First let me tell you how sorry I am for your loss. Also, I am glad you didn't settle for the "All should be well next time" standard phrase.
I am really new here too. Just learning about immune issues. I had 3 normal, healthy little boys, followed by 4 consecutive 1st trimester losses in 9 months, the last one in October 2002. Haven't had my NK panel sent off yet, but will be doing that next week.
'IgG cardiolipin positive"
This is significant for 2nd trimester loss.
"Protocol: IVIg, heparin, baby aspirin and prednisone prior to ovulation"
I think this sounds like a great plan......to be continues into your pregnancy as well as preconception.
Jane can give you more knowledgeable, experienced advice for sure.
Subject: [immunologysupport] New member (loss ment)
I wanted to introduce myself as I have been lingering here for some time trying to get a handle on my immunology test results. This group is very active and experienced so I am hoping to get some feedback.
I am 32, DH 32. We lost our first baby, son, at 26 weeks in Jan. 03 due to complications of a placental abruption. He was born living after an emergency c-setion but passed away two days later. We were told that there was no apparent cause of the abruption and all should be well next time. We wanted a second opinion, however. We live in Latvia and although there are very good doctors and services here, we felt assistance from specialists were in our best interest.
We sought the help of Dr. Matzner and were able to visit him in CA. Test results, April 03:
Total T CD3+ lymphs 86 (range 59.4-84) Total B CD19+ 5 (6.4-22) Helper/Inducer CD4+ 67 (29-59) Supp/Cytotoxic (CD8+) lymphs, Activated T (CD3), Total NK CD16+56, Cytotoxic (CD5+) all normal range
NK activation 1:50 8.9 (borderline 8.5-10) no stimulation with IL2 no suppression with IVIg
Quantitative IgM 30 (42-250) Quantitative IgG, IgA normal IgG cardiolipin positive All others negative
T-cells with IgG 1.1 (negative <30) B-cells with IgG 8 (negative <30) lacks blocking antibodies
MTHFR heterozygous
DQ alpha 1.1, 3.0 DH 1.2, 3.0
ATA, ANA normal
Prior to pregnancy I was hypothyroid (Hashimoto's) and had treatment yet during pregnancy my TSH started falling at about 16 weeks and has continued to slowly do so to where I am just below the normal range. Treatment has been adjusted but we haven't achieved a steady normal range yet.
Protocol: IVIg, heparin, baby aspirin and prednisone prior to ovulation
I would appreciate any comments on my results. Any thoughts on vitamins etc...
Also, we are moving to UK by the end of this summer (Sheffield area). We are considering becoming patients of Dr. Beer. Would anyone in the UK be willing to correspond with us about their experiences with immune issues in the UK as well as working with Dr. Beer?
I am sorry this is so long. I thought it best to get it all out there.
Kind regards, Niki
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I wanted to introduce myself as I have been lingering here for some time trying to get a handle on my immunology test results. This group is very active and...
Hi, I am Jody. First let me tell you how sorry I am for your loss. Also, I am glad you
didn't settle for the "All should be well next time" standard phrase. I...
Not 100% sure about Matzer's testing, but let's give it a try. Your NK isn't bad, but I'm concerned about "Not supressed with IVIG". I think this means the...
Dear Mike, Thanks for replying. Just to answer a couple of questions: The testing that I listed is all that was done. I have read where other testing may be...
Had to reread your post. Completely missed the positive cardiolipids. You are at risk for clotting. Could be related to abruption. Did you take Heparin last...
First, I know of Dr. Salafia (we're in NY as well, and will deliver at Mt. Sinai). She's good, but NOT sufficently trained to look at immune issues. Get back...
Dear Mike, Thank you so much for relating your thoughts and experience and for reading through my emails so thoroughly. You have brought up many things that...
Forgot to add, we went to nogales for LIT at 10weeks of our pregnancy, due to low LAD and matching DQ alpha at 4.1 (the worst one to match). Mike ... From:...
Hi Niki I'm so sorry about your poor baby. That must have been totally devastating for you. I hope that your committed efforts to find out why will pay...
Dear Rose, I am so happy to have a UK friend! It is one thing to move but moving to a another country when you have medical issues is even harder. Thank you...
1st cycle, iui with clomid, negative second cycle, intended iui with injectibles, too many eggs, converted to ivf. positive, m/c 3rd, natural iui, negative ...
Hi Niki, Welcome to the group! First of all, I want to say how sorry I am for your tragic loss. Even more tragic that you had a doctor said the placental...
Dear Jane, Thank you for all of the information. I am especially interested in the placental abruption comments as getting information on abruptions has been...
Hi Niki, looks like we have now 2 Niki's who spell their names identical, do u have a nickname to go by so we don't get confused? Niki ... From: aizkraukle2 ...
Dear Niki, I was suprised to see another Niki too! Actually, I don't really have a nickname....some people call me "Nik" and my sister sometimes calls me...
Yep that sounds fine........how did you get the nickname pickle.......sounds cute Niki ... From: aizkraukle2 To: immunologysupport@yahoogroups.com Sent:...
I don't think she really knows where it came from! NikiH ... pickle.......sounds cute ... sometimes ... or ... you ... interested ... even ... clinic. ... ...
Started with Dr. Beer's treatments on the final (and present) IUI, which was successful (or hopefully will be in about 1-2 weeks). Were WERE NOT successful...
Hi Niki, were you ever able to line up an appt with Dr. Beer after you moved to Sheffield? Kitty In a message dated 6/22/2003 8:35:56 AM Eastern Daylight Time,...
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