Your letter made me think of 2 questions. 1. Does nephritis have to do with mito disorders? 2. Does acidosis cause bladder and/or kidney infections? Linda S. ...
Linda
joelinda@xxxxxxxx.xxxx
Jun 17, 1999 6:57 am
16
Has any heard of growth hormones in MMA ? Jennifer Edwards...
pddlft@xxxxx.xxxxxxxx...
pddlft@xxxxx.xxxxxxxx...
Aug 18, 1999 9:43 pm
17
Linda, As a 5-y-o, I myself had a mysterious glomerulonephrosis that required ACTH to save me. My daughter, now almost 15, has a rare vitamin B12 IEM. Others...
Susan.L.Rump@xxxxxx.x...
Susan.L.Rump@xxxxxx.x...
Aug 18, 1999 11:30 pm
18
Susan, I guess I'm getting very tired and having trouble thinking tonight. Is what you had a type of nephritis? Why did they give you ACTH, an adrenal or...
Linda
joelinda@xxxxxxxx.xxxx
Jun 20, 1999 4:32 am
19
Message text written by INTERNET:iem-family@onelist.com ... acidemia) children as a form of healing? Who has experiences with liver transplantation?< Yes, I...
conrad cota
CCota@xxxxxxxxxx.xxxx
Aug 20, 1999 6:12 pm
20
Dr. Benke: My son is 10 years old, has MMa and is B-12 responsive. His MMA levels in the urine range from 2,000-5,000 and in his blood 200-350. Although this...
LGHARE@xxx.xxx
Aug 20, 1999 7:42 pm
21
Message text written by INTERNET:iem-family@onelist.com ... My son is 10 years old, has MMa and is B-12 responsive. His MMA levels in the urine range from...
conrad cota
CCota@xxxxxxxxxx.xxxx
Aug 22, 1999 12:31 pm
22
Yes, I've heard of families that have opted for this procedure. We have asked Dr. Koch in California to come and speak at the upcoming Metabolic Conference on...
LeeKatMN@xxx.xxx
Aug 22, 1999 12:49 pm
23
This is the first I've heard of a Metabolic Conference, (per Kathy Stagni regarding the March 18th conference in Taunton Massachusetts) Will there be much...
WSHeyer@xxx.xxx
Aug 23, 1999 8:53 pm
24
Kathy, really? Please would you tell me about the conference you've just mentioned. I couldn't find it on the website. Thanks! Susan...
Susan.L.Rump@xxxxxx.x...
Susan.L.Rump@xxxxxx.x...
Aug 24, 1999 12:29 am
25
The Metabolic Conference that is held in Taunton, Massachusetts on March 18, 2000 is sponsored by the New England Connection for PKU and Allied Disorders. ...
LeeKatMN@xxx.xxx
Aug 25, 1999 1:50 pm
26
Thank you for the announcement, Kathy! Susan...
Susan.L.Rump@xxxxxx.x...
Susan.L.Rump@xxxxxx.x...
Aug 27, 1999 12:11 am
27
Kathy, Will there be another bit of news on this? or will there be a number we can call for more info or to get onto a mailnglist? Thanks, Susan...
Susan.L.Rump@xxxxxx.x...
Susan.L.Rump@xxxxxx.x...
Aug 28, 1999 1:44 pm
28
Are you talking to me or some other Kathy? Kathy ... From: Susan L Rump To: iem-family@onelist.com Sent: Saturday, August 28, 1999 9:44 AM Subject: Re:...
Kathy
kathym@xxxxxx.xxxx
Aug 30, 1999 3:35 am
29
Yes, more information on the Metabolic Conference will be in the October issue of the OAA Newsletter and hope that the actual registration for the conference...
LeeKatMN@xxx.xxx
Aug 30, 1999 1:49 pm
30
Just a note in reply; sorry, do not check info from this list very often. I would like to say also that I am sorry, but really cannot respond to individual...
Paul Benke
pbenke@xxxx.xxx.xxxxx...
Aug 30, 1999 8:14 pm
31
Hi everybody! Sorry I haven't posted anything in a long while, just don't have much to write about. Heather (31 mos, GA1) is doing very well and starting to...
Ssmatts@xxx.xxx
Sep 1, 1999 12:58 am
32
Enzyme Deficiency Responsible for Some Sudden Death Cases August 30, 1999 Pediatric and Developmental Pathology/MedscapeWire A deficiency in the SCHAD...
Juhlmann
juhlmann@xxxxxx.xxxx
Sep 4, 1999 4:05 pm
33
I have a 20 month old foster daughter who has recently been diagnosed with MCAD. Does anyone have any information or advice for this condition. Thank You, ...
Clint Kimble
kimble@xxxxxxxx.xxxx
Sep 5, 1999 3:34 pm
34
This is interesting and may explain why my infants would stop breathing so much and things why my youngest slept for 21 hrs straight one time. I thought it was...
Linda
joelinda@xxxxxxxx.xxxx
Jun 5, 1999 9:45 pm
35
Clint Kimble <kimble@...> Wrote: I> have a 20 month old foster daughter who has recently been diagnosed with ... A search of www.alltheweb.com for...
emtech-journey
emtech-journey@xx.xxxx
Sep 7, 1999 10:57 pm
36
Could there be a form of this that is inherited by a dominant mode? Linda S. ... From: emtech-journey <emtech-journey@...> To: iem-family@onelist.com...
Linda
joelinda@xxxxxxxx.xxxx
Jun 9, 1999 8:30 pm
37
Thank you, I found this interesting. I know this relates to SIDS, but is it something that continues as they get older? I have never forced my children to go...
Kathy
kathym@xxxxxx.xxxx
Sep 11, 1999 3:48 am
38
Does anyone have info on Malonyl coA decarboxylase enzyme deficiency? Jennifer Edwards...
pddlft@xxxxx.xxxxxxxx...
pddlft@xxxxx.xxxxxxxx...
Sep 13, 1999 7:16 pm
39
I don't know Kathy. I just saw this and figured that some on this lost might be interested even though my child does not have this particular metabolic...
Juhlmann
juhlmann@xxxxxx.xxxx
Sep 16, 1999 2:19 am
40
Hi! I joined this list in hopes of being able to talk with some people who have a child or knows someone that has a child with Isovaleric Acidaemia. My grand...
bettyj@xxxxxxxx.xxx
Oct 17, 1999 2:45 pm
41
... Hi, Betty, It's a good thing you found your way here, you'll find an easier time being able to use us as a sounding board or for advice. I know I've...
Leslie
ncb00582@xxxx.xxxxx.x...
Oct 21, 1999 10:31 pm
42
Hi Betty-- Welcome! I'd never heard of Isovaleric Acidaemia, but a quick search of "Isovaleric Acidaemia" at http:// www.alltheweb.com produced 31 hits, ...
emtech-journey
emtech-journey@xx.xxxx
Oct 22, 1999 12:18 am
43
Betty- God Bless your grandchild as you start this journey. When my daughter was diagnosed with a rare metabolic disorder, I did quite a bit of research. Some...
Therese Waters
workstar@xxxxxxxxxx.x...
Oct 21, 1999 8:43 pm
44
Subject: Re: [iem-family] New member Date: Thu, 21 Oct 1999 20:18:05 -0400 From: emtech-journey <emtech-journey@...> To: iem-family@onelist.com References: ...
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