Good Morning Crystal,  it is so good to hear from you again.  I am glad
that you and your family survived all of this grief.   I hope that you and
Marty both feel better soon too.  Happy New Year.   Sincerely,  Dawn :)
-------Original Message-------

From: ileostomy@yahoogroups.com
Date: Wednesday, December 31, 2003 12:42:36 PM
To: ileostomy@yahoogroups.com
Subject: [The Ileostomy Group] Digest Number 274

There is 1 message in this issue.

Topics in this digest:

        1. Still Alive
             From: Martin and Crystal Ordonez <mc-ca-ordonez@...>


________________________________________________________________________
________________________________________________________________________

Message: 1
     Date: Tue, 30 Dec 2003 13:49:14 -0800
     From: Martin and Crystal Ordonez <mc-ca-ordonez@...>
Subject: Still Alive

Still Alive

Hello all,

I am writing this from the Palm and planning on copying and pasting it
later. The short story is that I am alive and relatively well.

Lapis and I arrived here a week before Marty did. Marty packed a bunch
and stored as much as he could in storage or the truck and the rest was
abandoned. Don (my ex) helped the last couple of days.

My bronchitis has cleared up. Just when I made my appointment with a new
OB/GYN I developed something nasty combining vomiting and many trips to
the toilet. When I saw the doc yesterday he told me I have the stomache
flu. Whoopee :-(

I have dropped about 5 pounds in the last week and am a bit dehydrated.
Marty has gained several pounds. He overdid it, but is recovering nicely
now. He slept about 18 hours a day at first but now is only sleeping
about 12. We found out that before his surgery he weighed 98 pounds.
Now he weighs about 108. Not bad considering.

The VA received the claim on 10 December. Today they said it will be
another 3 or 4 weeks. That will make it more like the end of January -
IF it isn't delayed even more. If it weren't for Don we'd really be up a
creek.

So we have a place to stay. Food. Shelter and remain at the whims of
Uncle Sam.

We just got the computer set up, so I am just getting back on the ball
there. I am still recovering and am very tired. I am also more than a
little depressed. But alll things considered I oughten't be.

Saturnalia and Christmas went pretty well. We managed presents for all 9
days and the children were satiated.

Also we heard the baby's pulse yesterday. 154 which is good. I will go
for the genetic tests and ultrasounds next week so I will know officially
if I am right about Rose being Rose or being wrong and Rose being
Christopher. LOL.


Pax, Crys
3rd gosling due May 11th, 2004 (Rose Abebi or Christopher Sabe)
Sodalis Familiaris (http://groups.yahoo.com/group/SodalisFamiliaris)
http://www.geocities.com/cas_the_author/sodalis/
The Online Temple of Juno http://www.geocities.com/cas_the_author/temple/


________________________________________________________________
The best thing to hit the internet in years - Juno SpeedBand!
Surf the web up to FIVE TIMES FASTER!
Only $14.95/ month - visit www.juno.com to sign up today!


________________________________________________________________________
________________________________________________________________________


OUR NEW OSTOMY AND J-POUCH CHATROOM IS AT http://www.bowelweb.com/chat.html

Active OSTOMY MESSAGE BOARDS - "The Bag & Bowel Club" are at www.crohnszone
co.uk

------------------------------------------------------------------------
Yahoo! Groups Links

To visit your group on the web, go to:
   http://groups.yahoo.com/group/ileostomy/

To unsubscribe from this group, send an email to:
   ileostomy-unsubscribe@yahoogroups.com

Your use of Yahoo! Groups is subject to:
   http://docs.yahoo.com/info/terms/
------------------------------------------------------------------------


[Non-text portions of this message have been removed]

Still Alive

Hello all,

I am writing this from the Palm and planning on copying and pasting it
later.  The short story is that I am alive and relatively well.

Lapis and I arrived here a week before Marty did.  Marty packed a bunch
and stored as much as he could in storage or the truck and the rest was
abandoned.  Don (my ex) helped the last couple of days.

My bronchitis has cleared up.  Just when I made my appointment with a new
OB/GYN I developed something nasty combining vomiting and many trips to
the toilet.  When I saw the doc yesterday he told me I have the stomache
flu.  Whoopee :-(

I have dropped about 5 pounds in the last week and am a bit dehydrated.
Marty has gained several pounds.  He overdid it, but is recovering nicely
now.  He slept about 18 hours a day at first but now is only sleeping
about 12.   We found out that before his surgery he weighed 98 pounds.
Now he weighs about 108.  Not bad considering.

The VA received the claim on 10 December.  Today they said it will be
another 3 or 4 weeks.  That will make it more like the end of January -
IF it isn't delayed even more.  If it weren't for Don we'd really be up a
creek.

So we have a place to stay.  Food.  Shelter and remain at the whims of
Uncle Sam.

We just got the computer set up, so I am just getting back on the ball
there.  I am still recovering and am very tired.  I am also more than a
little depressed.  But alll things considered I oughten't be.

Saturnalia and Christmas went pretty well.  We managed presents for all 9
days and the children were satiated.

Also we heard the baby's pulse yesterday.  154 which is good.  I will go
for the genetic tests and ultrasounds next week so I will know officially
if I am right about Rose being Rose or being wrong and Rose being
Christopher. LOL.


Pax, Crys
3rd gosling due May 11th, 2004 (Rose Abebi or Christopher Sabe)
Sodalis Familiaris (http://groups.yahoo.com/group/SodalisFamiliaris)
http://www.geocities.com/cas_the_author/sodalis/
The Online Temple of Juno http://www.geocities.com/cas_the_author/temple/


________________________________________________________________
The best thing to hit the internet in years - Juno SpeedBand!
Surf the web up to FIVE TIMES FASTER!
Only $14.95/ month - visit www.juno.com to sign up today!

HI All, I hope that each and every one of you have a very Merry Christmas
Night and a Happy New Year.  Sincerely,  Dawn

-------Original Message-------

From: ileostomy@yahoogroups.com
Date: Wednesday, December 24, 2003 12:44:54 PM
To: ileostomy@yahoogroups.com
Subject: [The Ileostomy Group] Digest Number 271

There is 1 message in this issue.

Topics in this digest:

        1. Re: Digest Number 270
             From: Walter Hall <tdevil333@...>


________________________________________________________________________
________________________________________________________________________

Message: 1
     Date: Tue, 23 Dec 2003 12:10:51 -0800 (PST)
     From: Walter Hall <tdevil333@...>
Subject: Re: Digest Number 270

Hello All, I would also like to wish everybody a Merry Christmas and a safe,
and happy New Year. I had my colon taken out July 2002, because it was
severely perforated form ulcerative colitis. I have learned to adapt to a
new way of life. I learned to take care of my stoma. The biggest fact I
learned is that you have to take Acidophilus to replace the flora that was
in the colon, and that you have to take an anti gas medicine to reduce gas.
If you don't reduce the gas you can blow your bag off and also suffer severe
intestinal pain from trapped gas. I learned this when I went to the doctor
with severe intestinal pain. I am glad that there are much needed support
groups like this to rely on.


ileostomy@yahoogroups.com wrote: There is 1 message in this issue.

Topics in this digest:

1. MERRY CHRISTMAS!
From: "Kerry Piper"


________________________________________________________________________
________________________________________________________________________

Message: 1
Date: Mon, 22 Dec 2003 21:32:23 -0000
From: "Kerry Piper"
Subject: MERRY CHRISTMAS!

I would like to wish everyone a very Happy Christmas, and a prosperous new
year in 2004!

May next year be happy & healthy for you & your families.

Regards,

Kez
Group Owner


[Non-text portions of this message have been removed]



________________________________________________________________________
________________________________________________________________________


OUR NEW OSTOMY AND J-POUCH CHATROOM IS AT http://www.bowelweb.com/chat.html

Active OSTOMY MESSAGE BOARDS - "The Bag & Bowel Club" are at www.crohnszone
co.uk

------------------------------------------------------------------------
Yahoo! Groups Links

To visit your group on the web, go to:
http://groups.yahoo.com/group/ileostomy/

To unsubscribe from this group, send an email to:
ileostomy-unsubscribe@yahoogroups.com

Your use of Yahoo! Groups is subject to:
http://docs.yahoo.com/info/terms/
------------------------------------------------------------------------





Walter Hall
tdevil333@...
http://www.geocities.com/MotorCity/Lane/4795

---------------------------------
Do you Yahoo!?
Protect your identity with Yahoo! Mail AddressGuard

[Non-text portions of this message have been removed]



________________________________________________________________________
________________________________________________________________________


OUR NEW OSTOMY AND J-POUCH CHATROOM IS AT http://www.bowelweb.com/chat.html

Active OSTOMY MESSAGE BOARDS - "The Bag & Bowel Club" are at www.crohnszone
co.uk

------------------------------------------------------------------------
Yahoo! Groups Links

To visit your group on the web, go to:
   http://groups.yahoo.com/group/ileostomy/

To unsubscribe from this group, send an email to:
   ileostomy-unsubscribe@yahoogroups.com

Your use of Yahoo! Groups is subject to:
   http://docs.yahoo.com/info/terms/
------------------------------------------------------------------------


[Non-text portions of this message have been removed]

Hello All, I would also like to wish everybody a Merry Christmas and a safe, and
happy New Year. I had my colon taken out July 2002, because it was severely
perforated form ulcerative colitis. I have learned to adapt to a new way of
life. I learned to take care of my stoma. The biggest fact I learned is that you
have to take Acidophilus to replace the flora that was in the colon, and that
you have to take an anti gas medicine to reduce gas. If you don't reduce the gas
you can blow your bag off and also suffer severe intestinal pain from trapped
gas. I learned this when I went to the doctor with severe intestinal pain. I am
glad that there are much needed support groups like this to rely on.


ileostomy@yahoogroups.com wrote: There is 1 message in this issue.

Topics in this digest:

1. MERRY CHRISTMAS!
From: "Kerry Piper"


________________________________________________________________________
________________________________________________________________________

Message: 1
Date: Mon, 22 Dec 2003 21:32:23 -0000
From: "Kerry Piper"
Subject: MERRY CHRISTMAS!

I would like to wish everyone a very Happy Christmas, and a prosperous new year
in 2004!

May next year be happy & healthy for you & your families.

Regards,

Kez
Group Owner


[Non-text portions of this message have been removed]



________________________________________________________________________
________________________________________________________________________


OUR NEW OSTOMY AND J-POUCH CHATROOM IS AT http://www.bowelweb.com/chat.html

Active OSTOMY MESSAGE BOARDS - "The Bag & Bowel Club" are at
www.crohnszone.co.uk

------------------------------------------------------------------------
Yahoo! Groups Links

To visit your group on the web, go to:
http://groups.yahoo.com/group/ileostomy/

To unsubscribe from this group, send an email to:
ileostomy-unsubscribe@yahoogroups.com

Your use of Yahoo! Groups is subject to:
http://docs.yahoo.com/info/terms/
------------------------------------------------------------------------





Walter Hall
tdevil333@...
http://www.geocities.com/MotorCity/Lane/4795

---------------------------------
Do you Yahoo!?
Protect your identity with Yahoo! Mail AddressGuard

[Non-text portions of this message have been removed]

I would like to wish everyone a very Happy Christmas, and a prosperous new year
in 2004!

May next year be happy & healthy for you & your families.

Regards,

Kez
Group Owner


[Non-text portions of this message have been removed]

Hi Becky,
      I don't post in the group much but, I wanted to let you know that I am
sorry for your troubles and what you had to go through the last few months.  I
have had twenty operations and know it is not easy.  You are in my thoughts and
prayers.  Sincerely,  Dawn P.S.  Have a Happy Holiday.

[Non-text portions of this message have been removed]

Our ostomy forum, the BAG & BOWEL CLUB is at :

http://www.bowelweb.com/index.php?name=PNphpBB2&file=viewforum&f=4&sid=22e6bae1a\
9e382343a86854b9833b3fb

Forum members discuss issues relating to having an ileostomy, colostomy or
j-pouch and bowel surgery. Please feel free to visit if you want a chat.

Although at Crohn's Zone, this forum is set up so that you can post without
having a membership at CZ.

**************Ostomy Chat Room*********************

http://www.bowelweb.com/chat

Ostomy chat every week on Thursday at 8pm GMT

Hi Crystal, it is nice to hear from you again.  I am glad that Marty's
appointment went well but, am sorry that you all will have to be away for
each other at this time because you are being evicted.  I hope it won't last
too long and that Marty and you will feel better and be re-united very soon.
   Have a nice Holiday too.  Sincerely,   Dawn

-------Original Message-------

From: ileostomy@yahoogroups.com
Date: Saturday, December 13, 2003 6:12:39 AM
To: ileostomy@yahoogroups.com
Subject: [The Ileostomy Group] Digest Number 263

------------------------ Yahoo! Groups Sponsor ---------------------~-->
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Printer at MyInks.com. Free s/h on orders $50 or more to the US & Canada.
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http://us.click.yahoo.com/mOAaAA/3exGAA/qnsNAA/V0SolB/TM
---------------------------------------------------------------------~->

OUR NEW OSTOMY AND J-POUCH CHATROOM IS AT http://www.bowelweb.com/chat.html

Active OSTOMY MESSAGE BOARDS - "The Bag & Bowel Club" are at www.crohnszone
co.uk
------------------------------------------------------------------------

There is 1 message in this issue.

Topics in this digest:

        1. The skinny on the surgery!
             From: Martin and Crystal Ordonez <mc-ca-ordonez@...>


________________________________________________________________________
________________________________________________________________________

Message: 1
     Date: Fri, 12 Dec 2003 21:22:41 -0800
     From: Martin and Crystal Ordonez <mc-ca-ordonez@...>
Subject: The skinny on the surgery!

Hey guys,

We went to see the GI docs today -- and FINALLY learned EXACTLY what they
did LOL. They took about a foot and a half of Martin's smal bowel, his
apendix and about three inches of colon. When the intestine heals (it
was stretched WAY out of shape!!) they will reattach the ends. The
Crohn's is no more --- for now. It is now time for "the wait" -- which
we all know can be 6 weeks, 6 years or 60 years - we are hoping for 160
years, personally, Marty will handle it better after he's been dead of
old age a couple of decades <G>. They will begin him on Remicade after
the reattachment as a preventitave measure.

Our fingers are crossed BIG TIME!!!!! Marty's recovery is way ahead of
schedule -- he surprised everyone!! We are hoping that the temporary
homless situation he is about to enter (because of the hospital stay and
all we are going to be evicted in about 8 days -- Marty is sending me and
Lapis down to LA County until the disability comes, then we can be
reunited) that he doesn't get some sort of relapse. As it is hehas a
cold, which ALWAYS turn into bronchitis (I am just now getting over it
myself). But I think he's strong enough to handle it alright.

Thanks for all of the support. Stanley (the Stoma) is working out just
fine, but we are looking forward to saying goodbye to him in 3 to 6
months. He is there now Marty needs him and when his job is done, he can
go. And if that day ever comes where Stanley has to return permanantly,
we are ready and can handle it. Lapis is fascinated with it and has
learned as much as we have -- including what stoma means in Greek and
everything. He's been GREAT!!! We are very proud of our little
man!!!!!!!

I willbe down in LA county for the holidays :-( -- and my ex (who I will
be staying with -- him and my daughter) has a broken modem. If I can get
him to buy a new one I can get back online -- if not -- HAPPY HOLIDAYS!!
   Whatever you practice!!

Pax, Crys
3rd gosling due May 11th, 2004 (Rose Abebi or Christopher Sabe)
Sodalis Familiaris (http://groups.yahoo.com/group/SodalisFamiliaris)
http://www.geocities.com/cas_the_author/sodalis/
The Online Temple of Juno http://www.geocities.com/cas_the_author/temple/


________________________________________________________________
The best thing to hit the internet in years - Juno SpeedBand!
Surf the web up to FIVE TIMES FASTER!
Only $14.95/ month - visit www.juno.com to sign up today!


________________________________________________________________________
________________________________________________________________________



Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/


[Non-text portions of this message have been removed]

Hi all,

I just wanted to let you know that I had my J Pouch made on 12/4 and
just returned home from the hospital on 12/17.  There were some
complications but it does seem that all is well now.  They hooked me
all up, so I did not wake-up with my ileostomy bag.  It has been a
rather weird adjustment for me even though I only had my bag 8
months.  I am still "looking" to empty my bag every time I go to the
bathroom :)  I have a long road ahead of me for recovery--I have to
go to the bathroom 20-30 times a day.  Needless to say, I have a
very sore bottom!  But,  the Dr. assures me it will slow down with
every day until I get to the normal 6-8 per day.

For now, I am just glad to be out of the hospital, especially this
time of year.  I will continue to lurk here and give advice if I
can.  I appreciate all of your excellent advice over the past 8
months.  God bless, Becky

Thank you for letting us know you will be offline for a while Crystal.  Good
luck in searching for housing.  I am sorry I have not been on for a while, I
have been a bit busy.  Sincerely,   Dawn

[Non-text portions of this message have been removed]

Hey guys,

I have gone digest on most of my groups.  IF you want to contact me, I am
available @

mc-ca-ordonez@...

Depending on how long I am without computer will determine if I just
start deleting digests when I get access again.  I will check from the
web before I go.

Thanks for the support where it was given.  It means more to me than I
can say properly.  Have a great holiday folks.

Pax, Crys
3rd gosling due May 11th, 2004 (Rose Abebi or Christopher Sabe)
Sodalis Familiaris (http://groups.yahoo.com/group/SodalisFamiliaris)
http://www.geocities.com/cas_the_author/sodalis/
The Online Temple of Juno http://www.geocities.com/cas_the_author/temple/


________________________________________________________________
The best thing to hit the internet in years - Juno SpeedBand!
Surf the web up to FIVE TIMES FASTER!
Only $14.95/ month - visit www.juno.com to sign up today!

Hey guys,

We went to see the GI docs today -- and FINALLY learned EXACTLY what they
did LOL.  They took about a foot and a half of Martin's smal bowel, his
apendix and about three inches of colon.  When the intestine heals (it
was stretched WAY out of shape!!) they will reattach the ends.  The
Crohn's is no more --- for now.  It is now time for "the wait" -- which
we all know can be 6 weeks, 6 years or 60 years - we are hoping for 160
years, personally, Marty will handle it better after he's been dead of
old age a couple of decades <G>.  They will begin him on Remicade after
the reattachment as a preventitave  measure.

Our fingers are crossed BIG TIME!!!!!  Marty's recovery is way ahead of
schedule -- he surprised everyone!!  We are hoping that the temporary
homless situation he is about to enter (because of the hospital stay and
all we are going to be evicted in about 8 days -- Marty is sending me and
Lapis down to LA County until the disability comes, then we can be
reunited) that he doesn't get some sort of relapse.  As it is hehas a
cold, which ALWAYS turn into bronchitis (I am just now getting over it
myself).  But I think he's strong enough to handle it alright.

Thanks for all of the support.  Stanley (the Stoma) is working out just
fine, but we are looking forward to saying goodbye to him in 3 to 6
months.  He is there now Marty needs him and when his job is done, he can
go.  And if that day ever comes where Stanley has to return permanantly,
we are ready and can handle it.  Lapis is fascinated with it and has
learned as much as we have -- including what stoma means in Greek and
everything.  He's been GREAT!!!  We are very proud of our little
man!!!!!!!

I willbe down in LA county for the holidays :-( -- and my ex (who I will
be staying with -- him and my daughter) has a broken modem.  If I can get
him to buy a new one I can get back online -- if not --  HAPPY HOLIDAYS!!
  Whatever you practice!!

Pax, Crys
3rd gosling due May 11th, 2004 (Rose Abebi or Christopher Sabe)
Sodalis Familiaris (http://groups.yahoo.com/group/SodalisFamiliaris)
http://www.geocities.com/cas_the_author/sodalis/
The Online Temple of Juno http://www.geocities.com/cas_the_author/temple/


________________________________________________________________
The best thing to hit the internet in years - Juno SpeedBand!
Surf the web up to FIVE TIMES FASTER!
Only $14.95/ month - visit www.juno.com to sign up today!

Thanks Dawn!!

My computer is fine, but Lapis (my son) and I are going to stay with my
ex come the weekend.  Marty will look for housing here and I will look
for it there.  Also it helps my daughter, who will need someone to take
care of her as her usual babysitter will be on extended vacation.  Then
we will move into our new home and can then rest and recoperate.

My ex's computer needs a new modem, and I don't know how long it will be
before I can get back online.


Pax, Crys
3rd gosling due May 11th, 2004 (Rose Abebi or Christopher Sabe)
Sodalis Familiaris (http://groups.yahoo.com/group/SodalisFamiliaris)
http://www.geocities.com/cas_the_author/sodalis/
The Online Temple of Juno http://www.geocities.com/cas_the_author/temple/

On Wed, 10 Dec 2003 10:01:47 -0500 (Eastern Standard Time) "Dawn"
<abbeytessawaldo@...> writes:
>Hi Crystal,
>     I am sorry it has taken me so long to get back in touch with you
>but, Christmas and this computer's problems, really has me pretty
>busy.   My computer is acting worse every single day.  Please know if
>you stop hearing from me that, I am trying to get back to you, the
>computer is just not cooperating.  Anyway, I hope that the medication
>helps you to feel better.  Marty sounds like such a wonderful person.
>I am so very sorry that his cousin did that to him and the rest of his
>"family."  He sounds like he has a nice family with you and your son
>though.  It would be great if the rest of them would treat him the way
>they should but it is nice that he has you.  I hope you are feeling
>better very soon.  Sincerely,  Dawn   P.S.  I understand about having
>enough of hospitals for a while.  :)
>
>[Non-text portions of this message have been removed]
>
>
>------------------------ Yahoo! Groups Sponsor
>
>OUR NEW OSTOMY AND J-POUCH CHATROOM IS AT
>http://www.bowelweb.com/chat.html
>
>Active OSTOMY MESSAGE BOARDS - "The Bag & Bowel Club" are at
>www.crohnszone.co.uk
>
>Your use of Yahoo! Groups is subject to
>http://docs.yahoo.com/info/terms/
>
>
>


________________________________________________________________
The best thing to hit the internet in years - Juno SpeedBand!
Surf the web up to FIVE TIMES FASTER!
Only $14.95/ month - visit www.juno.com to sign up today!

Hi Crystal,
      I am sorry it has taken me so long to get back in touch with you but,
Christmas and this computer's problems, really has me pretty busy.   My computer
is acting worse every single day.  Please know if you stop hearing from me that,
I am trying to get back to you, the computer is just not cooperating.  Anyway, I
hope that the medication helps you to feel better.  Marty sounds like such a
wonderful person.  I am so very sorry that his cousin did that to him and the
rest of his "family."  He sounds like he has a nice family with you and your son
though.  It would be great if the rest of them would treat him the way they
should but it is nice that he has you.  I hope you are feeling better very soon.
Sincerely,  Dawn   P.S.  I understand about having enough of hospitals for a
while.  :)

[Non-text portions of this message have been removed]

Thanks Dawn,

I went to the doctor myself to see how all the stress has effected the
baby.  I also had a "cold".  The cold turns out to be bronchitis.  Marty
is out getting MY medication now.  He says I never left his side except
to get stuff for HIM and now it's HIS turn to take care of me.  If I am
not careful I could get even sicker.  We've had enough hospitals to last
us some time, thanks.  And so I am "grounded" <G>.

He just found out a little more about his "family".  His cousin SWORE he
couldn't help us -- even though he owes marty 1200 dollars.  A friend
(one of the true ones) told Marty yesterday that this cousin won over
3,000 dollars gambling in Reno over the weekend!!!  And the cousin swears
he's broke!!!  That's about IT!!!  MArty is DONE with his family.  Even
his son, who SWORE he'd come to visit him over the weekend and didn't
show, didn't call, no smoke signals, no psychic messages, nothing!!!!!
The boy is 15 -- the least he could have done is call.  sigh  Mary is
VERY dissapointed!!!!

But we're together.  We've been having sort of a delayed reaction to
everything.  We have cried together.  Marty saying that if it weren't for
me he'd be dead on the floor -- his family not even thinking of him for
weeks or longer before they MAY get in touch.  Most of these people don't
even know marty and I got married!!!  Which is why when he needed the
emergency surgery he said he wouldn't go ANYWHERE without me and Lapis
there!!  And he didn't ask for anyone BUT me and Lapis, because WE are
the true faithful to him.  The ones who REALLY love him.  We are his
family.  Period.

Anyway, I am about ready to lay down again.


Pax, Crys
3rd gosling due May 11th, 2004 (Rose Abebi or Christopher Sabe)
Sodalis Familiaris (http://groups.yahoo.com/group/SodalisFamiliaris)
http://www.geocities.com/cas_the_author/sodalis/
The Online Temple of Juno http://www.geocities.com/cas_the_author/temple/

On Mon, 8 Dec 2003 16:08:32 -0500 (Eastern Standard Time) "Dawn"
<abbeytessawaldo@...> writes:
>Hi Crystal,
>     I am glad that Martin got to talk to the VA rep and I hope now he
>will get the help that he needs by the social worker.  I am also glad
>that you are able to be on some medication even though it means you
>are still sick. That is not good.  Please tell Martin that I am
>thinking of him.  I know how it feels to have your friends turn
>against you or not be able to be with you.  It really feels badly.
>Talk to you soon.  Hang in there.  It sounds like you all are doing a
>great job and are a great family.  Sincerely,   Dawn
>
>[Non-text portions of this message have been removed]
>
>
>------------------------ Yahoo! Groups Sponsor
>
>OUR NEW OSTOMY AND J-POUCH CHATROOM IS AT
>http://www.bowelweb.com/chat.html
>
>Active OSTOMY MESSAGE BOARDS - "The Bag & Bowel Club" are at
>www.crohnszone.co.uk
>
>Your use of Yahoo! Groups is subject to
>http://docs.yahoo.com/info/terms/
>
>
>


________________________________________________________________
The best thing to hit the internet in years - Juno SpeedBand!
Surf the web up to FIVE TIMES FASTER!
Only $14.95/ month - visit www.juno.com to sign up today!

Hi Crystal,
      I am glad that Martin got to talk to the VA rep and I hope now he will get
the help that he needs by the social worker.  I am also glad that you are able
to be on some medication even though it means you are still sick. That is not
good.  Please tell Martin that I am thinking of him.  I know how it feels to
have your friends turn against you or not be able to be with you.  It really
feels badly.  Talk to you soon.  Hang in there.  It sounds like you all are
doing a great job and are a great family.  Sincerely,   Dawn

[Non-text portions of this message have been removed]

NHS patients will be able to start looking at their own medical records on the
Internet within the next two years, the Department of Health has said.

Health Secretary John Reid announced that by 2010, every patient in England -
around 50 million people - would have an individual NHS Care Record as part of a
multi-billion pound IT deal.

Richard Granger, director general of NHS IT, said patients would start to feel
the benefits of the system well before then, with many being able to look at
their own records by 2005.

The 10-year contract, worth £620 million, to set up and run the NHS Care Records
Service has been awarded to BT.

Two further contracts - to provide systems to access and use the service and IT
support at a local level - have been awarded to BT in the London region and
Accenture in the North East.

Each of these 10-year contracts is worth around £1 billion, with further local
contracts to be awarded by the end of the year.

Health officials say the system will allow for the first time information about
patients to be mobile, meaning that professionals across a wide range of
organisations can access records which were previously kept in one place.

The national record will include a summary of all important information on a
patient from different health providers, such as GPs and hospitals, which will
be gathered from existing computer systems or paper records.

The DoH said that the complex system would connect more than 30,000 GPs and 270
acute, community and mental health NHS trusts.

Worries about confidentiality have also been looked at, with patients able
either to opt out of the service or ask that certain information be contained in
a "sealed envelope" so only those they want to see it have access.

08/12/2003 13:38



[Non-text portions of this message have been removed]

Mornin Dawn!!

Actually Martin got his retaining sutures removed and we got to talk
to the VA rep who told us we can do what we need to do in order to
survive until the bennies come through.  And so I contacted a social
worker I have been in contact with for a while and he will be
helping us.

As for my health -- I'm a happy medicated mama now LOL.  Still sick,
but I can't afford to really get the rest I need right now --
medicating is the next best thing, sigh.

Martin had a few more lessons from his family again.  It looks like
the "Circle of Friends" has gotten smaller and smaller.  But WE are
his family and a damn good one at that.

Pax,
Crys

--- In ileostomy@yahoogroups.com, "Dawn" <abbeytessawaldo@y...>
wrote:
> Hi Crystal,
>      I hope that you appointment went well yesterday.  I also hope
you feel better soon.  It is terrible when you don't feel well.
Things here have not been going well for me health wise since
August.  Talk to you soon.  Sincerely, Dawn P.S.  Yes, this is
another e-mail address. My computer is having issues now.
>
> [Non-text portions of this message have been removed]

Hi Crystal,
      I hope that you appointment went well yesterday.  I also hope you feel
better soon.  It is terrible when you don't feel well.  Things here have not
been going well for me health wise since August.  Talk to you soon.  Sincerely,
Dawn P.S.  Yes, this is another e-mail address. My computer is having issues
now.

[Non-text portions of this message have been removed]

Our ostomy forum, the BAG & BOWEL CLUB is at :

http://www.bowelweb.com/index.php?name=PNphpBB2&file=viewforum&f=4&sid=22e6bae1a\
9e382343a86854b9833b3fb

Forum members discuss issues relating to having an ileostomy, colostomy or
j-pouch and bowel surgery. Please feel free to visit if you want a chat.

Although at Crohn's Zone, this forum is set up so that you can post without
having a membership at CZ.

**************Ostomy Chat Room*********************

http://www.bowelweb.com/chat

Ostomy chat every week on Thursday at 8pm GMT

Thanks a lot.  We see the VA Rep in the morning.  To top it all off I am
coming down with something.


Pax, Crys
3rd gosling due May 11th, 2004 (Rose Abebi or Christopher Sabe)
Sodalis Familiaris (http://groups.yahoo.com/group/SodalisFamiliaris)
http://www.geocities.com/cas_the_author/sodalis/
The Online Temple of Juno http://www.geocities.com/cas_the_author/temple/

On 5 Dec 2003 12:17:43 -0000 ileostomy@yahoogroups.com writes:
>Hi Crystal,
>
>     I do pray and I will say a prayer that whatever is suppose to
>happen will for you, your husband and your little boy.  Good luck and
>I will miss talking to you while you are gone.
>
>Sincerely,  Dawn :)
>
>


________________________________________________________________
The best thing to hit the internet in years - Juno SpeedBand!
Surf the web up to FIVE TIMES FASTER!
Only $14.95/ month - visit www.juno.com to sign up today!

Hi JB,

      Well, it sound like you are already doing the very best job anyone could do
to be the best husband, Father and Friend.  You are doing just fine.  I don't
know much but, I do believe this, when the time comes to tell your son about
your bag, you will know when it is and you will handle everything just fine.

Hi Crystal,

      I do pray and I will say a prayer that whatever is suppose to happen will
for you, your husband and your little boy.  Good luck and I will miss talking to
you while you are gone.

Sincerely,  Dawn :)


---------------------------------
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[Non-text portions of this message have been removed]

Hello all,

Today is day 3 of our 3 day notice.  What follows then is a 5 day notice
that we would have to fight in court.  The VA disability hasn't come
through yet and we are rapidly running out of options.  I'm getting
pretty nervous and so is Marty.  It's 3:30am and neither of us is
sleeping.

I am going to go back to no-mail on all of my groups after I write and
send this.  I have added many of the addresses from my Juno account to
the web-based email address book.  I will try and keep everyone updated
on what happens.  I want to thank everyone for the moral support we've
gotten.  We WILL survive -- know this!!

What we are hoping for now is that Lagal Aid can tie this case up until
the VA money comes through.  The sad part seems to be that it's alright
to toss a disabled American Veteran, his pregnant wife and their 4.5 year
old out.  Legal Aid says we will almost certainly lose our case and wind
up homeless.  THAT I can live with.  Marty will be calling his godfather
in the morning and asking for storage space for the few things we REALY
want to keep if we can (computers, printer, CD's, books, clothes, one of
the TV's and a little of the furniture).  That way when we DO have the
housing we don't have to start over COMPLETELY.

I will try and keep in touch as best I can.  I didn't have time to
recharge my virtual calling card, but I have some money to buy one.  I'll
do that in the morning.  I will be contacting the social worker we've
been working with first thing and see what our options are now.
Basically we're going to be a bit too busy to reply to emails just now.

In trying to keep the positive thoughts going -- we are married now so if
we wind up in a shelter we will be together as a family!!  That's
important to me.  Marty can recover almost anywhere, technically.  We're
stressed, but we're strong.  Lapis is a resiliant kid.  As long as he has
us he'll be OK.  And we have support.

Whatever you do -- pray, light incense, meditate -- please do so for us
now.  Your god of choice doesn't matter to us -- I'm one who has always
believed that thinking of prayer is prayer itself.

I will try and check this email account when I can.  I will also have the
tungsten, but it may be easier to find a library with internet access
than a WiFi location.  If you email us at this address I will do all I
can to get back to you as soon as I can.



Pax, Crys
3rd gosling due May 11th, 2004 (Rose Abebi or Christopher Sabe)
Sodalis Familiaris (http://groups.yahoo.com/group/SodalisFamiliaris)
http://www.geocities.com/cas_the_author/sodalis/
The Online Temple of Juno http://www.geocities.com/cas_the_author/temple/


________________________________________________________________
The best thing to hit the internet in years - Juno SpeedBand!
Surf the web up to FIVE TIMES FASTER!
Only $14.95/ month - visit www.juno.com to sign up today!

Thanks Dawn!!!

We shall have to meet on a picket line someday LOL.  It would be
interesting to say the least LOL.  My editor loves controversy (he SWEARS
it's because he's a flaming fairy -- argueably yat another handicap LOL)
and would call everyone from ABC to the Weather Channel to come watch us
LOL.

A nurse in the hospital who was one of the most ignorant people I've ever
had the displeasure of meeting was suggesting to Martin that he stop his
whining.  We compared the pain of what he was going through to labor and
she immediately snapped "I've had 3 children, the pain isn't THAT bad."
Martin asked her when she'd been in labor for 4 months with no more than
an hour or two -- sometimes a whole day without giving birth.  Shut her
up quite nicely.  Well, Martin has had his cesarian <G>.  The BAD news??
Now I can't complain about MY 2 cesarians BUT have his complete sympathy
in May when our child is born by cesarian LOL.

I'll get GREAT Mother's Day presents from him now LOL


Pax, Crys
3rd gosling due May 11th, 2004 (Rose Abebi or Christopher Sabe)
Sodalis Familiaris (http://groups.yahoo.com/group/SodalisFamiliaris)
http://www.geocities.com/cas_the_author/sodalis/
The Online Temple of Juno http://www.geocities.com/cas_the_author/temple/

On Wed, 3 Dec 2003 17:18:26 -0800 (PST) Bifida affection
<abbeytessawaldo@...> writes:
>
>Hi Crystal,
>
>     You are very right, a lot of people in this world do not know how
>to treat people like us. It is terribly frustrating.  However, it is
>up to us, people who are in wheelchairs, to try to make people
>understand that we are just like everyone else because problems are
>all very relative and people will only see their own problems because
>that is all they know of.  They don't have any idea what others are
>going through just like I cannot possibly understand what it feels
>like to have a hurt foot because I cannot feel my feet.  You see, we
>are the ones that have to smile and try and show people that we can be
>good and kind and normal.  Anyway, it has been really nice getting to
>know you on here.  I wish you and your husband a lot of luck with all
>of these illeostomy issues.  Sincerely,  Dawn
>
>
>---------------------------------
>Do you Yahoo!?
>Free Pop-Up Blocker - Get it now
>
>[Non-text portions of this message have been removed]
>
>
>------------------------ Yahoo! Groups Sponsor
>
>OUR NEW OSTOMY AND J-POUCH CHATROOM IS AT
>http://www.bowelweb.com/chat.html
>
>Active OSTOMY MESSAGE BOARDS - "The Bag & Bowel Club" are at
>www.crohnszone.co.uk
>
>Your use of Yahoo! Groups is subject to
>http://docs.yahoo.com/info/terms/
>
>
>


________________________________________________________________
The best thing to hit the internet in years - Juno SpeedBand!
Surf the web up to FIVE TIMES FASTER!
Only $14.95/ month - visit www.juno.com to sign up today!

Hey JB

If the kids at my daughters school start teasing her because her parent's
are not Christian, should we convert?  What about when they tease her
because she is interracial -- having a white father and a black mother?
The children teased her because she calls me Mater and her father Pater
(Latin words for Mother and Father).  My ex-husband suggested the
teachers put an end to it before he got mad and hired an attorney.  The
ignorance of children can often be traced directly to their caretakers --
sometimes the parents and sometimes the day care workers and teachers.
It is not natural for children to be mean and tease -- that is,
unfortunately, a learned trait.

Because of being practioners of the Religio Romana and having a white
father and black mother my children face ridicule throughout life.  They
aren't the "right" race or the "right" religion.  My daughter is with her
father and has come to me because the kids teased her because of using
Pater.  I explained to her that some kids simply don't understand.  She
has also been teased for being schooled throughout life by me.

My son is homeschooled and so being teased by other kids at school isn't
much of an issue for us.  But he knows what happened to his "Dad".  Both
Dad and Pater have explained it to him as something wonderful.  If the
kids at school can't handle the fact that Dad poops in a bag then I would
actually feel sorry for these children and wonder seriously at their
parents.

You asked if it was unfair of you t set your son up "like that".  Again I
bring up more "usual" situations that parents can avoid in setting up
their children.  I could have been with a black man instead of loving a
white one in order to make my kids "fit in".  I could have converted to
Christianity to help my children "fit in".  I took a LOT of flack for not
having my son circumcised because "the kids might tease".  I could have
remained in a miserable relationship so my kids wouldn't be teased for
having a step-family.   The list goes on and on.

You haven't "set your son up" -- you saved your life.  My biological
mother died when I was young and the children tease about THAT as well --
and it hurts MUCH worse than almost any other teasing the kids could do.
Perhaps you can offer your son replies to the kids teasing.  The kids
will say "Your Dad poops in a bag.  How GROSS!" and your son could say.
"It's better than having him dead I think."  Four isn't too young to
explain what happened to Dad.  Words like resection and ileostomy may be
a bit much depending on the child, but coming from an interracial pagan
whose alcoholic mother drank herself to death there are worse lessons for
the kid to learn.  He COULD be forced to endure the insensitive little
monsters asking him about the funeral.

If he has self-esteem now then it shouldn't be effected by stupid
ignorant classmates.  I don't know if there is one, but I would LOVE to
see the children being able to communicate just like we adults do.  Does
your son write little notes?  My son is working on his drawing --
actually he's a far better typist.  If the kids at school aren't too
bright might I suggest a peer for him?  It's a silly little Pagan
interracial boy who speaks a dozen Latin words and would fit into school
like a square peg in a round hole.  But his step-father ALSO poops in a
bag.  And considering Lapis isn't taking to pooping in the potty -- I
think Lapis is even a little jealous <VBG>.

Lapis has an email address with Juno.  I like it because it disallows
attachments (this old version anyway) of any sort.  Right now our entire
home situation is a bit up in the air, so I don't know if a snail mail
address would be the best idea.  I dn't want to confuse anyone by having
the email addy changing and changing.  My son and yours have at least ONE
thing in common.  Alliances have been forged with less, eh?


Pax, Crys
3rd gosling due May 11th, 2004 (Rose Abebi or Christopher Sabe)
Sodalis Familiaris (http://groups.yahoo.com/group/SodalisFamiliaris)
http://www.geocities.com/cas_the_author/sodalis/
The Online Temple of Juno http://www.geocities.com/cas_the_author/temple/

On Tue, 02 Dec 2003 16:27:21 -0000 "Joe" <jb+lb@...> writes:
>Thanks to all who have replied ... both on this site and directly to
>me at home ... you have given me much to think about.
>
>Typically we treat our son like a young adult too.  I have learned
>that he will absorb all that he is capable of and ignore the rest so
>you can rarely tell him too much.  My biggest concern is the other
>kids at school and the daycare.  As we all know, kids can be cruel
>and at his age he hasn't completely learned this yet.  I'm not
>ashamed of the bag and he shouldn't be either, but if the other kids
>start teasing him about the fact that his Dad poops in a bag and he
>becomes alienated because of it, have I done him any favors?  Or is
>it unfair of me to set him up like that?  Unfortunately at 4 1/2 he
>doesn't know how to keep a secret no matter how much you tell him
>to.  Another year will make a big difference in this respect, but
>until then I worry about how being teased may affect his confidence
>and self-esteem.
>
>As for me, I don't care who knows.  I have been through so much over
>the years that "vanity" is just a fancy word for that thing in the
>bathroom.  I joke with my doctors all the time that I think that the
>people that donate their bodies to science after they die miss out
>on all the fun...that it should be an interactive process and that's
>the way I'm treating it.  My primary goals in life are to be the
>best Husband I can be; be the best Dad that I can be; be the best
>brother and friend that I can be; and to give back all I can to my
>community.  The fact that I now have a bag can't and won't change
>any of that so why get hung up on it?  It's just another lifestyle
>change to add to the list.  No big deal.
>
>Thanks again.
>
>JB
>
>
>------------------------ Yahoo! Groups Sponsor
>
>OUR NEW OSTOMY AND J-POUCH CHATROOM IS AT
>http://www.bowelweb.com/chat.html
>
>Active OSTOMY MESSAGE BOARDS - "The Bag & Bowel Club" are at
>www.crohnszone.co.uk
>
>Your use of Yahoo! Groups is subject to
>http://docs.yahoo.com/info/terms/
>
>
>


________________________________________________________________
The best thing to hit the internet in years - Juno SpeedBand!
Surf the web up to FIVE TIMES FASTER!
Only $14.95/ month - visit www.juno.com to sign up today!

Hi Crystal,

      You are very right, a lot of people in this world do not know how to treat
people like us. It is terribly frustrating.  However, it is up to us, people who
are in wheelchairs, to try to make people understand that we are just like
everyone else because problems are all very relative and people will only see
their own problems because that is all they know of.  They don't have any idea
what others are going through just like I cannot possibly understand what it
feels like to have a hurt foot because I cannot feel my feet.  You see, we are
the ones that have to smile and try and show people that we can be good and kind
and normal.  Anyway, it has been really nice getting to know you on here.  I
wish you and your husband a lot of luck with all of these illeostomy issues. 
Sincerely,  Dawn


---------------------------------
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[Non-text portions of this message have been removed]