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Can't keep a good seal   Message List  
Reply | Forward Message #3369 of 4279 |
Re: [The Ileostomy Group] Can't keep a good seal

Im not sure what appliance you are using but I had the same probs. until  I
switched
to Cymeds drainable pouch. There is no flange & it is the best ive tried. And
ive tried many. Hope you find an adequate. solution. 



   William Hiel
        TX: 8/11/2004 via my brother Jimmy
    "Fight The Good Fight".

--- On Thu, 12/18/08, whitney smith <alfalfabrat@...> wrote:

From: whitney smith <alfalfabrat@...>
Subject: Re: [The Ileostomy Group] Can't keep a good seal
To: ileostomy@yahoogroups.com
Date: Thursday, December 18, 2008, 11:49 AM

Sharon, I feel for you!! I understand what you're going through. I had my
ileostomy done on 10/31/08, after emergency surgery. I was warned beforehand, I
might come out with an ostomy. The doctor didn't know what was going on.
 
Are you seeing a certified wound ostomy continence nurse? Or someone about your
ileostomy? If you saw one post op, call her/him also. I had no problems with
leakage, while in the hospital, but 2 days after leaving the hospital I started
having problems, and had problems until 12/15. On 12/5, I changed wound care
centers. When I went into see the CWOCN, I was scalded from my 2.5 cm out from
my stoma, to my left iliac crest. I had a full thickness wound 2.5 cm around my
stoma. A "normal" bag wouldn't stay on me without leaking for an
hour, much less a day, or now 3 days. On 12/12, I had completely new baby skin
from my stoma, to my iliac crest. Please do not let yours get to this point!!
I'm now

--- On Thu, 12/18/08, Sharon <skgillson@...> wrote:

From: Sharon <skgillson@...>
Subject: [The Ileostomy Group] Can't keep a good seal
To: ileostomy@yahoogroups.com
Date: Thursday, December 18, 2008, 12:34 PM






I hope those of you who have had an ostomy for years and have lots of
experience will be able to help me. I had my ileostomy on October 22nd, so
I'm still pretty new at this.

I can't seem to keep a good seal with my pouch. Two, at the most three,
days
after putting on a new pouch, and I get leakage where the wafer (is that
what it's called....still learning the terms) detaches. I think I'm
removing
all the old adhesive, making sure my skin is clean, and trying to always
make sure the opening of the pouch around my stoma fits up against my stoma,
but I have the same problem. Once in a great while I'll get a good seal and

don't have any leakage. What I did for that pouch change seems to be what I

always do, but when I change this non-leaking pouch after several days to a
week, I evidently do something wrong again, because I have leakage again.
Sometimes I have such a problem that the pouch lasts only a few hours before
the wafer starts to let go.

I have been using a stomadhesive powder because I have some uneven skin
close to my stoma, and it worked good for weeks when the unevenness covered
a larger area, but now that the "bumps" are right next to the stoma,
I don't
know if it's helping or hindering. I have also been using stomadhesive
paste. For a few times in the early weeks I used a co-adhesive wafer, and
they worked as well as the paste without the mess. But now whenever I use
the adhesive wafer, the pouch lets go in a section within a few hours.

If there are any tips you can give me, I'd appreciate it.

Sharon


















[Non-text portions of this message have been removed]


------------------------------------

The Ileostomy Group is part of Crohn's Zone IBD Network at
www.crohnszone.org

|Ostomy Forum:
http://www.crohnszone.org/index.php?name=PNphpBB2&file=viewforum&f=4

|Ostomy Chat: http://www.bowelweb.com/chat.htmlYahoo! Groups Links








[Non-text portions of this message have been removed]




Fri Dec 19, 2008 12:15 am

wahiel
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Forward
Message #3369 of 4279 |
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I hope those of you who have had an ostomy for years and have lots of experience will be able to help me. I had my ileostomy on October 22nd, so I'm still...
Sharon
skgillson
Offline Send Email
Dec 18, 2008
6:34 pm

Sharon, two or three days is the longest em's has ever lasted.... she has very watery output and we need to keep it that way or she blocks up with constipation...
Sue K.
ma2mje
Offline Send Email
Dec 18, 2008
6:56 pm

Sharon, I feel for you!! I understand what you're going through. I had my ileostomy done on 10/31/08, after emergency surgery. I was warned beforehand, I might...
whitney smith
alfalfabrat
Offline Send Email
Dec 18, 2008
11:10 pm

Im not sure what appliance you are using but I had the same probs. until  I switched to Cymeds drainable pouch. There is no flange & it is the best ive tried....
William Hiel
wahiel
Offline Send Email
Dec 19, 2008
12:15 am

yes, the cymed did last longer, but emily found that she just did not like the 'feel' of the one piece pouch.... if it were me, i would think it would be more...
Sue K.
ma2mje
Offline Send Email
Dec 19, 2008
1:16 am

Yeah. Everyones different. They sure have many choices now. I coudnt believe the amount until I checked out a med. supply catalog.    William Hiel ...
William Hiel
wahiel
Offline Send Email
Dec 19, 2008
7:46 am

Now that i'm not leaking, i'm very happy with the one piece appliance i'm wearing. I'm hoping to be able to eventually wear one without the belt. BUT if I have...
whitney smith
alfalfabrat
Offline Send Email
Dec 19, 2008
3:57 am

I'm sure it will be soon & you wont need to use the belt. It sure helped me at first.    Take care    William Hiel         TX: 8/11/2004 via my...
William Hiel
wahiel
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Dec 19, 2008
7:42 am

Thank you!! i'm just happy to not be leaking all the time. I don't change the bag until monday, barring complications. Nancy, the wound care nurse, sent home...
whitney smith
alfalfabrat
Offline Send Email
Dec 19, 2008
7:11 pm

I just had my ileostomy on Dec 10th for the 2nd time. I started having leakage problems because my stoma was smaller on the bottom and larger on the top...
Susan
suesue72
Offline Send Email
Dec 31, 2008
1:40 pm

Hi Sharon, I have had my ileostomy, "Harriet" for over 7 years now and still only get about 3 days wear time from my 2 piece appliance. I don't change after 3...
Kay
keeshamist
Offline Send Email
Dec 19, 2008
9:26 pm

Same issue here, I used to change about every 6 days, until they removed additional small intestine, do to a rupture. Now it's every 4 days. Also have watery...
kb9nph@...
kcv4209
Offline Send Email
Dec 20, 2008
1:58 am

OMG Whitney!  Has your skin healed?  How did they do it? Gina [Non-text portions of this message have been removed]...
gina kowalski
ginamarie48066
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Dec 20, 2008
4:09 am

My skin is 100% healed!! It took one week, of me going to the wound care center nearly daily. I think I missed two days between 12/5 and 12/12. We started off...
whitney smith
alfalfabrat
Offline Send Email
Dec 20, 2008
7:16 am

I never had one last more than 3 days.  I'd contact your ET nurse but I would also contact various manf to send you samples.  Most have an ET on staff and...
gina kowalski
ginamarie48066
Offline Send Email
Dec 20, 2008
4:12 am

I'm sorry it has taken me so long to respond to this post but I have been having a rather stressful time over the past month. I usually get 5-6 days wear time...
Pat Connaughan
countrygramma05
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Dec 29, 2008
5:22 pm

My home nurse started using a special glue that is used for patients with bladder bags. It's said to be "extra strong". I had tried it twice and it seems to...
Arman, Shirin & Niki ...
arman_shirin
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Dec 21, 2008
5:08 am

Whitney, I am so happy to hear you are healed and comfortable!  You said it best. .good care is hard to find and the key is going to the right person for your...
gina kowalski
ginamarie48066
Offline Send Email
Dec 22, 2008
12:11 am
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