Jennifer and family,

we are the parents of Micah Rees although we have some very sad news to
pass on. just this last Saturday, Nov 20th
Micah passed away. he has had a very difficult year. just two weeks ago he
had a bad infection of the respiratory system and also a bladder infection.
they had put him on a brand new antibiotic and seem to be improving. in
fact, Friday he seemed to me doing rather well although he has been sleeping
a great deal. in fact all week we were having problems with his body
temperature. he normally ran at 99.5 and above. but all week his
temperature was low. in the 94 to 96 degrees.
it did not seem to be any thing to worry about but it may have been the
first signs his systems were shutting down. on Saturday morning at 4:30am
his night nurse had a good night with him. his ventilator was functioning
fine. at that time his feeding pump had alarmed that it was empty. she
went over to check the pump. she touched Micah's body and noticed it seem
quite cold. she then checked for a heart beat but heard none. she came to
wake Pam and I up to let us know that she thought Micah had passed away. we
got up to see if he was able to be stimulated but he did not respond. we
heard no heart beat. we called a neighbor who is an ER doctor to come to
the house and check Micah. he came up and checked all of the vitals and
other responses and pronounced him deceased at 5 am. we were able to keep
him at home with us until 1:30pm. all of his nurses and most family members
were able to come by and say goodbye. things were not too bad until they
removed his body. that was the first and only time he had gone away without
one of us with him. he was cremated and we are having a memorial service on
Sunday, Nov.28.
Micah would have been 18 on Nov.25. he was a very wonderful son and a real
blessing despite all the difficulties. we will always remember his
contagious smile. he got the biggest kick out of so many things. we know
now he will suffer no longer and that in Jehovah's memory, Micah will be
resurrected. what wonderful things we all will have in store at that time.
we also are so fortunate to have Lilla (8) and Emmaline (5). they seem to
be doing well with all of this.
we were sorry to have brought you this sad news but we know you both
understand what sorrow and adjustments we will be going through.

love, Pam and Glenn Rees

-----Original Message-----
From: Jennifer Saks [mailto:jennifer@...]
Sent: Tuesday, November 16, 1999 12:27 PM
To: iem-family@onelist.com
Subject: Re: [iem-family] Hemihypertrophy


From: Jennifer Saks <jennifer@...>

At 10:42 PM 11/10/99 -0600, you wrote:
>From: "Glenn Rees" <grees@...>
>
>does anyone have information on this disease particularly regarding a 6 mo.
>child.
>
>thanks, glenn grees@...

Are you by any slim chance the Glen Rees who is the father of Micah Rees
with Menkes Disease? If so, we'd love to hear from you!
Kraig and Jennifer Saks
(Nathan, Menkes Disease 6.Oct.1981 - 20.Nov.1995)

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