Our daughter has homocystinuria, another metabolic disorder in which a
protein component - in this case methionine cannot be metabolized. There
are many resources for low protein foods and diet support. God bless you -
I think you can throw out any question you have and someone on this list
will respond with a similar if not exact circumstance. therese and kelly

1TravelSavingsAlert@... wrote:

> >>Send reply to: "Stuart Clack" <sclack@...>
> >>From: "Stuart Clack" <sclack@...>
> >>To: <iem-family-request@...>
> >>Subject: mother on a mission
> >>Date sent: Wed, 28 Jun 2000 15:45:59 -0700
>
> My name is Crystal Clack. My son has been diagnosed with Classic Maple
> Syrup Urine Disease. I have alot of questions and I need someone to
> talk
> to. We live in Vina, Alabama and I don't know of anyone else who has
> MSUD.
> My son is now 3 1/2 months old, he has been home with us for a month
> now.
> We have been fortunate we haven't had any problems since we've been
> home.
> I only hope our good fortune continues. If you don't mind please
> write me
> back I really need to talk to somebody!!!!!
>
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