I originally got on this list to try and find someone with symptoms like my daughter. Since then we have been to yet another doctor who thinks she may have...
ECrook33@xxx.xxx
Aug 5, 1999 7:55 pm
Edith, what's AIP--autoimmune something? Susan...
Susan.L.Rump@xxxxxx.x...
Susan.L.Rump@xxxxxx.x...
Aug 6, 1999 12:45 pm
A quick search of search engine www.alltheweb.com displays multiple links to sites with info on this rare metabolic disorder. One such link at...
emtech-journey
emtech-journey@xx.xxxx
Aug 7, 1999 3:10 am
SUSAN, AIP IS ACUTE INTERMITTANT PORPHYRIA. IT IS THE NEW POTENTIAL DIAGNOSIS. HERE WE GO AGAIN! WE HAVE TO HAVE THE TEST AND SEND IT OFF TO MAYO AND SPEND 6...