We will have a new e-mail address this weekend. We will e-mail or call you with the new address. Look forward to being able to talk to you again. Hope all...
Randy and Spring Hansen
hansen@xxxxxx.xxxx
Dec 9, 1999 2:22 pm
65
Does anyone have experience with bad diaper rashes with MMA? My 22 month old has had a diaper rash for the last three months. She has been treated by her...
Gator6709@xxx.xxx
Dec 10, 1999 3:02 am
66
I rarely post and do not know if this info will be of help but my ped told me to use AQUA-PHOR mixed with malox (yes the liquid antacid) for my daughter (she...
TESSABUG@xxx.xxx
Dec 16, 1999 1:54 am
67
No MMA experience but I did have one of my 3 children who experienced bad diaper rash and here are some suggestions-1) wash clothes and diapers with a really...
Therese Waters
workstar@xxxxxxxxxx.x...
Dec 16, 1999 7:02 pm
68
My son had the same problem with MMA and diper rash. Change the baby more often. It's own urine/feces has higher acid/toxins in it. Soak baby in Domboro(not...
LGHARE@xxx.xxx
Dec 17, 1999 3:16 pm
69
My oldest son Shawn is 10. He has stopped growing. He has been to the endocrinologist and now we are seeing the GI doctor again. They run tests, that come out...
Kathy
kathym@...
May 27, 2000 6:41 pm
70
... Kathy, It seems to me during my nursing training that one of our Peds books had a picture of a child looking just like what you describe. I believe the...
ncb00582@...
May 29, 2000 3:27 am
71
This is going to sound weird but my daughter occasionally gets what I call a "saltine cracker" odor..............does anyone else have a child that gets this...
TESSABUG@...
Jun 5, 2000 3:18 am
72
Teresa- My daughter has homocystinuria and she definitely has an odd odor to her urine. It is hard to describe but very distinctive. Although she is being ...
Therese Waters
workstar@...
Jun 5, 2000 4:49 pm
73
... Teresa, The main body odor that I can think of that would smell like a cracker would be yeast. When Cadence first became ill, she had a case of thrush...
ncb00582@...
Jun 5, 2000 4:49 pm
74
Teresa: Best bet would be to get an amino acid fractionation test run. This would rule out alot of metabolic disorders such as PKU (which is represented by a ...
MacPku@...
Jun 5, 2000 4:54 pm
75
What is Shawn's diagnosis? Is he "normal" or does he have an organic acidemia disease? My son has Methylmalonic Acidemia and he is wayyyyyy under the chart...
LGHARE@...
Jun 7, 2000 1:02 pm
76
How does one unsubscribe from this list? Thanks, Linda ... From: LGHARE@... [mailto:LGHARE@...] Sent: Wednesday, June 07, 2000 5:24 AM To:...
Linda
joelinda@...
Jun 7, 2000 2:51 pm
77
Hello, Shawn is 10 and has no official diagnosis. Just lots of labels. He has dysmorphic facial features, short fingers, epilepsy (under control w/Felbatol),...
Kathy
kathym@...
Jun 7, 2000 11:47 pm
78
In a message dated 6/7/00 7:48:26 PM Eastern Daylight Time, kathym@... writes: << The GI mentioned this disorder where the top of the villa are not ...
TESSABUG@...
Jun 8, 2000 2:38 am
79
Thanks to those who responded................ as for the yeast, I lived the yeast nightmare with my oldest son and I do not believe it to be a yeast issue and...
TESSABUG@...
Jun 8, 2000 2:39 am
80
Hi Kathy, This sounds exactly like a girl we knew. She stopped growing when she was 7 y.o. Tests upon tests showed no abnormality. Finally, a dr. ran liver...
APalachek@...
Jun 12, 2000 9:51 pm
81
If he has nasty BMs and vomiting I would suspect celiac disease...........I was diagnosed with it when I was 11yr, at that time I weighed 44pounds, wearing...
TESSABUG@...
Jun 12, 2000 9:51 pm
82
Return-Path: <bookstor@...> Received: from WVNVM (NJE origin SMTP2@WVNVM) by WVNVM.WVNET.EDU (LMail V1.2d/1.8d) with BSMTP id 8052; Wed, 31 May 2000...
ncb00582@...
Jun 12, 2000 9:51 pm
83
how do I unsubscribe from this? ... From: ncb00582@... [mailto:ncb00582@...] Sent: Saturday, May 27, 2000 11:52 AM To:...
Linda
joelinda@...
Jun 12, 2000 9:51 pm
84
This responds to the note about the unusual odor in Teresa's daughter's urine. You say that your daughter has "clinical diagnosis" of Angelman syndrome. Did...
Paul Benke
pbenke@...
Jun 12, 2000 9:51 pm
85
Therese Hi, can you help me with some info on homocystinuria. Is the Homocystine level high in urine and blood or just one of these? I have heard they diagnose...
Clara Stone
cstone@...
Jun 12, 2000 9:51 pm
86
... tests, ... he ... zinc, ... it ... a ... Another thing Shawn does. He goes through periods where he does not want to eat much and sleeps a lot. One period...
Kathy
kathym@...
Jun 12, 2000 9:52 pm
87
Write to the Exceptional Parent magazine, parents describe their kid adn MD's also read the questions and may have some suggestions. www.eparent.com tell them...
Debby, Avi, Gershon, ...
drdmd@...
Jun 12, 2000 9:52 pm
88
Clara - A doctor missed my daughters diagnosis because she took a midday urine sample. The right way to go about this - a FASTING sample of blood and have it...
Therese Waters
workstar@...
Jun 13, 2000 9:21 pm
89
susan.l.rump@...
Jun 14, 2000 1:12 am
90
Thank you Paul for this info. In regards to a "clinical diagnosis" she only has AS by symptoms, genetically all tests for AS have been negative(FISH, ...
TESSABUG@...
Jun 28, 2000 10:56 pm
91
... My name is Crystal Clack. My son has been diagnosed with Classic Maple Syrup Urine Disease. I have alot of questions and I need someone to talk to. We live...
1TravelSavingsAlert@...
Jun 28, 2000 11:00 pm
92
Crystal: I am the co-administrator of a support listserv for the birth defect known as PKU (phenylketonuria) which is very similar in treatment to that of...
MacPku@...
Jun 29, 2000 4:28 am
93
Dear Crystal - My name is Kim and I have a 6 1/2 year-old son with Isovaleric Acidemia (IVA). I know that your son has MSUD but if you want to talk to someone...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
