Search the web
Sign In
New User? Sign Up
immunologysupport · Reproductive Immunology Support
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Real people. Real stories. See how Yahoo! Groups impacts members worldwide.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
HELP, HELP, HELP!!! (baby mentioned)   Message List  
Reply | Forward Message #95223 of 98508 |
Re:HELP, HELP, HELP!!! (baby mentioned)

Hi Jean,

Thanks so much for going to all the trouble of setting out your 50:1s and gaps
between IVIgs. This has been really really really helpful!

Now, I think I can feel happy if I generally stick to an IVIg every 3 weeks
(while I remain above 15) UNLESS NK cells have actually gone up since last test
in which case I will do an earlier IVIg at 2 weeks. That is what happened on my
last test (i.e., my 50:1 went up - from 28.5 to 30.1) so I am glad I did the
IVIg early at 2 weeks. Just hope it all goes down from here on in.

It helps to feel that I am following some sort of rational plan.

Hope your test re gestational diabetes was negative and your 50:1 levels stay at
13 or below!

Jess xx


--- In immunologysupport@yahoogroups.com, "jinaprivate" <sharksaddict@...>
wrote:
>
> Hi Jess-
> I'm so glad you are feeling better. I only did one IVIG 2 weeks apart
> -it was when my NK's actually went up further after an IVIG and the Beer
> center decided I needed another dose immediately (which was 2 weeks from
> the prior dose, plus another one 3 weeks later). My 50:1's were:
>
> (preconception - did not test - was not trying that cycle and did not
> even test for BFP until I was almost 5 weeks along)
> 5 weeks - 14 (no IVIG required - could not believe they were normal -
> they are *never* normal... but did 2 IVIG's plus steroids plus
> antibiotics the prior cycle which was my first IVF attempt))
> 8 weeks - 29 (30g IVIG)
> 10 weeks - 33 (30g IVIG)
> 13 weeks - did not re-test - Beer center wanted me to do this dose
> regardless due to how they went up further last time (30g IVIG)
> 16 weeks - 26 (30g IVIG)
> 19 weeks - did not re-test - was going on a 2 week vacation to Alaska
> and I decided I needed to do IVIG regardless of test results since a
> single dose has never lowered my 50:1 by 4 points - Beer center agreed.
> (30g IVIG)
> 22 weeks - 13!!! (in total shock - no IVIG)
> will retest at 26 weeks
>
> BTW my APA's have been positive since 5 weeks (other than one negative
> at 16w but they're now positive again) so I've been doing daily Arixtra
> shots as well. Plus the usual suspects: baby aspirin, folgard, fish oil,
> prenatal, calcium/vitamin D and was on metformin (during the first
> trimester only - I was planning to do an IVF cycle and my RE thought I
> had PCOS so I was already taking metformin when I got pg naturally -did
> not notice any side effects from metformin other than it was so much
> easier to control my weight when I was on it - I just did my 1 hour
> glucose challenge test this morning and so hope I do not have
> gestational diabetes).
>
> Jean
>





Sun Jul 12, 2009 10:50 am

jessicaomni
Offline Offline
Send Email Send Email

Forward
Message #95223 of 98508 |
Expand Messages Author Sort by Date

Jess ­ I know this is scary but the Ivig does help to protect the baby even if your NK¹s are high. My NK¹s were at 33 at 7 weeks and I did a booster LIT ­...
Nancy Bowers
bowersns1116
Offline Send Email
Jul 9, 2009
6:27 pm

OH THANK YOU NANCY! That's what I needed to hear. It is not clear from Dr Beer's book.I am going to do booster LIT in Greece on Tuesday if Dr Tsgaris confirms...
jessicaomni
Offline Send Email
Jul 9, 2009
6:51 pm

Jess- like Nancy (hi Nanc!) my NK's were high (50:1 at high 20's to low 30's) and I kept doing IVIG every 2-3 weeks (5 so far) even though the IVIG was not...
jinaprivate
Offline Send Email
Jul 10, 2009
12:14 am

Jean! I've been away from the computer all day and have just seen this. I am feeling so much better now. I was really panicking. From what you and Nancy have...
jessicaomni
Offline Send Email
Jul 10, 2009
4:10 pm

Hi Jess- I'm so glad you are feeling better. I only did one IVIG 2 weeks apart -it was when my NK's actually went up further after an IVIG and the Beer center...
jinaprivate
Offline Send Email
Jul 10, 2009
8:38 pm

I have been out of the loop. JEAN!!! I am SOOO happy for you!!!! I have tears in my eyes. HUGS!!!...
divetherapy
Offline Send Email
Jul 11, 2009
3:22 am

thanks DT! So nice to see you online. hope things are going great with your little one. I wish we had an easy way to post all of you "success stories" ladies...
jinaprivate
Offline Send Email
Jul 11, 2009
9:58 pm

I have CHILLS. I am so happy for you. I think a file for the success stories is a great idea. We should ask Jane how to do that. I know inspiration was like...
divetherapy
Offline Send Email
Jul 12, 2009
4:37 pm

Double that ­ you are doing awesome! Hug ­ Nancy B Re:JEAN!!!!! SO HAPPY FOR YOU!!! Double that you are doing awesome! Hug Nancy B...
Nancy Bowers
bowersns1116
Offline Send Email
Jul 13, 2009
2:34 am

Hi Jean, Thanks so much for going to all the trouble of setting out your 50:1s and gaps between IVIgs. This has been really really really helpful! Now, I think...
jessicaomni
Offline Send Email
Jul 12, 2009
10:50 am

Jess: My frequency was based soley on my NK¹s. I had them tested two weeks after my infusion and if the numbers were still up then I would schedule another...
Nancy Bowers
bowersns1116
Offline Send Email
Jul 10, 2009
6:12 pm

Hi Nancy! I am taking Wob N - but obviously with so much in the mix, it is difficult to know what effect it is having, if any. How high before you narrowed the...
jessicaomni
Offline Send Email
Jul 10, 2009
6:24 pm

I went to two weeks when my 50:1 came back at 33. I forgot about NHS - I lived in London for a year to attend college - so that definitely is a different...
Nancy Bowers
bowersns1116
Offline Send Email
Jul 13, 2009
2:36 am

Hi Nancy, 25gm IVIg infusion is abour $2000 here in UK. I have posted a message asking the cost in other European countries. That is the only way I can think...
jessicaomni
Offline Send Email
Jul 13, 2009
7:33 am

Update: I came back from booster LIT in Greece on Wednesday night and had first my first scan yesterday Friday. There was a heartbeat and the Dr seemed to...
jessicaomni
Offline Send Email
Jul 18, 2009
7:02 am

That's great news Jess :)   X+x 41, 1 DS aged 6 5 m/cs, over 3 yrs ttc #2 Slightly pos APS, low Free T4, borderline ANAs, CD19+/CD5+ cells 15%, Th1/Th2...
Mandy Cairns
manders41
Offline Send Email
Jul 19, 2009
9:46 am

Yeah Jess that's so great to hear!I've gone in for 2 u/s and so far strong HB each time so I know how you feel.Saw a 2nd sac but so far no HB detected. Take...
Jennifer Oh
jenniferoh...
Offline Send Email
Jul 19, 2009
5:08 pm

Thanks Jennifer, Congratulations to you too! How far along are you? I am 8 weeks today. I am going to take more bloods to send to Chicago today. 2 weeks ago my...
jessicaomni
Offline Send Email
Jul 20, 2009
6:13 am
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help