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Date: Sun, 12 Jul 2009 10:50:56 -0000
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From: "jessicaomni" <jessicaomni@...>
Subject: Re:HELP, HELP, HELP!!! (baby mentioned)
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Hi Jean,
Thanks so much for going to all the trouble of setting out your 50:1s and g=
aps between IVIgs. This has been really really really helpful!
Now, I think I can feel happy if I generally stick to an IVIg every 3 weeks=
(while I remain above 15) UNLESS NK cells have actually gone up since last=
test in which case I will do an earlier IVIg at 2 weeks. That is what happ=
ened on my last test (i.e., my 50:1 went up - from 28.5 to 30.1) so I am gl=
ad I did the IVIg early at 2 weeks. Just hope it all goes down from here on=
in.=20
It helps to feel that I am following some sort of rational plan.=20
Hope your test re gestational diabetes was negative and your 50:1 levels st=
ay at 13 or below!
Jess xx
--- In immunologysupport@yahoogroups.com, "jinaprivate" <sharksaddict@...> =
wrote:
>
> Hi Jess-
> I'm so glad you are feeling better. I only did one IVIG 2 weeks apart
> -it was when my NK's actually went up further after an IVIG and the Beer
> center decided I needed another dose immediately (which was 2 weeks from
> the prior dose, plus another one 3 weeks later). My 50:1's were:
>=20
> (preconception - did not test - was not trying that cycle and did not
> even test for BFP until I was almost 5 weeks along)
> 5 weeks - 14 (no IVIG required - could not believe they were normal -
> they are *never* normal... but did 2 IVIG's plus steroids plus
> antibiotics the prior cycle which was my first IVF attempt))
> 8 weeks - 29 (30g IVIG)
> 10 weeks - 33 (30g IVIG)
> 13 weeks - did not re-test - Beer center wanted me to do this dose
> regardless due to how they went up further last time (30g IVIG)
> 16 weeks - 26 (30g IVIG)
> 19 weeks - did not re-test - was going on a 2 week vacation to Alaska
> and I decided I needed to do IVIG regardless of test results since a
> single dose has never lowered my 50:1 by 4 points - Beer center agreed.=20
> (30g IVIG)
> 22 weeks - 13!!! (in total shock - no IVIG)
> will retest at 26 weeks
>=20
> BTW my APA's have been positive since 5 weeks (other than one negative
> at 16w but they're now positive again) so I've been doing daily Arixtra
> shots as well. Plus the usual suspects: baby aspirin, folgard, fish oil,
> prenatal, calcium/vitamin D and was on metformin (during the first
> trimester only - I was planning to do an IVF cycle and my RE thought I
> had PCOS so I was already taking metformin when I got pg naturally -did
> not notice any side effects from metformin other than it was so much
> easier to control my weight when I was on it - I just did my 1 hour
> glucose challenge test this morning and so hope I do not have
> gestational diabetes).
>=20
> Jean
>
Jess  I know this is scary but the Ivig does help to protect the baby even if your NK¹s are high. My NK¹s were at 33 at 7 weeks and I did a booster LIT Â...
OH THANK YOU NANCY! That's what I needed to hear. It is not clear from Dr Beer's book.I am going to do booster LIT in Greece on Tuesday if Dr Tsgaris confirms...
Jess- like Nancy (hi Nanc!) my NK's were high (50:1 at high 20's to low 30's) and I kept doing IVIG every 2-3 weeks (5 so far) even though the IVIG was not...
Jean! I've been away from the computer all day and have just seen this. I am feeling so much better now. I was really panicking. From what you and Nancy have...
Hi Jess- I'm so glad you are feeling better. I only did one IVIG 2 weeks apart -it was when my NK's actually went up further after an IVIG and the Beer center...
thanks DT! So nice to see you online. hope things are going great with your little one. I wish we had an easy way to post all of you "success stories" ladies...
I have CHILLS. I am so happy for you. I think a file for the success stories is a great idea. We should ask Jane how to do that. I know inspiration was like...
Hi Jean, Thanks so much for going to all the trouble of setting out your 50:1s and gaps between IVIgs. This has been really really really helpful! Now, I think...
Jess: My frequency was based soley on my NK¹s. I had them tested two weeks after my infusion and if the numbers were still up then I would schedule another...
Hi Nancy! I am taking Wob N - but obviously with so much in the mix, it is difficult to know what effect it is having, if any. How high before you narrowed the...
I went to two weeks when my 50:1 came back at 33. I forgot about NHS - I lived in London for a year to attend college - so that definitely is a different...
Hi Nancy, 25gm IVIg infusion is abour $2000 here in UK. I have posted a message asking the cost in other European countries. That is the only way I can think...
Update: I came back from booster LIT in Greece on Wednesday night and had first my first scan yesterday Friday. There was a heartbeat and the Dr seemed to...
Yeah Jess that's so great to hear!I've gone in for 2 u/s and so far strong HB each time so I know how you feel.Saw a 2nd sac but so far no HB detected. Take...
Thanks Jennifer, Congratulations to you too! How far along are you? I am 8 weeks today. I am going to take more bloods to send to Chicago today. 2 weeks ago my...
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