Teresa-
My daughter has homocystinuria and she definitely has an odd odor to her
urine. It is hard to describe but very distinctive. Although she is being
treated and her levels are better, we still note the odor, especially in the
morning, when presumably her urine is more concentrated. There are other
metabolic and endocrine disorders that have characteristic urine odors - good
idea to check it out. TWaters

TESSABUG@... wrote:

> This is going to sound weird but my daughter occasionally gets what I call a
> "saltine cracker" odor..............does anyone else have a child that gets
> this odd odor? She only has a clinical diagnosis of Angelman syndrome,
> nothing metabolic. But has in the past had a few weird levels of different
> acids. One of her peds recently reminded me of the acid levels and I
> mentioned the odor. Now she wants me to try to get a urine sample when she
> has this odor. She is potty trained so it should be fairly easy.
> I just have to wait for the mystery odor to return.
>
> Teresa
>
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