Hello,

My husband has a permanent ileostomy due to severe Chron's
Disease. He is now 29 years old. His battle with Chron's began
six years ago. Unfortunately, he suffered from many
complications, was hospitalized for the majority of two years, had
eleven surgeries, and almost died twice. The final surgery (and
the permanent ileostomy) was completed about four years ago.

Physically, he is now healthy. The Chron's has subsided greatly;
however, it is still a part of his everyday life. He has been back to
work for over two years now. I have noticed that he is struggling
with his life now more than ever. His ileostomy is a constant
source of frustration and embarrassment. Instead of getting
easier, I believe his life is more stressful than ever.

I am guessing that the first few years after the final surgery, he
was just so happy to be alive and out of the hospital that he was
hopeful and optimistic. Lately though, it seems he only wants to
be home. He doesn't want to deal with people, public
restrooms, his bag falling off – you name it. The entire world
seems to be "against" him.

I am writing hoping to find people to connect with that can relate
to any part of our lives and what he is going through. I know his
quality of life is suffering. And he is such an amazing person –
so loving, generous, and giving (a wonderful husband and father
and friend).

Over the last year I have seen him become much less social (not
keep up with close friends or family), much more stressed out
and irritable, and he is frustrated (more often than not).

I would appreciate any thought or comments.

Thank you very much,

Melissa