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iem-family · The Inborn Errors of Metabolism Family Support List(IEM) is for discussions and support of the families with kids or adults hav
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Liver transplantation for MMA-children?   Message List  
Reply | Forward Message #23 of 104 |
Re: Liver transplantation for MMA-children?

This is the first I've heard of a Metabolic Conference, (per Kathy Stagni
regarding the March 18th conference in Taunton Massachusetts)
Will there be much focus on Mitochondrial Disorders? I have 3 children with
Conplex 4 deficiencies.
Where can I get more info on the conference?
Thanks!
Wendy Heyer
mom to Steven: 9 Brian: 8 and Elizabeth: 16 months
Mon Aug 23, 1999 8:53 pm

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WSHeyer@xxx.xxx
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Forward 		Message #23 of 104 |
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Has anyone heard about liver transplantation for MMA (methylmalonic acidemia) children as a form of healing? Who has experiences with liver transplantation?... 		OGdeBuhr@xxx.xxx
Send Email 		Aug 15, 1999
7:30 pm

Would recommend strongly AGAINST considering liver transplant unless there are some unusual circumstances; althought the tranplant would be potentially...
Paul Benke
pbenke@xxxx.xxx.xxxxx...
Send Email 		Aug 16, 1999
7:44 pm

HOOORAYYY, Dr. Paul!!!!!...
Susan.L.Rump@xxxxxx.x...
Susan.L.Rump@xxxxxx.x...
Send Email 		Aug 16, 1999
11:08 pm

Your letter made me think of 2 questions. 1. Does nephritis have to do with mito disorders? 2. Does acidosis cause bladder and/or kidney infections? Linda S. ...
Linda
joelinda@xxxxxxxx.xxxx
Send Email 		Jun 17, 1999
6:57 am

Has any heard of growth hormones in MMA ? Jennifer Edwards...
pddlft@xxxxx.xxxxxxxx...
pddlft@xxxxx.xxxxxxxx...
Send Email 		Aug 18, 1999
9:43 pm

Linda, As a 5-y-o, I myself had a mysterious glomerulonephrosis that required ACTH to save me. My daughter, now almost 15, has a rare vitamin B12 IEM. Others...
Susan.L.Rump@xxxxxx.x...
Susan.L.Rump@xxxxxx.x...
Send Email 		Aug 18, 1999
11:30 pm

Message text written by INTERNET:iem-family@onelist.com ... acidemia) children as a form of healing? Who has experiences with liver transplantation?< Yes, I...
conrad cota
CCota@xxxxxxxxxx.xxxx
Send Email 		Aug 20, 1999
6:12 pm

Yes, I've heard of families that have opted for this procedure. We have asked Dr. Koch in California to come and speak at the upcoming Metabolic Conference on...
LeeKatMN@xxx.xxx
Send Email 		Aug 22, 1999
12:49 pm

This is the first I've heard of a Metabolic Conference, (per Kathy Stagni regarding the March 18th conference in Taunton Massachusetts) Will there be much...
WSHeyer@xxx.xxx
Send Email 		Aug 23, 1999
8:53 pm
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