Our ostomy forum, the BAG & BOWEL CLUB is at : http://www.bowelweb.com/index.php?name=PNphpBB2&file=viewforum&f=4 Forum members discuss issues relating to...
ileostomy@yahoogroups...
Apr 1, 2006 12:16 pm
1438
Reminder from the Calendar of ileostomy http://groups.yahoo.com/group/ileostomy/cal General Knowledge Quiz Sunday April 2, 2006 8:30 pm - 9:30 pm (This event...
ileostomy@yahoogroups...
Apr 2, 2006 7:25 pm
1439
Hi Group, Just wanted to give you all a quick intro. I had surgery January 27th and had my colon removed. My rectum was left in place because the docs were...
Cole is having his barium enima this morning to determine if they can take down his ileostomy, the 2nd time. The docs really want to leave it but we are...
Good luck to your little one Portia! Shonn "Listen; there's a hell of a good universe next door: let's go." — E. E. Cummings (1894—1962) ... can take...
Hi Group, Just wanted to give you all a quick intro. I had surgery January 27th and had my colon removed. My rectum was left in place because the docs were...
Welcome! I'm 27 years old, and had an emergency colectomy on July 6, 2005. I've decided, after much consideration, not to go with the j-pouch; I'm going to...
Sarah, WHat kind of problems are you having wiht the stump? Just curious.... Also, how the heck are you getting 6 days out of a wafer?!! WHat kind do you...
Hi Sarah's comment about getting 6 days out of the system has raised a question for me. I'm 47 and have had my temp ileostomy since January ( bowel resection)....
Hi Simon, I had no idea you are not supposed to keep the one piece on longer than 2 days. I've kept mine on up to 6 days some times. I have had a couple times...
Hi Sarah! I was just wondering why you decided to keep the ileostomy and not go with the j-pouch. Internal justs seems so much better to me than external. Are...
Shonn, The recommendation is for it to not be on longer than 2 days but as long as your skin isn't breaking down the longer the better I say. You can use the...
we were never given time frames... but were told the average wear cycle is usually 3-4 days, but some people will get only 2 days. I was told that the most...
Simon, The ET nurse I had in the hospital told me I should change the system every 5-8 days, and that seems to be the norm from what I've read. Actually, the...
Shonn, I've given this a lot of thought, and mostly everything I've read about the j-pouch has been negative, such as urgency, frequent bowel movements,...
Hi Sue, Not to be too graphic, but I've been having a lot of discharge from the stump, which has continued since my surgery in July. My gastro thought this...
Sarah, from what i have heard, discharge from the stump is common, but usually does not happen to that degree.... Emily passes a plug of mucous type discharge...
*LOL* Never have to sit on a public toilet! That is so very, very true! I don't know. Most days I really don't mind the ostomy anymore, though I might change...
Sarah, well, that might be why it never worked.... e's ostomy is so active, we never get a minute without SOMETHING coming out! lol.... sue sc_horizon_21...
I'm getting 7 days out of the Hollister 2 piece. I love it. I even take the bag off during showering and let everything get cleaned off, and the wafers still...
Join us in our webcam chatroom especially for people with IBD and/or an ostomy. http://www.bowelweb.com/chat/flashchat.php...
ileostomy@yahoogroups...
Apr 9, 2006 11:14 am
1460
When I had my stump the doc recommended a small bal of cotton over the anal openning. it seemed to give a bit of confidence an if there was some mucus drainage...
Thanks for all the responses everyone. As someone said, it really depends on which product you use and how it suits you. And I suspect that the product ranges...
Sarah, I am very interested to hear what you surgeon says is involved in rectal stump removal. I also was in the position of waiting until after my colectomy...
Reminder from the Calendar of ileostomy http://groups.yahoo.com/group/ileostomy/cal General Knowledge Quiz Sunday April 9, 2006 8:30 pm - 9:30 pm (This event...
ileostomy@yahoogroups...
Apr 9, 2006 7:27 pm
1464
Hi Cheryl, Thanks! I saw my surgeon this morning (she performed my sub-total colectomy in July). She is actually referring me to another surgeon who...
Any suggestion from the group for snack foods when one has an ileostomy? I need to reduce sugar levels, thus out with cookies, donuts, etc. Celery, apples,...
Hi Simon, Sorry to chime in so late, but I was gone for the weekend and am just checking mail. I want to offer that every ostomate has a different experience...