P.S.

Have you found a good London Dr to manage you in London alongside Dr Beer? Are
you
considering Dr Taranassi or have you got your own one? My GP is nice but fairly
ineffective - I saw a nice woman at the Lister but not sure she is familiar with
Beer. I keep
hearing good things about Dr T although I think he is v booked up.

--- In immunologysupport@yahoogroups.com, "tpt_0101" <tpt_0101@y...> wrote:
> Hi Madalena
> Thanks for popping in to say hello.
> Well I find myself here after our IVF failures and it's really
> enlightening. We are at the begining of our journey, I just hope its
> not going to be a long one!!!!
> Whats your IF history (if you dont mind me asking?)
> Where in London are you?
> Take care
> Tp
>
> --- In immunologysupport@yahoogroups.com, "madelena30"
> <madfloyd@b...> wrote:
> >
> > Hi TP
> > Just saying hello - havent been on here for a while but I'm a good
> friend of Kate's
> > and was really interested to hear what you're upto - you sound
> like you're at the
> > beginning of it all like me - I just sent you an email to your
> address.
> > I'm a Londoner too so you never know we may find we're neighbours
> and could
> > share a coffee (or something ahell of a lot stronger) as we find
> our way through the
> > maze of it all.
> >
> > You sound like you've been through a hell of a lot and I'm full of
> admiration - you deserve
> > to have that baby and I hope you find a whole lot of support on
> here. There is a lot to
> > learn but there are some wonderful success stories that keep on
> coming so sooner or later
> > I reckon things are changing for the better.
> >
> > Hope to keep in touch with much love
> > Madelena x
> >
> > --- In immunologysupport@yahoogroups.com, "tpt_0101"
> <tpt_0101@y...> wrote:
> > > Hi Kate
> > > The thing ablout Taranisi is he is so expensive (anyone like him
> > > basically) so what I'll try to do is get some tests done with my
> GP.
> > > Basic bio chemistry stuff and then contact my clinic abroad to
> do
> > > the immune testing there...I think they'll be cheaper.
> > > Im sure there must be someone in the UK who can check for NK
> cells
> > > or will I need to send the blood to Chicago?
> > >
> > > Do you know if its possible to follow an "Immune" protocol (as a
> > > matter of caution) can it do more harm or not? I figured that if
> you
> > > have immune drugs in your cycle...it only do good not
> harm...maybe
> > > Im wrong about that?
> > > Tp
> > >
> > >
> > >
> > > --- In immunologysupport@yahoogroups.com, "kateashley8"
> > > <kateashley8@y...> wrote:
> > > > Hi TP,
> > > > God, what a miserable business this is...but honestly there is
> a
> > > lot
> > > > of knowledge and hope here and i have learnt alot very quickly
> > > from
> > > > the group here. Taking charge of your own issues is very
> > > important
> > > > and i now feel pretty much in control of things..or as in
> control
> > > as
> > > > you can be with immune problems..
> > > >
> > > > Mr Taranissi has a good reputation and is very open minded
> about
> > > > treatments. I also read the Zita West stuff and i think she
> is
> > > > amazing too. She has a clinic on Harley Street and her new
> book
> > > > really opened my eyes to immunology and gave me the courage to
> go
> > > to
> > > > Dr Beer in the first place.
> > > >
> > > > I am sure improving your general health can only be a very
> > > positive
> > > > thing and knowing that you are in the right hands will be very
> > > > important to you. Dr Beer seems to have helped us all here
> and
> > > > opened our eyes to issues we have that we are able to do
> something
> > > > about. Its good to be making positive steps forward, it feels
> so
> > > > good !!
> > > >
> > > > Good luck with your research and with your meeting with Mr
> > > > Taranissi !
> > > >
> > > > Kate xx
> > > >
> > > >
> > > > --- In immunologysupport@yahoogroups.com, "tpt_0101"
> > > <tpt_0101@y...>
> > > > wrote:
> > > > > Hi Kate
> > > > > So sorry for your losses, its a terrible business when your
> body
> > > > > doesnt do what you want it to!
> > > > > From reading various other boards in the past I have
> concluded
> > > > that
> > > > > WE know more about our bopdies than the so called
> specialists
> > > here
> > > > > do so my faith in them is waining!
> > > > > I feel I may have opened a Pandoras box into my health and
> im at
> > > > the
> > > > > beginning of my journey. Maybe I will uncover things that
> will
> > > get
> > > > > me into super health and fitness in readiness for the babay
> > > thats
> > > > > waiting for me!
> > > > > I will certainly look and study here...what a fantastic site
> > > this
> > > > > is...and I am looking for an RE that will work in connection
> > > with
> > > > my
> > > > > DE clinic so maybe I'll give Taranissi a go. Im looking
> into
> > > > > accupuncture, simply because I feel it may do me good for my
> > > > > emotional well being.
> > > > > Good luck and health on your journey too
> > > > > Cheers
> > > > > TP
> > > > > x
> > > > >
> > > > >
> > > > >
> > > > >
> > > > > --- In immunologysupport@yahoogroups.com, "kateashley8"
> > > > > <kateashley8@y...> wrote:
> > > > > > Hello TPT !,
> > > > > > I'm a Londoner too...but currently overseas in Asia but i
> have
> > > > had
> > > > > > plenty of medical misfortunes in London and have worked my
> way
> > > > > > through at least 3 of their fine hospitals!!
> > > > > > I have not have IVF myself but natural pg's that went
> > > massively
> > > > > pear-
> > > > > > shaped with no-one was prepared to fully look into my
> > > problems.
> > > > > > They just gave me the old "well you've just been very very
> > > lucky
> > > > > Mrs
> > > > > > Ashley, try again, here take these aspirins!".
> > > > > > I found myself here after my 2nd late loss Nov04 ...spent
> a
> > > few
> > > > > > months deciding what to do and then finally i registered
> with
> > > Dr
> > > > > > Beer at the end of March 05. I have spent a few months
> > > getting
> > > > > > immune testing and treatments done. My testing uncovered
> ALOT
> > > > of
> > > > > > issues which have been totally overlooked both in London
> and
> > > > > > Singapore..it seems these so called specialists just don't
> > > know
> > > > > what
> > > > > > to look for.
> > > > > > I am Category 1,2, 5 which means too close DNA to my
> husband,
> > > i
> > > > > had
> > > > > > both acquired and inherited thrombophilias and aggressive
> NK
> > > > cells.
> > > > > > All these things were missed...
> > > > > >
> > > > > > My suggestion is that you start reading the Files section
> here
> > > > put
> > > > > > together by our hero the superb Jane Reed (just recovering
> > > from
> > > > > her
> > > > > > 4th Beer Baby) and there is alot of info in here for you,
> > > > > including
> > > > > > a self test you can look at to see if there might be signs
> > > that
> > > > > you
> > > > > > recognise to indicate that you have immune issues..
> > > > > >
> > > > > > As you live in London you are fortunate to several good
> > > doctors
> > > > > you
> > > > > > can go to ..again, refer to the Files section and look for
> the
> > > > > > Refering Doctors. Dr Taranasi for example works with
> several
> > > Dr
> > > > > > Beer patients i think so you could go and see him and get
> his
> > > > > > opinion on your case.
> > > > > >
> > > > > > It must be terrifically frustrating to have gone through
> all
> > > > these
> > > > > > IVF's with perfect embryos's being transfered only to keep
> > > > having
> > > > > > BFN's even with DE's. If you do want to leave no stone
> > > unturned
> > > > > and
> > > > > > know that you have tried everything then immune testing is
> > > > > probably
> > > > > > your logical next step.
> > > > > >
> > > > > > Kate xx
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > > --- In immunologysupport@yahoogroups.com, "tpt_0101"
> > > > > <tpt_0101@y...>
> > > > > > wrote:
> > > > > > > Hi everyone
> > > > > > > It looks like I'll have to make this my new home as Ive
> just
> > > > > > > completed a 2nd DE IVF with a BFN!!
> > > > > > > Im coming round to the fact that I may have other issues
> > > going
> > > > > on
> > > > > > > and it will be a journey Id like to share with you all
> and
> > > > > > hopefully
> > > > > > > learn from you all.
> > > > > > >
> > > > > > > Ive had 5 IVF in total but the first 3 being with my own
> > > eggs
> > > > > and
> > > > > > > since Im in the older age group I wasnt too surprised it
> > > didnt
> > > > > > work.
> > > > > > > We moved to DE and this last time we transfered 5
> embryo's
> > > > > > 3x8cells
> > > > > > > and 2x6cells. Aparantly perfect looking aparantly
> perfect
> > > > lining
> > > > > > > 10.5mm triple layer. I decided to take(for this last
> cycle)
> > > > baby
> > > > > > > aspirin, low dose steroid 5mg prednisone, folic acid and
> I
> > > was
> > > > > > > injecting a low dose Heparin. Im not too sure when those
> > > drugs
> > > > > > > should be started for optimum effect but I started the
> baby
> > > > > > aspirin
> > > > > > > from day 1 and the steroid and hep about 1 week before
> > > > transfer.
> > > > > > >
> > > > > > > Im at a loss and Im hoping to learn something about any
> > > immune
> > > > > > > problem I may have. What blood tests to do, where to do
> this
> > > > (Im
> > > > > > in
> > > > > > > London) so Id appreciate anyone with the same experience
> to
> > > > > > contact
> > > > > > > me with any help.
> > > > > > > Look forward to hearing from you all!
> > > > > > > TPT
> > > > > > > X