Hello - are you aware we have a clinic for adults with PKU in the
Medicine Department at the Hospital of the University of Pennsylvania?
Chris Friedrich, M.D., Ph.D.
Division of Medical Genetics, Dept. of Medicine
(215) 662-4740>
> Crystal:
>
> I am the co-administrator of a support listserv for the birth defect known as
> PKU (phenylketonuria) which is very similar in treatment to that of Maple
> Syrup Urine Disease. Some of the people on our listserv have children with
> MSUD.
> If you would like, I can sign you onto our listserv and you can post a
> message there which, I am sure, will get you several responses from MSUD
> families.
> Just send me your first and last name along with your email address and I
> will sign you up immediately. You can always sign off the listserv if you do
> not find it helpful.
>
> Lin
> Mom to Daniel, 21 y/o
> Classical PKU
> Philadelphia, PA
>
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