A quick search of search engine www.alltheweb.com displays
multiple links
to sites with info on this rare metabolic disorder.
One such link at http://members.tripod.com/~theaipforum/ shows:


================================================================
Acute Intermittent Porphyria
··· Best viewed at 800x600 or higher.

Welcome to "The AIP Forum" !!!
What is Acute Intermittent Porphyria (AIP) you ask?

"AIP is a rare disease that is inherited from one parent. It is
almost always latent (i.e. does not produce illness) in childhood
and is usually latent in most adults throughout life. When the
disorder is active it can cause intermittent attacks of abdominal
pain as well as a variety of other symptoms which range from mild
to life threatening. After the correct diagnosis of AIP is made,
simple precautions can be taken to prevent attacks. It is
important to check all relatives of porphyria patients for the
genetic defect, so they can take the same precautions and avoid
becoming ill from porphyria. Even relatives who have never had
symptoms should be tested"
-- The American Porphyria Foundation

That's The Goal Of This Page... Prevent Attacks....
Especially those "life threatening attacks" !

Hopefully you will find useful information at this site,
including the links below. Also, if you need any assistance in
searching for information or would like to comment, please
contact us.

The Links...


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Good luck!
----- Original Message -----
From: <ECrook33@...>
To: <iem-family@onelist.com>
Sent: Thursday, August 05, 1999 3:55 PM
Subject: [iem-family] porphyria


> From: ECrook33@...
>
> I originally got on this list to try and find someone with
symptoms like my daughter. Since then we have been to yet another
doctor who thinks she may have AIP. ANY INFORMATION WOULD BE
HELPFUL.we are still struggling. If I am not using this list
right someone please explain it to me. This too is new.
>
> thanks,
> Edith




ECrook33@... wrote:

> From: ECrook33@...
>
> I originally got on this list to try and find someone with symptoms like my
daughter. Since then we have been to yet another doctor who thinks she may have
AIP. ANY INFORMATION WOULD BE HELPFUL.we are still struggling. If I am not using
this list right someone please explain it to me. This too is new.
>
> thanks,
>
> Edith
>
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