iem-family : Message: Re: [iem-family] Mother on a mission

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Re: [iem-family] Mother on a mission

Message #95 of 104 |

Re: [iem-family] Mother on a mission

PAULO & RUTH VILLELA
RUTINHA@...
I HAVE TWO KIDS WITH CLASSIC MSUD

Thu Jun 29, 2000 6:05 pm

Rutinha@...

Message #95 of 104 |

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Crystal: I am the co-administrator of a support listserv for the birth defect known as PKU (phenylketonuria) which is very similar in treatment to that of...	MacPku@...	Jun 29, 2000 4:28 am
Dear Crystal - My name is Kim and I have a 6 1/2 year-old son with Isovaleric Acidemia (IVA). I know that your son has MSUD but if you want to talk to someone...	Kimandluke@...	Jun 29, 2000 4:28 am
Our daughter has homocystinuria, another metabolic disorder in which a protein component - in this case methionine cannot be metabolized. There are many...	Therese Waters workstar@...	Jun 29, 2000 6:27 pm
PAULO & RUTH VILLELA RUTINHA@... I HAVE TWO KIDS WITH CLASSIC MSUD...	Rutinha@...	Jun 29, 2000 6:27 pm
Hello - are you aware we have a clinic for adults with PKU in the Medicine Department at the Hospital of the University of Pennsylvania? Chris Friedrich, M.D.,...	Christopher Friedrich... cfriedri@...	Jul 1, 2000 5:03 pm