Hopefully that will work better for you!!

Crystal

streamsinthedesert <streamsinthedesert@...> wrote:
Thanks Crystal. We are the same age. I am changing my bag every
three days now.

Sara

--- In ileostomy@yahoogroups.com, Crystal <crys1973@y...> wrote:
> Hi Sara,
> I am so glad things went well on your surgery. I have had an
ileostomy for 4 years now. Initally I was changing my bag every 3-4
days. I would not go 6 days on a fairly new ileostomy so that you
can monitor it more. I can now change it once a week. Sunday is my
change day. If you have iritation around the skin that is caused
from the flange breaking down and stool getting onto your skin. The
first thing that will help that is changing more often so it doesnt
break down. It usually breaks down quickly initially because your
output is usually a lot higher. It does eventually slow down. If
you continue to have skin irritation consider using eakin seals. I
use the large ones and cut it in half and roll it (like we used to
roll clay into snake shapes.......same idea) and wrap it around the
skin at the edge of the stoma. It is the best solution I found to
help my bags last longer and to prevent skin break down. Everyone is
different so do not be afraid to try different things.
> Do be prepared however for some of those things to fail and you
may have leakages as a result. If you ever need someone to talk to
that has been thru it let me know!!
>
> Crystal Knoll
> 31 year old female w/TCHD & ileostomy
>
> streamsinthedesert <streamsinthedesert@y...> wrote:
> Good afternoon. I had my ileostomy surgery on June 2nd. I have
had
> a real hard time with this surgery. I have lost 22 pounds in a
> month. I didn't start eating very much until Friday. I have been
> having problems with my heart racing when I walk around a lot, but
> the doctor thinks my thyroid has went from hypo to hyper. Having a
> stoma and a bag is not as bad as I had made myself believe that it
> would be. It is actually quite a large relief to not have to know
> that I am going to have to spend my whole weekend at home with a
> laxative which made me very sick. In a way I wish I would have had
> this done a long time ago. Don't get me wrong I went through the
> whole depression thing in the hospital, but I am ok now. My
husband
> has been so very very supportive of me. On the right side of my
> stoma my skin is starting to getting irritated. What can I do for
> this? How often do you guys change your wafer and bag? The stoma
> nurse said to start changing it and eventually work my way up to 7
> days before changing it. I waited 6 days last time and now I have
> skin irritation. Any suggestions would be greatly appreciated!!!
>
> Sara
>
>
>
> The Ileostomy Group is part of Crohn's Zone IBD Network at
www.crohnszone.co.uk
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The Ileostomy Group is part of Crohn's Zone IBD Network at www.crohnszone.co.uk

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