Crystal:

I am the co-administrator of a support listserv for the birth defect known as
PKU (phenylketonuria) which is very similar in treatment to that of Maple
Syrup Urine Disease. Some of the people on our listserv have children with
MSUD.
If you would like, I can sign you onto our listserv and you can post a
message there which, I am sure, will get you several responses from MSUD
families.
Just send me your first and last name along with your email address and I
will sign you up immediately. You can always sign off the listserv if you do
not find it helpful.

Lin
Mom to Daniel, 21 y/o
Classical PKU
Philadelphia, PA