Our ostomy forum, the BAG & BOWEL CLUB is at : http://www.bowelweb.com/index.php?name=PNphpBB2&file=viewforum&f=4&sid=22e6bae1a9e382343a86854b9833b3fb Forum...
ileostomy@yahoogroups...
May 1, 2005 9:23 am
926
I just wanted to say how much I have enjoyed making these awarness ribbons. I am so thankful to be able to do this for those of you who have asked me to do so!...
I am new to the group. I have a 6 month old son who has an ileostomy. I am having the hardest time with his stoma. I am using convatec two piece system with...
Portia, We could not use the eakin seals with em... they just did not stick well enough. Have you tried using a hair dryer to warm the wafer a bit? That...
Portia, I know how FRUSTRATING the bags can be. Try this.....I take the eakin seal and cut it in half (I use the large ones but you can use your judgement on...
Portia, Do you have a ostomy nurse or someone you can go to for help? It sounds like you need someone local to guide you in what you need to do. I wish I had...
Hi Portia. Sorry you are having such a rough time. I am using a two piece coloplast for my appliance. I'm not exactly sure what a eakin seal is. My wafer...
I wanted to say thank you to everyone that replied. I did go see the ET nurse and she said I was doing everything right. The gi doc ended up carterizing the...
Reminder from the Calendar of ileostomy http://groups.yahoo.com/group/ileostomy/cal General knowledge quiz Sunday May 15, 2005 12:00 am - 1:00 am (This event...
ileostomy@yahoogroups...
May 14, 2005 9:56 pm
934
I am wondering about how "red" the area under the wafer can be without alarm. I am also wondering about ways to keep the skin under the wafer healthy. Also,...
With my sons I can keep it from getting too red by rubbing it with the "lollypops" 3m no sting wands. It is just a skin protectant. If you can't get any post...
I am pretty new to the group and my sons stoma is pretty new. I know you came for help but I was wondering how do you know you haev an infection or sorry how...
I have colon perf so surgery is no choice. Will have permanent ileostomy. I am so disgusted I want to die. I can't imagine what my life will be like. I've had...
Hi Sandy, Welcome to the ileostomy group, but sorry to hear you've had to join us in the first place. I had my ileostomy due to crohn's-colitis (Crohn's of the...
hi i use the pediatric disposable urine bag.. it does'nt me the illeostomy.. fercoat <safercho@...> wrote:I have colon perf so surgery is no choice....
You know I'm sorry you have to have this surgery. I am sorry you are repulsed by it. I think though you need to know there are much worse things. I am the...
Sandy, Relax. If you've lived with UC for that long, you are really going to wish you would have had the surgery years ago. I too suffered with UC for several...
(((((((((Sandy))))))))))))), Hang in there, it gets better... REALLY IT DOES! My daughter is 10.5 and has put it in this perspective when I asked her how to...
Hi Sandy. Sorry to hear that you have to have a ileostomy. I have had mine for almost a year now (last June) and i'm 32. I have spina bifida and had a ...
I've had my Ileostomy for 40 years now and can't imagine living with out it and also from ulcerative colitis. Back in 1965 we didn't know of any groups or...
I agree Tim. I wished so much that I would have had the surgery years ago instead of wasting so mucy precious time. I know exactly what you mean about a ...
Portia and Sandy-- Portia.......I understand your response to Sandy but I do feel it was pretty harsh when you yourself have not had the experience of having...
I'm sorry if it felt like I attacked you. I just am amazed at how people cannot deal with something that to me is something that is at most just unwanted. I...
hi had spinalmininginus at 2 years old am wheelchair bound.. had the ileostomy operation in 1972.. a lot of things happened that year.. have been through a...
apology accepted... had the surgery done in 1972. that year alot of things happened.. i have no trouble with my ileostomy. have taken care of it sense 1974...
Portia, I also felt like 'WHEW you are a bit harsh' AT FIRST. Reality is that this surgery will be done or death is possible. Time to look at all the options...
hi you have a colostomy that is for number two.. just have the urine bag.. BLANCA <bullwinkle8300@...> wrote:hi had spinalmininginus at 2 years old am...
Today I kept feeling bad and I went to wal mart(should have stayed home). Anyway while i was there I got really jittery, nervous, sweating a lot and felt like...
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