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immotile_cilia_syndrome · Immotile Cilia Syndrome
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21
my grand daughter was born oct 19 09 she has situs inversis and is waiting for the test results for the kartageners syndrome on tuesday...
Clark Franks
margaretfran...
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Nov 29, 2009
11:48 pm
20
As the business war on the air is hotting up with so many low-budget airlines dominating the sky, the passengers can now enjoy the best deals. The webguide -...
dicikamethew
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Sep 16, 2008
10:00 am
19
We don't have to spend fortunes to get software for different applications. They are available in plenty as freeware. Have a look at a list of all essential...
amanda_boris2001
amanda_boris...
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Sep 8, 2008
10:05 am
18
The fast paced advancements in education and technology require us to keep up to date in the chosen field. We also need to improve our skill sets or study a...
lesliegrady344
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Sep 6, 2008
9:37 am
17
There are several scholarship programs that help us go for higher studies leaving behind all the financial worries. The website http://www.scholarshiponnet.com...
raamah_oakes
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Aug 20, 2008
1:53 am
16
Lynn he was diagnosed in Ft Worth Texas.DO you know if they are doing any research in Texas?I will search PCD instead. Thank you for you help Alicia Lynn E...
Dan Stover
redjacket3827
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May 8, 2008
3:01 pm
15
Hi Alicia, Where was your son diagnosed? Check out www.pcdfoundation.org . ICS is an older term. You can find much more information if you search for PCD...
Lynn E
lynniegirl88
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May 7, 2008
3:51 am
14
My seven year old was just diagnosed after being sick his whole life and having 14 surgeries on his ears.He has had seven skin grafts on his ear to repair the...
Alicia
redjacket3827
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May 6, 2008
11:49 pm
13
Hi, I live in Michigan, and my 2 yr. old daughter was just diagnosed this week with immotile cilia syndrome after a whole year of almost constant sickness,...
shapowm
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Jan 19, 2008
2:54 pm
12
Hi, I live in Michigan, and my 2 yr. old daughter was just diagnosed this week with immotile cilia syndrome after a whole year of almost constant sickness,...
shapowm
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Jan 19, 2008
2:51 pm
11
I actually don't have PCD, but my husband does. I'm an RN and have checked into the condition quite a bit, but wanted to see what others said about it and...
janicep731
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Dec 30, 2007
7:04 pm
10
Just PCD with 1 gene of CF (and the worst mutation - same problems as CF patients). ... From: Krystal Wood To: immotile_cilia_syndrome@yahoogroups.com Sent:...
Christa Pearcy
christapearcy
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Dec 29, 2007
6:55 pm
9
Hi I forgot to mention that he has PCD with Kartagener's Sydrome, meaning all his internal organs are reversed. Is this what you have too? or is it just the...
Krystal Wood
krystlwd
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Dec 29, 2007
4:48 pm
8
I don't have any children with it, but I have it and was born with it. If you have any questions/concerns, please don't hesitate to ask! I would love to be...
Christa Pearcy
christapearcy
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Dec 27, 2007
3:42 am
7
I am a mom of a five year old boy who at the age of one month was told he had PCD. If there are other parents out there with a child like this or know anyone...
DoubleRider
krystlwd
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Dec 27, 2007
2:22 am
6
Just came upon this website as my 15-year old son most like has ICS - he will go through the final biopsy Wednesday at Children's. There isn't a symptom he...
smcleanathome
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Jun 24, 2007
10:54 pm
5
... thank you for your response! i will take any informaion that you can provide. thank you for your time and concern. God Bless You and Yours. lori...
luvbugz_34
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May 6, 2007
4:21 am
4
PLEASE WAIT ME FEW DAYS BECAUSE I AM VEY BUSY THANK U VERY MUCH...
helwasite
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Apr 26, 2007
6:51 pm
3
hi,my dear friend I am 29 years old Egyptian male unmarried. I am a doctor. I want u not to be very sad like this. every day the scientists discover a new...
helwasite
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Apr 26, 2007
6:51 pm
2
i am a thirty-five year old female with ics and would like to read about others with ics. i would like to compare health, prescriptions, and how we feel...
luvbugz_34
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Apr 4, 2006
6:48 pm
1
Just thought I'd let everyone know that there is now a website devoted to talking about Primary Ciliary Dyskinesia (PCD)/ Kartagener's Syndrome/ Immotile Cilia...
siggy_ziggy
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Dec 15, 2005
11:17 pm
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