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iem-family · The Inborn Errors of Metabolism Family Support List(IEM) is for discussions and support of the families with kids or adults hav
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Hemihypertrophy   Message List  
Reply | Forward Message #62 of 104 |
RE: Hemihypertrophy

Dear Glenn and Pam,
We are *so* very sorry about Micah. You will probably be amazed to learn
that Nathan's death was also on November 20th (1995). You know they were
only a month apart in age...Nathan's birthday was October 6, 1981. Kraig
and I were so taken with Micah during that first Menkes conference we
attended (was it 1985?). He was much like Nathan in personality...joyous
and giggly and excited about being alive....and all the other kids there
were so unaware of their surroundings. We were blessed above anything any
medical people led us to expect, weren't we? Those two boys were such a
joy, not only to us, but to our families and friends, too. God truly gave
us a great gift in them, and for that we will always be so grateful, and
looking toward the day when we will be with them again.
We're going to try to call you...don't know if we can find your phone
number...but we DO understand your pain, and we will keep you in our
prayers, especially tomorrow as you celebrate his precious life. Eighteen
years is such a long time to live with this wretched disease, but not
nearly long enough, is it?
Love,
Jennifer and Kraig

At 11:07 PM 11/24/99 -0600, you wrote:
>From: "Glenn Rees" <grees@...>
>Jennifer and family,
> we are the parents of Micah Rees although we have some very sad
> news to
>pass on. just this last Saturday, Nov 20th Micah passed away.







Sat Nov 27, 1999 5:13 pm

jennifer@xxxxxxxx.xxxx
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Message #62 of 104 |
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does anyone have information on this disease particularly regarding a 6 mo. child. thanks, glenn grees@......
Glenn Rees
grees@...
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Nov 11, 1999
4:42 am

... Are you by any slim chance the Glen Rees who is the father of Micah Rees with Menkes Disease? If so, we'd love to hear from you! Kraig and Jennifer Saks ...
Jennifer Saks
jennifer@xxxxxxxx.xxxx
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Nov 16, 1999
6:26 pm

Sorry Glenn i have never heard of it. ... From: Glenn Rees <grees@...> To: <iem-family@onelist.com> Sent: Thursday, November 11, 1999 4:42 AM Subject:...
Paul Gurrell
Paul.Gurrell@xxxxxxxx...
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Nov 17, 1999
10:42 am

Jennifer and family, we are the parents of Micah Rees although we have some very sad news to pass on. just this last Saturday, Nov 20th Micah passed away. he...
Glenn Rees
grees@xxxxx.xxxx
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Nov 25, 1999
5:07 am

Pam and Glenn, You do not know me. I am a person on the list because I feel my family has a mitochondrial disorder (no official diagnosis yet). Please accept...
Linda
joelinda@xxxxxxxx.xxxx
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Nov 27, 1999
1:53 pm

My deepest sympathy to you and your family....
Janla@xxx.xxx
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Nov 27, 1999
2:19 pm

Dear Glenn and Pam, We are *so* very sorry about Micah. You will probably be amazed to learn that Nathan's death was also on November 20th (1995). You know...
Jennifer Saks
jennifer@xxxxxxxx.xxxx
Send Email
Nov 27, 1999
5:13 pm

OUR PRAYS ARE WITH YOU AT THIS VERY DIFFICULT TIME. lOVE. KIM AND DALE...
Scupper234@xxx.xxx
Send Email
Nov 29, 1999
12:56 am
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