was burning up.
>
> Whenever we had mentioned this to any of our consultants they
> dismissed this as spotting or "normal". But no-one had ever given
us
> a satisfactory answer as to why this happened.
>
> Following the unsuccessful IVF cycle out consultant told us that
he
> was amazed it hadn't worked and did not want us to try again
without
> further investigation. We ended up having a multitude of blood
tests
> done with Dr Beer (we are in the UK and the blood was sent to the
> US). The results were staggering.
>
> It appears that my wife's immune system won't turn off. When it
sees
> an embryo it attacks it as if it was a cancer cell. This is
exactly
> what had happened every single month. Dr Beer strongly believes
that
> a course of  humira and other drugs would mean that we could get
> pregnant even without the going through the horror of IVF.
>
> The main thing though is that he doesn;t believe in excuses
> like "these things happen" or "it was mean to be". I think that in
10
> years time everyone will have their immunology checked before
> starting more complex fertility treatment.
>
> So where are we now - back at the hope stage. We have been here
> before (when we started Clomid and IVF). The difference this time
> though is that we believe we are solving the cause of our problems
> and not trying to work round it. I thought this post might help
> anyone else who has had this problem and is looking for a
solution.
>
> I just feel relieved I am at a clinic that knows about Dr Beer. I
can
> easily imagine going through countless IVF cycles because the
> consultants did nopt know there was an alternative.

Reply | Messages in this Topic (6)
#12943 From: "indy942003" <drhyner@...>
Date: Tue Sep 2, 2003 6:53 am
Subject: Re: All pregnancy symptoms gone =( 		indy942003
Send Email Send Email
  
Hi Jen,

I'm sorry for what you are going thru.  I have had early preg.
symptom too of breast tenderness at approx. 4-5 weeks, then it
gradually disappeared.  Unfortunately, I miscarried at about 7
weeks.  It's not over, until it's over, but I do understand your
thoughts.  Hoping that it is different for you this time.
Debbie

--- In immunologysupport@yahoogroups.com, "mom2doggies"
<bjkirk@p...> wrote:
> Shelley,
>
> My biggest symptoms are breast tenderness, food aversions, uterine
> pulling and cramping and fatigue.  How one can have these for
three
> weeks them have them completely disappear is beyond me.  With all
of
> my five pregnancies I have always been one to experience symptoms
> withing the first week of preg.  I know nothing about what it is
like
> to experience symptoms after 8 or 9 weeks....I have never been
that
> far-
>
> Jen
>
>
> --- In immunologysupport@yahoogroups.com, "Shelley Cahalan"
> <scahalan@c...> wrote:
> > Jen, I am not quiet sure what symptoms you were experiencing,
but I
> never
> > have any until after the 8 or 9 week.  And I think that lost of
> women get
> > their symptoms around that time so even though you know your
body
> well I
> > want to say if this is a normal pg you might not really feel
> symptoms  for a
> > few more weeks.
> > Shelley
> >
> > -----Original Message-----
> > From: mom2doggies [mailto:bjkirk@p...]
> > Sent: Monday, September 01, 2003 10:44 AM
> > To: immunologysupport@yahoogroups.com
> > Subject: [immunologysupport] All pregnancy symptoms gone =(
> >
> >
> > The worst has come...I have lost all my pregnancy symptoms, all
of
> > them.  Just like the last five times they seemed to have left.
I go
> > in on Thursday for an ultrasound that will hopefully show an
embryo
> > at the age of seven weeks five days, but my expereince and
intuition
> > tells me something different.
> >
> > I really felt different this time and I thought that the IVIg
would
> > really get us to that point.  So we will just start again, like
> > always.
> >
> > You may be saying I sound very certain that this is over without
a
> > doctors diagnosis, but going through this so many times I would
bet
> > my life on it.
> >
> > We are going to stress to our doctor that we want cells from the
sac
> > genetically analyzed since we have never done this before.
> Something
> > goes on in the six week that just doesn't work out right
resulting
> in
> > a disappearing embryo.
> >
> > I'll keep you posted
> >
> > Jen
> >
> >
> >
> > To unsubscribe from this group, send an email to:
> > immunologysupport-unsubscribe@yahoogroups.com
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/

Reply | Messages in this Topic (11)
#12944 From: "indy942003" <drhyner@...>
Date: Tue Sep 2, 2003 7:01 am
Subject: Re: Long w/ ????'s 		indy942003
Send Email Send Email
  
Hi Karen,

From several things that you list in your history, it sounds like
you may have immune issues to me.  Yes, bloodwork can show elevated
NK cells and other possible immune issues.  If you have had a D&C in
the past, this tissue can be sent to DB for testing.  I did this and
it showed NK cells, so I didn't have to have the endo. biopsy done.
IVIg is available in the U.S. and always has been to my knowledge.
Maybe you are thinking of LIT.  It isn't currently available in the
U.S., but can be obtained in Mexico & London.  Different insurances
cover different things and it depends on the diagnosis codes too.
IVIg won't be covered if submitted under the diagnosis code of
infertility.  Good luck.  Debbie

--- In immunologysupport@yahoogroups.com, "Karen" <kroop@c...> wrote:
> Hi Everyone,
>
> I was on the list a about a year ago, but got scared off by all
the talk of
> drugs/ treatment.  I am now facing IVF or no baby at all so I want
to make
> absolutely sure that my body isn't killing off embryos before
proceeding
> with IVF.
>
> My history:  after getting my prolactin normalized (2 years) I
conceived
> only to m/c at 6 weeks.  The ER Dr. told me I had a blighted ovum
and that
> my white cell count was elevated.  I thought the white cell count
must be
> strange since he mentioned it.   Over the next year, I had 3
periods that
> were equally as violent as my m/c (sudden severe pain, doubled
over,
> vomiting, sweats & chills) and thought that I was miscarrying but
had no
> proof.  Since then I have always thought my body was rejecting
embryos.
> Another year went by with nothing notable happening except I got
myself put
> on thyroid medicine to combat all the hypothyroid symptoms I was
having.
> April of this year I had stage III endo removed.  July (three
months after
> Lap) I conceived but it was only a chemical pregnancy.   My
current RE
> thinks my tubes are not working properly due to a pelvic infection
17 years
> ago and thinks IVF is my only option.   My gut tells me there is
something
> else wrong.
>
> My Questions:
> 1. Will the immune blood work tell me enough to know if my NK
cells are
> causing the problem or is it necessary to have the biopsy done?
(just had
> one last month and would like to avoid it if possible)
> 2. Has anyone gone thru the Genetics & IVF institute, in the
Washington DC
> area, for immune issues?
> 3. Is IVIg now available in the U.S.?  (I think there were some
problems
> getting treatment before)
> 4. I have really good insurance; does anyone's insurance cover
the tests &
> treatment?
>
> Thanks in advance for your help,
>
> Karen

Reply | Messages in this Topic (27)
#12945 From: "indy942003" <drhyner@...>
Date: Tue Sep 2, 2003 7:05 am
Subject: Re: so confused....question for remicade buddies 		indy942003
Send Email Send Email
  
Hey Kitty,

I didn't post the paragraph that's attached to your response.

I've taken Remicade and Dexamethasone too.  (I wasn't allowed to ttc
until I had had all 3 Remicade doses, but took Dexamethasone
starting day 6 of ttc cycles.)  Debbie






--- In immunologysupport@yahoogroups.com, cckidsinc@a... wrote:
> Hi Debbie, when I was on remicade, I kept doing dex... I never
heard that he
> tells anyone not to take it.. he might have a special reason in
your case?
> xoxo
> Kitty
>
> > Now DB told me the remicade protocol is one dose and then 2
weeks later
> > second dose and then week 6 a third dose. LIT somewhere in
there. he said best
> > pg rates are 17 weeks after dose #3 (here I read it's 17 weeks
after dose 1).
> > He also told me no steroids after remicade treatment unless I
get a positive
> > beta. But here I read he told someone to take dexamethasone
after remicade???
> > he also told me no lovenox after remicade unless I get a
positive
> > beta?????just baby aspirin and progesterone after O.
> >

Reply | Messages in this Topic (5)
#12946 From: "mommybound" <dawnj@...>
Date: Tue Sep 2, 2003 12:53 pm
Subject: Re: All pregnancy symptoms gone =( 		mommybound
Send Email Send Email
  
Jen,

One thing I was thinking of last night that 'might' make you feel
better is that : I remember having strong symptoms with each of my
four pg's that I unfortunately m/c, but on my fifth one - successful
one - with immune treatment, I had NO symptoms until around 10 weeks.
No fatigue - and I was working 50-60 hour weeks (Physical Therapist)
teaching exercise classes and everything.
In the very beginning, I was convinced I was not pg since I had NO
symptoms, then I was worried because my 'slight' breast tenderness
went away, so I increased my progesterone a little. The 'slight'
tenderness came on and off for a few weeks. That was it though.
Everything was fine. Maybe you are getting far enough along
with the pg that this is new territory and your body is relaxing a
bit (ie: the uterine cramping is settling down). During those first
few weeks, when I had no symptoms to speak of, I remember bugging my
OB/Gyn and worrying about it constantly. She told me that most of her
patients who have been pg as many times as I had (and as you have),
don't have much in terms of symptoms by the time they conceive their
fifth, ect. She had some patients have severe morning sickness with
their first pg's and by the time the 4th or 5th time going through
the first trimester, they had no symptoms.

When I concieved #6 last summer, I had absolutely no idea I was pg
until I was 4 days late and took a test for the heck of it. I had not
one symptom. It was an 'accidental' conception and I was not on
immune treatments, so unfortunately we lost it before I could get an
IVIg set up, but it proved to me that I won't be able to rely on my
symptom patterns any longer.

Maybe Jane can shed some light on whether she noticed some symptom
changes after a certain # of pg's ? I don't know if there is anything
scientific about it, but maybe the body just doesn't react as
strongly when it's been pg so many times.

I am hoping and praying for you!
Dawn in Denver

Reply | Messages in this Topic (11)
#12947 From: "Shelley Cahalan" <scahalan@...>
Date: Tue Sep 2, 2003 1:00 pm
Subject: RE: Re: Shelley 		shelley_cahalan
Send Email Send Email
  
Debbie I have no idea why he changed his mind except for maybe he finally
got to look at my records and that made a difference.
Shelley

-----Original Message-----
From: indy942003 [mailto:drhyner@...]
Sent: Tuesday, September 02, 2003 1:36 AM
To: immunologysupport@yahoogroups.com
Subject: [immunologysupport] Re: Shelley


Glad that you're finally at the end.  I can only imagine what a
nervous wreck and worry-wort I will be when we get pregnant.  The
battle seems unending against those terrible killer cells.  I don't
think the normal population realizes what it takes for us immune
patients to get pregnant, then to carry.

Why did DB change his interpretation of your lab tests?

Good luck thru the final home stretch and many congrats!!
Debbie


--- In immunologysupport@yahoogroups.com, "Shelley" <scahalan@c...>
wrote:
> Hi all, I just had my cyto and NK assay checked after IVIG last
week,
> thought the numbers were high so emailed DB and after giving him
all
> the pertinant info in the email he said they were high and some
other
> things that scared me to death.  Got a call from the office today
> that he have reviewed my files and all looks just great and that
the
> cyto was not high and also that I can stop testing.  I have one
more
> IVIG scheduled so I will do that on Sept 8 but no more testing
looks
> like he wants to induce me at 38wks. so some time in the second
week
> of Oct.  I hope all goes well but ladies, I can see the light at
the
> end of the tunnel.
>
> Shelley



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Reply | Messages in this Topic (10)
#12948 From: GC <ghunisec@...>
Date: Tue Sep 2, 2003 1:34 pm
Subject: Re: Jen, Re: All pregnancy symptoms gone =( 		ghunisec
Send Email Send Email
 
Jen, catching up on e mails and read your post.  Try and hang in there.  The symptoms do come and go over time.  I'll be praying for great news for your u/s.
GC

mommybound <dawnj@...> wrote:
Jen,

One thing I was thinking of last night that 'might' make you feel
better is that : I remember having strong symptoms with each of my
four pg's that I unfortunately m/c, but on my fifth one - successful
one - with immune treatment, I had NO symptoms until around 10 weeks.
No fatigue - and I was working 50-60 hour weeks (Physical Therapist)
teaching exercise classes and everything.
In the very beginning, I was convinced I was not pg since I had NO
symptoms, then I was worried because my 'slight' breast tenderness
went away, so I increased my progesterone a little. The 'slight'
tenderness came on and off for a few weeks. That was it though.
Everything was fine. Maybe you are getting far enough along
with the pg that this is new territory and your body is relaxing a
bit (ie: the uterine cramping is settling down). During those first
few weeks, when I had no symptoms to speak of, I remember bugging my
OB/Gyn and worrying about it constantly. She told me that most of her
patients who have been pg as many times as I had (and as you have),
don't have much in terms of symptoms by the time they conceive their
fifth, ect. She had some patients have severe morning sickness with
their first pg's and by the time the 4th or 5th time going through
the first trimester, they had no symptoms.

When I concieved #6 last summer, I had absolutely no idea I was pg
until I was 4 days late and took a test for the heck of it. I had not
one symptom. It was an 'accidental' conception and I was not on
immune treatments, so unfortunately we lost it before I could get an
IVIg set up, but it proved to me that I won't be able to rely on my
symptom patterns any longer.

Maybe Jane can shed some light on whether she noticed some symptom
changes after a certain # of pg's ? I don't know if there is anything
scientific about it, but maybe the body just doesn't react as
strongly when it's been pg so many times.

I am hoping and praying for you!
Dawn in Denver





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Reply | Messages in this Topic (11)
#12949 From: GC <ghunisec@...>
Date: Tue Sep 2, 2003 1:46 pm
Subject: Re: poetabook, Re: 4th beta not good 		ghunisec
Send Email Send Email
 
poetabook, i am so sorry that the numbers weren't more reassuring.  as others have mentioned, immune patients sometimes have slower rising betas.  hang in there until tuesday,
GC

indy942003 <drhyner@...> wrote:
I'm sorry Poetabook, but have you contacted DB? Maybe you just need
an IVIg dose. Maybe all hope isn't lost. At least run these
numbers by him. Immune patients do start off slowly sometimes----
I've heard DB say this. Good luck.
Debbie



--- In immunologysupport@yahoogroups.com, "poetabook"
wrote:
> 1st: 31.9
> 2nd: 62
> 3rd: 100
> 4th: 141
>
> so the rate of doubling is slowing dramatically. I go in for
another
> beta Tuesday just to follow it, but no hope for this to work.


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Reply | Messages in this Topic (10)
#12950 From: "MDWUPNORTH" <mwallerstein@...>
Date: Tue Sep 2, 2003 1:49 pm
Subject: Jane 		MDWUPNORTH
Send Email Send Email
  
THANKS!  For posting your family pictures to the group photo album,
as well as Mike & Jodi's!!  I haven't been able to see any of them
until now!

CONGRATULATIONS on your successful delivery and WELCOME to little
Jonathan!  He's perfect!  You have a beautiful family!  We have all
been on pins and needles waiting for news from you, so thanks for
taking a minute from this busy time in your life to give us an
update!

I am very happy and excited for you!  Glad you didn't have any of the
treatened complications following the delivery, and continued good
health to you all!!

Michele

Reply | Messages in this Topic (83)
#12951 From: "MDWUPNORTH" <mwallerstein@...>
Date: Tue Sep 2, 2003 1:52 pm
Subject: Mike & Jodi 		MDWUPNORTH
Send Email Send Email
  
I was finally able to see the pictures of Charlie & Gabrielle, and
just wanted to say thanks for sharing them, they are both so
beautiful!  Hope you are enjoying your double-miracles!  And
congratulations again!

Michele

Reply | Messages in this Topic (5)
#12952 From: "MDWUPNORTH" <mwallerstein@...>
Date: Tue Sep 2, 2003 1:56 pm
Subject: Re: 4th beta not good 		MDWUPNORTH
Send Email Send Email
  
Poetabook,
So sorry that you are not getting a doubling.  I was really hopeful
this would be a miracle for you.  Hang in there, and keep us posted.
We are all here for you,
Michele
--- In immunologysupport@yahoogroups.com, "poetabook"
<poetabook@y...> wrote:
> 1st: 31.9
> 2nd: 62
> 3rd: 100
> 4th: 141
>
> so the rate of doubling is slowing dramatically. I go in for another
> beta Tuesday just to follow it, but no hope for this to work.

Reply | Messages in this Topic (10)
#12953 From: GC <ghunisec@...>
Date: Tue Sep 2, 2003 1:57 pm
Subject: Re: Jane, re:Jonathan Alexander Reed is here.. 		ghunisec
Send Email Send Email
 
Jane and family, congratulations!!! You have added another beautiful addition to the family.  Glad to hear that you are recovering well.  You are a super woman --- you have a baby and then still have the energy to get on line :)  Take care of yourself and the little one,
GC

Jane Reed <edreed@...> wrote:
Hi All,

Sorry it has taken me so long to post. Just got back from the hopital
yesterday. Just now catching up with all the messages!

Yes it happened!

Jonathon Alexander Reed was born 2:22 pm Wednesday August 27th, 7
lbs 13.6 oz, 20 and 1/2 inches long, healthy and nomal in every way.

As many of you know I to be induced due to returning low amniotic
fuid and a less than perfect biophysical profile.. Unfortunately my
cervix, was still " unripe" (not yet ready for delivery) on Tuesday
the 26th so sat through most of the day waiting for the Cervadil to
ripen the cervix. Most of you thought I was delivering Tuesday but
actually I was doing nothing!~

Then 4am Wednesday cervix finally began to look ripe, so they started
the IV Pitocin to begin the contractions. Contractions took a while
to kick in but when they did, everything happened fast! .By 1 pm
Wedesday afternoon my cervix had reached 3 cm dilated then
everything progressed very very quickly (common for ladies who have
had many kids), only 1 and 1/2 hours later I felt that pressure of a
head coming down, Jonathan Alexander Reed was born soon afterwards at
2:22pm, full term and healthy no meconium or signs of stress from the
fast delivery at all (something I have had in past deliveries)..

As I have had so many kids, am I am at much higher risk of post
partum hemorrhage. So the hospital kept me in in a couple more days
to watch for bleeding clotting issues. Ironically, because of
thrombophila issues, am also at a higher risk of developing blood
clots, as well. To keep a balance between these issues, the had me on
Pitocin to contract the uterus and blood thinners to keep from
developing post partum DVT (one of the reasons I am back from the
hospital so late).

My history just for perspective:: I am DQ Alpha 4.1,4.1, with 4.1
match with my DH, +APA, +ANA, antibodies to hormones and
neurotransmitters, high TH1 TH2 in pregnancy, elevated NK issues,
homozygus MTHFR mutation, low serotonin, high CD19+5+ in the past, 6
live births, then 5 miscarriages before 2 successful Beer baby
pregnancies (with full immune treatment) before this one.

For this pregnancy, I used multiple IVIGs ( about 10 in all, one
every 3 weeks), Lovenox throughout pregnancy, baby aspirin,
dexamethasone to 15 weeks, fish oil 8g a day throughout pregnancy,
Folgard vitamins.

I battled recurrent bleeding episodes the first trimester (4 to 12
weeks), a low lying placenta, NK flare at 10 weeks, TH1 TH2 flare at
34 weeks, low amniotic fluid at 24 weeks and 34 weeks, slight growth
issues at 30 weeks, all these issues later corrected themselves due
to frequent monitoring/testing and frequent IVIG (I believe).

I will be sending my baby's placenta to Dr Beers PSL lab to compare
this pregnancy with my past Beer baby pregnancies, We shall see what
comes of this.

Will probably be offline be a while as my family settles down. But
surely in the next week or two I will be catchng up with all the
messages. I have alot of catching up to do. I think about so many of
you each and every day..hope the ongoing pregnancies are going
well.

Just remember as you look at these pictures of me and Jonathon, my
case is not an easy one, I have severe category 5 iimune issues, a
history of body stiffness and pain, history of autoimmune coiltis,
migraines, irregular cycles, 5 miscarriages in my past. I feel if
my immune system can have success, success can happen for many of you
too. I can't emphasize this enough. Never lose sight of your dreams .
Dr Beer's medicine may work miracles for you.

Above I have attached some pictures of Jonathan in his first few
days. Copies have been added to the group" photos" so Yaho cannot
delete them from the message archives (as they have been doing
lately).

I thank you all for your wonderful messages and well wishes. It has
meant more than you know. Fortunately working on the computer during
the night is very easy for me to do (not much else to do at 3 am
feedings!) so vow to catch up with everyone's messages soon!

See Jonathon's photos in our group files

http://photos.groups.yahoo.com/group/immunologysupport/lst

Jane






--- In immunologysupport@yahoogroups.com, "Ed & Jane Reed"
wrote:
> Pictures of Jonathan with family ( attached).
>
> Pictured: Chris, age 14yrs, Ed, (DH), Robert, 21 months (Beer
baby), Steve, age 13yrs, Andrew, age 12yrs, Jane ( me ) and Jonathan,
2 days old, (Beer baby), Cindy, age 6 years, Dave, age 8 yrs,
Jessica, (front) almost 4 years (Beer baby), Michelle (front) age 10
years.


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Reply | Messages in this Topic (13)
#12954 From: "MDWUPNORTH" <mwallerstein@...>
Date: Tue Sep 2, 2003 2:00 pm
Subject: Re: All pregnancy symptoms gone =( 		MDWUPNORTH
Send Email Send Email
  
Jen,
So sorry that your PG symptoms have disappeared, and that you think
this is over.   I will keep praying for a miracle until you find out
something for sure on Thursday.  I remember freaking out when my
nausea disappeared for a day, but then it came back, and then I had
some bleeding and thought it was over then too.  Now I am 10 weeks,
and still not very hopeful, there's just that constant, looming
doubt.  I hope there is still a chance for this baby.  We are all
here for you,
Michele

--- In immunologysupport@yahoogroups.com, "mom2doggies" <bjkirk@p...>
wrote:
> The worst has come...I have lost all my pregnancy symptoms, all of
> them.  Just like the last five times they seemed to have left.  I
go
> in on Thursday for an ultrasound that will hopefully show an embryo
> at the age of seven weeks five days, but my expereince and
intuition
> tells me something different.
>
> I really felt different this time and I thought that the IVIg would
> really get us to that point.  So we will just start again, like
> always.
>
> You may be saying I sound very certain that this is over without a
> doctors diagnosis, but going through this so many times I would bet
> my life on it.
>
> We are going to stress to our doctor that we want cells from the
sac
> genetically analyzed since we have never done this before.
Something
> goes on in the six week that just doesn't work out right resulting
in
> a disappearing embryo.
>
> I'll keep you posted
>
> Jen

Reply | Messages in this Topic (11)
#12955 From: "angelmamarobin" <Bobnrobins@...>
Date: Tue Sep 2, 2003 2:31 pm
Subject: To Karen> Re: Long w/ ????'s 		angelmamarobin
Send Email Send Email
  
Hi Karen,

I'm sorry to hear about your losses.  Based on your background, it
sure sounds like you may be dealing with immune issues.  You may find
that IVF isn't even needed if you can deal with any immune problems
that might exist.  As for your questions.....

1. Will the immune blood work tell me enough to know if my NK cells
are causing the problem or is it necessary to have the biopsy done?
(just had one last month and would like to avoid it if possible)
A COMPLETE IMMUNE WORKUP WILL TELL YOU IF YOU HAVE ELEVATED NKS.
THERE ARE ONLY A FEW LABS IN THE COUNTRY THAT RUN THE TESTS TO THE
RIGHT LEVEL OF SENSITIVITY.  A TYPICAL SET OF TESTS DONE BY A LOCAL
OR NATIONAL LAB, (LIKE QUEST OR LABCORP), WILL NOT GIVE YOU ACCURATE
RESULTS.

Has anyone gone thru the Genetics & IVF institute, in the Washington
DC area, for immune issues?
I RECENTLY MOVED FROM THE DC AREA.  THE ONLY IMMUNE-FRIENDLY RE I
FOUND IN THE AREA WAS DR. RAFAT ABBASI AT MID-ATLANTIC FERTILITY
CENTER.  SHE IS VERY, VERY SUPPORTIVE OF IMMUNE TESTING & TREATMENT
AND I WOULD HIGHLY RECOMMEND HER.  AFTER YOUR 1ST CONSULT WITH HER,
YOU WILL PROBABLY WORK MORE WITH HER NURSE PRACTITIONER THAN DIRECTLY
WITH HER, BUT THEY'RE VERY EASY TO WORK WITH.


Is IVIg now available in the U.S.?  (I think there were some problems
getting treatment before)
I SAW THAT SOMEONE ELSE ALREADY ANSWERED THIS FOR YOU.....LIT IS
WHAT'S NOT AVAILABLE.  IVIG IS AVAILABLE.....THOUGH VERY EXPENSIVE.
HOPEFULLY IT WILL BE COVERED UNDER YOUR INSURANCE IF YOU NEED IT SOME
DAY.

I have really good insurance; does anyone's insurance cover the tests
& treatment?
MY INSURANCE, (A BLUE CROSS BLUE SHIELD PPO), COVERS A LOT OF IT.
THEY'VE COVERED ALL OF MY TESTING, BECAUSE THE LAB DR BEER WORKS
WITH....FINCH UNIVERSITY LAB IN CHICAGO....PARTICIPATES WITH BC/BS.
IT DIDN'T COVER MY LIT, SINCE I WENT TO MEXICO TO DO IT.  AND, THE
MEDICAL SIDE OF MY COVERAGE WOULDN'T PAY FOR THE IVIG, BUT I DID GET
IT COVERED UNDER MY DRUG PLAN....I JUST HAVE TO PAY FOR THE NURSE
MYSELF TO ADMINISTER IT.

Good luck in finding answers!

Robin

--- In immunologysupport@yahoogroups.com, "Karen" <kroop@c...> wrote:
> Hi Everyone,
>
> I was on the list a about a year ago, but got scared off by all the
talk of
> drugs/ treatment.  I am now facing IVF or no baby at all so I want
to make
> absolutely sure that my body isn't killing off embryos before
proceeding
> with IVF.
>
> My history:  after getting my prolactin normalized (2 years) I
conceived
> only to m/c at 6 weeks.  The ER Dr. told me I had a blighted ovum
and that
> my white cell count was elevated.  I thought the white cell count
must be
> strange since he mentioned it.   Over the next year, I had 3
periods that
> were equally as violent as my m/c (sudden severe pain, doubled over,
> vomiting, sweats & chills) and thought that I was miscarrying but
had no
> proof.  Since then I have always thought my body was rejecting
embryos.
> Another year went by with nothing notable happening except I got
myself put
> on thyroid medicine to combat all the hypothyroid symptoms I was
having.
> April of this year I had stage III endo removed.  July (three
months after
> Lap) I conceived but it was only a chemical pregnancy.   My current
RE
> thinks my tubes are not working properly due to a pelvic infection
17 years
> ago and thinks IVF is my only option.   My gut tells me there is
something
> else wrong.
>
> My Questions:
> 1. Will the immune blood work tell me enough to know if my NK
cells are
> causing the problem or is it necessary to have the biopsy done?
(just had
> one last month and would like to avoid it if possible)
> 2. Has anyone gone thru the Genetics & IVF institute, in the
Washington DC
> area, for immune issues?
> 3. Is IVIg now available in the U.S.?  (I think there were some
problems
> getting treatment before)
> 4. I have really good insurance; does anyone's insurance cover
the tests &
> treatment?
>
> Thanks in advance for your help,
>
> Karen

Reply | Messages in this Topic (27)
#12956 From: "angelmamarobin" <Bobnrobins@...>
Date: Tue Sep 2, 2003 2:33 pm
Subject: Re: 4th beta not good 		angelmamarobin
Send Email Send Email
  
I'm so sorry it's not looking good.  I was really hoping that the
Wobenzym was helping this time.  I'll still be keeping my fingers
crossed for a miracle with your next beta.

Robin

--- In immunologysupport@yahoogroups.com, "poetabook"
<poetabook@y...> wrote:
> 1st: 31.9
> 2nd: 62
> 3rd: 100
> 4th: 141
>
> so the rate of doubling is slowing dramatically. I go in for another
> beta Tuesday just to follow it, but no hope for this to work.

Reply | Messages in this Topic (10)
#12957 From: "angelmamarobin" <Bobnrobins@...>
Date: Tue Sep 2, 2003 2:37 pm
Subject: To Jen> Re: All pregnancy symptoms gone =( 		angelmamarobin
Send Email Send Email
  
After everything we've been through, I think we know our bodies all
too well.  I'm so sorry to hear that your symptoms have disappeared.
I'll be praying for a miracle at your US.

{{{Hugs}}}

Robin

--- In immunologysupport@yahoogroups.com, "mom2doggies" <bjkirk@p...>
wrote:
> The worst has come...I have lost all my pregnancy symptoms, all of
> them.  Just like the last five times they seemed to have left.  I
go
> in on Thursday for an ultrasound that will hopefully show an embryo
> at the age of seven weeks five days, but my expereince and
intuition
> tells me something different.
>
> I really felt different this time and I thought that the IVIg would
> really get us to that point.  So we will just start again, like
> always.
>
> You may be saying I sound very certain that this is over without a
> doctors diagnosis, but going through this so many times I would bet
> my life on it.
>
> We are going to stress to our doctor that we want cells from the
sac
> genetically analyzed since we have never done this before.
Something
> goes on in the six week that just doesn't work out right resulting
in
> a disappearing embryo.
>
> I'll keep you posted
>
> Jen

Reply | Messages in this Topic (11)
#12958 From: "sarahpon2003" <spongetti@...>
Date: Tue Sep 2, 2003 6:49 pm
Subject: ? about Dr. Beer testing 		sarahpon2003
Send Email Send Email
  
Hi! :)

When you had your initial bloodwork done for Dr. Beer did you have to
go to one of his offices or did you RE office draw the blood and then
send it to his lab?  I need to talk to my RE and see how cooperative
she is going to be with all this and I want to be as upfront with her
as possible with how much her office will be involved.  Thanks!

Sarah

Reply | Messages in this Topic (2)
#12959 From: GC <ghunisec@...>
Date: Tue Sep 2, 2003 6:53 pm
Subject: Re: Sarah, re:? about Dr. Beer testing 		ghunisec
Send Email Send Email
 
Hi Sarah, my ob's nurse drew the blood for me and we shipped it to Finch (the lab in Chicago).  DB is still using Finch by the way.  There are some labs that you can have done locally and then send DB the results.  I know the ones that are specific to his lab are the NK assay and the Cytokine tests.  The rest can be done at other labs.  If insurance is a concern for you.  It may be easier to get coverage.
Best of luck
GC

sarahpon2003 <spongetti@...> wrote:
Hi! :)

When you had your initial bloodwork done for Dr. Beer did you have to
go to one of his offices or did you RE office draw the blood and then
send it to his lab? I need to talk to my RE and see how cooperative
she is going to be with all this and I want to be as upfront with her
as possible with how much her office will be involved. Thanks!

Sarah


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Reply | Messages in this Topic (2)
#12960 From: "poetabook" <poetabook@...>
Date: Tue Sep 2, 2003 7:24 pm
Subject: shock. Beta is still going up! 241 today. Up from 141 		poetabook
Send Email Send Email
  
Not doubling, but I've never had one even get this far before, so I'm
amazed. Our goal now is not viable pregnancy, but rather for something
to get to a point where my RE can identify location and obtain tissue
for testing. I go for a scan on Thursday.

Reply | Messages in this Topic (9)
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