Our ostomy forum, the BAG & BOWEL CLUB is at :

http://www.bowelweb.com/index.php?name=PNphpBB2&file=viewforum&f=4

Forum members discuss issues relating to having an ileostomy, colostomy or
j-pouch and bowel surgery. Please feel free to visit if you want a chat.

NB- You do need membership to post in this forum, but membership is free and
it's very quick to sign up.

**************Ostomy Chat Room*********************

http://www.bowelweb.com/chat/flashchat.php

Sundays at 8.30pm BST General Knowledge Quiz

Tara if your worried don't take there we will see in a month thing call and
see you up your appointment to see your surgeon. That way you put your mind
at ease.  Never take a doctors word at face value do what you feel is right.
Diana

-------Original Message-------

From: Tara
Date: 06/29/2006 06:56:42 PM
To: ileostomy@yahoogroups.com
Subject: [The Ileostomy Group] rectal mass

Has anyone had a rectal mass after their ileostomy was done? It's been
7 weeks since my surgery and yesterday during my annual pelvic exam my
doc discovered a rectal mass and told me I needed to call my surgeon.
My surgeon said she wasnt worried about it because i recently had a CT
scan and a mass would of showed up on it. My surgeon said she will
check it out in a month. I am just a little worried about it.

Tara





The Ileostomy Group is part of Crohn's Zone IBD Network at www.crohnszone
org

|Ostomy Forum: http://www.crohnszone.org/index
php?name=PNphpBB2&file=viewforum&f=4

|Ostomy Chat: http://www.bowelweb.com/chat.html
Yahoo! Groups Links







[Non-text portions of this message have been removed]

Has anyone had a rectal mass after their ileostomy was done? It's been
7 weeks since my surgery and yesterday during my annual pelvic exam my
doc discovered a rectal mass and told me I needed to call my surgeon.
My surgeon said she wasnt worried about it because i recently had a CT
scan and a mass would of showed up on it. My surgeon said she will
check it out in a month. I am just a little worried about it.

Tara

Hi Ben,
I'm sure you'll get lots of responses. I had my total
proctocolectomy w/ileostomy (no chance of reversal) in
Jan '05. It saved my life. It saved my quality of
life. I know it is difficult at first, and scary, but
you can do anything and everything with the bag. My
life is much more full and rich now than when I was
sick with UC. You are only limited at first by the
healing time (which varies depending on the surgery),
and by your own fears. Find a nice snug pair of
underwear (it is essential that you wear something
that holds the bag close, but that will expand and not
be too restrictive), tuck your bag in, and go! It
really is that easy once you have accepted it. You can
run, swim, bike, hike, dive, anything you care to do.
Best of luck. And check out the UOAA message boards.
They are also a great source of help and comfort for
those with new (and old) ostomies.
Jennifer

--- nadnock <nadnock@...> wrote:

> WEll, I guess I am like everyone else here looking
> for answers during
> a difficult time.  I just had my surgery and my life
> has now turned
> upside down.  Crystal, I agree with everything you
> had to say.  I used
> to run, bike, swim, all the good summer stuff.  Now
> I feel like I
> won't be able to do any of that for a year until the
> reversal.  I
> basically feel like my life has been put on hold for
> the next year,
> how can one really function normally with this
> bag?????
>
> I'm aggravated and scared.  If anyone has any
> advice, my ears are
> open.  Thank yall,
>
> Ben
>
>
>
>


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

Please understand it takes 6 -8 weeks just for the cut muscles in
the abdomen to heal. That gives you time to get used to the pouch
and figuring out what foods to SLOWLY add back into your meals (I
can now eat almost everything except blueberries and nuts). Remember
to chew thoroughly and drink lots of water!

I've had my complete colectomy (colon, anus and rectum removed) for
2.5 years and I thank the heavens every day for my pouch. There is
no reversal available for me. There could be an internal pouch,
someday, known as an IBCR procedure.

  I was well informed about what to expect with my surgery and after.
I was sick for a long time (5 years) prior to surgery. I was able to
locate a local chapter of the Ostomy Association and was in touch
with the ostomy wound care staff at the local hospital prior to
surgery. I also used the internet as a source for information. So
there were very few surprises after surgery.

I'm a 52 year old woman who wears a pouch.  I swim both in the ocean
and a public pool, I have been on cruises, go dancing, speak at
professional organization conferences, go on roller coasters, ride
horses and motorcycles, have taken air plane trips and have even
been in a hot air balloon. I'm now the secretary of that local
ostomy association. I know people who have just had their surgeries
and others who have worn a pouch for over 35 years.

I do more wearing the pouch than I did while I was sick. I no longer
have to know where every bathroom is between my house and where I'm
going. I no longer have to carry a spare set of clothes and extra
underwear. My life has never been more active.

I will admit, that immediately after my surgery I was depressed. I
cried.. a lot. I discovered my body morned for the missing organs, I
had to grieve. That lasted about 2-2.5 weeks. However, as the body
healed and I was able to eat more nutritionally, those feelings of
depression began to subside. As I was able to get back into my
regular routine and add more activities the feelings further went
away. I started to celebrate being alive rather than moan and groan
about being sick.

So I hope you, and every one else cursing their pouch will soon
begin to see that there really is life after surgery. Rather than
cursing the pouch, embrace it as the life saver it really is. Then
also wonder in how remarkable the human body is...take away a major
organ that is used in food processing and digestion and discover how
the other organs take over the process.

Just remember chew, chew chew and lots and lots of water.

Celebrating being alive each and every day,

Chris, in Sunny Florida


--- In ileostomy@yahoogroups.com, "nadnock" <nadnock@...> wrote:
>
> WEll, I guess I am like everyone else here looking for answers
during
> a difficult time.  I just had my surgery and my life has now
turned
> upside down.  Crystal, I agree with everything you had to say.  I
used
> to run, bike, swim, all the good summer stuff.  Now I feel like I
> won't be able to do any of that for a year until the reversal.  I
> basically feel like my life has been put on hold for the next
year,
> how can one really function normally with this bag?????
>
> I'm aggravated and scared.  If anyone has any advice, my ears are
> open.  Thank yall,
>
> Ben
>

WEll, I guess I am like everyone else here looking for answers during
a difficult time.  I just had my surgery and my life has now turned
upside down.  Crystal, I agree with everything you had to say.  I used
to run, bike, swim, all the good summer stuff.  Now I feel like I
won't be able to do any of that for a year until the reversal.  I
basically feel like my life has been put on hold for the next year,
how can one really function normally with this bag?????

I'm aggravated and scared.  If anyone has any advice, my ears are
open.  Thank yall,

Ben

hi just thought i would tell you about the coloplast bag  i use its called
inspire seal and has a charcoal filter and it is excellent i have no problems
with it at all.i would recommend it everyone if they can get it
>-- Original Message --
>To: <ileostomy@yahoogroups.com>
>From: "denimruth" <denimruth4519@...>
>Date: Sat, 17 Jun 2006 13:59:16 -0400 (Eastern Daylight Time)
>Subject: Re: [The Ileostomy Group] Re: bags
>Reply-To: ileostomy@yahoogroups.com
>
>
>You know, Kim x, it's funny that you should mention waking up in the morning
>with a lot of gas in your pouch (bag). It depends on what I eat the evening
>before.
>
>I notice if I have anything real sugary (I love 'Lucky Charms' cereal with
>all those minature marshmellows in them) in the evening my pouch blows up
>like a balloon by morning. If I have a meal of broasted chicken, mashed
>potatoes, and vegetables, I don't seem to have that problem...unless I eat
>gas-producing foods like cabbage, etc.
>
>I'm glad that you mentioned that you have a filter and that it works for
>you
> I was always going to try one but I figured when you laid down on the bed,
>at night, any liquid in the pouch would back up to the top of your pouch
>where the filter is. Evidently, that is not always the case. Thanks for
>sharing with us.
>
>
>
>-------Original Message-------
>
>From: kim
>Date: 06/17/06 11:49:19
>To: ileostomy@yahoogroups.com
>Subject: [The Ileostomy Group] Re: bags
>
>Hi Tara
>I use the coloplast assura inspire 2 piece system, the bag has a
>filter. Don't get me wrong i do get the odd blow up, usually first
>thing in the morning after a nights sleep. They do work for me during
>the day though. The idea of a filtered bag not working, comes from the
>ileostomist having a more liquid output but to be honest this has
>never been a problem for me. Why don't you ask coloplast for a sample
>and see how they work for you?
>
>Take care
>
>Kim x
>
>
>
>
>
>[Non-text portions of this message have been removed]
>


___________________________________________________________

Tiscali Broadband from 14.99 with free setup!
http://www.tiscali.co.uk/products/broadband/

Hey all,

Not to sound gross, but odour more or less depends on what I eat. Most
of the time, I don't notice too much of a smell from the output, except
when I eat certain foods (seafood, and oddly enough Italian food).
Right now, I use a few drops of Hollister M9 in my pouch every morning
and evening, and that seems to take care of things. I used to use
Coloplast Ostomy Appliance Deodorant, but it seems to have been
discontinued by my supplier and I haven't been able to get it recently.
But if you can find that one, it works well too. It's got a mild citrus
scent that masks anything coming from the bag.

Sarah


--- In ileostomy@yahoogroups.com, "kim" <bag_lady20022002@...> wrote:
>
> Hi All
>
> Just to carry on from Dyl, I totally agree about the smell from the
> pouch. It may sound strange but i think it actually smells less than
> what is 'normal'. Many of you probably use the tip of adding a little
> baby or vegetable oil into the pouch, this helps with emptying the
> contents ( i used to struggle with this at first, output has always
> been thickish) and if using baby oil with any odour. It never hurts
to
> repeat things that others may find useful does it? lol
>
> Take care
>
> Kim x
>

hi there crystal
i know what your going thru i know i felt the same way
after i had my surgery too. but look foward to getting
to normal its seems longs but its going to better and
it ok to be upset its a life changing thing. im just a
little older then you but i know you will be ok. you
seem strong. soon you can get back to going out and
having fun again and when you do have a drink for me
if can. well i smile cuz your beautiful and always
will.
--- moffattgurl128 <TotallyxStellar@...> wrote:

> Hey everyone,
> I was looking for a group like this because I need
> to vent about
> everything sometimes and I feel like nobody else
> gets it.  I've had
> my ileostomy since May 20th and HOPEFULLY am getting
> the reverse
> surgery in about 5 weeks.  I know some of you have
> had them for
> years or are going to and I feel bad complaining
> about it, but it's
> totally turned my world upsidedown.  I feel like I
> can't do anything
> anymore.  Not only do I have this bag,  I have an
> open incision
> right next to it that's about 2 inches wide, 3
> inches long and about
> 1/2 inch deep.  I had 2 surgeries last month and
> about 3 feet of my
> colon removed as well as my galbladder.  Also, I'm
> 22, so I go from
> being a girl who goes out and parties/goes to clubs,
> shops, goes to
> the gym everyday, being a runner, dancer, to hardly
> being able to
> walk a mile.  I get so winded just walking down my
> street.  I hate
> this so much.  Plus everytime I empty this bag it
> makes me gag.  I
> can't sleep at night, I sleep anywhere from an hour
> to 3 hours at a
> time.  It sucks.  Sorry for this long rant, I just
> thought some of
> you would be able to give me some advice on how to
> get through
> this.  Also, is anyone else my age on here?  Thanks
> for listening!
> Crystal
>
>
>
>
>


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

Crystal,

When I first got my ostomy, I had a lot of trouble with leaks,
especially overnight, but thankfully they are rare for me now. Some
of it is trial and error, figuring out how to apply the pouch or the
exact angle. Here are a few tips that might help:

- If you can help it, try applying a new system when your output is
lightest; if you apply a new system when you're outputting heavily,
there's more of a chance you'll leak.
- If you use something like Stomahesive paste, try applying the
thinnest layer possible. I found that initially, I was applying the
paste too thickly, and it never really dried properly, rather it
stayed gummy and the barrier was more apt to lift up as a result and
leak underneath. When I started applying the paste thinly, it stuck
much better.
- After you've applied the barrier, run a hair dryer on a low setting
over the barrier for about 30 seconds. This helps the adhesive really
stick to your skin.
- I find that keeping my belly flat (ie. staying laying down or
standing up) for the first 30 minutes after applying a new pouch
tends to help it stick better. I've discovered that if I sit down too
soon after applying the pouch, it creates folds or creases on the
barrier and it might not stick in those spots as a result.

Hope that helps! Believe me, it was a nightmare for me in the
beginning too. I went through so many system changes, leaks, and
sleepless nights, but it all comes down to finding a method that
works best for you.

Good luck!

Sarah

--- In ileostomy@yahoogroups.com, "moffattgurl128"
<TotallyxStellar@...> wrote:
>
> Hey!  Well I will see what I can do.  I'm happy for you that the
> ileostomy was a positive thing in your life.  See, I've never had
> any problems until about a year ago.  So this is much more of a
> burden than a good thing.  The only problem I had was a lot of
> stomach pain, I never had problems going to the bathroom.  But this
> time it was worse than any other time, hence the surgery.  It got
to
> the point where I couldn't move, eat, or even drink water.  My
> stomach was bloated out like a basketball.  It was horrible.  But,
I
> am having a lot of issues with this whole situation right now.  I
> hate not being able to enjoy myself because I'm ALWAYS thinking
> about the bag, and it gets too heavy and it hurts.  Even though I
> clean it out like every 2 hours.  It sucks.  Plus it leaks a LOT
and
> I've had to get my family up in the middle of the night a few times
> to help me clean up and put a new bag on.  But anyway, thanks for
> the advice
> Crystal
>
> --- In ileostomy@yahoogroups.com, "denimruth" <denimruth4519@>
> wrote:
> >
> > Hi Crystal!
> >
> > I used to kneel in front of the toilet and empty the pouch into
it.
> >
> > The majority of the years that I've had my ileostomy (a little
> over 26
> > years) I sit kind of side saddle on the toilet seat and empty my
> pouch (bag)
> > into the toilet that way. It's hard to explain without giving you
a
> > demonstration, I know.  LOL  I sit on the edge of the right hand
> side of the
> > toilet seat and empty my pouch over the bowl. Just experiment a
> little, you
> > ll get the hang of it. [warm smile]
> >
> > Lots of books on ostomies are out there to help, plus local
> support groups
> > and a national one where you can get a magazine with membership.
> They used
> > to have enterstomal therapists and stoma nurses 'back in the
day.'
> Check
> > with the hospital (either yours or one reasonably close to you-if
> there is
> > one) and see if they have one 'on staff.' They are very helpful
and
> > supportive.
> >
> > Look on the Internet and call your local hospital or check with
> your general
> > doctor or surgeon to see if they know of local ostomy support
> groups in your
> > area.
> >
> > Gotta run, but I'll come back and talk more later. Just a quick
> bio: I had
> > ulcerative colitis for 19 years. I was diagnosed at 13 years old.
> What a
> > wonderful relief to get my life back (literally and figuratively)
> by having
> > an ileostomy. I had my ileostomy done to save my life (I was a
> week away
> > from death) when I was 32 years old. Wow! What a difference in my
> lifestyle
> > after surgery. No more pain, no more scouting out bathrooms at
the
> mall, no
> > more having to go to the bathroom (as a child) just when dinner
> was ready
> > (the family wasn't too happy about that), and many many other
> trials when I
> > was sick ... After my ileostomy I was Finally FREE.  More later,
> I'm
> > starting to write a book, here.  LOL
> >
> > -------Original Message-------
> >
> > From: moffattgurl128
> > Date: 06/16/06 22:08:07
> > To: ileostomy@yahoogroups.com
> > Subject: Re: [The Ileostomy Group] Newbie here
> >
> > I'm sorry that your son is going through that. That must be hard
> on
> > you. Thanks for your kind words though. I guess I'll just have to
> > rough it out for the next 5 weeks. I guess I just find it easier
> to
> > unload it in the toilet, even if the smell is gross. I'm still
> > having issues doing it in a public bathroom though. Yuck. Anyone
> > have any solutions to do it in a public bathroom w/out drawing
too
> > much attention to yourself? I'm so new to this and have so many
> > questions. Thanks again
> > Crystal
> >
> > --- In ileostomy@yahoogroups.com, Portia Akers <a1cwalterz@>
> > wrote:
> > >
> > > Crystal,
> > >
> > > I am 26 I don't have an ostomy but my 20 month old son does. I
> > can only imagine how you feel. I might have some advice for you
> for
> > the gag though since I am pregnant again the smell kills me. I
> have
> > found that if I empty my sons bag into a foley bag instead of
into
> a
> > cup or the toilet I can just throw the foley bag into the garbage
> > and not have to smell it. After my sons surgery he couldn't move
> at
> > all, and I know it isn't a very good comparison but now he is
> mobile
> > and while he is not walking I am confident it is not because of
> the
> > ostomy, if anything his mobility gets us in trouble because he
> pulls
> > at the bag or in teething tried to chew on the spout. Anyhow I
can
> > take a pic of how his bag is setup that I don't smell it, maybe
> that
> > would help you. Also there are some nice covers out there
> > that "hide" your stoma. I know it isn't what you want to hear but
> it
> > is not the end of the world and I promise that if anyone was
> turned
> > away or thought less of you because of your
> > > ostomy does not deserve to be your friend!
> > >
> > > Portia
> > >
> > > moffattgurl128 <TotallyxStellar@> wrote:
> > > Hey everyone,
> > > I was looking for a group like this because I need to vent
about
> > > everything sometimes and I feel like nobody else gets it. I've
> had
> > > my ileostomy since May 20th and HOPEFULLY am getting the
reverse
> > > surgery in about 5 weeks. I know some of you have had them for
> > > years or are going to and I feel bad complaining about it, but
> > it's
> > > totally turned my world upsidedown. I feel like I can't do
> > anything
> > > anymore. Not only do I have this bag, I have an open incision
> > > right next to it that's about 2 inches wide, 3 inches long and
> > about
> > > 1/2 inch deep. I had 2 surgeries last month and about 3 feet of
> my
> > > colon removed as well as my galbladder. Also, I'm 22, so I go
> from
> > > being a girl who goes out and parties/goes to clubs, shops,
goes
> > to
> > > the gym everyday, being a runner, dancer, to hardly being able
> to
> > > walk a mile. I get so winded just walking down my street. I
hate
> > > this so much. Plus everytime I empty this bag it makes me gag.
I
> > > can't sleep at night, I sleep anywhere from an hour to 3 hours
> at
> > a
> > > time. It sucks. Sorry for this long rant, I just thought some
of
> > > you would be able to give me some advice on how to get through
> > > this. Also, is anyone else my age on here? Thanks for listening!
> > > Crystal
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > __________________________________________________
> > > Do You Yahoo!?
> > > Tired of spam? Yahoo! Mail has the best spam protection around
> > > http://mail.yahoo.com
> > >
> > > [Non-text portions of this message have been removed]
> > >
> >
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>

to everyone ty all so much i know that i dont come on much but when i
do it helps so much. it nice to know that so many of you all care and
help when asked. i know that i have gotten much needed help and comfort
frm all and i just needed to say thank you everyone.

Crystal I was in the same position you are now. In November I thought I had
a kidney infection and when the fever was out of control finally went to the
emergency room where I found out I had a perforated colon. I have a complete
ileostomy, however they left my stump because is was healthy and someday I
could  possibly be reconnected. All I can say is that it will get better. Once
you find  a pouch system that works, its a new lease on life. The bad news is it
takes  about a few months. At one point I wouldn't leave my house to even go
to the  grocery store, but I sat down, had a good cry (got some happy pills
from my  doctor, lol) and moved on. It is such a small part of your wonderful
life, and  yes it is a pain sometimes, but so is being sick.
There are many people who have reversals and months later ask to have the
"bag" back. How I look at it either way you are going to the bathroom every 2
hours, and with a "bag" no more sitting on public toilets.lol As far as
clothing...I wear a cami under my summer shirts (I got that off of my teenager, 
why
they wear 15 shirts at one time is beyond me.) It works great, you don't
have to wear a bra and keeps everything flat down there.
Hope this helps
Kim


[Non-text portions of this message have been removed]

Chris my son had a takedown in July of last year he was only 10 months old at
the time. The only real problem we had was that his tender butt had never had
poop touch it before so we had lots of rash problems. We do have another
ileostomy, though not because of the takedown. After his transplant he was given
another loop ileo so that they could do biospies of his bowel as frequently as
necessary to watch for signs of rejection of his newly gifted bowel. Hope this
helps :) Glad you could join our group!

   Portia

Chris Mortimer <ooratboy@...> wrote:
           Hi everyone, Im new to this group. Im 24 years old and have an
ileostomy as a result from surgery for a rare illness called
pseudomyxoma peritonei, which is basically cancer of the appendix.

I am due to have the ileostomy reversed soon, Im very excited about
this and can not wait for it to be gone.I was wondering if anyone in
this group has had an ileostomy reversal? and if they have had any bad
experiences with this surgery?

Chris









---------------------------------
Do you Yahoo!?
  Get on board. You're invited to try the new Yahoo! Mail Beta.

[Non-text portions of this message have been removed]

Hi everyone, Im new to this group. Im 24 years old and have an
ileostomy as a result from surgery for a rare illness called
pseudomyxoma peritonei, which is basically cancer of the appendix.

I am due to have the ileostomy reversed soon, Im very excited about
this and can not wait for it to be gone.I was wondering if anyone in
this group has had an ileostomy reversal? and if they have had any bad
experiences with this surgery?


Chris

Hey!  Well I will see what I can do.  I'm happy for you that the
ileostomy was a positive thing in your life.  See, I've never had
any problems until about a year ago.  So this is much more of a
burden than a good thing.  The only problem I had was a lot of
stomach pain, I never had problems going to the bathroom.  But this
time it was worse than any other time, hence the surgery.  It got to
the point where I couldn't move, eat, or even drink water.  My
stomach was bloated out like a basketball.  It was horrible.  But, I
am having a lot of issues with this whole situation right now.  I
hate not being able to enjoy myself because I'm ALWAYS thinking
about the bag, and it gets too heavy and it hurts.  Even though I
clean it out like every 2 hours.  It sucks.  Plus it leaks a LOT and
I've had to get my family up in the middle of the night a few times
to help me clean up and put a new bag on.  But anyway, thanks for
the advice
Crystal

--- In ileostomy@yahoogroups.com, "denimruth" <denimruth4519@...>
wrote:
>
> Hi Crystal!
>
> I used to kneel in front of the toilet and empty the pouch into it.
>
> The majority of the years that I've had my ileostomy (a little
over 26
> years) I sit kind of side saddle on the toilet seat and empty my
pouch (bag)
> into the toilet that way. It's hard to explain without giving you a
> demonstration, I know.  LOL  I sit on the edge of the right hand
side of the
> toilet seat and empty my pouch over the bowl. Just experiment a
little, you
> ll get the hang of it. [warm smile]
>
> Lots of books on ostomies are out there to help, plus local
support groups
> and a national one where you can get a magazine with membership.
They used
> to have enterstomal therapists and stoma nurses 'back in the day.'
Check
> with the hospital (either yours or one reasonably close to you-if
there is
> one) and see if they have one 'on staff.' They are very helpful and
> supportive.
>
> Look on the Internet and call your local hospital or check with
your general
> doctor or surgeon to see if they know of local ostomy support
groups in your
> area.
>
> Gotta run, but I'll come back and talk more later. Just a quick
bio: I had
> ulcerative colitis for 19 years. I was diagnosed at 13 years old.
What a
> wonderful relief to get my life back (literally and figuratively)
by having
> an ileostomy. I had my ileostomy done to save my life (I was a
week away
> from death) when I was 32 years old. Wow! What a difference in my
lifestyle
> after surgery. No more pain, no more scouting out bathrooms at the
mall, no
> more having to go to the bathroom (as a child) just when dinner
was ready
> (the family wasn't too happy about that), and many many other
trials when I
> was sick ... After my ileostomy I was Finally FREE.  More later,
I'm
> starting to write a book, here.  LOL
>
> -------Original Message-------
>
> From: moffattgurl128
> Date: 06/16/06 22:08:07
> To: ileostomy@yahoogroups.com
> Subject: Re: [The Ileostomy Group] Newbie here
>
> I'm sorry that your son is going through that. That must be hard
on
> you. Thanks for your kind words though. I guess I'll just have to
> rough it out for the next 5 weeks. I guess I just find it easier
to
> unload it in the toilet, even if the smell is gross. I'm still
> having issues doing it in a public bathroom though. Yuck. Anyone
> have any solutions to do it in a public bathroom w/out drawing too
> much attention to yourself? I'm so new to this and have so many
> questions. Thanks again
> Crystal
>
> --- In ileostomy@yahoogroups.com, Portia Akers <a1cwalterz@>
> wrote:
> >
> > Crystal,
> >
> > I am 26 I don't have an ostomy but my 20 month old son does. I
> can only imagine how you feel. I might have some advice for you
for
> the gag though since I am pregnant again the smell kills me. I
have
> found that if I empty my sons bag into a foley bag instead of into
a
> cup or the toilet I can just throw the foley bag into the garbage
> and not have to smell it. After my sons surgery he couldn't move
at
> all, and I know it isn't a very good comparison but now he is
mobile
> and while he is not walking I am confident it is not because of
the
> ostomy, if anything his mobility gets us in trouble because he
pulls
> at the bag or in teething tried to chew on the spout. Anyhow I can
> take a pic of how his bag is setup that I don't smell it, maybe
that
> would help you. Also there are some nice covers out there
> that "hide" your stoma. I know it isn't what you want to hear but
it
> is not the end of the world and I promise that if anyone was
turned
> away or thought less of you because of your
> > ostomy does not deserve to be your friend!
> >
> > Portia
> >
> > moffattgurl128 <TotallyxStellar@> wrote:
> > Hey everyone,
> > I was looking for a group like this because I need to vent about
> > everything sometimes and I feel like nobody else gets it. I've
had
> > my ileostomy since May 20th and HOPEFULLY am getting the reverse
> > surgery in about 5 weeks. I know some of you have had them for
> > years or are going to and I feel bad complaining about it, but
> it's
> > totally turned my world upsidedown. I feel like I can't do
> anything
> > anymore. Not only do I have this bag, I have an open incision
> > right next to it that's about 2 inches wide, 3 inches long and
> about
> > 1/2 inch deep. I had 2 surgeries last month and about 3 feet of
my
> > colon removed as well as my galbladder. Also, I'm 22, so I go
from
> > being a girl who goes out and parties/goes to clubs, shops, goes
> to
> > the gym everyday, being a runner, dancer, to hardly being able
to
> > walk a mile. I get so winded just walking down my street. I hate
> > this so much. Plus everytime I empty this bag it makes me gag. I
> > can't sleep at night, I sleep anywhere from an hour to 3 hours
at
> a
> > time. It sucks. Sorry for this long rant, I just thought some of
> > you would be able to give me some advice on how to get through
> > this. Also, is anyone else my age on here? Thanks for listening!
> > Crystal
> >
> >
> >
> >
> >
> >
> >
> >
> > __________________________________________________
> > Do You Yahoo!?
> > Tired of spam? Yahoo! Mail has the best spam protection around
> > http://mail.yahoo.com
> >
> > [Non-text portions of this message have been removed]
> >
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

Yeah the problem with that is that I'm going to a concert in 2 weeks
and they're really strict on what you bring in with you.  I don't
even know if they'll let me bring my bottle in with me.  I hope it's
not too much of a problem.  That would probably work in other
situations though, thanks.
Crystal

--- In ileostomy@yahoogroups.com, Portia Akers <a1cwalterz@...>
wrote:
>
> No need to be sorry. Thanks though! I think if I had one of my own
though I would just carry a urine specimen cup into the bathroom and
empty into that , close the lid and put it in the little kotex trash
can that almost every bathroom has. You can have a home health
company or home health pharmacy deliver them with your ostomy
supplies. If you don't have either of those things I have been out
and just carried one of the half liter water bottles around and
dumped the water and then dumped into that. I'm assuming your
problem is squatting down to "dump into" something right?
>
>   Portia
>
> moffattgurl128 <TotallyxStellar@...> wrote:
>           I'm sorry that your son is going through that. That must
be hard on
> you. Thanks for your kind words though. I guess I'll just have to
> rough it out for the next 5 weeks. I guess I just find it easier
to
> unload it in the toilet, even if the smell is gross. I'm still
> having issues doing it in a public bathroom though. Yuck. Anyone
> have any solutions to do it in a public bathroom w/out drawing too
> much attention to yourself? I'm so new to this and have so many
> questions. Thanks again
> Crystal
>
> --- In ileostomy@yahoogroups.com, Portia Akers <a1cwalterz@>
> wrote:
> >
> > Crystal,
> >
> > I am 26 I don't have an ostomy but my 20 month old son does. I
> can only imagine how you feel. I might have some advice for you
for
> the gag though since I am pregnant again the smell kills me. I
have
> found that if I empty my sons bag into a foley bag instead of into
a
> cup or the toilet I can just throw the foley bag into the garbage
> and not have to smell it. After my sons surgery he couldn't move
at
> all, and I know it isn't a very good comparison but now he is
mobile
> and while he is not walking I am confident it is not because of
the
> ostomy, if anything his mobility gets us in trouble because he
pulls
> at the bag or in teething tried to chew on the spout. Anyhow I can
> take a pic of how his bag is setup that I don't smell it, maybe
that
> would help you. Also there are some nice covers out there
> that "hide" your stoma. I know it isn't what you want to hear but
it
> is not the end of the world and I promise that if anyone was
turned
> away or thought less of you because of your
> > ostomy does not deserve to be your friend!
> >
> > Portia
> >
> > moffattgurl128 <TotallyxStellar@> wrote:
> > Hey everyone,
> > I was looking for a group like this because I need to vent about
> > everything sometimes and I feel like nobody else gets it. I've
had
> > my ileostomy since May 20th and HOPEFULLY am getting the reverse
> > surgery in about 5 weeks. I know some of you have had them for
> > years or are going to and I feel bad complaining about it, but
> it's
> > totally turned my world upsidedown. I feel like I can't do
> anything
> > anymore. Not only do I have this bag, I have an open incision
> > right next to it that's about 2 inches wide, 3 inches long and
> about
> > 1/2 inch deep. I had 2 surgeries last month and about 3 feet of
my
> > colon removed as well as my galbladder. Also, I'm 22, so I go
from
> > being a girl who goes out and parties/goes to clubs, shops, goes
> to
> > the gym everyday, being a runner, dancer, to hardly being able
to
> > walk a mile. I get so winded just walking down my street. I hate
> > this so much. Plus everytime I empty this bag it makes me gag. I
> > can't sleep at night, I sleep anywhere from an hour to 3 hours
at
> a
> > time. It sucks. Sorry for this long rant, I just thought some of
> > you would be able to give me some advice on how to get through
> > this. Also, is anyone else my age on here? Thanks for listening!
> > Crystal
> >
> >
> >
> >
> >
> >
> >
> >
> > __________________________________________________
> > Do You Yahoo!?
> > Tired of spam? Yahoo! Mail has the best spam protection around
> > http://mail.yahoo.com
> >
> > [Non-text portions of this message have been removed]
> >
>
>
>
>
>
>
>
>
>
> ---------------------------------
> Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously
low rates.
>
> [Non-text portions of this message have been removed]
>

Hi All

Just to carry on from Dyl, I totally agree about the smell from the
pouch. It may sound strange but i think it actually smells less than
what is 'normal'. Many of you probably use the tip of adding a little
baby or vegetable oil into the pouch, this helps with emptying the
contents ( i used to struggle with this at first, output has always
been thickish) and if using baby oil with any odour. It never hurts to
repeat things that others may find useful does it? lol

Take care

Kim x

Hi all
I have had my ostomy in one form or another since December 1989, one
month after my 40th birthday. I had UC for 12 years when I was
finally so sick surgery was required . . .believe me I fought it,
myself and the doctors for three miserable weeks in the hospital
before letting it happen. I then tried the J-pouch, which apparently
never functioned as it was designed, and so the pain and misery was
as bad as with the UC. Getting stuck in rush hour traffic on my wy
home from work was THE worst yet, and the odor from me was also
terrible especially as there was frequently blood in my BM.
When I finally had the J-pouch taken down I also had pyroderma
around my stoma.  It was the best thing I ever did, get rid of that
spincter, and go to the bag.
Over the years I have tried many bags, and different systems, and
because of belly fat and surgical scars I have found the Convetec
Active Live convex one piece drainable (say all that fast three
times)the best for me.  It didn't help that for some reason I have
developed allergies to many adhesives, skin prep helps.
I empty into the toilet between my legs(i'm female). Many foods
cause serious odors, and dairy makes gas. ( I was a soy baby)
In another group it was suggested to use a few drops of regular
hydrogen peroxide in the bag, and this really does help.  Everyone's
s--- stinks why would an ostomates be any different?  I have some
empty dropper bottles and it makes it much easier to do this when
you aren't juggling the bottle and trying to hold the end of your
bag, and I can carry it in my purse. If you are ever splashed by
waste that plummets to the toilet too hard, a line of toilet paper
helps, and acts as a buffer.
Filters - like was mentioned, works til you lay down then no more.
For me the adhesive was not strong enough or I reacted to it in a
way that made it not stick.
So, there you have it from one "mates point of view, and believe me
we may all have ostomies, but each person will and does find their
own comfort level.

Judi

--- In ileostomy@yahoogroups.com, "moffattgurl128"
<TotallyxStellar@...> wrote:
>
> Hey everyone,
> I was looking for a group like this because I need to vent about
> everything sometimes and I feel like nobody else gets it.  I've had
> my ileostomy since May 20th and HOPEFULLY am getting the reverse
> surgery in about 5 weeks.  I know some of you have had them for
> years or are going to and I feel bad complaining about it, but it's
> totally turned my world upsidedown.  I feel like I can't do anything
> anymore.  Not only do I have this bag,  I have an open incision
> right next to it that's about 2 inches wide, 3 inches long and about
> 1/2 inch deep.  I had 2 surgeries last month and about 3 feet of my
> colon removed as well as my galbladder.  Also, I'm 22, so I go from
> being a girl who goes out and parties/goes to clubs, shops, goes to
> the gym everyday, being a runner, dancer, to hardly being able to
> walk a mile.  I get so winded just walking down my street.  I hate
> this so much.  Plus everytime I empty this bag it makes me gag.  I
> can't sleep at night, I sleep anywhere from an hour to 3 hours at a
> time.  It sucks.  Sorry for this long rant, I just thought some of
> you would be able to give me some advice on how to get through
> this.  Also, is anyone else my age on here?  Thanks for listening!
> Crystal
>

Hey Crystal,
I was 24 when I got my ileostomy.  Just prior to being sick I was
riding centuries (100 mile bike races) and was in the best condition
of my life.  I lived on the 4th floor of an apartment building and
would sprint up the steps without being winded...I was feeling great.
  Then I found out about Crohn's and about three agonizing months later
I'm sitting much like you were with a long incision and a bag hanging
off my stomach.  I now had to take a break between putting each of my
socks on...literally.
Someone here said that it helps if you (we) keep a positive outlook
and try to keep moving forward with our life.  I believe that 100%.
What you are going through right now sucks...no dodging that but it
gets better.  When I first came out of the hospital I thought everyone
I walked past could see my bag but after going through college and
quite a few years of work I've come to the conclusion that no one will
know unless you tell them.  I worked with my last boss for 5 years and
for some reason I thought I told him about it...we had a chat one day
about something and I mentioned my ileostomy and he was floored...he
actually thought I was joking.
As far as your stamina coming back, it will.  After about two months I
was back on my bike taking rides around the block and shortly there
after off to the mountain bike trails.  I actually rode my bike to
visit a guy that was inthe hospital when I was thier.  It's amazing
how fast your body bounces back.  You'll have some bad times.  I'm
fighting with Hollister over pouch failures because I've had a few
fail making a rather nasty mess but it's still better that the pain I
was in prior to the surgery.
As far as the smell goes I can't help you there.  I tried some drops
that you put in that is supposed to help but it was more work than
good.  This may sound kinda weird (and maybe other people have noticed
this) but it seems that with the last 4 years or so my discharge
doesn't seem to smell as bad...it's more "normal".
Last but not least I've recently started using Convatec Esteem
products.  Very comfortable (no ring) and the vent seems to work great
except at night (grrr).  The folks at Convatec are very pleasant and
actually seem to know about the product and ileostomies.  Give them a
call and try their products out (they'll send you samples).  See what
works best for you.
Good luck
Dyl

Join us in our webcam chatroom especially for people with IBD and/or an ostomy.

http://www.bowelweb.com/chat/flashchat.php

You know, Kim x, it's funny that you should mention waking up in the morning
with a lot of gas in your pouch (bag). It depends on what I eat the evening
before.

I notice if I have anything real sugary (I love 'Lucky Charms' cereal with
all those minature marshmellows in them) in the evening my pouch blows up
like a balloon by morning. If I have a meal of broasted chicken, mashed
potatoes, and vegetables, I don't seem to have that problem...unless I eat
gas-producing foods like cabbage, etc.

I'm glad that you mentioned that you have a filter and that it works for you
  I was always going to try one but I figured when you laid down on the bed,
at night, any liquid in the pouch would back up to the top of your pouch
where the filter is. Evidently, that is not always the case. Thanks for
sharing with us.



-------Original Message-------

From: kim
Date: 06/17/06 11:49:19
To: ileostomy@yahoogroups.com
Subject: [The Ileostomy Group] Re: bags

Hi Tara
I use the coloplast assura inspire 2 piece system, the bag has a
filter. Don't get me wrong i do get the odd blow up, usually first
thing in the morning after a nights sleep. They do work for me during
the day though. The idea of a filtered bag not working, comes from the
ileostomist having a more liquid output but to be honest this has
never been a problem for me. Why don't you ask coloplast for a sample
and see how they work for you?

Take care

Kim x





[Non-text portions of this message have been removed]

Hi Tara
I use the coloplast assura inspire 2 piece system, the bag has a
filter. Don't get me wrong i do get the odd blow up, usually first
thing in the morning after a nights sleep. They do work for me during
the day though. The idea of a filtered bag not working, comes from the
ileostomist having a more liquid output but to be honest this has
never been a problem for me. Why don't you ask coloplast for a sample
and see how they work for you?

Take care

Kim x

When I had a colostomy I used closed pouches with filter. Now that
have an ileosotmy closed pouches are not gonna work for this output. I
have been using drainables with no filter. My osotomy nurse said
filters are not recommended with ileostomy. I dont like how my bag
fills up with gas is there a reason why filters are not good?

Tara

I am 28 and after having a colostomy for a year and a half I had
another surgery on May 10 for an ileostomy. Where my colostomy was
they left an open wound which was 3 inches long, an inch wide, and 2
inches deep. For the last 5 weeks I have had to pack this hole with
gauze on top of being in pain from surgery(I am feeling really good
now and the hole is almost closed). I have to agree dumping the bag
is gross the colostomy was much easier to deal with. My ileostomy is
permanent. Hopefully your reversal goes well and you will soon not
have to deal with this.

Tara

--- In ileostomy@yahoogroups.com, "moffattgurl128"
<TotallyxStellar@...> wrote:
>
> Hey everyone,
> I was looking for a group like this because I need to vent about
> everything sometimes and I feel like nobody else gets it.  I've
had
> my ileostomy since May 20th and HOPEFULLY am getting the reverse
> surgery in about 5 weeks.  I know some of you have had them for
> years or are going to and I feel bad complaining about it, but
it's
> totally turned my world upsidedown.  I feel like I can't do
anything
> anymore.  Not only do I have this bag,  I have an open incision
> right next to it that's about 2 inches wide, 3 inches long and
about
> 1/2 inch deep.  I had 2 surgeries last month and about 3 feet of
my
> colon removed as well as my galbladder.  Also, I'm 22, so I go
from
> being a girl who goes out and parties/goes to clubs, shops, goes
to
> the gym everyday, being a runner, dancer, to hardly being able to
> walk a mile.  I get so winded just walking down my street.  I hate
> this so much.  Plus everytime I empty this bag it makes me gag.  I
> can't sleep at night, I sleep anywhere from an hour to 3 hours at
a
> time.  It sucks.  Sorry for this long rant, I just thought some of
> you would be able to give me some advice on how to get through
> this.  Also, is anyone else my age on here?  Thanks for listening!
> Crystal
>

Hi Crystal!

I used to kneel in front of the toilet and empty the pouch into it.

The majority of the years that I've had my ileostomy (a little over 26
years) I sit kind of side saddle on the toilet seat and empty my pouch (bag)
into the toilet that way. It's hard to explain without giving you a
demonstration, I know.  LOL  I sit on the edge of the right hand side of the
toilet seat and empty my pouch over the bowl. Just experiment a little, you
ll get the hang of it. [warm smile]

Lots of books on ostomies are out there to help, plus local support groups
and a national one where you can get a magazine with membership. They used
to have enterstomal therapists and stoma nurses 'back in the day.' Check
with the hospital (either yours or one reasonably close to you-if there is
one) and see if they have one 'on staff.' They are very helpful and
supportive.

Look on the Internet and call your local hospital or check with your general
doctor or surgeon to see if they know of local ostomy support groups in your
area.

Gotta run, but I'll come back and talk more later. Just a quick bio: I had
ulcerative colitis for 19 years. I was diagnosed at 13 years old. What a
wonderful relief to get my life back (literally and figuratively) by having
an ileostomy. I had my ileostomy done to save my life (I was a week away
from death) when I was 32 years old. Wow! What a difference in my lifestyle
after surgery. No more pain, no more scouting out bathrooms at the mall, no
more having to go to the bathroom (as a child) just when dinner was ready
(the family wasn't too happy about that), and many many other trials when I
was sick ... After my ileostomy I was Finally FREE.  More later, I'm
starting to write a book, here.  LOL

-------Original Message-------

From: moffattgurl128
Date: 06/16/06 22:08:07
To: ileostomy@yahoogroups.com
Subject: Re: [The Ileostomy Group] Newbie here

I'm sorry that your son is going through that. That must be hard on
you. Thanks for your kind words though. I guess I'll just have to
rough it out for the next 5 weeks. I guess I just find it easier to
unload it in the toilet, even if the smell is gross. I'm still
having issues doing it in a public bathroom though. Yuck. Anyone
have any solutions to do it in a public bathroom w/out drawing too
much attention to yourself? I'm so new to this and have so many
questions. Thanks again
Crystal

--- In ileostomy@yahoogroups.com, Portia Akers <a1cwalterz@...>
wrote:
>
> Crystal,
>
> I am 26 I don't have an ostomy but my 20 month old son does. I
can only imagine how you feel. I might have some advice for you for
the gag though since I am pregnant again the smell kills me. I have
found that if I empty my sons bag into a foley bag instead of into a
cup or the toilet I can just throw the foley bag into the garbage
and not have to smell it. After my sons surgery he couldn't move at
all, and I know it isn't a very good comparison but now he is mobile
and while he is not walking I am confident it is not because of the
ostomy, if anything his mobility gets us in trouble because he pulls
at the bag or in teething tried to chew on the spout. Anyhow I can
take a pic of how his bag is setup that I don't smell it, maybe that
would help you. Also there are some nice covers out there
that "hide" your stoma. I know it isn't what you want to hear but it
is not the end of the world and I promise that if anyone was turned
away or thought less of you because of your
> ostomy does not deserve to be your friend!
>
> Portia
>
> moffattgurl128 <TotallyxStellar@...> wrote:
> Hey everyone,
> I was looking for a group like this because I need to vent about
> everything sometimes and I feel like nobody else gets it. I've had
> my ileostomy since May 20th and HOPEFULLY am getting the reverse
> surgery in about 5 weeks. I know some of you have had them for
> years or are going to and I feel bad complaining about it, but
it's
> totally turned my world upsidedown. I feel like I can't do
anything
> anymore. Not only do I have this bag, I have an open incision
> right next to it that's about 2 inches wide, 3 inches long and
about
> 1/2 inch deep. I had 2 surgeries last month and about 3 feet of my
> colon removed as well as my galbladder. Also, I'm 22, so I go from
> being a girl who goes out and parties/goes to clubs, shops, goes
to
> the gym everyday, being a runner, dancer, to hardly being able to
> walk a mile. I get so winded just walking down my street. I hate
> this so much. Plus everytime I empty this bag it makes me gag. I
> can't sleep at night, I sleep anywhere from an hour to 3 hours at
a
> time. It sucks. Sorry for this long rant, I just thought some of
> you would be able to give me some advice on how to get through
> this. Also, is anyone else my age on here? Thanks for listening!
> Crystal
>
>
>
>
>
>
>
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam? Yahoo! Mail has the best spam protection around
> http://mail.yahoo.com
>
> [Non-text portions of this message have been removed]
>





[Non-text portions of this message have been removed]

Hi Crystal

   Sorry to hear you are having such a rough time at the moment. Im 37 and had my
ileostomy surgery when i was 32 ( ha! you probably think omg but shes so  old).
I think almost everyone goes through a period of hopelessness after surgery,
although times for 'getting over it' do vary. Remember your body has been
through such alot and it does take time for it to recover. Lol, i can remember
being in hospital and panicking about never being able to wear my stretch jeans
again, thinking i'd have to wear kaftan tops all the time (although they are in
fashion now!). Don't be too hard on yourself, things will get better! I don't
know if i can help with the 'gag' but remember poop is poop wether its coming
out the front or back! As for advice to get through this time i would say don't
loose your sense of humour!!! It's very important to have a good laugh, it
really does help.
   Keep your chin up, have a rant every now and then, its allowed and email
anytime  :0)

   Take care

   Kim x


---------------------------------
  Try the all-new Yahoo! Mail . "The New Version is radically easier to use" –
The Wall Street Journal

[Non-text portions of this message have been removed]

I have had mine since 1978
They put off looking to see what was wrong
  Because,  I was so young at the time.

-------Original Message-------

From: moffattgurl128
Date: 06/16/2006 09:18:32 PM
To: ileostomy@yahoogroups.com
Subject: [The Ileostomy Group] Re: Crystal

Thanks Diana.  It really helps to know there are people out there
who understand.  How long have you had yours?
Crystal

--- In ileostomy@yahoogroups.com, "Diana" <angelbear6665@...> wrote:
>
>
> Hello! Crystal
> I under stand how you feel. So much its not funny. You just vent
all you
> like.
> If you need someone to talk to about it my message Id is
angelbear6665 just
> add me we can talk all you like.
> Diana
>
> -------Original Message-------
>
> From: moffattgurl128
> Date: 06/15/06 15:49:43
> To: ileostomy@yahoogroups.com
> Subject: [The Ileostomy Group] Newbie here
>
> Hey everyone,
> I was looking for a group like this because I need to vent about
> everything sometimes and I feel like nobody else gets it.  I've had
> my ileostomy since May 20th and HOPEFULLY am getting the reverse
> surgery in about 5 weeks.  I know some of you have had them for
> years or are going to and I feel bad complaining about it, but it's
> totally turned my world upsidedown.  I feel like I can't do
anything
> anymore.  Not only do I have this bag,  I have an open incision
> right next to it that's about 2 inches wide, 3 inches long and
about
> 1/2 inch deep.  I had 2 surgeries last month and about 3 feet of my
> colon removed as well as my galbladder.  Also, I'm 22, so I go from
> being a girl who goes out and parties/goes to clubs, shops, goes to
> the gym everyday, being a runner, dancer, to hardly being able to
> walk a mile.  I get so winded just walking down my street.  I hate
> this so much.  Plus everytime I empty this bag it makes me gag.  I
> can't sleep at night, I sleep anywhere from an hour to 3 hours at a
> time.  It sucks.  Sorry for this long rant, I just thought some of
> you would be able to give me some advice on how to get through
> this.  Also, is anyone else my age on here?  Thanks for listening!
>
>
>
>
>
>
> ------------------------ Yahoo! Groups Sponsor --------------------
~-->
> Great things are happening at Yahoo! Groups.  See the new email
design.
> http://us.click.yahoo.com/TISQkA/hOaOAA/yQLSAA/V0SolB/TM
> -------------------------------------------------------------------
-~->
>
> The Ileostomy Group is part of Crohn's Zone IBD Network at
www.crohnszone
> org
>
> |Ostomy Forum: http://www.crohnszone.org/index
> php?name=PNphpBB2&file=viewforum&f=4
>
> |Ostomy Chat: http://www.bowelweb.com/chat.html
> Yahoo! Groups Links
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>







------------------------ Yahoo! Groups Sponsor --------------------~-->
Something is new at Yahoo! Groups.  Check out the enhanced email design.
http://us.click.yahoo.com/shWpKB/gOaOAA/xGEGAA/V0SolB/TM
--------------------------------------------------------------------~->

The Ileostomy Group is part of Crohn's Zone IBD Network at www.crohnszone
org

|Ostomy Forum: http://www.crohnszone.org/index
php?name=PNphpBB2&file=viewforum&f=4

|Ostomy Chat: http://www.bowelweb.com/chat.html
Yahoo! Groups Links








[Non-text portions of this message have been removed]

That is fine Crystal both of you!
Hope your haven a good day
Diana

-------Original Message-------

From: moffattgurl128
Date: 06/16/2006 09:05:47 PM
To: ileostomy@yahoogroups.com
Subject: [The Ileostomy Group] Re: Crystal

whoops I don't know if you were replying to me or another crystal,
silly me should check the other messages hah...

--- In ileostomy@yahoogroups.com, "Diana" <angelbear6665@...> wrote:
>
>
> Hello! Crystal
> I under stand how you feel. So much its not funny. You just vent
all you
> like.
> If you need someone to talk to about it my message Id is
angelbear6665 just
> add me we can talk all you like.
> Diana
>
> -------Original Message-------
>
> From: moffattgurl128
> Date: 06/15/06 15:49:43
> To: ileostomy@yahoogroups.com
> Subject: [The Ileostomy Group] Newbie here
>
> Hey everyone,
> I was looking for a group like this because I need to vent about
> everything sometimes and I feel like nobody else gets it.  I've had
> my ileostomy since May 20th and HOPEFULLY am getting the reverse
> surgery in about 5 weeks.  I know some of you have had them for
> years or are going to and I feel bad complaining about it, but it's
> totally turned my world upsidedown.  I feel like I can't do
anything
> anymore.  Not only do I have this bag,  I have an open incision
> right next to it that's about 2 inches wide, 3 inches long and
about
> 1/2 inch deep.  I had 2 surgeries last month and about 3 feet of my
> colon removed as well as my galbladder.  Also, I'm 22, so I go from
> being a girl who goes out and parties/goes to clubs, shops, goes to
> the gym everyday, being a runner, dancer, to hardly being able to
> walk a mile.  I get so winded just walking down my street.  I hate
> this so much.  Plus everytime I empty this bag it makes me gag.  I
> can't sleep at night, I sleep anywhere from an hour to 3 hours at a
> time.  It sucks.  Sorry for this long rant, I just thought some of
> you would be able to give me some advice on how to get through
> this.  Also, is anyone else my age on here?  Thanks for listening!
>
>
>
>
>
>
> ------------------------ Yahoo! Groups Sponsor --------------------
~-->
> Great things are happening at Yahoo! Groups.  See the new email
design.
> http://us.click.yahoo.com/TISQkA/hOaOAA/yQLSAA/V0SolB/TM
> -------------------------------------------------------------------
-~->
>
> The Ileostomy Group is part of Crohn's Zone IBD Network at
www.crohnszone
> org
>
> |Ostomy Forum: http://www.crohnszone.org/index
> php?name=PNphpBB2&file=viewforum&f=4
>
> |Ostomy Chat: http://www.bowelweb.com/chat.html
> Yahoo! Groups Links
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>







------------------------ Yahoo! Groups Sponsor --------------------~-->
Something is new at Yahoo! Groups.  Check out the enhanced email design.
http://us.click.yahoo.com/shWpKB/gOaOAA/xGEGAA/V0SolB/TM
--------------------------------------------------------------------~->

The Ileostomy Group is part of Crohn's Zone IBD Network at www.crohnszone
org

|Ostomy Forum: http://www.crohnszone.org/index
php?name=PNphpBB2&file=viewforum&f=4

|Ostomy Chat: http://www.bowelweb.com/chat.html
Yahoo! Groups Links







[Non-text portions of this message have been removed]