----- Original Message -----

From: Jane Reed

To: immunologysupport@yahoogroups.com

Sent: Sunday, June 22, 2003 12:54 PM

Subject: [immunologysupport] To Niki.....Re: Vent (chd ment)

Niki,

I am so sorry to hear of your frustrations being so far away in
Australia. I know it must be hard reading these posts everyday,
wondering if these immune treatments ( LIT, IVIG, Remicade) will ever
be available you. But I must ask (I know this may seem far-
fetched) ....Would you ever consider making a trip out here to the US
to see Dr Beer in person?? To get the IVIG done here in the States?
Maybe hop on over to Nogales to get LIT (if you needed this) (only if
you needed this)? Would this really be so impossible?? You could even
make a vacation out of it. Might even have some fun?

Ofcourse such a trip would be expensive. Ofcourse it would take time
( many vacation days). But you say you have a stable financial
situaton, why not make use of some of the assets in your life (your
house, your land etc) put it into your happiness, your dream of
having another child? Instead of just letting day after day pass away?

With your +ANA, history of failure, insulin resisatance I feel pretty
sure there are some TNF alpha issues going on with you (and I'm sure
you feel this too) You know that you may need IVIG. Maybe even need
LIT to have a successful pregnancy. Why risk not getting this? Why
risk doing an IVF cycle that may fail? When you have this knowlege
and ability to have success??

With your young age and young eggs, I just really feel Dr Beer could
help you, really I do.

Just so you know, I have known many Australian patients (yes,
Australian patients) fly all the way to the US to just to see Dr Beer
in person. Wouldn't you feel so much better moving forward in a
positive and aggressive way rather sitting back wondering "what if?
what if?"

(and I bet there is a direct flight from Syndey to San Franscisco
too!)

Something to cosider. If you have the money, if you have the desire,
working with Dr Beer may be more possible than you think!

Jane


--- In immunologysupport@yahoogroups.com, "Niki Albury"
<joelsmama@j...> wrote:
> Hi I'm feeling a bit peeved today, tomorrow I'm 31yrs old, having
been trying to fall preg without success for nearly 4yrs, normal RE,
specialist etc wont look or consider my immune issues as a
possability or that they DO and can play a part in my lack of
conception even though I'm fertile every cycle.  I found a
reproductive immunologist thru the immunology board who I thought
would save me so to speak, and he never replies to my phone calls,
letters etc and isn't doing anything agrressive,some of you may
remember I sent a letter to him a few weeks ago, well 2 weeks ago he
was going to reply to it, I have called several times and they say
he's busy he'll do it when he can.  I read all the treatments you
gals are on and we have nothing like that here, we must be so
backward when it comes to reproductive immunology and treatments. 
All he has me on is metformin for my PCOS and high IR levels and baby
aspirin for my ACA levels and nothing is getting done about my ANA
levels.......I know 31 is still considered youg but my son is nearly
6yrs of age and I'm so scared that if I ever do have another baby the
age gap will be so big he wont have a opportunity to bond with his
sibling and adoption in Australia is basically impossible so we can't
afford to leave that too long either as their are so many
stipulations and age limits for overseas adoption.  I just feel like
hope is flying out the window and no one here is taking this serious,
meaning the Dr's that is......anyway thats my vent, it just makes me
mad I have done it the way they say your supposd to do it, so to
speak, I married, bought a house, we both work fulltime,we own our
home and a block of land, ready to build a new big house in the near
future, have cats, dogs and treat them and others kindly, good bank
account etc so what else am I supposed to do that will make me a
better person to fall preg, it feels like I havn't passed the test
yet and still have to prove I'm worthy and that I'm being punished
and am not good enough to have another baby, we don't even drink or
smoke, we go to church etc I know thats not how it works hence all
the babies born into poverty, drug abuse etc but some days it sure
feels like I'm being punished anyway thats my vent and thanks for
listening, I know i'm rambling.....must be old age, I know I
shouldn't but its hard not to compare yourself to others I look at
other people who have been married nearly 10yrs or are my age and
they have 2-4 kids and are finished having their families and here I
am in 10yrs I have managed to fall preg once, I feel like I have
failed big time and I am greatful for my son, without him I don't
think I would be here today, the struggle to have him was unbearable
and he's gotten me thru the past 4yrs but everynight I hear him pray
to God for a sister and it breaks my heart, why should he suffer,
anyway I will end now before it turns into a novel.  One thing thats
makes my day and gives me hope is every time I hear one of you that
has fallen preg, I just thank God that he has shown me another
miracle and that they are still around us daily.  Cheers
>
> Niki



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