Message text written by INTERNET:iem-family@onelist.com
>My best friend's daughter was diagnosed with Methylmalonic
Acidemia just last week. The baby is almost 6 months of age. We
are looking for help and hope in this trying time. If I could be
added on the mailing list or where I could get information about
this disorder, it would be greatly appreciated. My e-mail is
hansen@.... This has come as a shock to all and we are
looking for good news. Thank you for responding to this quickly.
Spring Hansen
<
Spring,
My 16 year old son has MMA and despite some kidney damage from his
condition he is otherwise very healthy and doing well. He takes formula
daily and maintains a low protein diet. Hope this helps you some to know
there are other kids doing well with this condition. There seems to be a
great variance in how individuals are affected be this condition.
Conrad Cota
Sacramento, California