Hello I have had many surgeries and no pathology to point to
Crohn's. Yet my bowel keeps going bad and I have had 4 more
surgeries since the j pouch was removed. Each time losing more small
bowel. Each time having to get all the scar tissue scraped off my
bladder and everywhere else. The last two times I was in hospital
for a month because the gut didn't want to go back to work! Now I am
having the same kind of bloating and pain as when I had a section of
bowel go bad. It hurts so much especially if I sleep on my back,
that I need medication for pain. It hurts into my sacrum and right
hip. The last time this happened I had every test in the world to
see what was going on but they found nothing until they opened me
up, and there was about 10 inches of bowel that was "bad".
Apparently I have ongoing IBD that just keeps eating away my gut. Is
there anyone else out there that has similar problems? I was under
the impression that after the colon was removed I would be ok. That
hasn't been true.
They put net in the last time to keep bowel from scarring to my
bladder, it also didn't want to work very well after this last time
of scraping bowel off it. I am tired of all the pain. Now I am out
of insurance too.
Any feed back out there?
Judi