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iem-family · The Inborn Errors of Metabolism Family Support List(IEM) is for discussions and support of the families with kids or adults hav
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porphyria   Message List  
Reply | Forward Message #9 of 104 |
Re: porphyria

SUSAN,

AIP IS ACUTE INTERMITTANT PORPHYRIA. IT IS THE NEW POTENTIAL DIAGNOSIS.
HERE WE GO AGAIN! WE HAVE TO HAVE THE TEST AND SEND IT OFF TO MAYO AND SPEND
6 MORE WEEKS WAITING. HOWEVER THE SYMPTOMS SEEM TO FIT AND IT WOULD EXPLAIN
THE EPISODIC NATURE OF HER PROBLEM. I WILL LET YOU KNOW MORE WHEN I KNOW
MORE, WHICH AT THIS RATE MAYBE WHEN SHE IS OLD AND GRAY.


EDITH





Sun Aug 8, 1999 12:06 am

ECrook33@xxx.xxx
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Message #9 of 104 |
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I originally got on this list to try and find someone with symptoms like my daughter. Since then we have been to yet another doctor who thinks she may have...
ECrook33@xxx.xxx
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Aug 5, 1999
7:55 pm

Edith, what's AIP--autoimmune something? Susan...
Susan.L.Rump@xxxxxx.x...
Susan.L.Rump@xxxxxx.x...
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Aug 6, 1999
12:45 pm

A quick search of search engine www.alltheweb.com displays multiple links to sites with info on this rare metabolic disorder. One such link at...
emtech-journey
emtech-journey@xx.xxxx
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Aug 7, 1999
3:10 am

SUSAN, AIP IS ACUTE INTERMITTANT PORPHYRIA. IT IS THE NEW POTENTIAL DIAGNOSIS. HERE WE GO AGAIN! WE HAVE TO HAVE THE TEST AND SEND IT OFF TO MAYO AND SPEND 6...
ECrook33@xxx.xxx
Send Email
Aug 8, 1999
12:06 am
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