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iem-family · The Inborn Errors of Metabolism Family Support List(IEM) is for discussions and support of the families with kids or adults hav
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Re: [iem-family] growth   Message List  
Reply | Forward Message #87 of 104 |
Re: [iem-family] growth

Write to the Exceptional Parent magazine, parents describe their kid adn MD's
also read the questions and may have some suggestions. www.eparent.com tell
them it is for Search and Respond.
Debby

Kathy wrote:

> My oldest son Shawn is 10. He has stopped growing. He has been to the
> endocrinologist and now we are seeing the GI doctor again. They run tests,
> that come out normal and then nothing happens. I am getting disgusted with
> them.
>
> Shawn does eat a lot. Has nothing to do with his intake unless of course he
> is just not absorbing it. I am getting tired of being asked how much he
> eats.
>
> He had growth hormone studies and bone age, protein, calcium, feretin, zinc,
> IGA. That is all I can think of for now.
>
> Another thing is he has this huge bloated stomach. For awhile I was told it
> was from reflux and his "habit" of swallowing air. He looks at times like a
> starving child.
>
> Any ideas?
>
> Kathy in Maine
>
> ------------------------------------------------------------------------
> Old school buds here:
> http://click.egroups.com/1/4057/5/_/581489/_/959452871/
> ------------------------------------------------------------------------
>
> IEM FAMILY FORUM
> -----
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Sun May 28, 2000 2:10 am

drdmd@...
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Message #87 of 104 |
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... Kathy, It seems to me during my nursing training that one of our Peds books had a picture of a child looking just like what you describe. I believe the...
ncb00582@...
Send Email
May 29, 2000
3:27 am

What is Shawn's diagnosis? Is he "normal" or does he have an organic acidemia disease? My son has Methylmalonic Acidemia and he is wayyyyyy under the chart...
LGHARE@...
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Jun 7, 2000
1:02 pm

How does one unsubscribe from this list? Thanks, Linda ... From: LGHARE@... [mailto:LGHARE@...] Sent: Wednesday, June 07, 2000 5:24 AM To:...
Linda
joelinda@...
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Jun 7, 2000
2:51 pm

Hello, Shawn is 10 and has no official diagnosis. Just lots of labels. He has dysmorphic facial features, short fingers, epilepsy (under control w/Felbatol),...
Kathy
kathym@...
Send Email
Jun 7, 2000
11:47 pm

In a message dated 6/7/00 7:48:26 PM Eastern Daylight Time, kathym@... writes: << The GI mentioned this disorder where the top of the villa are not ...
TESSABUG@...
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Jun 8, 2000
2:38 am

Hi Kathy, This sounds exactly like a girl we knew. She stopped growing when she was 7 y.o. Tests upon tests showed no abnormality. Finally, a dr. ran liver...
APalachek@...
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Jun 12, 2000
9:51 pm

If he has nasty BMs and vomiting I would suspect celiac disease...........I was diagnosed with it when I was 11yr, at that time I weighed 44pounds, wearing...
TESSABUG@...
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Jun 12, 2000
9:51 pm

how do I unsubscribe from this? ... From: ncb00582@... [mailto:ncb00582@...] Sent: Saturday, May 27, 2000 11:52 AM To:...
Linda
joelinda@...
Send Email
Jun 12, 2000
9:51 pm

Write to the Exceptional Parent magazine, parents describe their kid adn MD's also read the questions and may have some suggestions. www.eparent.com tell them...
Debby, Avi, Gershon, ...
drdmd@...
Send Email
Jun 12, 2000
9:52 pm
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