Oh Niki, I am so sorry this has to be so hard and troubling! I guess,
first I would ask how your prego symptoms are doing? Any significant
change. I'm just hoping there is something that can give you some
reassurance. Try to trust that the previous IVIG is still trying to
do it's job and that Friday will be fine. I almost wish we could get
u/s when ever we wanted just for piece of mind.
Try to hang in there! We're here for you!
Julie in SF
--- In
immunologysupport@yahoogroups.com, "aizkraukle2" <nikih@c...>
wrote:
>
> I just spoke to Chris and DB. I am to continue Enbrel until
> 12w....which is just right as that is the amount of meds I have
> left. Hopefully, we make it that far.
>
> And I can't get IVIG until Friday....16 days after the last one. Is
> that really bad?
>
> NikiH
>
> --- In
immunologysupport@yahoogroups.com, "aizkraukle2" <nikih@c...>
> wrote:
> >
> > Okay, now I am getting worried! Chris says not to as we are on top
> > of things but......
> >
> > I am 10w and have had two IVIG infusions at 6w and 8w. After my 6w
> > infusion my NKs came back at 25%....so did IVIg again at 8w. After
> > retesting, they are 32.6/26.8!!!
> >
> > Because of the day I have gotten IVIG, I have had to retest at 6-7
> > days-to get the blood to Chicago on time....I know some have said
> > they don't see an impact until 10-11 days after....could this be
> > me....can I just hope this is me so I don't have to worry so much?
> >
> > My cytokines came back fine....actually low at 8/1.6. I should be
> > doing Enbrel for another two weeks but I need to double check with
> > Chris.
> >
> > I am worried. Our next u/s isn't until Monday and I guess that
> will
> > let us know if we are okay.
> >
> > Yikes, any advice or words of wisdom???
> >
> > Take care,
> > NikiH